메뉴 건너뛰기




Volumn 33, Issue 5, 2012, Pages 1033-1043

Longitudinal Pediatric Palliative Care: Quality of Life & Spiritual Struggle (FACE): Design and methods

Author keywords

Adolescents; Advance care planning; Decision making; Family intervention; HIV AIDS; Pediatric palliative care

Indexed keywords

ANTIRETROVIRUS AGENT;

EID: 84864311646     PISSN: 15517144     EISSN: 15592030     Source Type: Journal    
DOI: 10.1016/j.cct.2012.05.009     Document Type: Article
Times cited : (15)

References (87)
  • 1
    • 74049164246 scopus 로고    scopus 로고
    • Life expectancy after HIV diagnosis based on national HIV surveillance data from 25 states, United States
    • Harrison K.M., Song R., Zhang X. Life expectancy after HIV diagnosis based on national HIV surveillance data from 25 states, United States. J Acquir Immune Defic Syndr 2010, 53(1):124-130.
    • (2010) J Acquir Immune Defic Syndr , vol.53 , Issue.1 , pp. 124-130
    • Harrison, K.M.1    Song, R.2    Zhang, X.3
  • 2
    • 84864311747 scopus 로고    scopus 로고
    • Newly diagnosed HIV patients with no symptoms have good life expectancy
    • Available at:/viewarticle/723870 Accessed June 2010.
    • Shankar C.V. Newly diagnosed HIV patients with no symptoms have good life expectancy. Reuters Health Information 2010, Available at:/viewarticle/723870 Accessed June 2010.
    • (2010) Reuters Health Information
    • Shankar, C.V.1
  • 3
    • 77953916742 scopus 로고    scopus 로고
    • ATHENA national observational cohort study. Life expectancy of recently diagnosed asymptomatic HIV-infected patients approaches that of uninfected individuals
    • Van Sighem A.I., Gras L., Reiss P., Brinkman K., de Wolf F. ATHENA national observational cohort study. Life expectancy of recently diagnosed asymptomatic HIV-infected patients approaches that of uninfected individuals. AIDS 2010, 24:1527-1535.
    • (2010) AIDS , vol.24 , pp. 1527-1535
    • Van Sighem, A.I.1    Gras, L.2    Reiss, P.3    Brinkman, K.4    de Wolf, F.5
  • 4
    • 84872486614 scopus 로고    scopus 로고
    • 2009 HIV surveillance report
    • Accessed August 2011,Centers for Disease Control and Prevention
    • Centers for Disease Control and Prevention 2009 HIV surveillance report. Slide set: HIV surveillance in adolescents and young adults 2011, (http://www.cdc.gov/hiv/topics/surveillance/resources/slides/adolescents/index.htm?source=govdelivery). Accessed August 2011.
    • (2011) Slide set: HIV surveillance in adolescents and young adults
  • 5
    • 74049136153 scopus 로고    scopus 로고
    • Clinical Trials Group 219/219C Team. Declines in mortality rates and changes in causes of death in HIV-1 infected children during the HAART era
    • Brady M.T., Oleske J.M., Williams P.L., Elgie C., Mofenson L.M., Dankner W.M., et al. Clinical Trials Group 219/219C Team. Declines in mortality rates and changes in causes of death in HIV-1 infected children during the HAART era. J Acquir Immune Defic Syndr 2010, 53(1):86-94.
    • (2010) J Acquir Immune Defic Syndr , vol.53 , Issue.1 , pp. 86-94
    • Brady, M.T.1    Oleske, J.M.2    Williams, P.L.3    Elgie, C.4    Mofenson, L.M.5    Dankner, W.M.6
  • 6
    • 0242315067 scopus 로고    scopus 로고
    • Guidelines for adolescent health research: a position paper of the Society for Adolescent Medicine
    • Santelli J.S., Rogers A.S., Rosenfeld W.D., DuRant R.H., Dubler N., Morreale M., et al. Guidelines for adolescent health research: a position paper of the Society for Adolescent Medicine. J Adolsc Health 2003, 33:396-409.
    • (2003) J Adolsc Health , vol.33 , pp. 396-409
    • Santelli, J.S.1    Rogers, A.S.2    Rosenfeld, W.D.3    DuRant, R.H.4    Dubler, N.5    Morreale, M.6
  • 7
    • 0020716786 scopus 로고
    • Children's capacities to decide about participation in research
    • Weithron L.A. Children's capacities to decide about participation in research. IRB 1983, 5:1-5.
