Using two on-going HIV studies to obtain clinical data from before, during and after pregnancy for HIV-positive women

BMC Medical Research Methodology

Volumn 12, Issue , 2012, Pages

  Huntington, Susie E ^a,b   Bansi, Loveleen K ^a   Thorne, Claire ^b   Anderson, Jane ^c   Newell, Marie Louise ^b,d   Taylor, Graham P ^e   Pillay, Deenan ^a,f   Hill, Teresa ^a   Tookey, Pat A ^b   Sabin, Caroline A ^a  

^a UNIVERSITY COLLEGE LONDON   (United Kingdom)

^b UNIVERSITY COLLEGE LONDON   (United Kingdom)

^c HOMERTON UNIVERSITY HOSPITAL   (United Kingdom)

^d UNIVERSITY OF KWAZULU NATAL   (South Africa)

^e IMPERIAL COLLEGE LONDON   (United Kingdom)

^f PUBLIC HEALTH ENGLAND   (United Kingdom)

Author keywords

Antiretroviral therapy; Cohort analysis; Data linkage; HIV; Pregnant women; United Kingdom

Indexed keywords

ANTI HUMAN IMMUNODEFICIENCY VIRUS AGENT;

ADOLESCENT; ADULT; ARTICLE; COHORT ANALYSIS; COMPARATIVE STUDY; FEMALE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; IRELAND; MEDICAL RECORD; PATIENT ATTITUDE; PREGNANCY; PREGNANCY COMPLICATION; PREGNANCY OUTCOME; UNITED KINGDOM; WOMEN'S HEALTH;

ADOLESCENT; ADULT; ANTI-HIV AGENTS; COHORT STUDIES; FEMALE; GREAT BRITAIN; HIV INFECTIONS; HIV SEROPOSITIVITY; HUMANS; IRELAND; MEDICAL RECORD LINKAGE; PATIENT ACCEPTANCE OF HEALTH CARE; PREGNANCY; PREGNANCY COMPLICATIONS, INFECTIOUS; PREGNANCY OUTCOME; WOMEN'S HEALTH; YOUNG ADULT;

EID: 84864200958     PISSN: None     EISSN: 14712288     Source Type: Journal    
DOI: 10.1186/1471-2288-12-110     Document Type: Article

References (32)

