'It burdens me': The impact of stroke in central Aceh, Indonesia

Sociology of Health and Illness

Volumn 34, Issue 6, 2012, Pages 826-840

  Norris, Meriel ^a   Allotey, Pascale ^b   Barrett, Geraldine ^a  

^a BRUNEL UNIVERSITY   (United Kingdom)

^b MONASH UNIVERSITY MALAYSIA   (Malaysia)

Author keywords

Biographical disruption; Central Aceh; Impact; Stroke

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; CEREBROVASCULAR ACCIDENT; CONVALESCENCE; COST OF ILLNESS; DAILY LIFE ACTIVITY; FAMILY RELATION; FEMALE; HUMAN; INDONESIA; INTERVIEW; LIFE EVENT; LITERATURE; MALE; MIDDLE AGED; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; QUALITATIVE RESEARCH; QUALITY OF LIFE; RELIGION; RURAL POPULATION; SOCIAL CLASS; SOCIAL SUPPORT; SURVIVOR; VERBAL COMMUNICATION; WALKING DIFFICULTY;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; BIOGRAPHY AS TOPIC; CAREGIVERS; COST OF ILLNESS; FAMILY RELATIONS; FEMALE; HUMANS; INDONESIA; INTERVIEWS AS TOPIC; LIFE CHANGE EVENTS; MALE; MIDDLE AGED; MOBILITY LIMITATION; MODELS, PSYCHOLOGICAL; NARRATION; QUALITATIVE RESEARCH; QUALITY OF LIFE; RECOVERY OF FUNCTION; RELIGION AND PSYCHOLOGY; RURAL POPULATION; SOCIAL CLASS; SOCIAL SUPPORT; STROKE; SURVIVORS;

EID: 84864005379     PISSN: 01419889     EISSN: 14679566     Source Type: Journal    
DOI: 10.1111/j.1467-9566.2011.01431.x     Document Type: Article

References (54)

