A FAMILY DISEASE: MENTAL HEALTH OF CHILDREN ORPHANED BY AIDS AND LIVING WITH HIV+ CAREGIVERS

International Perspectives on Children and Mental Health: Volume 1: Development and Context: Volume 2: Prevention and Treatment

Volumn 1, Issue , 2011, Pages V1-65-V1-100

  Cluver, Lucie ^a,b   Operario, Don ^c   Gardner, Frances ^a,d   Boyes, Mark E ^a,d  

^a UNIVERSITY OF OXFORD   (United Kingdom)

^b UNIVERSITY OF CAPE TOWN   (South Africa)

^c BROWN UNIVERSITY   (United States)

^d Department of Social Anthropology   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84866083553     PISSN: None     EISSN: None     Source Type: Book    
DOI: None     Document Type: Chapter

References (93)

1. Aber, L., Jones, S., & Raver, C. (2007). Poverty and child development: New perspectives on a defining issue. In L. Aber, S. Bishop-Josef, S. Jones, K. Taaffe McLearn, & D. Phillips (Eds.), Child development and social policy. Washington, DC: American Psychological Association.
2. Anderson, B., & Phillips, H. (2006). Trends in the percentage of children who are orphaned in South Africa: 1995-2005 (Report No. 03-09-06). Pretoria, South Africa: Statistics SA.
3. Antinori, A., Arendt, G., Becker, J., Brew, B., Byrd, D., Cherner, M., et al. (2007). Updated research nosology for HIV-associated neurocognitive disorders. Neurology 69 (18), 1789-1799.
4. Armistead, L., & Forehand, R. (1995). For whom the bell tolls: Parenting decisions and challenges faced by mothers who are HIV infected. Clinical Psychology: Science and Practice, 2, 239-250.
5. Armistead, L., Summers, P., Forehand, R., Simon Morse, P., Morse, E., & Clark, L. (1999). Understanding of HIV/AIDS among children of HIV-infected mothers: Implications for prevention, disclosure and bereavement. Children's Health Care, 28 (4), 277-295.
6. Atwine, B., Cantor-Graae, E., & Bajunirwe, F. (2005). Psychological distress among AIDS orphans in rural Uganda. Social Science and Medicine, 61 (3), 555-564.
7. Baker-Henningham, H., Walker, S., Powell, C., & Meeks-Gardner, J. (2009). A pilot study of the Incredible Years Teacher Training Programme and a curriculum unit on social and emotional skills in community preschools in Jamaica. Child Care Health and Development, 33, 624-631.
8. Barnett, T., & Whiteside, A. (2002). AIDS in the twenty-first century: Disease and globalization. Basingstoke, UK: Palgrave Macmillan.
9. Bauman, L., Foster, G., Silver, E. J., Berman, R., Gamble, I., & Muchaneta, L. (2006). Children caring for their ill parents with HIV/AIDS. Vulnerable Children and Youth Studies, 1 (1), 56-70.
10. Becker, S. (2007). Global perspectives on children's unpaid caregiving in the family: Research and policy on “young carers” in the UK, Australia, the USA and Sub-Saharan Africa. Global Social Policy, 7 (1), 23-50.
11. Bhargava, A. (2005). AIDS epidemic and the psychological well-being and school participation of Ethiopian orphans. Psychology, Health, and Medicine, 10 (3), 263-275.
12. Birdthistle, I., Floyd, S., Machingura, A., Mudziwapasi, N., Gregson, S., & Glynn, J. (2008). From affected to infected? Orphanhood and HIV risk among female adolescents in urban Zimbabwe. AIDS, 22, 759-766.
13. Black, D., & Harris-Hendricks, K. (1992). Father kills mother: Post-traumatic stress disorder in the children. Psychotherapy and Psychosomatics, 57, 152-157.
14. Boivin, M., Green, S., Davies, A., Giordani, B., Mokili, J., & Cutting, W. (1995). A preliminary evaluation of the cognitive and motor effects on pediatric HIV infection in Zairian children. Health Psychology, 14 (1), 13-21.
15. Booysen, F. (2002). Financial responses of households in the Free State province to HIV/AIDS-related morbidity and mortality. South African Journal of Economics, 70 (7), 1193-1215.
16. Brandt, R. (2009). The mental health of people living with HIV/AIDS in Africa: A systematic review. African Journal of AIDS Research, 8 (2), 123-133.
