Is long-term prognosis for pervasive developmental disorder not otherwise specified different from prognosis for autistic disorder? Findings from a 30-year follow-up study

Journal of Autism and Developmental Disorders

Volumn 42, Issue 6, 2012, Pages 920-928

  Mordre, Marianne ^a   Groholt, Berit ^b   Knudsen, Ann Kristin ^c   Sponheim, Eili ^a   Mykletun, Arnstein ^c,d   Myhre, Anne Margrethe ^a,b  

^a OSLO UNIVERSITY HOSPITAL   (Norway)

^b UNIVERSITY OF OSLO   (Norway)

^c UNIVERSITY OF BERGEN   (Norway)

^d NORWEGIAN INSTITUTE OF PUBLIC HEALTH   (Norway)

Author keywords

Adult outcome; Autistic disorder; CGAS; PDD NOS

Indexed keywords

ADULT; ARTICLE; AUTISM; CHILD; CONTROLLED STUDY; CRIMINAL BEHAVIOR; FEMALE; FOLLOW UP; HUMAN; MAJOR CLINICAL STUDY; MALE; MARRIAGE; MORTALITY; PENSION; PERVASIVE DEVELOPMENTAL DISORDER NOT OTHERWISE SPECIFIED; PRESCHOOL CHILD; PRIORITY JOURNAL; PROGNOSIS; SCHOOL CHILD; SOCIAL PSYCHOLOGY;

ADOLESCENT; ADULT; AUTISTIC DISORDER; CHILD; CHILD DEVELOPMENT DISORDERS, PERVASIVE; CHILD, PRESCHOOL; DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS; DISABILITY EVALUATION; FEMALE; FOLLOW-UP STUDIES; HUMANS; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; PROGNOSIS;

EID: 84863877470     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-011-1319-5     Document Type: Article

References (47)