1. Alaszewski, A., Alaszewski, H. and Potter, J. (2004) The bereavement model, stroke and rehabilitation: a critical analysis of the use of a psychological model in professional practice, Disability and Rehabilitation, 26, 18, 1067-78.
2. Ananto, A. (2007) The population and conflicts. In Ananto A. and Om L. (eds) Aceh - a New Dawn. Singapore: Institute of South East Asian Studies.
3. Barron, P., Clark, S. and Daud, M. (2005) Conflict and Recovery in Aceh. Indonesia: World Bank.
4. Becker, G. (1997) Disrupted Lives: How People Create Meaning in a Chaotic World. California: University of California Press.
5. Becker, G. and Kaufman, S. (1995) Managing an uncertain illness trajectory in old age: patients' and physicians' views on stroke, Medical Anthropology Quarterly, 9, 2, 165-87.
6. Bowen, J. (1991) Sumatran Politics and Poetics: Gayo History 1900-1981. New Haven: Yale University Press.
7. Bowen, J. (1998) Religions in Practice: an Approach to the Anthropology of Religion. USA: Allyn and Bacon.
8. Braun, V. and Clarke, V. (2006) Using thematic analysis in psychology, Qualitative Research in Psychology, 3, 2, 77-101.
9. Bupati. (2007) Pendapatan Domestik Regional Bruto Kabupaten Aceh Tengah Tahun 2000-2006. Aceh Tengah, Indonesia: Bupati.
10. Bury, M. (1982) Chronic illness as biographical disruption, Sociology of Health & Illness, 4, 2, 168-82.
11. Clark-Ibanez, M. (2004) Framing the social world with photo-elicitation interviews, American Behavioral Scientist, 47, 12, 1507-27.
12. Collier, J. (1967) Visual Anthropology: Photography as a Research Method. New York: Holt, Rinehart and Winston.
13. Doolittle, N. (1994) A clinical ethnography of stroke recovery. In Benner, P. (ed.) Interpretive Phenomenology: Embodiment, Caring and Ethics in Health and Illness. California: Sage.
14. Dowswell, G., Lawler, J., Dowswell, T., Young, J., et al. (2000) Investigating recovery from stroke: a qualitative study, Journal of Clinical Nursing, 9, 4, 507-15.
15. Dreslin, J. (2008) Stroke caregivers handbook. Available at (last accessed 5 December 2008).
16. Eliraz, G. (2004) Islam in Indonesia. Brighton: Sussex Academic Press.
17. Ellis-Hill, C., Payne, S. and Ward, C. (2000) Self-body split: issues of identity in physical recovery following a stroke, Disability and Rehabilitation, 22, 16, 725-33.
18. Faircloth, C., Boylstein, C., Rittman, M., Young, M., et al. (2004) Sudden illness and biographical flow in narratives of stroke recovery, Sociology of Health & Illness, 26, 2, 242-61.
19. Feigin, V. (2007) Stroke in developing countries: can the epidemic be stopped and outcomes improved? The Lancet Neurology, 6, 2, 94-7.
20. Feigin, V., Lawes, C., Bennett, D., Barker-Collo, S., et al. (2009) Worldwide stroke incidence and early case fatality reported in 56 population-based studies: a systematic review, The Lancet Neurology, 8, 4, 355-69.
21. Gibbs, G. (2002) Qualitative data analysis. Explorations with Nvivo. Buckingham: Open University Press.
22. Howell, J. (2001) Sufism and the Indonesian Islamic revival, The Journal of Asian Studies, 60, 3, 701-29.
23. International Organisation for Migration (2007) A Psychological Needs Assessment of Communities in 14 Conflict-affected Districts in Aceh. Jakarta: IOM.
24. Kaufman, S. (1988) Toward a phenomenology of boundaries in medicine: chronic illness experience in the case of stroke, Medical Anthropology Quarterly, 2, 4, 338-54.
25. Kirkevold, M. (2002) The unfolding illness trajectory of stroke, Disability and Rehabilitation, 24, 17, 887-98.
26. Kisjanto, J., Bonneux, L., Prihartono, J. and Grobbee, D. (2005) Risk factors for stroke among urbanised Indonesian women of reproductive age, a hospital based case-control study, Cerebrovascular Disease, 19, 1, 18-22.
27. Kusuma, Y., Venketasubramanian, N., Kiemas, L. and Misbach, J. (2009) Burden of stroke in Indonesia, International Journal of Stroke, 4, 5, 379-80.
28. Lamb, V. and Myers, G. (1999) A comparative study of successful ageing in three Asian countries, Population Research and Policy Review, 18, 5, 433-49.
29. Lopez, A. and Mathers, C. (2006) Measuring the global burden of disease and epidemiological transitions 2002-2030, Annals of Tropical Medicine and Parasitology, 100, 5-6, 481-99.
30. Lopez, K. and Willis, D. (2004) Descriptive versus interpretive phenomenology: their contributions to nursing knowledge, Qualitative Health Research, 14, 5, 726-35.
31. McKevitt, C., Luse, A. and Wolfe, C. (2003) The unfortunate generation: stroke survivors in Riga, Latvia, Social Science & Medicine, 56, 10, 2097-108.
32. Maggs-Rapport, F. (2000) Combining methodological approaches in research: ethnography and interpretive phenomenology, Journal of Advanced Nursing, 31, 1, 219-25.
33. Moran, D. (2000) Introduction to Phenomenology. London: Routledge.
34. Ng, N., Stenlund, H., Bonita, R., Halimi, M., et al. (2006) Preventable risk factors for noncommunicable diseases in rural Indonesia: prevalence study using WHO STEPS approach, Bulletin of the World Health Organisation, 84, 4, 305-13.
35. Norris, M., Allotey, P. and Barrett, G. (2010) 'I feel like half my body is clogged up': lay models of stroke in Central Aceh, Indonesia, Social Science & Medicine, 71, 19, 1576-83.
36. Norris, M., Allotey, P. and Barrett, G. (2011) Non-biomedical stroke practitioners in Aceh, International Journal of Stroke, 6, 2, 152-4.
37. Oliver, M. (1996) Understanding Disability. From Theory to Practice. Hampshire: Macmillan.
38. Pound, P., Gompertz, P. and Ebrahim, S. (1998) Illness in the context of older age: the case of stroke, Sociology of Health & Illness, 20, 4, 489-506.
39. Remer-Osborn, J. (1998) Psychological, behavioural and environmental influences on post-stroke recovery, Topics in Stroke Rehabilitation, 5, 2, 45-53.
40. Ricklefs, M. (2001) A History of Modern Indonesia. 3rd edition. London: Palgrave.
41. Samuels, J. (2004) Breaking the ethnographer's frames, American Behavioral Scientist, 47, 12, 1528-50.
42. Schroder-Butterfill, E. (2002) Ageing in Indonesia: A Socio-demographic Approach. PhD thesis. Oxford: University of Oxford.
43. Smith, J. and Osborne, M. (2008) Interpretative phenomenological analysis. In Smith, J. (ed.) Qualitative Psychology: A Practical Guide to Research Methods. 2nd edition. Thousand Oaks: Sage.
44. Thomas, C. (1999) Female Forms: Experiencing and Understanding Disability. Buckingham: Open University Press.
45. Thomas, C. (2002) Disability theory: key ideas, issues and thinkers. In Barnes, C, Oliver, M. and Barton, L. (eds) Disability Studies Today. Cambridge: Polity.
46. UN Department of Economic and Social Affairs (2010) Human development index. Available at (last accessed 8 October 2011).
47. World Health Organization Regional Office for South-East Asia (2008) Country health profile: Indonesia. Available at (last accessed 19 August 2008).
48. Wiles, R., Ashburn, A., Payne, S. and Murphy, C. (2004) Discharge from physiotherapy following stroke: the management of disappointment, Social Science & Medicine, 59, 6, 1263-73.
49. Williams, G. (1984) The genesis of chronic illness: narrative reconstruction, Sociology of Health & Illness, 6, 2, 175-200.
50. Williams, G. (1996) Representing disability. In Barnes, C. and Mercer, G. (eds) Exploring the Divide: Illness and Disability. Leeds: Disability Press.
51. Williams, S. (2000) Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept, Sociology of Health & Illness, 22, 1, 40-67.
52. World Bank, (2008) Aceh Poverty Assessment 2008: The Impact of the Conflict, the Tsunami and Reconstruction on Poverty in Aceh. Jakarta: The World Bank.
53. Yamey, G. and Greenwood, R. (2004) Religious views of the 'medical' rehabilitation model: a pilot qualitative study, Disability and Rehabilitation, 26, 8, 455-62.
54. Ypinazar, V. and Margolis, S. (2006) Delivering culturally sensitive care: the perceptions of older Arabian Gulf Arabs concerning religion health and disease, Qualitative Health Research, 16, 6, 773-87.