Care of the Dying Adolescent: Special Considerations

Pediatrics

Volumn 113, Issue 2, 2004, Pages 381-388

  Freyer, David R ^a  

^a HELEN DEVOS CHILDREN S HOSPITAL   (United States)

Author keywords

Adolescents; Children; Death and dying; Decision making; End of life; Minors; Palliative care

Indexed keywords

ADOLESCENT; CHILD CARE; CHRONIC DISEASE; DEATH; DYING; HUMAN; LEGAL ASPECT; MEDICAL DECISION MAKING; MEDICAL ETHICS; MENTAL CAPACITY; PALLIATIVE THERAPY; PATIENT COUNSELING; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; REVIEW; SOCIAL ASPECT; SOCIAL SUPPORT; TERMINAL CARE; TERMINAL DISEASE; UNITED STATES;

DEATH AND EUTHANASIA;

ADOLESCENT; ADOLESCENT PSYCHOLOGY; ADVANCE DIRECTIVES; DECISION MAKING; HUMANS; MENTAL COMPETENCY; PALLIATIVE CARE; PARENTAL CONSENT; PERSONAL AUTONOMY; PHYSICIAN-PATIENT RELATIONS; TERMINAL CARE; TERMINALLY ILL; UNITED STATES;

EID: 0842346537     PISSN: 00314005     EISSN: None     Source Type: Journal    
DOI: 10.1542/peds.113.2.381     Document Type: Review

References (39)

