Patient-centered communication during the disclosure of a dementia diagnosis

American Journal of Alzheimer's Disease and other Dementias

Volumn 25, Issue 6, 2010, Pages 513-520

  Zaleta, Alexandra K ^a   Carpenter, Brian D ^a  

^a WASHINGTON UNIVERSITY   (United States)

Author keywords

Alzheimers disease; dementia; diagnostic disclosure; patient centered communication; physician patient relationships

Indexed keywords

AGED; ARTICLE; AUDIO RECORDING; COMMUNICATION SKILL; DEMENTIA; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MALE; PATIENT CARE; PHYSICIAN ATTITUDE; PROFESSIONAL PRACTICE; SOCIAL BEHAVIOR;

EID: 77956485375     PISSN: 15333175     EISSN: None     Source Type: Journal    
DOI: 10.1177/1533317510372924     Document Type: Article

References (47)

1. Connell CM, Boise L., Stuckey JC, Holmes SB, Hudson ML Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physicians. Gerontologist. 2004 ; 44 (4). 500-507.
2. American Psychological Association. Guidelines for the evaluation of dementia and age-related cognitive decline. Am Psychol. 1998 ; 53 (12). 1298-1303.
3. Alzheimers Association [Internet]. Diagnostic Disclosure. 2007[updated 2007 cited 2008 March 2]; http://www.alz.org/professionals-and-researchers- diagnostic-disclosure.asp
4. Post SG, Whitehouse PG Fairhill guidelines on ethics of the care of people with Alzheimers disease: A clinical summary. J Am Geriatr Soc. 1995 ; 43 (12). 1423-1429.
5. Richards S., Hendrie H. Diagnosis, management, and treatment of Alzheimer disease: a guide for the internist. Arch Intern Med. 1999 ; 159 (8). 375-385.
6. American Psychiatric Association. Practice guideline for the treatment of patients with Alzheimers Disease and other dementias: Second edition. Am J Psychiatry. 2007 ; 164 (12 suppl). 5-56.
7. Frankel RM, Quill T. Integrating biopsychosocial and relationship- centered care into mainstream medical practice: A challenge that continues to produce positive results. Fam Syst Health. 2005 ; 23 (4). 413-421.
8. Stewart M., Brown JB, Donner A., et al. The impact of patient-centered care on outcomes. J Fam Pract. 2000 ; 49 (9). 796-804.
9. Epstein RM, Campbell TL, Cohen-Cole SA, McWhinney IR, Smilkstein G. Perspectives on patient-doctor communication. J Fam Pract. 1993 ; 37 (4). 377-388.
10. Epstein RM, Franks P., Fiscella K., et al. Measuring patient-centered communication in patient-physician consultations: theoretical and practical issues. Soc Sci Med. 2005 ; 61 (7). 1516-1528.
11. Street RL Analyzing communication in medical consultations. Do behavioral measures correspond to patients perceptions? Med Care. 1992 ; 30 (11). 976-988.
12. Kitwood T. Dementia reconsidered: the person comes first. Buckingham, UK: Open University Press ; 1997.
13. Beck RS, Daughtridge R., Sloane PD Physician-patient communication in the primary care office: a systematic review. J Am Board Fam Pract. 2002 ; 15 (1). 25-38.
14. Stewart MA Effective physician-patient communication and health outcomes: a review. Can Med Assoc J. 1995 ; 152 (9). 1423-1433.
15. Di Blasi Z., Harkness E., Ernst E., Georgiou A., Kleijnen J. Influence of context effects on health outcomes: a systematic review. Lancet. 2001 ; 357 (9258). 757-762.
16. Roter DL, Stewart M., Putnam SM, Lipkin M., Stiles W., Inui TS Communication patterns of primary care physicians. J Am Med Assoc. 1997 ; 277 (4). 350-356.
17. Bertakis KD, Franks P., Epstein RM Patient-centered communication in primary care: physician and patient gender and gender concordance. J Womens Health. 2009 ; 18 (4). 539-545.
18. Aminzadeh F., Byszewski A., Molnar FJ, Eisner M. Emotional impact of dementia diagnosis: exploring persons with dementia and caregivers perspectives. Aging Ment Health. 2007 ; 11 (3). 281-290.
19. Smith AP, Beattie BL Disclosing a diagnosis of Alzheimers disease: patient and family experiences. Can J Neurol Sci. 2001 ; 28 (suppl 1). S67 - S71.
20. Sugarman J., Roter DL, Cain C., Wallace R., Schmechel D., Welsh-Bohmer KA Proxies and consent discussions for dementia research. J Am Geriatr Soc. 2007 ; 55 (4). 556-561.
21. Bamford C., Lamont S., Eccles M., Robinson L., May C., Bond J. Disclosing a diagnosis of dementia: a systematic review. Int J Geriatr Psychiatry. 2004 ; 19 (2). 151-169.
22. Orange JB, Ryan EB Alzheimers disease and other dementias. Implications for physician communication. Clin Geriatr Med. 2000 ; 16 (1). 153-173, xi.
