Resistance, agency, and liminality in women's accounts of symptom appraisal and help-seeking upon discovery of a breast irregularity

Social Science and Medicine

Volumn 75, Issue 10, 2012, Pages 1753-1761

  Granek, Leeat ^a   Fergus, Karen ^b,c  

^a BEN GURION UNIVERSITY OF THE NEGEV   (Israel)

^b YORK UNIVERSITY   (Canada)

^c DEPARTMENT OF RADIATION ONCOLOGY   (Canada)

Author keywords

Breast cancer; Discourse analysis; Qualitative research; Symptom appraisal; Women

Indexed keywords

CANCER; QUALITATIVE ANALYSIS; RESEARCH; SYMPTOM; WOMENS HEALTH;

ADULT; AGED; ARTICLE; BREAST CANCER; CLINICAL ARTICLE; DISCOURSE ANALYSIS; FEMALE; HEALTH BEHAVIOR; HELP SEEKING BEHAVIOR; HUMAN; MEDICAL INFORMATION; PATIENT ATTITUDE; SELF EVALUATION; SYMPTOM;

ADULT; AGED; BREAST NEOPLASMS; BREAST SELF-EXAMINATION; DECISION MAKING; FEMALE; HUMANS; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE; QUALITATIVE RESEARCH; SYMPTOM ASSESSMENT; TIME-TO-TREATMENT;

EID: 84866165695     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2012.07.016     Document Type: Article

References (60)

