메뉴 건너뛰기




Volumn 11, Issue 2, 2012, Pages 291-306

Families' experience of oncogenetic counselling: Accounts from a heterogeneous hereditary cancer risk population

Author keywords

Cancer risk; Family; Genetic counselling; Grounded theory; Hereditary cancer

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; AWARENESS; CANCER RISK; CANCER SUSCEPTIBILITY; CLINICAL ARTICLE; COPING BEHAVIOR; EXPERIENCE; FAMILIAL CANCER; FAMILY HISTORY; FEMALE; GENETIC COUNSELING; HIGH RISK POPULATION; HUMAN; MALE; ONCOGENETIC COUNSELING; PORTUGAL; PRIORITY JOURNAL; PUBLIC HOSPITAL; SEMI STRUCTURED INTERVIEW;

EID: 84864713845     PISSN: 13899600     EISSN: 15737292     Source Type: Journal    
DOI: 10.1007/s10689-012-9514-x     Document Type: Article
Times cited : (13)

References (81)
  • 3
    • 16244384475 scopus 로고    scopus 로고
    • The psychotherapy of genetics
    • McDaniel S (2005) The psychotherapy of genetics. Fam Proc 44(1):25-44
    • (2005) Fam Proc , vol.44 , Issue.1 , pp. 25-44
    • McDaniel, S.1
  • 4
    • 16244422307 scopus 로고    scopus 로고
    • Toward a biopsychosocial model for 21st century genetics
    • Rolland J, Williams J (2005) Toward a biopsychosocial model for 21st century genetics. Fam Proc 44:3-24
    • (2005) Fam Proc , vol.44 , pp. 3-24
    • Rolland, J.1    Williams, J.2
  • 5
    • 26444482012 scopus 로고    scopus 로고
    • The role of the family in genetic testing: Theoretical perspectives, current knowledge, and future directions
    • Peterson S (2005) The role of the family in genetic testing: Theoretical perspectives, current knowledge, and future directions. Health Educ Behav 32(5):627-639
    • (2005) Health Educ Behav , vol.32 , Issue.5 , pp. 627-639
    • Peterson, S.1
  • 6
    • 0032946333 scopus 로고    scopus 로고
    • The genetic self: The human genome project, genetic counseling, and family therapy
    • Baker D
    • Peters JA, Djurdjinovic L, Baker D (1999) The genetic self: The Human Genome Project, genetic counseling, and family therapy. Fam Syst Health 17:5-24
    • (1999) Fam Syst Health , vol.17 , pp. 5-24
    • Peters, J.A.1    Djurdjinovic, L.2
  • 7
    • 0040443914 scopus 로고    scopus 로고
    • Genetic risk and the birth of the somatic individual
    • Novas C, Rose N (2000) Genetic risk and the birth of the somatic individual. Econ Soc 29(4):485-513
    • (2000) Econ Soc , vol.29 , Issue.4 , pp. 485-513
    • Novas, C.1    Rose, N.2
  • 8
    • 0033989352 scopus 로고    scopus 로고
    • Impact of genetic testing for huntington disease on the family system
    • Sobel S, Cowan D (2000) Impact of genetic testing for Huntington disease on the family system. Am J Med Genet 90:49-59
    • (2000) Am J Med Genet , vol.90 , pp. 49-59
    • Sobel, S.1    Cowan, D.2
  • 9
    • 0033923041 scopus 로고    scopus 로고
    • The process of family reconstruction after dna testing for huntington disease
    • Sobel S, Cowan D (2000) The process of family reconstruction after DNA testing for Huntington disease. J Genet Couns 9(3): 237-251
    • (2000) J Genet Couns , vol.9 , Issue.3 , pp. 237-251
    • Sobel, S.1    Cowan, D.2
  • 10
    • 78650021677 scopus 로고    scopus 로고
    • The cancer bond: Exploring the formation of cancer, risk perception in families with lynch syndrome
