Development and pilot testing of a decision aid for surrogates of patients with prolonged mechanical ventilation

Critical Care Medicine

Volumn 40, Issue 8, 2012, Pages 2327-2334

  Cox, Christopher E ^a   Lewis, Carmen L ^b   Hanson, Laura C ^b   Hough, Catherine L ^c   Kahn, Jeremy M ^d   White, Douglas B ^d   Song, Mi Kyung ^e   Tulsky, James A ^a,f   Carson, Shannon S ^b  

^a DUKE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

^c UNIVERSITY OF WASHINGTON   (United States)

^d UNIVERSITY OF PITTSBURGH   (United States)

^e UNIVERSITY OF NORTH CAROLINA   (United States)

^f DURHAM VA MEDICAL CENTER   (United States)

Author keywords

artificial; critical illness; decision aid; decision making; prolonged mechanical ventilation; respiration

Indexed keywords

ADULT; AGED; ARTICLE; ARTIFICIAL VENTILATION; CLINICAL ARTICLE; COMPREHENSION; CONTROLLED STUDY; DECISION MAKING; DECISION SUPPORT SYSTEM; FEMALE; HOSPITALIZATION COST; HUMAN; INTENSIVE CARE; INTERPERSONAL COMMUNICATION; MALE; MEDICAL INFORMATION; OUTCOME ASSESSMENT; PILOT STUDY; PRACTICE GUIDELINE; PRIORITY JOURNAL; PROSPECTIVE STUDY; SHARED DECISION MAKING; SURVIVAL;

ADULT; AGED; DECISION SUPPORT TECHNIQUES; FEMALE; HUMANS; INTENSIVE CARE UNITS; MALE; MIDDLE AGED; PILOT PROJECTS; PROSPECTIVE STUDIES; RESPIRATION, ARTIFICIAL; THIRD-PARTY CONSENT; WITHHOLDING TREATMENT;

EID: 84864283110     PISSN: 00903493     EISSN: 15300293     Source Type: Journal    
DOI: 10.1097/CCM.0b013e3182536a63     Document Type: Article

References (47)