17. Bronfenbrenner, U. (1979). The ecology of human development: Experiments by nature and design. Cambridge, MA: Harvard University Press.
18. Brookes, H., Shishana, O., & Richter, L. (2004). National Household HIV Prevalence and Risk Survey of South African children. Cape Town: Human Sciences Research Council.
19. Brown, L., Macintyre, K., & Trujillo, L. (2003). Interventions to reduce HIV/AIDS stigma: What have we learned? AIDS Education and Prevention, 15 (1), 49-69.
20. Bush-Parker, T. (2000). Perinatal HIV: Children with HIV grow up. Focus, 15 (2), 1-4.
21. Campbell, P., Handa, S., Moroni, M., Odongo, S., & Palermo, T. (2008). A situation analysis of orphans in 11 eastern and southern African countries. Nairobi: UNICEF ESARO.
22. Case, A., & Ardington, C. (2005). The impact of parental death on school enrolment and achievement: Longitudinal evidence from South Africa (CSSR Working Paper No. 97). Cape Town: Centre for Social Science Research, University of Cape Town.
23. Centers for Disease Control and Prevention. (2007). HIV/AIDS Surveillance Report 2007. Retrieved from http://www.cdc.gov/hiv/topics/surveillance/re sources/reports/2006report/pdf/2006SurveillanceReport.pdf.
24. Centers for Disease Control and Prevention. (2009). CDC fact sheet: HIV and AIDS among gay and bisexual men. Retrieved from http://www.cdc.gov/hiv/resources/factsheets/.
25. Cluver, L., Fincham, D., & Seedat, S. (2009). Predictors of post-traumatic stress symptomology amongst AIDS-orphaned children. Journal of Traumatic Stress, 22 (2), 102-112.
26. Cluver, L., Gardner, F., & Operario, D. (2007). Psychological distress amongst AIDS-orphaned children in urban South Africa. Journal of Child Psychology and Psychiatry, 48 (8), 755-763.
27. Cluver, L., Gardner, F., & Operario, D. (2008). Effects of stigma and other community factors on the mental health of AIDS-orphaned children. Journal of Adolescent Health, 42, 410-417.
28. Cluver, L., Gardner, F., & Operario, D. (2009). Caregiving and psychological distress of AIDS-orphaned children. Vulnerable Children and Youth Studies, 4 (3), 185-199.
29. Cluver, L., Kgankga, M., & Kuo, C. (2010). Parenting, disability and HIV/AIDS: Understanding impacts on children in AIDS-affected families. Paper presented at the Children and HIV: Family Support First-Working Together to Achieve Universal Support and Access to Treatment: IAS Conference, Vienna, Austria.
30. Cluver, L., & Operario, D. (2008). Review: Intergenerational linkages of AIDS: Vulnerability of orphaned children for HIV infection. Institute of Development Studies Bulletin, 39 (5), 28-35.
31. Cluver, L., & Orkin, M. (2009). Cumulative risk and AIDS-orphanhood: Interactions of stigma, bullying, and poverty on child mental health in South Africa. Social Science and Medicine, 69 (8), 1186-1193.
32. Deacon, H. (2006). Towards a sustainable theory of health-related stigma: Lessons from the HIV/AIDS literature. Journal of Community and Applied Social Psychology, 16 (6), 418-425.
33. Dearden, C., & Becker, S. (2000). Growing up caring: Vulnerability and transition to adulthood-young carers' experiences. Leicester, UK: Youth Work Press for the Joseph Rowntree Foundation.
34. Des Jarlais, D. C., Perlis, T., Arasteh, K., Torian, L. V., Beatrice, S., Milliken, J., et al. (2005). HIV incidence among injection drug users in New York City, 1990 to 2002: Use of serologic test algorithm to assess expansion of HIV prevention services. American Journal of Public Health, 95 (8), 1439-1444.
35. Dowdney, L. (2000). Annotation: Childhood bereavement following parental death. Journal of Child Psychology and Psychiatry, 41 (7), 819-830.
36. Dowdney, L., Wilson, R., Maughan, B., Allerton, M., Schofield, P., & Skuse, D. (1999). Bereaved children: Psychological disturbance and service provision. British Medical Journal, 319, 354-357.
