Cultural competence in end-of-life care: Terms, definitions, and conceptual models from the British literature

Journal of Palliative Medicine

Volumn 15, Issue 7, 2012, Pages 812-820

  Evans, Natalie ^a   Meñaca, Arantza ^a   Koffman, Jonathan ^b   Harding, Richard ^b   Higginson, Irene J ^b   Pool, Robert ^a,c   Gysels, Marjolein ^a,b  

^a CENTRE FOR RESEARCH IN ENVIRONMENTAL EPIDEMIOLOGY CREAL   (Spain)

^b KING'S COLLEGE LONDON   (United Kingdom)

^c UNIVERSITY OF AMSTERDAM   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CONCEPTUAL FRAMEWORK; CONTENT ANALYSIS; CONTROLLED STUDY; CULTURAL COMPETENCE; ETHNIC GROUP; HUMAN; INFORMATION RETRIEVAL; PATIENT ASSESSMENT; SYSTEMATIC REVIEW (TOPIC); TERMINAL CARE; UNITED KINGDOM;

CULTURAL COMPETENCY; GREAT BRITAIN; HUMANS; MINORITY GROUPS; MODELS, THEORETICAL; TERMINAL CARE; TERMINOLOGY AS TOPIC;

EID: 84863809709     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2011.0526     Document Type: Article

References (97)