    • (1983) IRB , vol.5 , pp. 1-5
    • Weithron, L.A.1
  • 9
    • 84864318370 scopus 로고    scopus 로고
    • Mature minors and end-of-life decision making: a new development in their legal right to participation
    • Badzek L., Kanosky S. Mature minors and end-of-life decision making: a new development in their legal right to participation. J Nurs Law 2002, 8223-8229.
    • (2002) J Nurs Law , pp. 8223-8229
    • Badzek, L.1    Kanosky, S.2
  • 10
    • 84864305716 scopus 로고    scopus 로고
    • Presentation of 2011 research on palliative care. Center to Advance Palliative Care & Cancer Action Network. Washington, D.C. June 22.Unpublished results.
    • McInturff B, Harrington L. Presentation of 2011 research on palliative care. Center to Advance Palliative Care & Cancer Action Network. Washington, D.C. June 22, 2011.Unpublished results.
    • (2011)
    • McInturff, B.1    Harrington, L.2
  • 11
    • 0034849319 scopus 로고    scopus 로고
    • End-of-life issues in AIDS: the research perspective
    • [discussion 84-5]
    • Grady P.A., Knebel A.R., Draper A. End-of-life issues in AIDS: the research perspective. J R Soc Med 2001, 94:479-482. [discussion 84-5].
    • (2001) J R Soc Med , vol.94 , pp. 479-482
    • Grady, P.A.1    Knebel, A.R.2    Draper, A.3
  • 12
    • 58249139452 scopus 로고    scopus 로고
    • Detecting HIV associated neurocognitive disorders in adolescents: what is the best screening tool?
    • Lyon M.E., McCarter R., D'Angelo L. Detecting HIV associated neurocognitive disorders in adolescents: what is the best screening tool?. J Adolesc Health 2009, 44(2):133-135.
    • (2009) J Adolesc Health , vol.44 , Issue.2 , pp. 133-135
    • Lyon, M.E.1    McCarter, R.2    D'Angelo, L.3
  • 14
    • 0034241612 scopus 로고    scopus 로고
    • Committee on Bioethics and Committee on Hospital Care. Palliative care for children
    • American Academy of Pediatrics
    • American Academy of Pediatrics Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics 2000, 106:351-357.
    • (2000) Pediatrics , vol.106 , pp. 351-357
  • 15
    • 9644302424 scopus 로고    scopus 로고
    • What do adolescents want? An exploratory study regarding end-of-life decision-making
    • Lyon M.E., McCabe M.A., Patel K., D'Angelo L.J. What do adolescents want? An exploratory study regarding end-of-life decision-making. J Adolesc Health 2004, 35(6):529.
    • (2004) J Adolesc Health , vol.35 , Issue.6 , pp. 529
    • Lyon, M.E.1    McCabe, M.A.2    Patel, K.3    D'Angelo, L.J.4
  • 16
    • 63449093438 scopus 로고    scopus 로고
    • Development, feasibility and acceptability of the Family-Centered (FACE) Advance Care Planning Intervention for adolescents with HIV
    • Lyon M.E., Garvie P.A., Briggs L., He J., D'Angelo L., McCarter R. Development, feasibility and acceptability of the Family-Centered (FACE) Advance Care Planning Intervention for adolescents with HIV. J Palliative Med 2009, 12:363-372.
    • (2009) J Palliative Med , vol.12 , pp. 363-372
    • Lyon, M.E.1    Garvie, P.A.2    Briggs, L.3    He, J.4    D'Angelo, L.5    McCarter, R.6
  • 17
    • 61549103473 scopus 로고    scopus 로고
    • Who will speak for me? Improving end-of-life decision-making for adolescents with HIV and their families
    • Lyon M.E., Garvie P.A., McCarter R., Briggs L., He J., D'Angelo L. Who will speak for me? Improving end-of-life decision-making for adolescents with HIV and their families. Pediatrics 2009, 123:e199-e206.