1. Low rates of mother-to-child transmission of HIV following effective pregnancy interventions in the United Kingdom and Ireland, 2000-2006. Townsend CL, Cortina-Borja M, Peckham CS, de Ruiter A, Lyall H, Tookey PA, AIDS 2008 22 973 981 10.1097/QAD.0b013e3282f9b67a 18453857 (Pubitemid 351652248)
2. Mother-to-child transmission of HIV infection in the era of highly active antiretroviral therapy. European Collaborative Study, Clin Infect Dis 2005 40 458 465 15668871
3. Life expectancy of individuals on combination antiretroviral therapy in high-income countries: a collaborative analysis of 14 cohort studies. Antiretroviral Therapy Cohort Collaboration, Lancet 2008 372 293 299 18657708
4. Life expectancy of recently diagnosed asymptomatic HIV-infected patients approaches that of uninfected individuals. van Sighem AI, Gras LA, Reiss P, Brinkman K, de Wolf F, AIDS 2010 24 1527 1535 10.1097/QAD.0b013e32833a3946 20467289
5. Fertility intentions of HIV-infected women in the United Kingdom. Cliffe S, Townsend CL, Cortina-Borja M, Newell ML, AIDS Care 2011 23 1093 1101 10.1080/09540121.2011.554515 21480008
6. British HIV Association and Children's HIV Association guidelines for the management of HIV infection in pregnant women 2008. de Ruiter A, Mercey D, Anderson J, Chakraborty R, Clayden P, Foster G, Gilling-Smith C, Hawkins D, Low-Beer N, Lyall H, O'Shea S, Penn Z, Short J, Smith R, Sonecha S, Tookey P, Wood C, Taylor G, HIV Med 2008 9 452 502 10.1111/j.1468-1293.2008.00619.x 18840151
7. Emergence of antiretroviral resistance in HIV-positive women receiving combination antiretroviral therapy in pregnancy. Lyons FE, Coughlan S, Byrne CM, Hopkins SM, Hall WW, Mulcahy FM, AIDS 2005 19 63 67 10.1097/00002030-200501030- 00007 15627034 (Pubitemid 40111019)
8. Postpartum antiretroviral drug resistance in HIV-1-infected women receiving pregnancy-limited antiretroviral therapy. Paredes R, Cheng I, Kuritzkes DR, Tuomala RE, AIDS 2010 24 45 53 10.1097/QAD.0b013e32832e5303 19915448
9. Pregnancy may be followed by an inflexion of the immune reconstitution in HIV-infected women who receive antiretroviral drugs before conception. Le Moing V, Taieb A, Longuet P, Lewden C, Delcey V, Drobacheff MC, Chene G, Leport C, HIV Med 2008 9 897 900 18795961
10. Increased risk of hepatotoxicity in HIV-infected pregnant women receiving antiretroviral therapy independent of nevirapine exposure. Ouyang DW, Shapiro DE, Lu M, Brogly SB, French AL, Leighty RM, Thompson B, Tuomala RE, Hershow RC, AIDS 2009 23 2425 2430 10.1097/QAD.0b013e32832e34b1 19617813
11. Trends in management and outcome of pregnancies in HIV-infected women in the UK and Ireland, 1990-2006. Townsend CL, Cortina-Borja M, Peckham CS, Tookey PA, BJOG 2008 115 1078 1086 10.1111/j.1471-0528.2008.01706.x 18503577 (Pubitemid 352000353)
12. Use of Zidovudine-sparing HAART in pregnant HIV-infected women in Europe: 2000-2009. Tariq S, Townsend CL, Cortina-Borja M, Duong T, Elford J, Thorne C, Tookey P, J Acquir Immune Defic Syndr 2011 57 326 333 10.1097/QAI. 0b013e31821d34d0 21499113
13. The creation of a large UK-based multicentre cohort of HIV-infected individuals: The UK Collaborative HIV Cohort (UK CHIC) Study. UK Collaborative HIV Cohort Steering Committee, HIV Med 2004 5 115 124 15012652
14. 'Soundex' codes of surnames provide confidentiality and accuracy in a national HIV database. Mortimer JY, Salathiel JA, Commun Dis Rep CDR Rev 1995 5 183 R186 8541940
15. The NSHPC website http://www.nshpc.ucl.ac.uk
16. UK Collaborative HIV Cohort Study Group. Data linkage reduces loss to follow-up in an observational HIV cohort study. Hill T, Bansi L, Sabin C, Phillips A, Dunn D, Anderson J, Easterbrook P, Fisher M, Gazzard B, Gilson R, Johnson M, Leen C, Orkin C, Schwenk A, Walsh J, Winston A, Babiker A, Delpech V, J Clin Epidemiol 2010 63 1101 1109 10.1016/j.jclinepi.2009.12.007 20347263
17. The UK CHIC website http://www.ukchic.org.uk
18. Linkage of the UK Collaborative HIV Cohort (CHIC) study and National Study of HIV in Pregnancy and Childhood (NSHPC) to assess ART patterns in pregnant women. 15th Annual Conference of the British HIV Association. Liverpool, UK. Bansi L, Thorne C, Tookey P, Sabin C, HIV Med 2009 10 Suppl 1 27
19. Treatment switches during pregnancy among HIV-positive women on antiretroviral therapy at conception. Huntington SE, Bansi LK, Thorne C, Anderson J, Newell ML, Taylor GP, et al. AIDS 2011 25 1647 1655 10.1097/QAD.0b013e32834982af 21673558
20. World Health Organization, WHO World Regions 2011 http://www.who.int/ about/regions/en/index.html
21. Health Protection Agency, SOPHID, Accessing HIV care national tables: 2010 2010 http://www.hpa.org.uk/web/HPAweb&HPAwebStandard/Page/1201094588844
22. Development of a record linkage protocol for use in the Dutch Cancer Registry for Epidemiological Research. Van den Brandt PA, Schouten LJ, Goldbohm RA, Dorant E, Hunen PM, Int J Epidemiol 1990 19 553 558 10.1093/ije/19.3.553 2262247 (Pubitemid 20331799)
23. The urge to merge: linking vital statistics records and Medicaid claims. Bell RM, Keesey J, Richards T, Med Care 1994 32 1004 1018 10.1097/00005650- 199410000-00003 7934268
24. Linking hospital discharge and death records-accuracy and sources of bias. Zingmond DS, Ye Z, Ettner SL, Liu H, J Clin Epidemiol 2004 57 21 29 10.1016/S0895-4356(03)00250-6 15019007 (Pubitemid 38258233)
25. Practical introduction to record linkage for injury research. Clark DE, Inj Prev 2004 10 186 191 10.1136/ip.2003.004580 15178677 (Pubitemid 39186474)
26. The feasibility and accuracy of anonymized record linkage to estimate shared clientele among three health and social service agencies. Jamieson E, Roberts J, Browne G, Methods Inf Med 1995 34 371 377 7476469
27. Comparison of the clinical and demographic characteristics of HIV-infected pregnant women with HIV-infected non-pregnant women seen for care in England, Wales and Northern Ireland. 15th Annual Conference of the British HIV Association. Liverpool, UK. Huntington S, Chadborn T, Masters J, Tookey P, Delpech V, HIV Med 2009 10 Suppl 1 28 19125962
28. Overcounting of black Africans in the UK: the problem of undetected record duplication. Dougan S, Harris JP, Commun Dis Public Health 2003 6 147 151 12889296
29. Computerised linking of medical records: methodological guidelines. Gill L, Goldacre M, Simmons H, Bettley G, Griffith M, J Epidemiol Community Health 1993 47 316 319 10.1136/jech.47.4.316 8228770 (Pubitemid 23256209)
30. Use of computerized record linkage in cohort studies. Howe GR, Epidemiol Rev 1998 20 112 121 10.1093/oxfordjournals.epirev.a017966 9762514 (Pubitemid 28449758)
31. Quality of age data in patients from developing countries. Denic S, Khatib F, Saadi H, J Public Health (Oxf) 2004 26 168 171 10.1093/pubmed/fdh131 (Pubitemid 39030853)
32. Predictors of pregnancy and changes in pregnancy incidence among HIV-positive women accessing HIV clinical care. Huntington SE, Thorne C, Bansi LK, Anderson J, Newell ML, Taylor GP, Pillay D, Hill T, Tookey PA, Sabin CA, AIDS 2012 in press