1. De Graaff F, Francke A: Home care for terminally ill Turks and Moroccans and their families in the Netherlands: Carers' experiences and factors influencing ease of access and use of services. Int J Nurs Studies 2003;40:797-805.
2. Fountain A: Ethnic minorities and palliative care in Derby. Palliat Med 1999;13:161-162.
3. Fraser LK, Fleming T, Miller M, Draper ES, McKinney PA, Parslow RC: Palliative care discharge from paediatric intensive care units in Great Britain. Palliat Med 2010;24:608-615.
4. McGrath P, Holewa H, Kail-Buckley S: "They should come out here...": Research findings on lack of local palliative care services for Australian aboriginal people. Am J Hospice Palliat Med 2007;24:105.
5. The National Hospice and Palliative Care Organization (NHPCO): Facts and figures on hospice care in America. www.nhpco.org/files/public/Statistics- Research/Hospice- Facts-Figures-Oct-2010.pdf. (Last accessed September 2011).
6. Crawley LV, Payne R, Bolden J, Payne T, Washington P, Williams S: Palliative and end-of-life care in the African American community. JAMA 2000;284:2518.
7. Ahmed N, Bestall J, Ahmedzai S, Payne S, Clark D, Noble B: Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals. Palliat Med 2004;18:525.
8. Hill D, Penso D: Opening Doors: Improving Access To Hospice And Specialist Palliative Care Services By Members Of The Black And Ethnic Minority Communities: National Council for Hospice and Specialist Palliative Care Services; 1995.
9. Karim K, Bailey M, Tunna K: Nonwhite ethnicity and the provision of specialist palliative care services: Factors affecting doctors' referral patterns. Palliat Med 2000;14:471.
10. Rees W: Immigrants and the hospice. Health Trends 1986;18: 89-91.
11. Silcocks PBS, Rashid A, Culley L, Smith L: Inequality even in terminal illness? Eur J Cancer 2001;37(Suppl 2):S1-S126.
12. Randhawa G, Owens A, Fitches R, Khan Z: Communication in the development of culturally competent palliative care services in the UK: A case study. Int J Palliat Nurs 2003;9: 24-31.
13. Spruyt O: Community-based palliative care for Bangladeshi patients in east London. Accounts of bereaved carers. Palliat Med 1999;13:119-129.
14. Owens A, Randhawa G: 'It's different from my culture; they're very different': Providing community-based, 'culturally competent' palliative care for South Asian people in the UK. Health Social Care Community 2004;12:414-421.
15. Worth A, Irshad T, Bhopal R, Brown D, Lawton J, Grant E, Murray S, Kendall M, Adam J, Gardee R, Sheikh A: Vulnerability and access to care for South Asian Sikh and Muslim patients with life limiting illness in Scotland: Prospective longitudinal qualitative study. Br Med J 2009;338:183.
16. Gunaratnam Y: 'We mustn't judge people... but': Staff dilemmas in dealing with racial harassment amongst hospice service users. Sociol Health Illness 2001;23:65-84.
17. Gunaratnam Y: Eating into multiculturalism: hospice staff and service users talk food, 'race', ethnicity, culture and identity. Crit Social Policy 2001;21:287.
18. Department of Health: End of Life Care Strategy: Promoting High Quality Care for All Adults at the End of Life; 2008.
19. General Medical Council. Treatment and care towards the end of life: good practice in decision making. Available at: Www.gmc-uk.org/End-of-life.pdf- 32486688.pdf. (Last accessed September 2011).
20. Department of Health: Cancer Reform Strategy; 2007.
21. House of Commons Health Committee: Palliative Care Fourth Report of the Session Volume 12004. Available at: Www.publications.parliament.uk/pa/cm200304/ cmselect/cmhealth/454/45402.htm. (Last accessed September 2011).
22. Gysels M, Higginson I, Rajasekaran M, Davies E, Harding R: Improving Supportive and Palliative Care for Adults with Cancer, 2004. Available at: Www.nice.org.uk/nicemedia/pdf/csgspmanual.pdf. (Last accessed February 2010).
23. Wimmer A: The making and unmaking of ethnic boundaries: A multilevel process theory. Am J Sociol 2008;113: 987-1022.
24. Keesing RM, Strathern A: Cultural Anthropology: A Contemporary Perspective. New York: Holt, Rinehart and Winston, 1976.
25. Oliviere D: Culture and ethnicity. Eur J Palliat Care 1999;6: 53-56.
26. Johnson M: End of life care in ethnic minorities: Providers need to overcome their fear of dealing with people from different backgrounds. BMJ 2009;338:489.
27. Betancourt J, Green A, Carrillo J, Park E: Cultural competence and health care disparities: Key perspectives and trends. Health Aff 2005;24:499.
28. Mutchler J, Burr J: Racial differences in health and health care service utilization in later life: The effect of socioeconomic status. J Health Social Behav 1991;32:342-356.
29. Betancourt J, Green A, Carrillo J, Ananeh-Firempong O: Defining cultural competence: A practical framework for addressing racial/ethnic disparities in health and health care. Public Health Rep 2003;118:293.
30. Fiscella K, Franks P, Gold M, Clancy C: Inequality in quality: Addressing socioeconomic, racial, and ethnic disparities in health care. JAMA 2000;283:2579.