    • (2009) Pediatrics , vol.123
    • Lyon, M.E.1    Garvie, P.A.2    McCarter, R.3    Briggs, L.4    He, J.5    D'Angelo, L.6
  • 18
    • 77954550493 scopus 로고    scopus 로고
    • Is it safe? Talking to adolescents about death and dying. A 3-month evaluation of FAmilyCEntered (FACE) advance care planning - anxiety, depression, quality of life. HIV/AIDS
    • Lyon M.E., Garvie P.A., Briggs L., et al. Is it safe? Talking to adolescents about death and dying. A 3-month evaluation of FAmilyCEntered (FACE) advance care planning - anxiety, depression, quality of life. HIV/AIDS. Res Palliat Care 2010, 2:1-11.
    • (2010) Res Palliat Care , vol.2 , pp. 1-11
    • Lyon, M.E.1    Garvie, P.A.2    Briggs, L.3
  • 21
    • 73049107901 scopus 로고    scopus 로고
    • Late stage HIV/AIDS patients' and their familial caregivers' agreement on the Palliative Outcome Scale
    • Krug R., Karus D., Selwyn P.A., Raveis V.H. Late stage HIV/AIDS patients' and their familial caregivers' agreement on the Palliative Outcome Scale. J Pain Symptom Management 2010, 39:23-32.
    • (2010) J Pain Symptom Management , vol.39 , pp. 23-32
    • Krug, R.1    Karus, D.2    Selwyn, P.A.3    Raveis, V.H.4
  • 22
    • 43149109109 scopus 로고    scopus 로고
    • Recruiting participants in end-of-life research
    • Kirchhoff K.T., Kehl K.A. Recruiting participants in end-of-life research. Am J Hosp Palliat Care 2008, 24:515-21.
    • (2008) Am J Hosp Palliat Care , vol.24 , pp. 515-21
    • Kirchhoff, K.T.1    Kehl, K.A.2
  • 23
    • 84855167597 scopus 로고    scopus 로고
    • The impact of advance care planning on end of life care in elderly patients: randomized controlled trial
    • Detering K.M., Hancock A.D., Reade M.C., Silvester W. The impact of advance care planning on end of life care in elderly patients: randomized controlled trial. BMJ 2010, 341:c1345.
    • (2010) BMJ , vol.341
    • Detering, K.M.1    Hancock, A.D.2    Reade, M.C.3    Silvester, W.4
  • 24
    • 0030928583 scopus 로고    scopus 로고
    • Positive psychological states and coping with severe stress
    • Folkman S. Positive psychological states and coping with severe stress. Soc Sci Med 1997, 45(8):1207-1221.
    • (1997) Soc Sci Med , vol.45 , Issue.8 , pp. 1207-1221
    • Folkman, S.1
  • 26
    • 84872486614 scopus 로고    scopus 로고
    • 2009 HIV surveillance report
    • Accessed August 2011, Centers for Disease Control and Prevention
    • Centers for Disease Control and Prevention 2009 HIV surveillance report. Slide set: pediatric HIV surveillance (through 2009) 2011, (http://www.cdc.gov/hiv/topics/surveillance/resources/slides/pediatric/index.htm?source=govdelivery). Accessed August 2011.
    • (2011) Slide set: pediatric HIV surveillance (through 2009)
  • 27
    • 79251627531 scopus 로고    scopus 로고
    • Disparities in HIV/AIDS diagnoses among racial and ethnic minority youth
    • Johnson A.S., Hu X., Aharpe T.T., Dean H.D. Disparities in HIV/AIDS diagnoses among racial and ethnic minority youth. J Equity Health 2009, 2:4-18.
    • (2009) J Equity Health , vol.2 , pp. 4-18
    • Johnson, A.S.1    Hu, X.2    Aharpe, T.T.3    Dean, H.D.4
  • 29
    • 0037362152 scopus 로고    scopus 로고
    • Cultural considerations in end-of-life care: how ethnicity, age, and spirituality affect decisions when death is imminent
    • [quiz 9]
    • Mazanec P., Tyler M.K. Cultural considerations in end-of-life care: how ethnicity, age, and spirituality affect decisions when death is imminent. Am J Nurs 2003, 103:50-58. [quiz 9].
    • (2003) Am J Nurs , vol.103 , pp. 50-58
    • Mazanec, P.1    Tyler, M.K.2
  • 30
    • 0036140681 scopus 로고    scopus 로고
    • Barriers to optimum end-of-life care for minority patients
    • Krakauer E.L., Crenner C., Fox K. Barriers to optimum end-of-life care for minority patients. J Am Geriatr Soc 2002, 50:182-190.
    • (2002) J Am Geriatr Soc , vol.50 , pp. 182-190
    • Krakauer, E.L.1    Crenner, C.2    Fox, K.3
  • 32
    • 0034669461 scopus 로고    scopus 로고
    • Attitudes and desires related to euthanasia and physician-assisted suicide among terminally ill patients and their caregivers
    • Emanuel E.J., Fairclough D.L., Emanuel L.L. Attitudes and desires related to euthanasia and physician-assisted suicide among terminally ill patients and their caregivers. JAMA 2000, 284:2460-2468.
    • (2000) JAMA , vol.284 , pp. 2460-2468
    • Emanuel, E.J.1    Fairclough, D.L.2    Emanuel, L.L.3
  • 35
    • 68949090752 scopus 로고    scopus 로고
    • Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial
    • Bakitas M., Lyons K.D., Hegel M.T., et al. Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial. JAMA 2009, 302:746-749.
    • (2009) JAMA , vol.302 , pp. 746-749
    • Bakitas, M.1    Lyons, K.D.2    Hegel, M.T.3
  • 37
    • 0035469305 scopus 로고    scopus 로고
    • Randomized controlled trials in palliative care: overcoming the obstacles
    • Hudson P., Aranda S., McMurray N. Randomized controlled trials in palliative care: overcoming the obstacles. Int J Palliat Nurs 2001, 7:427-34.
    • (2001) Int J Palliat Nurs , vol.7 , pp. 427-34
    • Hudson, P.1    Aranda, S.2    McMurray, N.3
  • 38
    • 0037262623 scopus 로고    scopus 로고
    • Methodologic issues in collecting data from debilitated patients with cancer near the end of life
    • McMillan S.C., Weitzner M.A. Methodologic issues in collecting data from debilitated patients with cancer near the end of life. Oncol Nurs Forum 2003, 30:123-126.
    • (2003) Oncol Nurs Forum , vol.30 , pp. 123-126
    • McMillan, S.C.1    Weitzner, M.A.2
  • 39
    • 0016224471 scopus 로고
    • The randomization and stratification of patients to clinical trials
    • Zelen M. The randomization and stratification of patients to clinical trials. J Chron Dis 1974, 27:365-375.
    • (1974) J Chron Dis , vol.27 , pp. 365-375
    • Zelen, M.1
  • 40
    • 0006559563 scopus 로고
    • Randomization and stratification in cancer clinical trials: an international survey
    • Oxford University Press, New York, M.E. Buyse, M.J. Staquet, R.J. Sylvester (Eds.)
    • Lagakos S.W. Randomization and stratification in cancer clinical trials: an international survey. Cancer clinical trials, methods and practice 1984, 276-286. Oxford University Press, New York. M.E. Buyse, M.J. Staquet, R.J. Sylvester (Eds.).
    • (1984) Cancer clinical trials, methods and practice , pp. 276-286
    • Lagakos, S.W.1
  • 41
    • 1842589304 scopus 로고    scopus 로고
    • Patient-centered advance care planning in special patient populations: a pilot study
    • Briggs L.A., et al. Patient-centered advance care planning in special patient populations: a pilot study. J Prof Nurs 2004, 20(1):47-58.
    • (2004) J Prof Nurs , vol.20 , Issue.1 , pp. 47-58
    • Briggs, L.A.1
  • 43
    • 77649173768 scopus 로고
    • Longitudinal data analysis using generalized linear models
    • Liang K.Y., Zeger S.L. Longitudinal data analysis using generalized linear models. Biometrika 1986, 73:13-22.
    • (1986) Biometrika , vol.73 , pp. 13-22
    • Liang, K.Y.1    Zeger, S.L.2
  • 52
    • 32044459218 scopus 로고    scopus 로고
    • End-of-life care preferences of pediatric patients with cancer
    • Hinds P.S., Drew D., Oakes L.L., et al. End-of-life care preferences of pediatric patients with cancer. J Clin Oncol 2005, 23:9146-9154.
    • (2005) J Clin Oncol , vol.23 , pp. 9146-9154
    • Hinds, P.S.1    Drew, D.2    Oakes, L.L.3
  • 53
    • 58149231401 scopus 로고    scopus 로고
    • How I wish to be remembered: the use of an advance care planning document in adolescent and young adult populations
    • Wiener L., Ballard E., Brennan T., Battles H., Martinez P., Pao M. How I wish to be remembered: the use of an advance care planning document in adolescent and young adult populations. J Palliat Med 2008, 11:1309-1313.