    • Palmquist A, Koehly LM, Peterson SK, Shegog M, Vernon S, Gritz E (2009) The cancer bond: Exploring the formation of cancer, risk Perception in families with Lynch syndrome. J Genet Couns 19(5):473-486
    • (2009) J Genet Couns , vol.19 , Issue.5 , pp. 473-486
    • Palmquist, A.1    Koehly, L.M.2    Peterson, S.K.3    Shegog, M.4    Vernon, S.5    Gritz, E.6
  • 16
    • 0034666815 scopus 로고    scopus 로고
    • The psychological complexity of predictive testing for late onset neurogenetic diseases and hereditary cancers: Implications for multidisciplinary counselling and for genetic education
    • Evers-Kiebooms G, Welkenhysen M, Claes E, Decruyenaere M, Denayer L (2000) The psychological complexity of predictive testing for late onset neurogenetic diseases and hereditary cancers: implications for multidisciplinary counselling and for genetic education. Soc Sci Med 51:831-841
    • (2000) Soc Sci Med , vol.51 , pp. 831-841
    • Evers-Kiebooms, G.1    Welkenhysen, M.2    Claes, E.3    Decruyenaere, M.4    Denayer, L.5
  • 18
    • 49749093443 scopus 로고    scopus 로고
    • Brca mutation-negative women from hereditary breast and ovarian cancer families: A qualitative study of the brca-negative experience
    • Bakos AD, Hutson SP, Loud JT, Peters JA, Giusti RM, Greene MH (2008) BRCA mutation-negative women from hereditary breast and ovarian cancer families: A qualitative study of the BRCA-negative experience. Health Expect 11:220-231
    • (2008) Health Expect , vol.11 , pp. 220-231
    • Bakos, A.D.1    Hutson, S.P.2    Loud, J.T.3    Peters, J.A.4    Giusti, R.M.5    Greene, M.H.6
  • 19
    • 62449182457 scopus 로고    scopus 로고
    • Life trajectories, genetic testing, and risk reduction decisions in 18-39 year old women at risk for hereditary breast and ovarian cancer
    • Hamilton R, Williams JK, Bowers B, Calzone K (2009) Life trajectories, genetic testing, and risk reduction decisions in 18-39 year old women at risk for hereditary breast and ovarian cancer. J Genet Couns 18(2):147-159
    • (2009) J Genet Couns , vol.18 , Issue.2 , pp. 147-159
    • Hamilton, R.1    Williams, J.K.2    Bowers, B.3    Calzone, K.4
  • 20
    • 77949655168 scopus 로고    scopus 로고
    • Genetic diagnostics for hereditary breast cancer: Displacement of uncertainty and responsibility
    • de Vries G, Horstman K (eds), Palgrave/Macmillan, New York
    • Boenink M (2007) Genetic diagnostics for hereditary breast cancer: Displacement of uncertainty and responsibility. In: De Vries G, Horstman K (eds) Genetics from laboratory to society. Palgrave/Macmillan, New York, pp 37-63
    • (2007) Genetics From Laboratory to Society , pp. 37-63
    • Boenink, M.1
  • 21
    • 54549096892 scopus 로고    scopus 로고
    • Health first, genetics second: Exploring families' experiences of communicating genetic information
    • Forrest L, Curnow L, Delatyicki M, Skene L, Aitken M (2008) Health first, genetics second: Exploring families' experiences of communicating genetic information. Eur J Hum Genet 16: 1329-1335
    • (2008) Eur J Hum Genet , vol.16 , pp. 1329-1335
    • Forrest, L.1    Curnow, L.2    Delatyicki, M.3    Skene, L.4    Aitken, M.5
  • 23
    • 27744534654 scopus 로고    scopus 로고
    • It's their blood not mine': Who's responsible for (not) telling relatives about genetic risk?