31. Leininger M: Transcultural Nursing: Concepts, Theories, and Practices. New York: Wiley, 1978.
32. Campinha-Bacote J: A model and instrument for addressing cultural competence in health care. J Nurs Education 1999; 38:203.
33. Purnell LD, Paulanka BJ: Purnell's model for cultural competence. In: Purnell LD, Paulanka BJ, (eds): Transcultural Health Care: A Culturally Competent Approach. Philadelphia: FA Davis, 1998, pp. 1-6.
34. LaFromboise T, Foster S: Cross-cultural training: Scientistpractitioner model and methods. Counseling Psychologist 1992;20:472.
35. Cross TL, Bazxon BJ, Dennis KW, Isaacs MR: Towards a culturally competent system of care. A monograph on effective services for minority children who are severely emotionally disturbed. Washington, DC: National Institute of Mental Health, Child and Adolescent Service System Program; 1989.
36. Green J: Cultural Awareness in the Human Services. Upper Saddle River, NJ: Prentice Hall, 1982.
37. Kittler PG, Sucher K: Diet counseling in a multicultural society. Diabetes Educator 1990;16:127.
38. Sodowsky G, Taffe R, Gutkin T, Wise S: Development of the multicultural counseling inventory: A self-report measure of multicultural competencies. J Counseling Psychol 1994;41: 137.
39. Kripalani S, Bussey-Jones J, Katz M, Genao I: A prescription for cultural competence in medical education. J Gen Intern Med 2006;21:1116-1120.
40. Kumas-Tan Z, Beagan B, Loppie C, MacLeod A, Frank B: Measures of cultural competence: Examining hidden assumptions. Academic Med 2007;82:548.
41. Seeleman C, Suurmond J, Stronks K: Cultural competence: A conceptual framework for teaching and learning. Med Ed 2009;43:229-237.
42. Gunaratnam Y: From competence to vulnerability: Care, ethics, and elders from racialized minorities. Mortality 2008; 13:24-41.
43. Brach C, Fraser I: Can cultural competency reduce racial and ethnic health disparities? A review and conceptual model. Med Care Res Rev 2000;57(Suppl 1):181.
44. Price K, Cortis J: The way forward for transcultural nursing. Nurse Ed Today 2000;20:233-243.
45. McCaffery-Boyle D: The cultural context of dying from cancer. Int J Palliat Nurs 1998;4:70-85.
46. Gunaratnam Y: Culture is not enough: A critique of multiculturalism in palliative care. In: Death, Gender and Ethnicity. London: Routledge, 1997.
47. Firth S: Wider Horizons: Care of the Dying in a Multicultural Society. National Council for Hospice and Specialist Palliative Care Services; 2001.
48. Evans N, Meñ aca A, Andrew EVW, Koffman J, Harding R, Higginson IJ, Pool R, Gysels M, PRISMA: Systematic review of the primary research on minority ethnic groups and endof-life care from the UK. J Pain Symptom Manage 2012;43: 261-286.
49. Graneheim U, Lundman B: Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Ed Today 2004;24:105-112.
50. Elo S, Kyngä s H: The qualitative content analysis process. J Advanced Nurs 2008;62:107-115.
51. Daddy J, Clegg A: Cultural sensitivity: A practical approach to improving services. Nurs Stand 2001;15:39-40.
52. Ackroyd R: Audit of referrals to a hospital palliative care team: Role of the bilingual health-care worker. Int J Palliat Nurs 2003;9:352-357.
53. Dunckley M, Hughes R, Addington-Hall J, Higginson IJ: Language translation of outcome measurement tools: Views of health professionals. Int J Palliative Nurs 2003;9: 49-55.
54. Jack CM, Penny L, Nazar W: Effective palliative care for minority ethnic groups: The role of a liaison worker. Int J Palliat Nurs 2001;7:375-380.
55. Molassiotis A: Supportive and palliative care for patients from ethnic minorities in Europe: do we suffer from institutional racism? Eur J Oncol Nurs 2004;8:290-292.
56. Gatrad R, Choudhury P, Brown E, Sheikh A: Palliative care for Hindus. Int J Palliat Nurs 2003;9:442-448.
57. Nyatanga B: Cultural competence: A noble idea in a changing world. Int J Palliat Nurs 2008;14:315.
58. Gunaratnam Y: Intercultural palliative care: do we need cultural competence? Int J Palliat Nurs 2007;13:470.
59. McGee P, Johnson M: Developing culturally competent services in palliative care: Management perspectives. In: Gatrad R, Brown E, Sheikh A, (eds): Palliative Care for South Asians: Muslims, Hindus and Sikhs. London: Quay Books, 2007.
60. Payne S, Chapman A, Holloway M, Seymour JE, Chau R: Chinese community views: Promoting cultural competence in palliative care. J Palliat Care 2005;21:111-116.
61. Randhawa G, Owens A: Palliative care for minority ethnic groups. Eur J Palliat Care 2004;11.
62. Sarhill N, Mahmoud F, Walsh D: Muslim beliefs regarding death and bereavement. Eur J Palliat Care 2003;10:34-37.
63. Webb E, Sergison M: Evaluation of cultural competence and antiracism training in child health services. Arch Dis Childhood 2003;88:291.
64. Leininger M: Culture care theory, research, and practice. Nurs Sci Quarterly 1996;9:71.
65. Archibald G: The needs of South Asians with a terminal illness. