Difficulties in disclosing the diagnosis of dementia: A qualitative study in general practice

British Journal of General Practice

Volumn 62, Issue 601, 2012, Pages

  Phillips, Jill ^a   Pond, Constance Dimity ^a   Paterson, Nerida Elizabeth ^a   Howell, Cate ^c   Shell, Allan ^e   Stocks, Nigel P ^d   Goode, Susan M ^b   Marley, John E ^f  

^a UNIVERSITY OF NEWCASTLE   (Australia)

^b UNIVERSITY OF NEWCASTLE   (Australia)

^c Primary Care Mental Health Unit   (Australia)

^d UNIVERSITY OF ADELAIDE   (Australia)

^e UNIVERSITY OF NEW SOUTH WALES   (Australia)

^f UNIVERSITY OF QUEENSLAND   (Australia)

Author keywords

Dementia; Diagnosis; Disclosure; Family practice; General practitioner; Patients

Indexed keywords

ARTICLE; AUSTRALIA; CAREGIVER; CAREGIVER SUPPORT; COGNITIVE DEFECT; DEMENTIA; DISEASE SEVERITY; DOCTOR PATIENT RELATION; GENERAL PRACTICE; HUMAN; INTERPERSONAL COMMUNICATION; PHYSICIAN ATTITUDE; PRACTICE GUIDELINE; QUALITATIVE RESEARCH; STIGMA;

ATTITUDE OF HEALTH PERSONNEL; AUSTRALIA; CONFIDENTIALITY; DEMENTIA; GENERAL PRACTICE; HUMANS; MULTICENTER STUDIES AS TOPIC; PERCEPTION; PHYSICIAN-PATIENT RELATIONS; QUALITATIVE RESEARCH; RANDOMIZED CONTROLLED TRIALS AS TOPIC; TRUTH DISCLOSURE;

EID: 84865090660     PISSN: 09601643     EISSN: None     Source Type: Journal    
DOI: 10.3399/bjgp12X653598     Document Type: Article

References (34)

