Addressing patients' information needs: A first evaluation of a question prompt sheet in the pretreatment consultation for patients with esophageal cancer

Diseases of the Esophagus

Volumn 25, Issue 6, 2012, Pages 512-519

  Smets, E M A ^a   van Heijl, M ^a   van Wijngaarden, A K S ^a   Henselmans, I ^a   van Berge Henegouwen, M I ^a  

^a UNIVERSITY OF AMSTERDAM   (Netherlands)

Author keywords

Esophageal cancer; Information need; Quality of life; Question prompt sheet

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL ARTICLE; CONSULTATION; CONTROLLED STUDY; ESOPHAGUS CANCER; ESOPHAGUS RESECTION; FEMALE; HUMAN; HUMAN EXPERIMENT; MALE; NORMAL HUMAN; PATIENT INFORMATION; PATIENT SATISFACTION; PRIORITY JOURNAL; QUESTIONNAIRE; TELECONSULTATION;

ACCESS TO INFORMATION; AGED; AGED, 80 AND OVER; COMMUNICATION; ESOPHAGEAL NEOPLASMS; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INFORMATION SEEKING BEHAVIOR; MALE; MIDDLE AGED; PATIENT EDUCATION AS TOPIC; PATIENT PARTICIPATION; PATIENT SATISFACTION; PHYSICIAN-PATIENT RELATIONS; PILOT PROJECTS; QUALITY OF LIFE;

EID: 84865024226     PISSN: 11208694     EISSN: 14422050     Source Type: Journal    
DOI: 10.1111/j.1442-2050.2011.01274.x     Document Type: Article

References (31)