    • (2008) J Palliat Med , vol.11 , pp. 1309-1313
    • Wiener, L.1    Ballard, E.2    Brennan, T.3    Battles, H.4    Martinez, P.5    Pao, M.6
  • 54
    • 0033305929 scopus 로고    scopus 로고
    • Brain development during childhood and adolescence: a longitudinal MRI study
    • Giedd J.N., Blumenthal J., Jeffries N.O., et al. Brain development during childhood and adolescence: a longitudinal MRI study. Nat Neurosci 1999, 2:861-863.
    • (1999) Nat Neurosci , vol.2 , pp. 861-863
    • Giedd, J.N.1    Blumenthal, J.2    Jeffries, N.O.3
  • 56
    • 33747878674 scopus 로고    scopus 로고
    • Pediatric palliative care moving forward: empathy, competence, quality, and the need for systematic change
    • Kane J.R. Pediatric palliative care moving forward: empathy, competence, quality, and the need for systematic change. J Palliat Med 2006, 9:847-849.
    • (2006) J Palliat Med , vol.9 , pp. 847-849
    • Kane, J.R.1
  • 57
    • 0842346537 scopus 로고    scopus 로고
    • Care of the dying adolescent: special considerations
    • Freyer D.R. Care of the dying adolescent: special considerations. Pediatrics 2004, 113:381-388.
    • (2004) Pediatrics , vol.113 , pp. 381-388
    • Freyer, D.R.1
  • 59
    • 84864316690 scopus 로고    scopus 로고
    • Spiritual well-being as a determinant of HIV/AIDS clinical outcomes and psychological adjustment in inner-city adolescents infected with HIV
    • Kao E.T., Lyon M.E., D'Angelo L.J. Spiritual well-being as a determinant of HIV/AIDS clinical outcomes and psychological adjustment in inner-city adolescents infected with HIV. J Adolesc Health 2009, 44:S15-S16.
    • (2009) J Adolesc Health , vol.44
    • Kao, E.T.1    Lyon, M.E.2    D'Angelo, L.J.3
  • 60
    • 79956142638 scopus 로고    scopus 로고
    • Spirituality and religion in adolescents with and without HIV/AIDS
    • Bernstein K., Lyon M.E., D'Angelo L.J. Spirituality and religion in adolescents with and without HIV/AIDS. J Adolesc Health 2009, 44:S25.
    • (2009) J Adolesc Health , vol.44
    • Bernstein, K.1    Lyon, M.E.2    D'Angelo, L.J.3
  • 61
    • 0035214960 scopus 로고    scopus 로고
    • Spirituality and end-of-life care for an adolescent with AIDS
    • Lyon M.E., Townsend-Akpan C., Thompson A. Spirituality and end-of-life care for an adolescent with AIDS. AIDS Patient Care STDS 2001, 15:555-560.
    • (2001) AIDS Patient Care STDS , vol.15 , pp. 555-560
    • Lyon, M.E.1    Townsend-Akpan, C.2    Thompson, A.3
  • 62
    • 19944376548 scopus 로고    scopus 로고
    • HIV/AIDS: a minority health issue
    • Cargill V.A., Stone V.E. HIV/AIDS: a minority health issue. Med Clin North Am 2005, 89:895-912.
    • (2005) Med Clin North Am , vol.89 , pp. 895-912
    • Cargill, V.A.1    Stone, V.E.2
  • 63
    • 13244281705 scopus 로고    scopus 로고
    • Cultural diversity at the end of life: issues and guidelines for family physicians
    • Searight H.R., Gafford J. Cultural diversity at the end of life: issues and guidelines for family physicians. Am Fam Physician 2005, 71:515-522.
    • (2005) Am Fam Physician , vol.71 , pp. 515-522
    • Searight, H.R.1    Gafford, J.2
  • 64
    • 67651171233 scopus 로고    scopus 로고
    • Concerns about end-of-life care and support for euthanasia
    • Givens J.L., Mitchell S.L. Concerns about end-of-life care and support for euthanasia. J Pain Symptom Manage 2009, 38:167-173.