1. Glosser G, Wexler D, Balmelli M. Physicians' and families' perspectives on the medical management of dementia. J Am Geriatr Soc 1985; 33(6): 383-391.
2. Iliffe S, Wilcock J, Haworth D. Obstacles to shared care for patients with dementia: a qualitative study. Fam Pract 2006; 23(3): 353-362.
3. Turner S, Iliffe S, Downs M, et al. General practitioners' knowledge, confidence and attitudes in the diagnosis and management of dementia. Age Ageing 2004; 33(5): 461-467.
4. Vernooij-Dassen MJFJ, Moniz-Cook ED, Woods RT, et al. Factors affecting timely recognition and diagnosis of dementia across Europe: from awareness to stigma. Int J Geriatr Psychiatry 2005; 20(4): 377-386.
5. Kaduszkiewicz H, Bachmann C, van den Bussche H. Telling 'the truth' in dementia - do attitude and approach of general practitioners and specialists differ? Patient Educ Couns 2008; 70(2): 220-226.
6. Phillips J, Pond D, Goode S. Timely diagnosis of dementia: can we do better. Sydney: Alzheimer's Australia, 2011.
7. Phillips J, Pond D, Shell A. No time like the present: the importance of a timely dementia diagnosis. Sydney: Alzheimer's Australia, 2010.
8. National Audit Office. Improving services and support for people with dementia. London: National Audit Office, 2007.
9. Department of Health. Living well with dementia: a national dementia strategy. London: Department of Health, 2009.
10. Pinner G, Bouman WP. To tell or not to tell: on disclosing the diagnosis of dementia. Int Psychogeriatr 2002; 14(2): 127-137.
11. Maguire CP, Kirby M, Coen R, et al. Family members' attitudes toward telling the patient with Alzheimer's disease their diagnosis. BMJ 1996; 313(7056): 529-530.
12. Holroyd S, Turnbull Q, Wolf A. What are patients and their families told about the diagnosis of dementia? Results of a family survey. Int J Geriatr Psychiatry 2002; 17: 218-221.
13. Bradford A, Kunik ME, Schulz P, et al. Missed and delayed diagnosis of dementia in primary care: prevalence and contributing factors. Alzheimer Dis Assoc Disord 2009; 23(4): 306-314.
14. Pinner G, Bouman WP. Attitudes of patients with mild dementia and their carers towards disclosure of the diagnosis. Int Psychogeriatr 2003;15(3): 279-288.
15. Koch T, Iliffe S. Rapid appraisal of barriers to the diagnosis and management of patients with dementia in primary care: a systematic review. BMC Fam Pract 2010; 11: 52.
16. Bamford C, Lamont S, Eccles M, et al. Disclosing a diagnosis of dementia: a systematic review. Int J Geriatr Psychiatry 2004; 19(2): 151-169.
17. Cody M, Beck C, Shue VM, Pope S. Reported practices of primary care physicians in the diagnosis andmanagement of dementia. Aging Ment Health 2002; 6(1): 72-76.
18. Downs M, Cook A, Rae C, Collins KE. Caring for patients with dementia: the GP perspective. Aging Ment Health 2000; 4(4): 301-304.
19. Van Hout HP, Vernooij-Dassen MJ, Jansen DA, Stalman WA. Do general practitioners disclose correct information to their patients suspected of dementia and their caregivers? A prospective observational study. Aging Ment Health 2006; 10(2): 151-155.
20. Allen M, Ferrier S, Sargeant J, et al. Alzheimer's disease and other dementias: an organizational approach to identifying and addressing practices and learning needs of family physicians. Educ Gerontol 2005; 31(7): 521-539.
21. Downs M, Clibbens R, Rae C, et al. What do general practitioners tell people with dementia and their families about the condition? A survey of experiences in Scotland. Dementia 2002; 1(1): 47-58.
22. Kissel EC, Carpenter BD. It's all in the details: physician variability in disclosing a dementia diagnosis. Aging Ment Health 2007; 11(3): 273-280.
23. Iliffe S, Robinson L, Brayne C, et al. Primary care and dementia: 1. diagnosis, screening and disclosure. Int J Geriatr Psychiatry 2009; 24(9): 895-901.
24. Garand L, Lingler JH, Conner KO, et al. Diagnostic labels, stigma, and participation in research related to dementia and mild cognitive impairment. Res Gerontol Nurs 2009; 2(2): 112-121.
25. Scholl JM, Sabat SR. Stereotypes, stereotype threat and ageing: implications for the understanding and treatment of people with Alzheimer's disease. Ageing Soc 2008; 28(1): 103-130.
26. Milne A. Dementia screening and early diagnosis: the case for and against. Health Risk Soc 2010; 12(1): 65-76.
27. Robinson A, Emden C, Elder J, Lea E. Multiple views reveal the complexity of dementia diagnosis. Australas J Ageing 2008; 27(4): 183-188.
28. Adams WL, McIlvain HE, Geske JA, Porter JL. Physicians' perspectives on caring for cognitively impaired elders. Gerontologist 2005; 45(2): 231-239.
29. Draper B, Peisah C, Snowdon J, et al. Early dementia diagnosis and the risk of suicide and euthanasia. Alzheimers Dement 2010; 6(1): 75-82.
30. Hansen EC, Hughes C, Routley G, Robinson AL. General practitioners' experiences and understandings of diagnosing dementia: Factors impacting on early diagnosis. Soc Sci Med 2008; 67(11): 1776-1783.
31. Pond D, Paterson N, Shell A, et al. I don't necessarily use that term: Australian GPs' attitudes to breaking the news of dementia [abstract]. 39th Annual Scientific Meeting of the Society for Academic Primary Care Annual Conference. Norwich, 7-9July 2010.
32. Zaleta AK, Carpenter BD. Patient-centered communication during the disclosure of a dementia diagnosis. Am J Alzheimers Dis Other Dement 2010; 25(6): 513-520.
33. Robinson L, Bamford C, Briel R, Spencer J, Whitty P. Improving patient-centered care for people with dementia inmedical encounters: an educational intervention for old age psychiatrists. Int Psychogeriatr 2010; 22(1): 129-138.
34. Taylor S, Bogdan R. Introduction to qualitative research methods: a guidebook and resource. 3rd edn. New York, US: John Wiley & Sons, 1998.