Quality of life of pediatric cardiac patients who previously required extracorporeal membrane oxygenation

Pediatric Critical Care Medicine

Volumn 13, Issue 4, 2012, Pages 428-434

  Costello, John M ^a   O'Brien, Molly ^a   Wypij, David ^a,b   Shubert, Joana ^a   Salvin, Joshua W ^a   Newburger, Jane W ^a   Laussen, Peter C ^a   Arnold, John H ^a   Fynn Thompson, Francis ^a   Thiagarajan, Ravi R ^a  

^a BOSTON CHILDREN S HOSPITAL   (United States)

^b HARVARD SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

congenital heart defect; extracorporeal membrane oxygenation; pediatric; quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CARDIAC PATIENT; CHILD; CHILD HEALTH QUESTIONNAIRE PARENT FORM 50; CONTROLLED STUDY; DEFIBRILLATOR; EXTRACORPOREAL OXYGENATION; FEMALE; HEART DISEASE; HUMAN; INTENSIVE CARE UNIT; LENGTH OF STAY; MAJOR CLINICAL STUDY; MALE; OCCUPATIONAL THERAPY; PHYSIOTHERAPY; PRESCHOOL CHILD; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; SCORING SYSTEM; SPECIAL EDUCATION; SPEECH THERAPY; SURVIVOR; TREATMENT OUTCOME; UNITED STATES;

ADOLESCENT; BOSTON; CHILD; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; EXTRACORPOREAL MEMBRANE OXYGENATION; FEMALE; HEART DISEASES; HUMANS; MALE; PROXY; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 84864198466     PISSN: 15297535     EISSN: 19473893     Source Type: Journal    
DOI: 10.1097/PCC.0b013e318238ba21     Document Type: Article

References (25)

1. Salvin JW, Laussen PC, Thiagarajan RR: Extracorporeal membrane oxygenation for postcardiotomy mechanical cardiovascular support in children with congenital heart disease. Paediatr Anaesth 2008; 18:1157-1162
2. Thiagarajan RR, Laussen PC, Rycus PT, et al: Extracorporeal membrane oxygenation to aid cardiopulmonary resuscitation in infants and children. Circulation 2007; 116:1693-1700 (Pubitemid 47537843)
3. Rajagopal SK, Almond CS, Laussen PC, et al: Extracorporeal membrane oxygenation for the support of infants, children, and young adults with acute myocarditis: A review of the Extracorporeal Life Support Organization registry. Crit Care Med 2010; 38:382-387
4. Haines NM, Rycus PT, Zwischenberger JB, et al: Extracorporeal Life Support Registry Report 2008: Neonatal and pediatric cardiac cases. ASAIO J 2009; 55:111-116
5. Mahle WT, Forbess JM, Kirshbom PM, et al: Cost-utility analysis of salvage cardiac extracorporeal membrane oxygenation in children. J Thorac Cardiovasc Surg 2005; 129:1084-1090 (Pubitemid 40631430)
6. Cooper DS, Jacobs JP, Moore L, et al: Cardiac extracorporeal life support: state of the art in 2007. Cardiol Young 2007; 17:104-115 (Pubitemid 350237749)
7. Ibrahim AE, Duncan BW, Blume ED, et al: Long-term follow-up of pediatric cardiac patients requiring mechanical circulatory support. Ann Thorac Surg 2000; 69:186-192 (Pubitemid 30078845)
8. Hamrick SE, Gremmels DB, KeetCA, et al: Neurodevelopmental outcome of infants supported with extracorporeal membrane oxygenation after cardiac surgery. Pediatrics 2003; 111:e671-e675
9. Van Litsenburg R, De Mos N, Edgell D, et al: Resource use and health outcomes of paediatric extracorporeal membrane oxygenation. Arch Dis Child Fet al Neonatal Ed 2005; 90:F176-F177 (Pubitemid 40333093)
10. Barrett CS, Bratton SL, Salvin JW, et al: Neurological injury after extracorporeal membrane oxygenation use to aid pediatric cardiopulmonary resuscitation. Pediatr Crit Care Med 2009; 10:445-451
11. Combes A, Leprince P, Luyt CE, et al: Outcomes and long-term quality-of-life of patients supported by extracorporeal membrane oxygenation for refractory cardiogenic shock. Crit Care Med 2008; 36:1404-1411 (Pubitemid 351620652)
12. Linden VB, Lidegran MK, Frisen G, et al: ECMO in ARDS: A long term follow-up study regarding pulmonary morphology and function and health-related quality of life. Acta Anaesthesiol Scand 2009; 53:489-495
13. Taylor AK, Cousins R, Butt WW: The long-term outcome of children managed with extracorporeal life support: An institutional experience. Crit Care Resusc 2007; 9:172-177
14. HealthActCHQ: The CHQ Scoring and Interpretation Manual. Boston, MA, HealthActCHQ, 2008
15. Baker AL, Gauvreau K, Newburger JW, et al: Physical and psychosocial health in children who have had Kawasaki disease. Pediatrics 2003; 111:579-583 (Pubitemid 36330715)
16. Dunbar-Masterson C, Wypij D, Bellinger DC, et al: General health status of children with D-transposition of the great arteries after the arterial switch operation. Circulation 2001; 104:I138-I142 (Pubitemid 32884792)
17. McCrindle BW, Williams RV, Mitchell PD, et al: Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure. Circulation 2006; 113:1123-1129
18. DeMaso DR, Lauretti A, Spieth L, et al: Psychosocial factors and quality of life in children and adolescents with implantable cardioverter- defibrillators. Am J Cardiol 2004; 93:582-587 (Pubitemid 38293062)
19. Raat H, Landgraf JM, Bonsel GJ, et al: Reliability and validity of the child health questionnaire-child form (CHQ-CF87) in a Dutch adolescent population. Qual Life Res 2002; 11:575-581 (Pubitemid 34876131)
20. Jenkins KJ, Gauvreau K, Newburger JW, et al: Consensus-based method for risk adjustment for surgery for congenital heart disease. J Thorac Cardiovasc Surg 2002; 123:110-118
21. Lambert LM, Minich LL, Newburger JW, et al: Parent- versus child-reported functional health status after the Fontan procedure. Pediatrics 2009; 124:e942-e949
22. Lequier L, Joffe AR, Robertson CM, et al: Two-year survival, mental, and motor outcomes after cardiac extracorporeal life support at less than five years of age. J Thorac Cardiovasc Surg 2008; 136:976-983.e3
23. Newburger JW, Wypij D, Bellinger DC, et al: Length of stay after infant heart surgery is related to cognitive outcome at age 8 years. J Pediatr 2003; 143:67-73 (Pubitemid 36928571)
24. Limperopoulos C, Majnemer A, Shevell MI, et al: Predictors of developmental disabilities after open heart surgery in young children with congenital heart defects. J Pediatr 2002; 141:51-58 (Pubitemid 34774951)
25. Marino BS, Shera D, Wernovsky G, et al: The development of the pediatric cardiac quality of life inventory: A quality of life measure for children and adolescents with heart disease. Qual Life Res 2008; 17:613-626