    • (2009) J Pain Symptom Manage , vol.38 , pp. 167-173
    • Givens, J.L.1    Mitchell, S.L.2
  • 65
    • 0033977180 scopus 로고    scopus 로고
    • Patient race and decisions to withhold or withdraw life-sustaining treatments for seriously ill hospitalized adults. SUPPORT investigators. Study to understand prognoses and preferences for outcomes and risks of treatments
    • Phillips R.S., Hamel M.B., Teno J.M., et al. Patient race and decisions to withhold or withdraw life-sustaining treatments for seriously ill hospitalized adults. SUPPORT investigators. Study to understand prognoses and preferences for outcomes and risks of treatments. Am J Med 2000, 108:14-19.
    • (2000) Am J Med , vol.108 , pp. 14-19
    • Phillips, R.S.1    Hamel, M.B.2    Teno, J.M.3
  • 66
    • 13644260286 scopus 로고    scopus 로고
    • Uncertainties associated with incidence estimates of HIV/AIDS diagnoses adjusted for reporting delay and risk redistrobution
    • Song R., Hall H.I., Frey R. Uncertainties associated with incidence estimates of HIV/AIDS diagnoses adjusted for reporting delay and risk redistrobution. Stat Med 2005, 24:453-464.
    • (2005) Stat Med , vol.24 , pp. 453-464
    • Song, R.1    Hall, H.I.2    Frey, R.3
  • 67
    • 20144377456 scopus 로고    scopus 로고
    • Trends in antiretroviral therapy use and survival rates for a large cohort of HIV-infected children and adolescents in the United States, 1989-2001
    • McConnell M.S., Byers R.H., Frederick T., et al. Trends in antiretroviral therapy use and survival rates for a large cohort of HIV-infected children and adolescents in the United States, 1989-2001. J Acquir Immune Defic Syndr 2005, 38:488-494.
    • (2005) J Acquir Immune Defic Syndr , vol.38 , pp. 488-494
    • McConnell, M.S.1    Byers, R.H.2    Frederick, T.3
  • 68
    • 73549117927 scopus 로고    scopus 로고
    • Accessed August 2011, National Consensus Project for Quality Palliative Care
    • National Consensus Project for Quality Palliative Care Clinical practice guidelines for quality palliative care 2009, http://www.nationalconsensusproject.org. Accessed August 2011. second edition.
    • (2009) Clinical practice guidelines for quality palliative care
  • 70
    • 0033959254 scopus 로고    scopus 로고
    • NIMH Diagnostic Interview Schedule for Children Version IV (NIMH DISC-IV): description, differences from previous versions, and reliability of some common diagnoses
    • Shaffer D., Fisher P., Lucas C.P., Dulcan M.K., Schwab-Stone M.E. NIMH Diagnostic Interview Schedule for Children Version IV (NIMH DISC-IV): description, differences from previous versions, and reliability of some common diagnoses. J Am Acad Child Adolesc Psychiatry 2000, 39(1):28-38.
    • (2000) J Am Acad Child Adolesc Psychiatry , vol.39 , Issue.1 , pp. 28-38
    • Shaffer, D.1    Fisher, P.2    Lucas, C.P.3    Dulcan, M.K.4    Schwab-Stone, M.E.5
  • 72
    • 0003516115 scopus 로고
    • The Psychological Corporation, Harcourt Brace & Company, San Antonio
    • Beck A.T., Steer R.A. Beck anxiety inventory manual 1993, The Psychological Corporation, Harcourt Brace & Company, San Antonio.
    • (1993) Beck anxiety inventory manual
    • Beck, A.T.1    Steer, R.A.2
  • 73
    • 0028795768 scopus 로고
    • Validation of a decisional confiict scale
    • O'Connor A.M. Validation of a decisional confiict scale. Med Dis Making 1995, 15:25-30.
    • (1995) Med Dis Making , vol.15 , pp. 25-30
    • O'Connor, A.M.1
  • 74
    • 0037169259 scopus 로고    scopus 로고
    • Responses to a 1 month self-report on adherence to antiretroviral therapy are consistent with electronic data and virological treatment outcome
    • Walsh J.C., Mandalia S., Gazzard B.G. Responses to a 1 month self-report on adherence to antiretroviral therapy are consistent with electronic data and virological treatment outcome. AIDS 2002, 16:269-277.
    • (2002) AIDS , vol.16 , pp. 269-277
    • Walsh, J.C.1    Mandalia, S.2    Gazzard, B.G.3
  • 75
    • 0035432179 scopus 로고    scopus 로고
    • PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations
    • Varni J.W., Seid M., Kurtin P.S. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001, 39:800-812.