37. Dunkle, K., Jewkes, R., Brown, H., Gray, G., McIntryre, J., & Harlow, S. (2004). Gender-based violence, relationship power, and risk of HIV infection in women attending antenatal clinics in South Africa. The Lancet, 363 (9419), 1415-1421.
38. Evans, J., & Becker, S. (2009). Children caring for parents with HIV and AIDS: Global issues and policy responses. Bristol, UK: Policy Press.
39. Ferreira, M., Keikelame, M., & Mosaval, Y. (2001). Older women as carers to children and grandchildren affected by AIDS: A study towards supporting the carers. Cape Town: University of Cape Town, Institute of Ageing in Africa.
40. Forehand, R., Armistead, L., Mose, E., Simon, P., & Clarl, L. (1998). The Family Health Project: An investigation of children whose mothers are HIV infected. Journal of Consulting and Clinical Psychology, 66 (3), 513-520.
41. Forehand, R., Jones, D., Kotchick, B., Armistead, L., Morse, E., Simon Morse, P., et al. (2002). Noninfected children of HIV-infected mothers: A 4-year longitudinal study of child psychosocial adjustment and parenting. Behavior Therapy, 33, 579-600.
42. Forehand, R., Pelton, J., Chance, M., Armistead, L., Morse, E., Morse, P., et al. (1999). Orphans of the AIDS epidemic in the United States: Transition-related characteristics and psychosocial adjustment at 6 months after mother's death. AIDS Care, 6, 715-722.
43. Forrest, G., Plumb, C., Ziebland, S., & Stein, A. (2006). Breast cancer in the family-children's perceptions of their mother's cancer and its initial treatment: Qualitative study. British Medical Journal, 332 (7548), 998-1003.
44. Graff Zivin, J., Thirumurthy, H., & Goldstein, M. (2009). AIDS treatment and Intrahousehold resource allocation: Children's nutrition and schooling in Kenya. Journal of Public Economics, 93, 1008-1015.
45. Gray, G. E., Van Niekerk, R., Struthers, H., Violari, A., Martinson, N., McIntyre, J., et al. (2006). The effects of adult morbidity and mortality on household welfare and the well-being of children in Soweto. Vulnerable Children and Youth Studies, 1 (1), 15-28.
46. Green, G., & Smith, R. (2004). The psychosocial and health care needs of HIVpositive people in the United Kingdom: A review. HIV Medicine, 5 (Suppl. 1), 5-46.
47. Gregson, S., Nyamukapa, C., Garnett, G., Wambe, M., Lewis, J., & Mason, P. (2005). HIV infection and reproductive health in teenage women made vulnerable by AIDS in Zimbabwe. AIDS Care, 17 (7), 785-794.
48. Gwandure, C. (2007). Home-based care for parents with AIDS: Impact on children's psychological functioning. Journal of Child and Adolescent Mental Health, 19 (1), 29-44.
49. Havens, J., Mellins, C., & Hunter, J. (2002). Psychiatric aspects of HIV/AIDS in childhood and adolescence. In M. Rutter & E. Taylor (Eds.), Child and adolescent psychiatry: Modern approaches (4th ed., pp. 828-841). Oxford: Blackwell.
50. Hudis, J. (1995). Adolescents living in families with AIDS. In S. Geballe, J. Gruendal, & W. Andiman (Eds.), Forgotten children of the AIDS epidemic (pp. 83-94). New Haven, CT: Yale University Press.
51. Hudson, C. (1996). AIDS in rural South Africa: A paradigm for HIV-1 prevention. International Journal of STD and AIDS, 7, 236-243.
52. Hunter, S. (1990). Orphans as a window on the AIDS epidemic in sub-Saharan Africa: Initial results and implications of a study in Uganda. Social Science and Medicine, 31 (6), 681-690.
53. Jaros, E., Myer, L., & Joska, J. (2009). HIV/AIDS and mental health in sub-Saharan Africa: A systematic review (Unpublished master's of public health thesis). University of Capetown, South Africa.
54. Juma, M., Askew, I., & Ferguson, A. (2007). Situation analysis of the sexual and reproductive health and HIV risks and prevention needs of older orphaned and vulnerable children in Nyanza Province, Kenya. Nairobi: Department of Children's Services, Government of Kenya.