1. Aasland, A., Flato, B., & Vandvik, I. H. (1997). Psychosocial outcome in juvenile chronic arthritis: A nine-year follow-up. Clinical and Experimental Rheumatology, 15, 561-568. (Pubitemid 27408014)
2. Allen, D. A., Steinberg, M., Dunn, M., Fein, D., Feinstein, C., Waterhouse, L., et al. (2001). Autistic disorder versus other pervasive developmental disorders in young children: Same or different? European Child and Adolescent Psychiatry, 10, 67-78. (Pubitemid 32268273)
3. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders, text revised (DSM-IV-TR). Washington DC: American Psychiatric Association.
4. American Psychiatric Association. (2010). Retrieved at http://www.dsm5.org/ProposedRevisions/Pages/proposedrevision.aspx?rid=94.
5. Baghdadli, A., Picot, M. C., Michelon, C., Bodet, J., Pernon, E., Burstezjn, C., et al. (2007). What happens to children with PDD when they grow up? Prospective follow-up of 219 children from preschool age to mid-childhood. Acta Psychiatrica Scandinavica, 115, 403-412. (Pubitemid 46570060)
6. Billstedt, E., Gillberg, C., & Gillberg, C. (2005). Autism after adolescence: population-based 13-22 year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35, 351-360. (Pubitemid 41125973)
7. Bird, H. R., Canino, G., Rubio-Stipec, M., & Ribera, J. C. (1987). Further measures of the psychometric properties of the children's global assessment scale. Archives of General Psychiatry, 44, 821-824. (Pubitemid 17152884)
8. Bird, H. R., Yager, T. J., Staghezza, B., Gould, M. S., Canino, G., &Rubio-Stipec, M. (1990). Impairment in the epidemiological measurement of childhood psychopathology in the community. Journal of the American Academy of Child and Adolescent Psychiatry, 29, 796-803. (Pubitemid 20311717)
9. Bird, H. R., Andrews, H., Schwab-Stone, M., Goodman, S., Dulcan, M., Richters, J., et al. (1996). Global measures of impairment for epidemiologic and clinical use with children and adolescents. International Journal of Methods in Psychiatric Research, 6, 295-307. (Pubitemid 127757472)
10. Buitelaar, J. K., Van der Gaag, R., Klin, A., & Volkmar, F. (1999). Exploring the boundaries of pervasive developmental disorder not otherwise specified: Analyses of data from the DSM-IV autistic disorder field trial. Journal of Autism and Developmental Disorders, 29, 33-43. (Pubitemid 29118070)
11. Cederlund, M., Hagberg, B., Billstedt, E., Gillberg, I. C., & Gillberg, C. (2007). Asperger syndrome and autism: A comparative longitudinal follow-up study more than 5 years after original diagnosis. Journal of Autism and Developmental Disorders, 38(1), 72-85.
12. DeMaso, D. R., Twente, A. W., Spratt, E. G., & O'Brien, P. (1995). Impact of psychologic functioning, medical severity, and family functioning in pediatric heart transplantation. Journal of Heart and Lung Transplantion, 14, 1102-1108. (Pubitemid 26008643)
13. First, M. B., Pincus, H. A., Levine, J. B., Williams, J. B., Ustun, B., & Peele, R. (2004). Clinical utility as a criterion for revising psychiatric diagnoses. American Journal of Psychiatry, 161, 946-954. (Pubitemid 38735980)
14. Flato, B., Aasland, A., Vandvik, I. H., & Forre, O. (1997). Outcome and predictive factors in children with chronic idiopathic musculoskeletal pain. Clinical and Experimental Rheumatology, 15, 569-577. (Pubitemid 27408015)
15. Fombonne, E. (2005). Epidemiology of autistic disorder and other pervasive developmental disorders. Journal of Clinical Psychiatry, 66(Suppl 10), 3-8.
16. Gillberg, C., & Steffenburg, S. (1987). Outcome and prognostic factors in infantile autism and similar conditions: a population-based study of 46 cases followed through puberty. Journal of Autism and Developmental Disorders, 17, 273-287. (Pubitemid 17122222)
17. Gillberg, C., Billstedt, E., Sundh, V., & Gillberg, I. C. (2010). Mortality in autism: a prospective longitudinal community-based study. Journal of Autism and Developmental Disorders, 40, 352-357.
18. Gold, J., Shera, D., & Clarkson, B., Jr. (1993). Private psychiatric hospitalization of children: Predictors of length of stay. Journal of the American Academy of Child and Adolescent Psychiatry, 32, 135-143. (Pubitemid 23052913)
19. Grann, M., Langstrom, N., Tengstrom, A., & Stalenheim, E. G. (1998). Reliability of file-based retrospective ratings of psychopathy with the PCL-R. Journal of Personality Assessment, 70, 416-426. (Pubitemid 28402240)
20. Hofvander, B., Delorme, R., Chaste, P., Nyden, A., Wentz, E., Stahlberg, O., et al. (2009). Psychiatric and psychosocial problems in adults with normal-intelligence autism spectrum disorders. BMC Psychiatry, 9, 35.
21. Howlin, P. (1997). Prognosis in autism: do specialist treatments affect long-term outcome? European Child and Adolescent Psychiatry, 6, 55-72.
22. Howlin, P., Mawhood, L., & Rutter, M. (2000). Autism and developmental receptive language disorder-a follow-up comparison in early adult life. II: Social, behavioural, and psychiatric outcomes. Journal of Child Psychology and Psychiatry, 41, 561-578. (Pubitemid 30461897)
23. Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry and Allied Disciplines, 45(2), 212-229. (Pubitemid 38240270)
24. Kjelsberg, E., & Dahl, A. A. (1998). High delinquency, disability and mortality-a register study of former adolescent psychiatric inpatients. Acta Psychiatrica Scandinavica, 98, 34-40. (Pubitemid 28289455)
25. Kobayashi, R., Murata, T., & Yoshinaga, K. (1992). A follow-up study of 201 children with autism in Kyushu and Yamaguchi areas, Japan. Journal of Autism and Developmental Disorders, 22, 395-411.
26. Larsen, F. W. & Mouridsen, S. E. (1997). The outcome in children with childhood autism and Asperger syndrome originally diagnosed as psychotic. A 30-year follow-up study of subjects hospitalized as children. European Child and Adolescent Psychiatry, 6(4), 181-190. (Pubitemid 28027164)
27. Lotter, V. (1974). Social adjustment and placement of autistic children in Middlesex: A follow-up study. Journal of Autism and Childhood Schizophrenia, 4, 11-32.
28. McKenzie, K., Scott, D. A., Waller, G. S., & Campbell, M. (2011). Reliability of routinely collected hospital data for child maltreatment surveillance. BMC Public Health, 11, 8.
29. Mouridsen, S. E., Rich, B., Isager, T., & Nedergaard, N. J. (2007). Pervasive developmental disorders and criminal behaviour: A case control study. International Journal of Offender Therapy and Comparative Criminology, 52(2), 196-205.
30. Mouridsen, S. E., Bronnum-Hansen, H., Rich, B., & Isager, T. (2008). Mortality and causes of death in autism spectrum disorders: an update. Autism, 12, 403-414. (Pubitemid 351911188)
31. Piven, J., Harper, J., Palmer, P., & Arndt, S. (1996). Course of behavioral change in autism: a retrospective study of high-IQ adolescents and adults. Journal of the American Academy of Child and Adolescent Psychiatry, 35, 523-529. (Pubitemid 126418616)
32. Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation and Developmental Disabilities Research Reviews, 10, 234-247. (Pubitemid 40209457)
33. Shaffer, D., Gould, M. S., Brasic, J., Ambrosini, P., Fisher, P., Bird, H., et al. (1983). A children's global assessment scale (CGAS). Archives of General Psychiatry, 40, 1228-1231. (Pubitemid 13015019)
34. Shavelle, R. M., Strauss, D. J., & Pickett, J. (2001). Causes of death in autism. Journal of Autism and Developmental Disorders, 31, 569-576. (Pubitemid 37490153)
35. Siponmaa, L., Kristiansson, M., Jonson, C., Nyden, A., & Gillberg, C. (2001). Juvenile and young adult mentally disordered offenders: the role of child neuropsychiatric disorders. Journal of American Academy of Psychiatry Law, 29, 420-426. (Pubitemid 34015107)
36. Skardhamar, T. (2010). Lovbruddskarrierer og levekår (criminal career and life conditions). Statistics Norway.
37. Sourander, A., Leijala, H., Lehtila, A., Kanerva, A., Helenius, H., &Piha, J. (1996). Short-term child psychiatric inpatient treatment. Place of residence as one-year outcome measure. European Child and Adolescent Psychiatry, 5, 38-43. (Pubitemid 26157949)
38. StatBank Norway. (2005). Retrieved from http://www.statbank.ssb.no/ statistikkbanken.
39. Szatmari, P. (2009). More than counting: milestones in child and adolescent psychiatric epidemiology. Journal of the American Academy of Child and Adolescent Psychiatry, 48, 353-355.
40. Szatmari, P., Merette, C., Bryson, S. E., Thivierge, J., Roy, M. A., Cayer, M., et al. (2002). Quantifying dimensions in autism: a factor-analytic study. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 467-474. (Pubitemid 38327924)
41. Szatmari, P., Bryson, S. E., Boyle, M. H., Streiner, D. L., & Duku, E. (2003). Predictors of outcome among high functioning children with autism and Asperger syndrome. Journal of Child Psychology and Psychiatry, 44, 520-528. (Pubitemid 36943984)
42. The Norwegian Labour and Welfare Administration. (2005). Retrieved from http://www.nav.no/805323065.cms.
43. Vandvik, I. H., Hoyeraal, H. M., & Fagertun, H. (1989). Chronic family difficulties and stressful life events in recent onset juvenile arthritis. Journal of Rheumatology, 16, 1088-1092. (Pubitemid 19234737)
44. Volkmar, F. R., State, M., & Klin, A. (2009). Autism and autism spectrum disorders: Diagnostic issues for the coming decade. Journal of Child Psychology and Psychiatry, 50, 108-115.
45. von Knorring, A. L., & Hagglof, B. (1993). Autism in northern Sweden: A population based follow-up study: Psychopathology. European Child and Adolescent Psychiatry, 2(2), 91-97.
46. Walker, D. R., Thompson, A., Zwaigenbaum, L., Goldberg, J., Bryson, S. E., Mahoney, W. J., et al. (2004). Specifying PDD-NOS: A comparison of PDD-NOS, Asperger syndrome, and autism. Journal of the American Academy of Child and Adolescent Psychiatry, 43, 172-180.
47. Winters, N. C., Collett, B. R., & Myers, K. M. (2005). Ten-year review of rating scales, VII: Scales assessing functional impairment. Journal of the American Academy of Child and Adolescent Psychiatry, 44, 309-338. (Pubitemid 40393270)