23. Gillotti C., Thompson T., McNeilis K. Communicative competence in the delivery of bad news. Soc Sci Med. 2002 ; 54 (7). 1011-1023.
24. Lutfey K., Maynard DW Bad news in oncology: how physician and patient talk about death and dying without using those words. Soc Psychol Q. 1998 ; 61 (4). 321-341.
25. Mager WM, Andrykowski MA Communication in the cancer ĝ€bad news consultation: patient perceptions and psychological adjustment. Psychooncology. 2002 ; 11 (1). 35-46.
26. Eggly S., Penner LA, Greene M., Harper FWK, Ruckdeschel JC, Albrecht TL Information seeking during "bad news" oncology interactions: question asking by patients and their companions. Soc Sci Med. 2006 ; 63 (11). 2974-2985.
27. Carpenter BD, Xiong C., Porensky EK, et al. Reaction to a dementia diagnosis in individuals with Alzheimers disease and mild cognitive impairment. J Am Geriatr Soc. 2008 ; 56 (3). 405-412.
28. Storandt M., Grant EA, Miller JP, Morris JC Longitudinal course and neuropathologic outcomes in original vs revised MCI and in pre-MCI. Neurology. 2006 ; 67 (3). 467-473.
29. Morris JC The Clinical Dementia Rating (CDR): Current version and scoring rules. Neurology. 1993 ; 43 (11). 2412-2414.
30. Hughes CP, Berg L., Danziger WL, Coben LA, Martin RL A new clinical scale for the staging of dementia. Br J Psychiatry. 1982 ; 140: 566-572.
31. Roter DL, Larson S. The Roter interaction analysis system (RIAS): utility and flexibility for analysis of medical interactions. Patient Educ Couns. 2002 ; 46 (4). 243-251.
32. Ong LML, Visser MRM, Lammes FB, de Haes JCJM Doctor-patient communication and cancer patients quality of life and satisfaction. Patient Educ Couns. 2000 ; 41 (2). 145-156.
33. Roter DL, Hall JA, Kern DE, Barker LR, Cole KA, Roca RP Improving physicians interviewing skills and reducing patients emotional distress. Arch Intern Med. 1995 ; 155 (17). 1877-1884.
34. Roter DL, Larson S., Fischer CS, Arnold RM, Tulsky JA Experts practice what they preach: a descriptive study of best and normative practices in end of life discussions. Arch Intern Med. 2000 ; 160 (22). 3477-3485.
35. Roter DL The Roter Method of Interaction Process Analysis. Johns Hopkins University. 2008.
36. Roter DL The medical visit context of treatment decision-making and the therapeutic relationship. Health Expect. 2000 ; 3 (1). 17-25.
37. Roter DL The enduring and evolving nature of the patient-physician relationship. Patient Educ Couns. 2000 ; 39 (1). 5-15.
38. Roter DL, Larson S., Sands DZ, Ford DE, Houston T. Can e-mail messages between patients and physicians be patient-centered? Health Commun. 2008 ; 23 (1). 80-86.
39. Beach MC, Roter DL, Wang NY, Duggan PS, Cooper LA Are physicians attitudes of respect accurately perceived by patients and associated with more positive communication behaviors ? Patient Educ Couns. 2006 ; 62 (3). 347-354.
40. SPSS Inc. SPSS for Windows [CD-ROM]. Version 13.0. Chicago, IL: SPSS Inc ; 2004.
41. Zachariae R., Pedersen CG, Jensen AB, Ehrnrooth E., Rossen PB, von der Maase H. Association of perceived physician communication style with patient satisfaction, distress, cancer-related self-efficacy, and perceived control over the disease. Br J Cancer. 2003 ; 88 (5). 658-665.
42. Epstein RM, Morse DS, Frankel RM, Frarey L., Anderson K., Beckman HB Awkward moments in patient-physician communication about HIV risk. Ann Intern Med. 1998 ; 128 (6). 435-442.
43. Iliffe S., Walters K., Rait G. Shortcomings in the diagnosis and management of dementia in primary care: Towards an educational strategy. Aging Ment Health. 2000 ; 4 (4). 286-291.
44. Chapman BP, Duberstein PR, Epstein RM, Fiscella K., Kravitz RL Patient-centered communication during primary care visits for depressive symptoms: what is the role of physician personality ? Med Care. 2008 ; 46 (8). 806-812.
45. Swenson SL, Buell S., Zettler P., White M., Ruston DC, Lo B. Patient-centered communication: do patients really prefer it? J Gen Intern Med. 2004 ; 19 (11). 1069-1079.
46. Takayama T., Yamazaki Y., Katsumata N. Relationship between outpatients perceptions of physicians communication styles and patients anxiety levels in a Japanese oncology setting. Soc Sci Med. 2001 ; 53 (10). 1335-1350.
47. Thompson SC, Nanni C., Schwankovsky L. Patient-oriented interventions to improve communication in a medical office visit. Health Psychol. 1990 ; 9 (4). 390-404.