    • Keenan K, Simpson S, Wilson B, Teijlingen E, McKee L, Haites N et al (2005) 'It's their blood not mine': Who's responsible for (not) telling relatives about genetic risk? Health Risk Soc 7(3):209-226
    • (2005) Health Risk Soc , vol.7 , Issue.3 , pp. 209-226
    • Keenan, K.1    Simpson, S.2    Wilson, B.3    Teijlingen, E.4    McKee, L.5    Haites, N.6
  • 24
    • 0031994762 scopus 로고    scopus 로고
    • Genetic links, family ties, and social bonds: Rights and responsibilities in the face of genetic knowledge
    • Rhodes R (1998) Genetic links, family ties, and social bonds: Rights and responsibilities in the face of genetic knowledge. J Med Philos 23:10-30
    • (1998) J Med Philos , vol.23 , pp. 10-30
    • Rhodes, R.1
  • 25
    • 0041818178 scopus 로고    scopus 로고
    • How families communicate about hnpcc genetic testing: Findings from a qualitative study
    • Peterson SK, Watts BG, Koehly LM (2003) How families communicate about HNPCC genetic testing: Findings from a qualitative study. Am J Med Genet 119:78-86
    • (2003) Am J Med Genet , vol.119 , pp. 78-86
    • Peterson, S.K.1    Watts, B.G.2    Koehly, L.M.3
  • 26
    • 0034605358 scopus 로고    scopus 로고
    • Disclosure to the family of breast/ ovarian cancer genetic test results: Patient's willingness and associated factors
    • Julian-Reynier C, Eisinger F, Chabal F, Lasset C, Nogues C, Stoppa-Lyonnet D et al (2000) Disclosure to the family of breast/ ovarian cancer genetic test results: Patient's willingness and associated factors. Am J Med Genet 94:13-18
    • (2000) Am J Med Genet , vol.94 , pp. 13-18
    • Julian-Reynier, C.1    Eisinger, F.2    Chabal, F.3    Lasset, C.4    Nogues, C.5    Stoppa-Lyonnet, D.6
  • 27
    • 70449625708 scopus 로고    scopus 로고
    • Family communication, genetic testing and colonoscopy screening in hereditary non-polyposis colon cancer: A qualitative study
    • McCann S, MacAuley D, Barnett Y, Bunting B, Bradley A, Jeffers L et al (2009) Family communication, genetic testing and colonoscopy screening in hereditary non-polyposis colon cancer: A qualitative study. Psychooncology 18:1208-1215
    • (2009) Psychooncology , vol.18 , pp. 1208-1215
    • McCann, S.1    MacAuley, D.2    Barnett, Y.3    Bunting, B.4    Bradley, A.5    Jeffers, L.6
  • 28
    • 0037386964 scopus 로고    scopus 로고
    • A social network analysis of communication about hereditary nonpolyposis colorectal cancer genetic testing and family functioning
    • Koehly L, Peterson S, Watts B, Kempf K, Vernon S, Gritz E (2003) A social network analysis of communication about Hereditary nonpolyposis colorectal cancer genetic testing and family functioning. Cancer Epidemiol Biomarkers Prev 12:304-313
    • (2003) Cancer Epidemiol Biomarkers Prev , vol.12 , pp. 304-313
    • Koehly, L.1    Peterson, S.2    Watts, B.3    Kempf, K.4    Vernon, S.5    Gritz, E.6
  • 29
    • 2442440648 scopus 로고    scopus 로고
    • Healthy women from suspected hereditary breast and ovarian cancer families: The significant others in their lives
    • Kenen R, Arden-Jones A, Eeles R (2004) Healthy women from suspected hereditary breast and ovarian cancer families: The significant others in their lives. Eur J Cancer Care 13:169-179
    • (2004) Eur J Cancer Care , vol.13 , pp. 169-179
    • Kenen, R.1    Arden-Jones, A.2    Eeles, R.3
  • 30
    • 33646207698 scopus 로고    scopus 로고
    • A family affair: Themes and perspectives of counselling in genetic services
    • Street E, Soldan J, Gray J (2000) A family affair: Themes and perspectives of counselling in genetic services. Counsel Psychol Rev 15:4-11
    • (2000) Counsel Psychol Rev , vol.15 , pp. 4-11
    • Street, E.1    Soldan, J.2    Gray, J.3
  • 31
    • 0037983218 scopus 로고    scopus 로고
    • A hereditary disorder in the family and the family life-cycle: Huntington's disease as a paradigm
    • Brouwer-Dudokde W, Savenije A, Zoeteweij M, Maat-Kiewit A, Tibben A (2002) A hereditary disorder in the family and the family life-cycle: Huntington's disease as a paradigm. Fam Proc 41(4):677-692