1. Ferlay J, Autier P, Boniol M, Haenue M, Colombet M, Boyle P. Estimates of the cancer incidence and mortality in Europe in 2006. Ann Oncol 2007; 18: 581-92.
2. Gebski V, Burmeister B, Smithers B M, Foo K, Zalcberg J, Simes J. Survival benefits from neoadjuvant chemoradiotherapy or chemotherapy in oesophageal carcinoma: a meta-analysis. Lancet Oncol 2007; 8: 226-34.
3. Parekh K, annettoni M D. Complications of esophageal resection and reconstruction. Semin Thorac Cardiovasc Surg 2007; 19: 79-88.
4. Hulscher J B, Tijssen J G, Obertop H, van Lanschot J J. Transthoracic versus transhiatal resection for carcinoma of the esophagus: a meta-analysis. Ann Thorac Surg 2001; 72: 306-13.
5. Omloo J M, Lagarde S M, Hulscher J B etal. Extended transthoracic resection compared with limited transhiatal resection for adenocarcinoma of the mid/distal esophagus: five-year survival of a randomized clinical trial. Ann Surg 2007; 246: 992-1000.
6. Lagergren P, Avery K N, Hughes R etal. Health-related quality of life among patients cured by surgery for esophageal cancer. Cancer 2007; 110: 686-93.
7. Barbour A P, Lagergren P, Hughes R, Alderson D, Barham C P, Blazeby J M. Health-related quality of life among patients with adenocarcinoma of the gastro-oesophageal junction treated by gastrectomy or oesophagectomy. Br J Surg 2008; 95: 80-4.
8. Conroy T, Marchal F, Blazeby J M. Quality of life in patients with oesophageal and gastric cancer: an overview. Oncology 2006; 70: 391-402.
9. De Boer A G E M, Genovesi P I O, Sprangers M A G, van Sandick J W, Obertop H, van Lanschot J J. Quality of life in long term survivors after curative transhiatal oesophagectomy for oesophageal carcinoma. Br J Surg 2000; 87: 1716-21.
10. Avery K N, Metcalfe C, Barham C P, Alderson D, Falk S J, Blazeby J M. Quality of life during potentially curative treatment for locally advanced oesophageal cancer. Br J Surg 2007; 94: 1369-76.
11. Parameswaran R, McNair A, Avery K N etal. The role of health-related quality of life outcomes in clinical decision making in surgery for esophageal cancer: a systematic review. Ann Surg Oncol 2008; 15: 2372-9.
12. Koedoot C G, Oort F J, de Haan R J, Bakker P J M, de Graeff A, de Haes J C J M. The content and amount of information given by medical oncologists when telling patients with advanced cancer what their treatment options are: palliative chemotherapy and watchfull waiting. Eur J Cancer 2004; 40: 234-5.
13. Detmar S B, Muller M J, Schornagel J H, Wever L D, Aaronson N K. Health related quality of life assessments and patient-physician communication: aroandomized controlled trial. JAMA 2002; 288: 3027-4.
14. Hagerty R G, Butow P, Ellis P A etal. Cancer patient information preferences for communication of prognosis in the metastatic setting. J Clin Oncol 2004; 22: 1721-30.
15. Leydon G, Boulton M, Ceal M. Cancer patients' information needs and information seeking behaviour, in depth interview study. BMJ 2000; 320: 909-13.
16. Lagarde S J, Franssen S J, van Werven J R, Smets E M A, Tran T C K, Tilanus H W. Patient preferences for the disclosure of prognosis after esophagectomy for cancer with curative intent. Ann Surg Oncol 2008; 15: 3289-98.
17. Franssen S J, Lagarde S M, van Werven J R etal. Psychological factors and preferences for communicating prognosis in esophageal cancer patients. Psychooncology 2009; 17: 1199-207.
18. Dimoska A, Tattersall M H N, Butow P, Sheperd H, Kinnersley P. Can a "prompt list" empower cancer patients to ask relevant questions? Cancer 2008; 113: 225-37.
19. Clayton J, Butow P, Tattersall M H N etal. Asking questions can help: development and preliminary evaluation of a question prompt list for palliative care patients. Br J Cancer 2003; 89: 2069-77.
20. Bruera E, Sweeney C, Willey J etal. Breast cancer patient perception of the helpfulness of a prompt sheet versus a general information sheet during outpatient consultation: a randomized controlled trial. J Pain Symptom Manage 2003; 25: 412-21.
21. Brown P, Butow P, Dunn S M, Tattersall M H N. Promoting patient participation and shortening cancer consultations: a randomised trial. Br J Cancer 2001; 85: 1273-9.
22. McJannett M, Butow P, Tattersall M H N, Thompson J F. Asking questions can help: development of a question prompt list for cancer patients seeing a surgeon. Eur J Cancer Prev 2003; 12: 397-405.
23. Aaronson N K, Ahmedzai S, Bergman B etal. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst 1993; 85: 365-76.
24. Blazeby J M, Conroy T, Hammerlid E etal. Clinical and psychometric validation of an EORTC questionnaire module, the EORTC QLQ-OES18, to assess quality of life in patients with oesophageal cancer. Eur J Cancer 2003; 39: 1384-94.
25. Ong L M, Visser M R M, Lammes F B, de Haes J C J M. Doctor-patient communication and cancer patients' quality of life and satisfaction. Patient Educ Couns 2000; 41: 145-56.
26. Zandbelt L C, Smets E M A, Oort F J, Godfried M H, de Haes J C J M. Satisfaction with the outpatient encounter. A comparison of patients' and physicians' views. J General Inter Med 2004; 19: 1088-95.
27. Clayton J M, Butow P N, Tattersall M H etal. Randomized controlled trial of a prompt list to help advanced cancer patients and their caregivers to ask questions about prognosis and end-of-life care. J Clin Oncol 2007; 25: 715-23.
28. Butow P, Devine R, Boyer M, Pendlebury S, Jackson M, Tattersall M H N. Cancer consultation preparation package: changing patients but not physicians is not enough. J Clin Oncol 2004; 22: 4401-9.
29. Hall J A, Roter D L. Patient gender and communication with physicians: results of a community-based study. Womens Health 1995; 1: 77-95.
30. Eggly S, Penner L A, Greene M, Harper F W, Ruckdeschel J C, Albrecht T L. Information seeking during "bad news" oncology interactions: question asking by patients and their companions. Soc Sci Med 2006; 63: 2974-85.
31. Brown R, Butow P N, Boyer M J, Tattersall M H. Promoting patient participation in the cancer consultation: evaluation of a prompt sheet and coaching in question-asking. Br J Cancer 1999; 80: 242-8.