1. Adam S.A., Horner J.K., Vessey M.P. Delay in treatment for breast cancer. Community Medicine 1980, 2:195-201.
2. Andersen B.L., Cacioppo J.T., Roberts D.C. Delay in seeking a cancer diagnosis: delay stages and psychophysiological comparison processes. British Journal of Social Psychology 1995, 34:33-52.
3. Arndt V., Sturmer T., Stegmaier C., Ziegler H., Becker A., Brenner H. Provider delay among patients with breast cancer in Germany: a population-based study. Journal of Clinical Oncology 2003, 21(8):1440-1446.
4. Badr H. Coping in marital dyads: a contextual perspective on the role of gender and health. Personal Relationships 2004, 11:197-211.
5. Barg F.K., Grier S.A. Enhancing breast cancer communications: a cultural models approach. International Journal of Research in Marketing 2008, 25:335-342.
6. Bebko C., Krestan J. Too good for her own good: Breaking free from the burden of female responsibility 1990, Harper and Row Publishers, New York.
7. Bish A., Ramirez A., Burgess C., Hunter M. Understanding why women delay in seeking help for breast cancer symptoms. Journal of Psychosomatic Research 2005, 58:321-326.
8. Burgess C.C., Potts H.W.W., Hamed H., Bish A.M., Hunter M.S., Richards M.A., et al. Why do older women delay presentation with breast cancer symptoms?. Psycho-Oncology 2006, 15:962-968.
9. Caplan L., Helzlsouer K. Delay in breast cancer: a review of the literature. Public Health Review 1992-1993, 20:187-214.
10. Cheek J. At the margins? Discourse analysis and qualitative research. Qualitative Health Research 2004, 14:1140-1150.
11. Davis E. Risky business: medical discourse, breast cancer, and narrative. Qualitative Health Research 2008, 18:65-76.
12. Ehrenreich B. Smile or die. How positive thinking fooled America & the World 2009, Granta Publications, London.
13. Facione N.C., Facione P.A. The cognitive restructuring of patient delay in breast cancer. Social Science & Medicine 2006, 63:3137-3149.
14. Facione N.C., Miaskowski C., Dodd M.J., Paul S.M. The self-reported likelihood of patient delay in breast cancer: new thoughts for early detection. Preventive Medicine 2002, 34:397-407.
15. Fenichel O. The psychoanalytic theory of the neurosis 1945, Norton, New York.
16. Fergus K., Fitzgerald B., Granek L., Clemons M., Zalany L., Eisen A. Knowing and disclosure processes in the symptom appraisal of breast cancer: a qualitative analysis of relationship factors influencing presentation for medical evaluation. Journal of Health Psychology 2011, 16(4):653-666.
17. Fergus K.D., Gray R.E. Relationship vulnerabilities during breast cancer: patient and partner perspectives. Psycho-Oncology 2009, 18:1311-1322.
18. Fine M., Carney S. Women, gender, and the law: toward a feminist rethinking of responsibility. Handbook of the psychology of women and gender 2001, 388-409. Wiley, New Jersey. R. Unger (Ed.).
19. Frank A.W. Bringing bodies back in: a decade review. Theory, Culture, and Society 1990, 7(1):131-162.
20. Freud A. The ego and the mechanisms of defense 1937, Hogarth Press, London.
21. Freud S. An outline of psychoanalysis. The Standard Edition of the complete psychological works of Sigmund Freud 1938/1964, Vol. 23:144-207. Hogarth Press, London.
22. Granek L., Fitzgerald B., Fergus K., Clemons M., Heisey R. Parallel tracks: physician and patient perspectives on delay for help-seeking behavior for ambiguous breast symptoms. Canadian Oncology Nursing Journal 2012, 22:3.
23. Gullutte M.M., Brawley O., Kinney A., Powe K., Mooney K. Religiosity, spirituality, and cancer fatalism beliefs on delay in breast cancer diagnosis in African American women. Journal of Religion and Health 2009, (Published online).
24. Hacket T.P., Casem N.H., Raker J.W. Patient delay in cancer. New England Journal of Medicine 1973, 289:14-20.
25. Hardin C., Pommier S., Pommier R.F. The relationships among clinician delay of diagnosis of breast cancer and tumor size, nodal status and stage. American Journal of Surgery 2006, 192:506-508.
26. Kaiser K. The meaning of the survivor identify for women with breast cancer. Social Science & Medicine 2008, 67:79-87.
27. Little M., Jordens F.C., Paul K., Montgomery K., Philipson B. Liminality: a major category of the experience of cancer illness. Social Science & Medicine 1998, 47(10):1485-1494.
28. Loretzen J.M. I know my own body: power and resistance in women's experiences of medical interactions. Body and Society 2008, 14(3):49-70.
29. Lupton D. The imperative of health: Public health and the regulated body 1995, Sage, London.
30. MacArthur C., Smith A. Delay in breast cancer and the nature of presenting symptoms. Lancet 1981, 8220:601-603.
31. Marecek J., Fine M., Kidder L. Working between two worlds: qualitative methods and psychology. From subjects to subjectivities: A handbook of interpretive and participatory methods 2001, 29-44. New York University Press, New York, NY. D.L. Tolman, M. Brydon-Miller (Eds.).