    • (2002) Fam Proc , vol.41 , Issue.4 , pp. 677-692
    • Brouwer-Dudokde, W.1    Savenije, A.2    Zoeteweij, M.3    Maat-Kiewit, A.4    Tibben, A.5
  • 32
    • 68149176537 scopus 로고    scopus 로고
    • Living with anticipatory loss in the new era of genetics
    • Miller S, McDaniel S, Rolland J, Feetham S (eds), Norton, New York
    • Rolland J (2006) Living with anticipatory loss in the new era of genetics. In: Miller S, McDaniel S, Rolland J, Feetham S (eds) Individuals, families, and the new era of genetics. Norton, New York, pp 139-172
    • (2006) Individuals, Families, and the New Era of Genetics , pp. 139-172
    • Rolland, J.1
  • 33
    • 61449477523 scopus 로고    scopus 로고
    • Beating the biological clock: The compressed family life cycle of young women with brca gene alterations
    • Werner-Lin A (2008) Beating the biological clock: The compressed family life cycle of young women with BRCA gene alterations. Soc Work Health Care 47(4):416-437
    • (2008) Soc Work Health Care , vol.47 , Issue.4 , pp. 416-437
    • Werner-Lin, A.1
  • 38
    • 0034343007 scopus 로고    scopus 로고
    • Circumplex model of marital and family systems
    • Olson J (2000) Circumplex model of marital and family systems. J Fam Ther 22:144-167
    • (2000) J Fam Ther , vol.22 , pp. 144-167
    • Olson, J.1
  • 39
    • 0028101416 scopus 로고
    • The impact of chronic illness on families: A family systems perspective
    • Patterson J, Garwick A (1994) The impact of chronic illness on families: A family systems perspective.Ann BehavMed 16:131-142
    • (1994) Ann BehavMed , vol.16 , pp. 131-142
    • Patterson, J.1    Garwick, A.2
  • 40
    • 0002259356 scopus 로고    scopus 로고
    • Systemically-based psychotherapeutic techniques in genetic counselling
    • Enupu D (1997) Systemically-based psychotherapeutic techniques in genetic counselling. J Genet Couns 6(1):1-20
    • (1997) J Genet Couns , vol.6 , Issue.1 , pp. 1-20
    • Enupu, D.1
  • 41
    • 0031667634 scopus 로고    scopus 로고
    • A conceptual framework for the psychosocial issues faced by families with genetic conditions
    • Street E, Soldan J (1998) A conceptual framework for the psychosocial issues faced by families with genetic conditions. Fam Syst Health 16:217-232
    • (1998) Fam Syst Health , vol.16 , pp. 217-232
    • Street, E.1    Soldan, J.2
  • 42
    • 0005821126 scopus 로고
    • Families, illness and disability: An integrative treatment model
    • New York
    • Rolland J (1994) Families, illness and disability: An integrative treatment model. Basic Books, New York
    • (1994) Basic Books
    • Rolland, J.1
  • 43
    • 0345291172 scopus 로고    scopus 로고
    • Families and genetic fate: A millennial challenge
    • Rolland J (1999) Families and genetic fate: A millennial challenge. Fam Syst Health 17:123-132
    • (1999) Fam Syst Health , vol.17 , pp. 123-132
    • Rolland, J.1
  • 45
    • 0842305120 scopus 로고    scopus 로고
    • Assessment of genetic testing and related counseling services: Current research and future directions
    • Wang C, Gonzalez R, Merajver S (2004) Assessment of genetic testing and related counseling services: Current research and future directions. Soc Sci Med 58:1427-1442
    • (2004) Soc Sci Med , vol.58 , pp. 1427-1442
    • Wang, C.1    Gonzalez, R.2    Merajver, S.3
  • 46
    • 62349121843 scopus 로고    scopus 로고
    • Psychosocial aspects of genetic testing
    • Cameron L, Muller C (2009) Psychosocial aspects of genetic testing. Curr Opin Psychiatry 22(2):218-223
    • (2009) Curr Opin Psychiatry , vol.22 , Issue.2 , pp. 218-223
    • Cameron, L.1    Muller, C.2
  • 47
    • 33847682868 scopus 로고    scopus 로고
    • Improving service evaluation in clinical genetics: Identifying effects of genetic diseases on individuals and families
    • McAllister M, Payne K, Nicholls S, McLeod R, Donnai D, Davies L (2007) Improving service evaluation in clinical genetics: identifying effects of genetic diseases on individuals and families. J Genet Couns 16(1):71-83
    • (2007) J Genet Couns , vol.16 , Issue.1 , pp. 71-83