1. Dorland's Illustrated Medical Dictionary. 28th ed. Philadelphia, PA: WB Saunders; 1994:31
2. Miniño AM, Arias E, Kochanek KD, Murphy SL, Smith BL. Natl Vital Stat Rep. 2002;50:1-119. Available at: www.cdc.gov/nchs/data/nvsr/nvsr50/nvsr50_15.pdf
3. Klopfenstein KJ. Adolescents, cancer, and hospice. Adolesc Med. 1999;10:437-443
4. Hamburg BA. Psychosocial development. In: Friedman SB, Fisher MM, Schonberg SK, Alderman EM, eds. Comprehensive Adolescent Health Care. 2nd ed. St Louis, MO: Mosby; 1998:38-49
5. Carr-Gregg MRC, Sawyer SM, Clarke CF, Bowes G. Caring for the terminally ill adolescent. Med J Aust. 1997;166:255-258
6. Faulkner KW, Armstrong-Dailey A. Care of the dying child. In: Pizzo PA, Poplack DG, eds. Principles and Practice of Pediatric Oncology. 3rd ed. Philadelphia, PA: Lippincott-Raven Press; 1997:1343-1352
7. Foley GV, Whittam EH. Care of the child dying of cancer: Part I. CA Cancer J Clin. 1990;40:327-354
8. Bluebond-Langner M. Worlds of dying children and their well siblings. Death Stud. 1989;13:1-16
9. Bluebond-Langner M. The Private World of Dying Children. Princeton, NJ: Princeton University Press; 1980
10. Noll RB, Gartstein MA, Vannatta K, Correll J, Bukowski WM, Davies WH. Social, emotional, and behavioral functioning of children with cancer. Pediatrics. 1999;103:71-78
11. Easson WM. The seriously ill or dying adolescent: special needs and challenges. Postgrad Med. 1995;78:183-189
12. Beauchamp TL, Childress JF. Principles of Biomedical Ethics. 5th ed. New York, NY: Oxford University Press; 2001:57-112
13. Leikin S. A proposal concerning decisions to forgo life-sustaining treatment for young people. J Pediatr. 1989;115:17-22
14. King NM, Cross AW. Children as decision makers: guidelines for pediatricians. J Pediatr. 1989;115:10-16
15. Weir RF, Peters C. Affirming the decisions adolescents make about life and death. Hastings Cent Rep. 1997;27:29-40
16. American Academy of Pediatrics. Committee on Bioethics. Guidelines on forgoing life-sustaining medical treatment. Pediatrics. 1994;93:532-536
17. American Academy of Pediatrics. Committee on Bioethics. Informed consent, parental permission, and assent in pediatric practice. Pediatrics. 1995;95:314-317
18. Nitschke R, Meyer WH, Sexauer CL, Parkhurst JB, Foster P, Huszti H. Care of terminally ill children with cancer. Med Pediatr Oncol. 2000;34:268-270
19. Freyer DR. Children with cancer: special considerations in the discontinuation of life-sustaining treatment. Med Pediatr Oncol. 1992;20:136-142
20. Ross LF. Health care decisionmaking by children. Is it in their best interest? Hastings Cent Rep. 1997;27:41-45
21. Schoeman F. Rights of children, rights of parents, and the moral basis of the family. Ethics. 1980;91:6-19
22. Moreno J, Schonberg K. Case four: saying "no" to treatment in terminal illness. In: Blustein J, Levine C, Dubler N, eds. The Adolescent Alone: Decision Making in Health Care in the United States. Cambridge, United Kingdom: Cambridge University Press; 1999:205-211
23. Traugott I, Alpers A. In their own hands: adolescents' refusal of medical treatment. Arch Pediatr Adolesc Med. 1997;151:922-927
24. Sigman GS, O'Connor C. Exploration for physicians of the mature minor doctrine. J Pediatr. 1991;119:520-525
25. Bartholome WG. A new understanding of consent in pediatric practice: consent, parental permission, and child assent. Pediatr Ann. 1989;18:262-265
26. Koocher GP, DeMaso DR. Children's competence to consent to medical procedures. Pediatrician. 1990;17:68-73
27. Emanuel EJ, Emanuel LL. Four models of the physician-patient relationship. JAMA. 1992;267:2221-2226
28. Protection of human subjects, 56 Federal Register 28032 (1991). Subpart D, §408. Available at: www.med.umich.edu/irbmed/FederalDocuments/hhs/HHS45CFR46.html. Accessed December 10, 2003
29. Kunin H. Ethical issues in pediatric life-threatening illness: dilemmas of consent, assent, and communication. Ethics Behav. 1997;7:43-57
30. Friebert SE, Kodish ED. Kids and cancer: ethical issues in treating the pediatric oncology patient. Cancer Treat Res. 2000;102:99-135
31. Matthews DJ, Meier RH, Bartholome W. Ethical issues encountered in pediatric rehabilitation. Pediatrician. 1990;17:108-114
32. Doyle L, Henning P. Stopping treatment for end-stage renal failure: the rights of children and adolescents. J Pediatr Nephrol. 1994;8:768-791
33. Robinson WM, Ravilly S, Berde C, Wohl ME. End-of-life care in cystic fibrosis. Pediatrics. 1997;100:205-209
34. Parker D, Maddocks I, Stern LM. The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy. J Paediatr Child Health. 1999;35:245-250
35. Nitschke R, Humphrey GB, Sexauer CL, Catron B, Wunder S, Jay S. Therapeutic choices made by patients with end-stage cancer. J Pediatr. 1982;101:471-476
36. Nitschke R, Wunder S, Sexauer CL, Humphrey GB. The final-stage conference: the patient's decision on research drugs in pediatric oncology. J Pediatr Psychol. 1977;2:58-64
37. Cooper LB. Potentially fatal illness. In: Friedman SB, Fisher MM, Schonberg SK, Alderman EM, eds. Comprehensive Adolescent Health Care. 2nd ed. St Louis, MO: Mosby; 1998:142-146
38. Doyle D, Hanks GWC, MacDonald N, eds. Oxford Textbook of Pailiative Medicine. 2nd ed. Oxford, United Kingdom: Oxford University Press; 1998
39. Taketomo CG, Hodding JH, Kraus DM. Pediatric Dosage Handbook. 8th ed. Cleveland, OH: Lexi-Comp Inc and American Pharmaceutical Association; 2001