1. Nelson JE, Cox CE, Hope AA, et al: Chronic critical illness. Am J Respir Crit Care Med 2010; 182:446-454.
2. Unroe M, Kahn JM, Carson SS, et al: One-year trajectories of care and resource utilization for recipients of prolonged mechanical ventilation: a cohort study. Ann Intern Med 2010; 153:167-175.
3. Zilberberg MD, de Wit M, Pirone JR, et al: Growth in adult prolonged acute mechanical ventilation: Implications for healthcare delivery. Crit Care Med 2008; 36:1451-1455. (Pubitemid 351620642)
4. Braddock CH 3rd, Edwards KA, Hasenberg NM, et al: Informed decision making in outpatient practice: Time to get back to basics. JAMA 1999; 282:2313-2320. (Pubitemid 30013062)
5. Carlet J, Thijs LG, Antonelli M, et al: Challenges in end-of-life care in the ICU. Statement of the 5th International Consensus Conference in Critical Care. Intensive Care Med 2004; 30:770-784. (Pubitemid 38639466)
6. White DB, Braddock CH3rd, Bereknyei S, et al: Toward shared decision making at the end of life in intensive care units: Opportunities for improvement. Arch Intern Med 2007; 167:461-467. (Pubitemid 46425658)
7. Azoulay E, Chevret S, Leleu G, et al: Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med 2000; 28:3044-3049.
8. Cox CE, Martinu T, Sathy SJ, et al: Expectations and outcomes of prolonged mechanical ventilation. Crit Care Med 2009; 37:2888-94; quiz 2904.
9. Curtis JR, Engelberg RA, Wenrich MD, et al: Missed opportunities during family conferences about end-of-life care in the intensive care unit. Am J Respir Crit Care Med 2005; 171:844-849. (Pubitemid 40562715)
10. Hofmann JC, Wenger NS, Davis RB, et al: for the SUPPORT Investigators: Patient preferences for communication with physicians about end-of-life decisions. Ann Intern Med 1997; 127:1-12. (Pubitemid 27283897)
11. Nelson JE, Mercado AF, Camhi SL, et al: Communication about chronic critical illness. Arch Intern Med 2007; 167:2509-2515. (Pubitemid 350254912)
12. White DB, Engelberg RA, Wenrich MD, et al: Prognostication during physician-family discussions about limiting life support in intensive care units. Crit Care Med 2007; 35:442-448. (Pubitemid 46148534)
13. Wendler D, Rid A: Systematic review: the effect on surrogates of making treatment decisions for others. Ann Intern Med 2011; 154:336-346.
14. White DB, Malvar G, Karr J, et al: Expanding the paradigm of the physician's role in surrogate decision-making: An empirically derived framework. Crit Care Med 2010; 38: 743-750.
15. O'Brien MA, Whelan TJ, Charles C, et al: Women's perceptions of their treatment decision-making about breast cancer treatment. Patient Educ Couns 2008; 73:431-436.
16. O'Connor AM, Stacey D, Entwistle V, et al: Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev 2003:CD001431.
17. 111th United States Congress: Patient protection and affordable care act. HR 3590; Title III, Subtitle F, Section 3506. March 23, 2010. Available at: http://www.gpo.gov/fdsys/pkg/PLAW-111publ148/pdf/PLAW-111publ148.pdf. Accessed August 18, 2011.
18. Elwyn G, O'Connor A, Stacey D, et al: International Patient Decision Aids Standards (IPDAS) Collaboration: Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ 2006; 333:417.
19. Gillick MR: Choosing appropriate medical care for the elderly. J Am Med Dir Assoc 2001; 2:305-309. (Pubitemid 33130163)
20. Curtis JR, White DB: Practical guidance for evidence-based ICU family conferences. Chest 2008; 134:835-843.
21. Thomson R, Edwards A, Grey J: Risk communication in the clinical consultation. Clin Med 2005; 5:465-469. (Pubitemid 41503098)
22. Lewis CL, Golin CE, DeLeon C, et al: A targeted decision aid for the elderly to decide whether to undergo colorectal cancer screening: Development and results of an uncontrolled trial. BMC Med Inform Decis Mak 2010; 10:54.
23. Charlson ME, Pompei P, Ales KL, et al: A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis 1987; 40:373-383. (Pubitemid 17055592)
24. Katz S, Ford AB, Moskowitz RW, et al: Studies of illness in the aged. The index of ADL: a standardized measure of biological and psychosocial function. JAMA 1963; 185:914-919.
25. Lawton MP, Brody EM: Assessment of older people: Self-maintaining and instrumental activities of daily living. Gerontologist 1969; 9:179-186.
26. Knaus WA, Draper EA, Wagner DP, et al: APACHE II: A severity of disease classification system. Crit Care Med 1985; 13:818-829. (Pubitemid 15250137)
27. The EuroQol Group: EuroQol-a new facility for the measurement of health-related quality of life. Health Policy 1990; 16:199-208.
28. Zigmond AS, Snaith RP: The hospital anxiety and depression scale. Acta Psychiatr Scand 1983; 67:361-370. (Pubitemid 13098606)
29. Lee Char SJ, Evans LR, Malvar GL, et al: A randomized trial of two methods to disclose prognosis to surrogate decision makers in intensive care units. Am J Respir Crit Care Med 2010; 182:905-909.
30. Engelberg R, Downey L, Curtis JR: Psychometric characteristics of a quality of communication questionnaire assessing communication about end-of-life care. J Palliat Med 2006; 9:1086-1098. (Pubitemid 44759942)
31. O'Connor AM: Validation of a decisional conflict scale. Med Decis Making 1995; 15:25-30.
32. Vickers AJ, Altman DG: Statistics notes: Analysing controlled trials with baseline and follow up measurements. BMJ 2001; 323:1123-1124. (Pubitemid 33063362)
33. Barber J, Thompson S: Multiple regression of cost data: use of generalised linear models. J Health Serv Res Policy 2004; 9:197-204. (Pubitemid 39424759)
34. Manning WG, Mullahy J: Estimating log models: To transform or not to transform? J Health Econ 2001; 20:461-494. (Pubitemid 32515166)
35. Cox CE, Carson SS, Hanson LC, et al: Improving decision-making for surrogates of prolonged mechanical ventilation patients: A pilot study. American Thoracic Society International Conference. Denver, CO. May 17, 2011.
36. Azoulay E, Pochard F, Chevret S, et al: French FAMIREA Group: Meeting the needs of intensive care unit patient families: A multicenter study. Am J Respir Crit Care Med 2001; 163:135-139. (Pubitemid 32095263)
37. Evans LR, Boyd EA, Malvar G, et al: Surrogate decision-makers' perspectives on discussing prognosis in the face of uncertainty. Am J Respir Crit Care Med 2009; 179:48-53.
38. Nelson JE, Kinjo K, Meier DE, et al: When critical illness becomes chronic: Informational needs of patients and families. J Crit Care 2005; 20:79-89. (Pubitemid 40602228)
39. . Azoulay E, Timsit JF, Sprung CL, et al; Conflicus Study Investigators and for the Ethics Section of the European Society of Intensive Care Medicine: Prevalence and factors of intensive care unit conflicts: The Conflicus study. Am J Respir Crit Care Med 2009; 180:853-860.
40. Thompson BT, Cox PN, Antonelli M, et al: Challenges in end-of-life care in the ICU: Statement of the 5th International Consensus Conference in Critical Care: Brussels, Belgium, April 2003: Executive summary. Crit Care Med 2004; 32:1781-1784. (Pubitemid 39050533)
41. Sudore RL, Fried TR: Redefining the "planning" in advance care planning: Preparing for end-of-life decision making. Ann Intern Med 2010; 153:256-261.
42. Angus DC, Kelley MA, Schmitz RJ, et al: for the Committee on Manpower for Pulmonary and Critical Care Societies (COMPACCS): Current and projected workforce requirements for care of the critically ill and patients with pulmonary disease: can we meet the requirements of an aging population? JAMA 2000; 284:2762-2770.
43. Pochard F, Azoulay E, Chevret S, et al: Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision making capacity. Crit Care Med. 2001; 29:1893-1897. (Pubitemid 32980397)
44. Curtis JR, Engelberg RA, Wenrich MD, et al: Studying communication about end-of-life care during the ICU family conference: Development of a framework. J Crit Care 2002; 17:147-160.
45. Pham K, Thornton JD, Engelberg RA, et al: Alterations during medical interpretation of ICU family conferences that interfere with or enhance communication. Chest 2008; 134:109-116. (Pubitemid 352008771)
46. Volandes AE, Paasche-Orlow M, Gillick MR, et al: Health literacy not race predicts end-of-life care preferences. J Palliat Med 2008; 11:754-762. (Pubitemid 351918848)
47. Flory J, Emanuel E: Interventions to improve research participants' understanding in informed consent for research: A systematic review. JAMA 2004; 292:1593-1601. (Pubitemid 39314966)