    • McAllister, M.1    Payne, K.2    Nicholls, S.3    McLeod, R.4    Donnai, D.5    Davies, L.6
  • 48
    • 0009987839 scopus 로고    scopus 로고
    • Grounded theory in genetic counselling research
    • McAllister M (2001) Grounded theory in genetic counselling research. J Genet Couns 10(3):233-250
    • (2001) J Genet Couns , vol.10 , Issue.3 , pp. 233-250
    • McAllister, M.1
  • 51
    • 70349487096 scopus 로고    scopus 로고
    • Keeping the individual and family in focus
    • Miller S, McDaniel S, Rolland J, Feetham S (eds), Norton, New York
    • Feetham S, Thomson E (2006) Keeping the individual and family in focus. In: Miller S, McDaniel S, Rolland J, Feetham S (eds) Individuals, families, and the new era of genetics. Norton, New York, pp 3-35
    • (2006) Individuals, Families, and the New Era of Genetics , pp. 3-35
    • Feetham, S.1    Thomson, E.2
  • 52
    • 79551469166 scopus 로고    scopus 로고
    • Experiencing genetic counselling for hereditary cancers: The client's perspective
    • Mendes A, Santos TA, Sousa L (2011) Experiencing genetic counselling for hereditary cancers: The client's perspective. Eur J Cancer Care 20(2):204-211
    • (2011) Eur J Cancer Care , vol.20 , Issue.2 , pp. 204-211
    • Mendes, A.1    Santos, T.A.2    Sousa, L.3
  • 55
    • 0020183624 scopus 로고
    • Circular questioning
    • Penn P (1982) Circular questioning. Fam Proc 21:267-280
    • (1982) Fam Proc , vol.21 , pp. 267-280
    • Penn, P.1
  • 56
    • 24344441084 scopus 로고
    • Qualitative evaluation and research methods
    • Newbury Park
    • Patton MQ (1990) Qualitative evaluation and research methods. Sage, Newbury Park
    • (1990) Sage
    • Patton, M.Q.1
  • 57
    • 61449175968 scopus 로고    scopus 로고
    • Finding meaning in difficult family experiences: Sense-making and interaction processes during joint family storytelling
    • Kellas J, Trees A (2006) Finding meaning in difficult family experiences: Sense-making and interaction processes during joint family storytelling. J Fam Commun 6(1):49-76
    • (2006) J Fam Commun , vol.6 , Issue.1 , pp. 49-76
    • Kellas, J.1    Trees, A.2
  • 58
    • 34547877597 scopus 로고    scopus 로고
    • Danger zones: Risk perceptions of young women from families with hereditary breast and ovarian cancer
    • Werner-Lin A (2007) Danger zones: Risk perceptions of young women from families with hereditary breast and ovarian cancer. Fam Proc 46(3):335-349
    • (2007) Fam Proc , vol.46 , Issue.3 , pp. 335-349
    • Werner-Lin, A.1
  • 59
    • 0030452123 scopus 로고    scopus 로고
    • Lay understanding of genetics: A test of a hypothesis
    • Richards M, Ponder M (1996) Lay understanding of genetics: A test of a hypothesis. J Med Genetics 33:1032-1036
    • (1996) J Med Genetics , vol.33 , pp. 1032-1036
    • Richards, M.1    Ponder, M.2
  • 60
    • 0038163177 scopus 로고    scopus 로고
    • There's this thing in our family: Predictive testing and the social construction of risk for huntington disease
    • Gabe J, Conrad P (eds), Blackwell, Oxford
    • Cox SM, McKellin W (1999) There's this thing in our family: Predictive testing and the social construction of risk for Huntington disease. In: Gabe J, Conrad P (eds) Sociological perspectives on the new genetics. Blackwell, Oxford, pp 121-145
    • (1999) Sociological Perspectives on the New Genetics , pp. 121-145
    • Cox, S.M.1    McKellin, W.2
  • 61
    • 0041411181 scopus 로고    scopus 로고
    • Personal theories of inheritance, coping strategies, risk perception and engagement in hereditary nonpolyposis colon cancer families offered genetic testing
    • McAllister M (2003) Personal theories of inheritance, coping strategies, risk perception and engagement in Hereditary nonpolyposis colon cancer families offered genetic testing. ClinGenet 64:179-189
    • (2003) ClinGenet , vol.64 , pp. 179-189
    • McAllister, M.1
  • 62
    • 0034997291 scopus 로고    scopus 로고
    • Experiences of genetic risk: Disclosure and the gendering of responsibility