32. Matt D.A., Sementilli M.E., Burish T.G. Denial as a strategy for coping with cancer. Journal of Mental Health Counseling 1988, 10:136-144.
33. Meechan G., Collins J., Petrie K.J. The relationship of symptoms and psychological factors to delay in seeking medical care for breast symptoms. Preventative Medicine 2003, 3:374-378.
34. Meyerowitz B., Watkins I., Sparks F. Quality of life for breast cancer patients receiving adjuvant chemotherapy. American Journal of Nursing 1983, 232.
35. Moyer A., Levine E.G. Clarification of the conceptualization and measurement of denial in psychosocial oncology research. Annals of Behavioral Medicine 1998, 20:149-160.
36. Nosarti C., Crayford T., Roberts J.V., Elias E., McKenzie K., David A.S. Delay in presentation of symptomatic referrals to breast clinic: patient and system factors. British Journal of Cancer 2000, 82(3):742-748.
37. O'Grady H. Woman's relationship with herself: Gender, Foucault, and therapy 2005, Routledge, London.
38. O'Mahoney M., Hegarty J. Help seeking for cancer symptoms: a review of the literature. Oncology Nursing Forum 2009, 36(4):E178-E184.
39. Parker I. Discursive psychology. Critical psychology: An introduction 1997, 284-298. Sage, London. D. Fox, I. Prilleltensky (Eds.).
40. Potter J. Representing reality: Discourse, rhetoric and social construction 1996, Sage, London.
41. Potter S., Mauldin H., Hill H. Access to and participation in breast cancer screening: a review of the recent literature. Clinical Performance and Quality Health Care 1996, 4:74-85.
42. Potter J., Wetherell M. Discourse analysis. Rethinking methods in psychology 1995, Sage, London. J.A. Smith, R. Harre, L. VanLangenhove (Eds.).
43. Richards M.A., Westcombe A.M., Love S.B., Littlejohns P., Ramirez A.J. Influence of delay on survival in-patients with breast cancer: a systematic review. The Lancet 1999, 353:1119-1126.
44. Robertson A. Embodying risk, embodying political rationality: women's accounts of risks for breast cancer. Health, Risk, Society 2000, 2:219-235.
45. Rosenstock M. The health belief model: explaining health behavior through expectancies. Health behavior and health education 1991, 39062. Jossey-Bass, San Francisco. K. Glanz, F.M. Lewis, B. Rimer (Eds.).
46. Roy S.C. 'Taking charge of your health': discourses of responsibility in English-Canadian women's magazines. Sociology of Health and Illness 2008, 31:463-477.
47. Safer M.A., Tharps Q.J., Jackson T.C., Leventhal H. Determinants of three stages of delay in seeking care at a medical clinic. Medical Care 1979, 17:11-29.
48. Steifel F. Understanding why women delay in seeking help for breast cancer symptoms. Journal of Psychosomatic Research 2006, 60:309-310.
49. Taylor S.E., Colins R.L., Skokan L.A., Aspinwal L.G. Maintaining positive illusions in the face of negative information: getting the acts without letting them get to you. Journal of Social and Clinical Psychology 1989, 8:114-129.
50. Thomas-MacLean R. Understanding breast cancer stories via Frank's narrative types. Social Science & Medicine 2004, 58:1647-1657.
51. Walter F., Webster A., Scott S., Emery J. The Andersen Model of total patient delay: a systematic review of its application in cancer diagnosis. Journal of Health Service Research Policy 2012, 17:110-118.
52. Wilkinson S., Kitizinger C. Feminism and discourse: Psychological perspectives 1995, Sage, London.
53. Williams D.L., Tortu S., Thomson J. Factors associated with delays to diagnosis and treatment of breast cancer in women in a Louisiana urban safety net hospital. Women & Health 2010, 50(8):705-718.
54. Willig C. Introduction: making a difference. Applied discourse analysis: Social and psychological interventions 1999, Open University Press, Philadelphia. C. Willig (Ed.).
55. Willig C. Introducing qualitative research in psychology 2008, McGraw Hill/Open University Press, Maidenhead. 2nd ed.
56. Willig C. Unlike a rock, a tree, a horse or an angel...: reflections on the struggle for meaning through writing during the process of a cancer diagnosis. Journal of Health Psychology 2009, 14(2):181-189.
57. Willig C. Cancer diagnosis as discursive capture: phenomenological repercussions of being positioned within dominant constructions of cancer. Social Science & Medicine 2011, 73:897-903.
58. Wong N., King T. The cultural constructions of risk understandings through illness narratives. Journal of Consumer Research 2008, 34:489-594.
59. Wool M.S. Extreme denial in breast cancer patients and capacity for object relations. Psychotherapy and Psychosomatics 1986, 46:196-204.
60. Wool M.S., Goldberg R.J. Assessment of denial in cancer patients: implications for intervention. Journal of Psychosocial Oncology 1986, 4:1-14.