    • (2001) Med Care , vol.39 , pp. 800-812
    • Varni, J.W.1    Seid, M.2    Kurtin, P.S.3
  • 76
    • 0033073557 scopus 로고    scopus 로고
    • The PEDSQL: measurement model for the pediatric quality of life inventory
    • Varni J.W., Seid M., Rode C.A. The PEDSQL: measurement model for the pediatric quality of life inventory. Med Care 1999, 37:126-139.
    • (1999) Med Care , vol.37 , pp. 126-139
    • Varni, J.W.1    Seid, M.2    Rode, C.A.3
  • 77
    • 0001107898 scopus 로고    scopus 로고
    • Development and use of a pediatric quality of life questionnaire in AIDS clinical trials: reliability and validity of the general health assessment for children
    • Lawrence Erlbaum Associates, Mahway, NJ, D. Drotar (Ed.)
    • Gortmaker S.L., Lenderking W.R., Clark C., et al. Development and use of a pediatric quality of life questionnaire in AIDS clinical trials: reliability and validity of the general health assessment for children. Measuring health-related quality of life in children and adolescents: implications for research and practice 1998, 219-235. Lawrence Erlbaum Associates, Mahway, NJ. D. Drotar (Ed.).
    • (1998) Measuring health-related quality of life in children and adolescents: implications for research and practice , pp. 219-235
    • Gortmaker, S.L.1    Lenderking, W.R.2    Clark, C.3
  • 78
    • 0030749347 scopus 로고    scopus 로고
    • Measuring quality of life in early HIV disease: the modular approach
    • Lenderking W.R., Testa M.A., Katzenstein D., Hammer S. Measuring quality of life in early HIV disease: the modular approach. Qual Life Res 1997, 6:515-530.
    • (1997) Qual Life Res , vol.6 , pp. 515-530
    • Lenderking, W.R.1    Testa, M.A.2    Katzenstein, D.3    Hammer, S.4
  • 80
    • 55149087505 scopus 로고    scopus 로고
    • Reliability and validity of the brief multidimensional measure of religiousness/spirituality among adolescents
    • Harris S.K., Sherrit L.R., Holder D.W., Kulig J., Schrier L.A., Knight J.R. Reliability and validity of the brief multidimensional measure of religiousness/spirituality among adolescents. J Relig Health 2007, 47:438-457.
    • (2007) J Relig Health , vol.47 , pp. 438-457
    • Harris, S.K.1    Sherrit, L.R.2    Holder, D.W.3    Kulig, J.4    Schrier, L.A.5    Knight, J.R.6
  • 81
    • 0037262678 scopus 로고    scopus 로고
    • Advances in the conceptualization and measurement of religion and spirituality. Implications for physical and mental health research 2003
    • Hill P.C., Pargament K.I. Advances in the conceptualization and measurement of religion and spirituality. Implications for physical and mental health research 2003. Am Psychol 2003, 58:64-74.
    • (2003) Am Psychol , vol.58 , pp. 64-74
    • Hill, P.C.1    Pargament, K.I.2
  • 83
    • 0034113925 scopus 로고    scopus 로고
    • The many methods of religious coping: development and initial validation of the RCOPE
    • Pargament K.I., Koenig H.G., Perez L.M. The many methods of religious coping: development and initial validation of the RCOPE. J Clin Psychol 2000, 56:519-543.
    • (2000) J Clin Psychol , vol.56 , pp. 519-543
    • Pargament, K.I.1    Koenig, H.G.2    Perez, L.M.3
  • 84
    • 0032797871 scopus 로고    scopus 로고
    • The quality of patient-doctor communication about end-of-life care: a study of patients with advanced AIDS and their primary care clinicians
    • Curtis J.R., Patrick D.L., Caldwell E., Greenlee H., Collier A.C. The quality of patient-doctor communication about end-of-life care: a study of patients with advanced AIDS and their primary care clinicians. AIDS 1999, 13:1123-1131.
    • (1999) AIDS , vol.13 , pp. 1123-1131
    • Curtis, J.R.1    Patrick, D.L.2    Caldwell, E.3    Greenlee, H.4    Collier, A.C.5
  • 85
    • 84872493481 scopus 로고    scopus 로고
    • [Retrieved from], [Accessed August 2011]
    • Five wishes. Aging with dignity web site [Retrieved from], [Accessed August 2011]. http://www.agingwithdignity.org/five-wishes.php.
    • Five wishes. Aging with dignity web site


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.