    • D'Agincourt-Canning L (2001) Experiences of genetic risk: Disclosure and the gendering of responsibility. Bioeth 15(3): 231-247
    • (2001) Bioeth , vol.15 , Issue.3 , pp. 231-247
    • D'Agincourt-Canning, L.1
  • 63
    • 82155166781 scopus 로고    scopus 로고
    • The importance of older family members in providing social resources and promoting cancer screening in families with a hereditary cancer syndrome
    • doi: 10.1093/geront/gnr049
    • Ashida S, Hadley DW, Goergen AF, Skapinsky KF, Devlin HC, Koehly LM (2011) The importance of older family members in providing social resources and promoting cancer screening in families with a hereditary cancer syndrome. Gerontol. doi: 10.1093/geront/gnr049
    • (2011) Gerontol
    • Ashida, S.1    Hadley, D.W.2    Goergen, A.F.3    Skapinsky, K.F.4    Devlin, H.C.5    Koehly, L.M.6
  • 64
    • 0032834359 scopus 로고    scopus 로고
    • Communicating genetic risk information
    • Marteau T (1999) Communicating genetic risk information. Br Med Bull 55:414-428
    • (1999) Br Med Bull , vol.55 , pp. 414-428
    • Marteau, T.1
  • 65
    • 54849427043 scopus 로고    scopus 로고
    • Disclosure of positive brca1/2-mutation status in young couples: The journey from uncertainty to bonding through partner support
    • Hoskins LM, Roy K, Peters J, Loud JT, Greene MH (2008) Disclosure of positive BRCA1/2-mutation status in young couples: The journey from uncertainty to bonding through partner support. Fam Syst Health 26(3):296-316
    • (2008) Fam Syst Health , vol.26 , Issue.3 , pp. 296-316
    • Hoskins, L.M.1    Roy, K.2    Peters, J.3    Loud, J.T.4    Greene, M.H.5
  • 66
    • 72249090274 scopus 로고    scopus 로고
    • Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: Implications for family health communication interventions
    • Koehly L, Peters J, Kenen R, Hoskins L, Ersig A, Kuhn N et al (2009) Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: implications for family health communication interventions. Am J Public Health 99(12):2203-2209
    • (2009) Am J Public Health , vol.99 , Issue.12 , pp. 2203-2209
    • Koehly, L.1    Peters, J.2    Kenen, R.3    Hoskins, L.4    Ersig, A.5    Kuhn, N.6
  • 67
    • 0001594559 scopus 로고    scopus 로고
    • Family communication and genetic counselling: The case of hereditary breast and ovarian cancer
    • Green J, Richards M, Murton F, Statham H, Hallowell N (1997) Family communication and genetic counselling: The case of hereditary breast and ovarian cancer. J Genet Couns 6:45-60
    • (1997) J Genet Couns , vol.6 , pp. 45-60
    • Green, J.1    Richards, M.2    Murton, F.3    Statham, H.4    Hallowell, N.5
  • 68
    • 3142767619 scopus 로고    scopus 로고
    • Juggling roles and expectations: Dilemmas faced by women talking to relatives about cancer and genetic testing
    • Foster C, Watson M, Moynihan C, Ardern-Jones A, Eeles R (2004) Juggling roles and expectations: Dilemmas faced by women talking to relatives about cancer and genetic testing. Psychol Health 19(4):439-455
    • (2004) Psychol Health , vol.19 , Issue.4 , pp. 439-455
    • Foster, C.1    Watson, M.2    Moynihan, C.3    Ardern-Jones, A.4    Eeles, R.5
  • 69
    • 67649240271 scopus 로고    scopus 로고
    • Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information
    • Nycum G, Avard D, Knoppers B (2009) Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information. Eur J Hum Genet 17:872-880
    • (2009) Eur J Hum Genet , vol.17 , pp. 872-880
    • Nycum, G.1    Avard, D.2    Knoppers, B.3
  • 70
    • 33644908038 scopus 로고    scopus 로고
    • Guidelines for disclosing genetic information to family members: From development to use
    • Godard B, Hurlimann T, Letendre M, Egalite N (2006) Guidelines for disclosing genetic information to family members: From development to use. Fam Cancer 5:103-116
    • (2006) Fam Cancer , vol.5 , pp. 103-116
    • Godard, B.1    Hurlimann, T.2    Letendre, M.3    Egalite, N.4
  • 71
    • 34249651432 scopus 로고    scopus 로고
    • Communicating genetic information in families: A review of guidelines and position papers