55. Kissin, D., Zapata, L., Yorick, R., Vinogradova, E., Volkova, G., Cherkassova, E., et al. (2007). HIV seroprevalence in street youth, St. Petersburg, Russia. AIDS, 21, 2333-2340.
56. Klein, S., Karchner, W., & O'Connell, D. (2002). Interventions to prevent HIVrelated stigma and discrimination: Findings and recommendations for public health practice. Journal of Public Health Management and Practice, 8 (6), 44-53.
57. Kumakech, E., Cantor-Graae, E., & Maling, S. (2009). Peer-group support intervention improves the psychosocial well-being of AIDS orphans: Cluster randomized trial. Social Science and Medicine, 68 (6), 1038-1043.
58. Kuo, C., & Operario, D. (2009a). Caring for AIDS-orphaned children: A systematic review of studies on caregivers. Vulnerable Children and Youth Studies, 4 (1), 1-12.
59. Kuo, C., & Operario, D. (2011). Health of adults caring for orphaned children in an HIV-endemic community in South Africa. AID Care, DOI: 10.1080/09540121.2011.554527.
60. Levine, C., Gibson Hunt, G., Halper, D., Hart, A. Y., Lautz, J., & Gould, D. (2005). Young adult caregivers: A first look at an unstudied population. American Journal of Public Health, 95 (11), 2071-2075.
61. Luthar, S., Cicchetti, D., & Becker, B. (2000). The construct of resilience: A critical evaluation and guidelines for future work. Child Development, 71 (3), 543-562.
62. Makame, V., Ani, C., & McGregor, S. (2002). Psychological well-being of orphans in Dar El-Salaam, Tanzania. Acta Paediatrica, 91, 459-465.
63. Mason, S., Berger, B., Ferrans, C. E., Sultzman, V., & Fendrich, M. (2010). Developing a measure of stigma by association with African American adolescents whose mothers have HIV. Research on Social Work Practice, 20 (1), 65-73.
64. Mellins, C., Brackis-Cott, E., Abrams, E., & Dolezal, C. (2006). Rates of psychiatric disorder in perinatally HIV-infected youth. Pediatric Infectious Disease Journal, 25, 432-437.
65. Mellins, C., Brackis-Cott, E., Dolezal, C., & Abrams, E. (2004). The role of psychosocial and family factors in adherence to antiretroviral treatment in Human Immunodeficiency Virus-infected children. Pediatric Infectious Disease Journal, 23, 1035-1041.
66. Mellins, C. A., Elkington, K. S., Bauermeister, J. A., Brackis-Cott, E., Dolezal, C., McKay, M., et al. (2009). Sexual and drug use behavior in perinatally HIVinfected youth: Mental health and family influences. Journal of the American Academy of Child and Adolescent Psychiatry, 48 (8), 810-819.
67. Mishra, V., Arnold, F., Otieno, F., Cross, A., & Hong, R. (2007). Education and nutritional status of orphans and children of HIV-infected parents in Kenya. AIDS Education and Prevention, 19 (5), 383-395.
68. Newell, M.-L., Coovadia, H., Cortina-Borja, M., Rollins, N., Gaillard, P., & Dabis, F. (2004). Mortality of infected and uninfected infants born to HIVinfected mothers in Africa: A pooled analysis. The Lancet, 3641, 1236-1243.
69. Nyamukapa, C., Gregson, S., Lopman, B., Saito, S., Watts, H., Monasch, R., et al. (2008). HIV-associated orphanhood and children's psychosocial distress: Theoretical framework tested with data from Zimbabwe. American Journal of Public Health, 98 (1), 133-141.
70. Nyblade, N. (2006). Measuring HIV stigma: Existing knowledge and gaps. Psychology, Health, and Medicine, 11 (3), 335-345.
71. Operario, D., Pettifor, A., Cluver, L., MacPhail, C., & Rees, H. (2007). Prevalence of parental death among young people in South Africa and risk for HIV infection. Journal of Acquired Immune Deficiency Syndromes, 44, 93-98.
72. Palermo, T., & Peterman, A. (2009). Are female orphans at risk for early marriage, early sexual debut, and teen pregnancy? Evidence from sub-Saharan Africa. Studies in Family Planning, 40, 101-112.
73. Paxson, C., & Schady, N. (2007). Does money matter? The effects of cash transfers on child health and development in rural Ecuador (World Bank Policy Research Working Paper No. 1-43). Washington, DC: World Bank.