    • Forrest L, Delatycki M, Skene L, Aitken M (2007) Communicating genetic information in families: A review of guidelines and position papers. Eur J Hum Genet 15:612-618
    • (2007) Eur J Hum Genet , vol.15 , pp. 612-618
    • Forrest, L.1    Delatycki, M.2    Skene, L.3    Aitken, M.4
  • 72
    • 34848813214 scopus 로고    scopus 로고
    • Process and outcome in communication of genetic information within families: A systematic review
    • Gaff CL, Clarke AJ, Atkinson P, Silvell S, Elwyn G, Iredale R et al (2007) Process and outcome in communication of genetic information within families: A systematic review. Eur J Hum Genet 15:999-1011
    • (2007) Eur J Hum Genet , vol.15 , pp. 999-1011
    • Gaff, C.L.1    Clarke, A.J.2    Atkinson, P.3    Silvell, S.4    Elwyn, G.5    Iredale, R.6
  • 73
    • 77956410380 scopus 로고    scopus 로고
    • What facilitates or impedes family communication following genetic testing for cancer risk? A systematic review and meta-synthesis of primary qualitative research
    • Seymour K, Addington-Hall J, Lucassen A, Foster C (2010) What facilitates or impedes family communication following genetic testing for cancer risk? A systematic review and meta-synthesis of primary qualitative research. J Genet Couns 19:330-342
    • (2010) J Genet Couns , vol.19 , pp. 330-342
    • Seymour, K.1    Addington-Hall, J.2    Lucassen, A.3    Foster, C.4
  • 74
    • 78650217005 scopus 로고    scopus 로고
    • Disclosing genetic information within families: Perspectives of counselees and their at-risk relatives
    • Roshanai AH, Lampic C, Rosenquist R, Nordin K (2010) Disclosing genetic information within families: Perspectives of counselees and their at-risk relatives. Fam Cancer 9(4):669-679
    • (2010) Fam Cancer , vol.9 , Issue.4 , pp. 669-679
    • Roshanai, A.H.1    Lampic, C.2    Rosenquist, R.3    Nordin, K.4
  • 75
    • 0345291276 scopus 로고    scopus 로고
    • Family stories and the use of heuristics: Women from suspected hboc families
    • Kenen R, Arden-Jones A, Eeles R (2003) Family stories and the use of heuristics: Women from suspected HBOC families. Soc Health Illn 25(7):838-865
    • (2003) Soc Health Illn , vol.25 , Issue.7 , pp. 838-865
    • Kenen, R.1    Arden-Jones, A.2    Eeles, R.3
  • 76
    • 0010577764 scopus 로고    scopus 로고
    • Doing the right thing: Genetic risk and responsibility
    • Gabe J, Conrad P (eds), Blackwell Publishers, Oxford
    • Hallowell N (1999) Doing the right thing: Genetic risk and responsibility. In: Gabe J, Conrad P (eds) Sociological perspectives on the new genetics. Blackwell Publishers, Oxford, pp 97-120
    • (1999) Sociological Perspectives on the New Genetics , pp. 97-120
    • Hallowell, N.1
  • 77
    • 79952359333 scopus 로고    scopus 로고
    • Family narratives
    • Gaff C, Bylund C (eds), Oxford University, New York
    • Trees A, Kellas J, Roche M (2010) Family narratives. In: Gaff C, Bylund C (eds) Family communication about genetics. Oxford University, New York, pp 68-86
    • (2010) Family Communication About Genetics , pp. 68-86
    • Trees, A.1    Kellas, J.2    Roche, M.3
  • 78
    • 72049104770 scopus 로고    scopus 로고
    • Family illness narratives of inherited cancer risk: Continuity and transformation
    • Werner-Lin A, Gardner D (2009) Family illness narratives of inherited cancer risk: Continuity and transformation. Fam Syst Health 27(3):201-212
    • (2009) Fam Syst Health , vol.27 , Issue.3 , pp. 201-212
    • Werner-Lin, A.1    Gardner, D.2
  • 80
    • 22144449666 scopus 로고    scopus 로고
    • Whose information is it anyway?
    • de Wert G (2005) Whose information is it anyway? Eur J Hum Genet 13:397-398
    • (2005) Eur J Hum Genet , vol.13 , pp. 397-398
    • De Wert, G.1
  • 81
    • 34447528655 scopus 로고    scopus 로고
    • Should families own genetic information?
    • Lucassen A, Clarke A (2007) Should families own genetic information? Br Med J 335(7609):22-23.
    • (2007) Br Med J , vol.335 , Issue.7609 , pp. 22-23
    • Lucassen, A.1    Clarke, A.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.