74. Peterson, N., Drotar, D., Olness, K., Guay, L., & Kiziri Mayengo, R. (2001). The relationship of maternal and child HIV infection to security of attachment among Ugandan infants. Child Psychiatry and Human Development, 32 (1), 3-17.
75. Richter, L., Foster, G., & Sherr, L. (2006). Where the heart is: Meeting the psychosocial needs of young children in the context of HIV/AIDS. Toronto, ON, Canada: Bernard Van Leer Foundation.
76. Richter, L., Stein, A., & Cluver, L. (2009). Infants and young children affected by AIDS. In P. Rohleder, L. Swartz, S. Kalichman, & L. Simbayi (Eds.), HIV/AIDS in South Africa 25 years on: Psychosocial perspectives (pp. 69-88). New York: Springer.
77. Robson, E. (2000). Invisible carers: Young people in Zimbabwe's home-based healthcare. Area, 32 (1), 59-69.
78. Rochat, T., Richter, L., Doll, H., Buthelezi, N., Tomkins, A., & Stein, A. (2006). Depression among pregnant rural South African women undergoing HIV testing. Journal of the American Medical Association, 295 (12), 1376-1378.
79. Rotheram-Borus, M. J., Lee, M., Lin, Y. Y., & Lester, P. (2004). Six-year intervention outcomes for adolescent children of parents with the Human Immunodeficiency Virus. Archives of Pediatric and Adolescent Medicine, 158, 742-748.
80. Rotheram-Borus, M., Lester, P., Song, J., Lin, Y., Leonard, N., Beckwith, L., et al. (2006). Intergenerational benefits of family-based HIV interventions. Journal of Consulting and Clinical Psychology, 74, 622-627.
81. Rotheram-Borus, M. J., Lightfoot, M., & Shen, H. (1999). Levels of emotional distress among parents living with AIDS and their adolescent children. AIDS and Behaviour, 03 (4), 367-372.
82. Rutter, M. (2000). Psychosocial influences: Critiques, findings, and research needs. Development and Psychopathology, 12, 375-405.
83. Rutter, M. (2006). Implications of resilience concepts for scientific understanding. Annals of the New York Academy of Sciences, 1094, 1-12.
84. Shaffer, A., Jones, D., Kotchick, B., Forehand, R., & Family Health Project Research Group. (2001). Telling the children: Disclosure of maternal HIV infection and its effects on child psychosocial adjustment. Journal of Child and Family Studies, 10 (3), 301-313.
85. Simoni, J. M., Davis, M. L., Drossman, J. A., & Weinberg, B. A. (2000). Mothers with HIV/AIDS and their children: Disclosure and guardianship issues. Women and Health, 31 (1), 39-54.
86. Skovdal, M., Ogutu, V. O., Aoro, C., & Campbell, C. (2009). Young carers as social actors: Coping strategies of children caring for ailing or ageing guardians in western Kenya. Social Science and Medicine, 69 (4), 587-595.
87. Springer, S. A., & Altice, F. L. (2005). Managing HIV/AIDS in correctional settings. Current HIV/AIDS Reports, 2 (4), 165-170.
88. Stein, A., Krebs, G., Richter, L., Tomkins, A., Rochat, T., & Bennish, M. (2005). Babies of a pandemic: Infant development and HIV. Archives of the Diseases of Childhood, 90, 116-118.
89. Stein, A., Ramchandani, P., & Murray, L. (2008). Impact of parental psychiatric disorder or physical illness. In M. Rutter, D. Bishop, D. Pine, S. Scott, J. Stevenson, E. Taylor, et al. (Eds.), Rutter's child and adolescent psychiatry (pp. 407-420). Malden, MA: Blackwell.
90. Strode, A., & Barrett Grant, K. (2001). The role of stigma and discrimination in increasing the vulnerability of children and youth infected with and affected by HIV/AIDS. London: Save the Children.
91. Thurman, T., Brown, L., Richter, L., Maharaj, P., & Magnani, R. (2006). Sexual risk behavior among South African adolescents: Is orphan status a factor? AIDS and Behavior, 10 (6), 627-635.
92. UNAIDS. (2008). Report on the global AIDS epidemic. Geneva, Switzerland: Author.
93. Zhao, G., Li, X., Fang, X., Zhao, J., Yang, H., & Stanton, B. (2007). Care arrangement, grief, and psychological problems among children orphaned by AIDS in China. AIDS Care, 19 (9), 1075-1082.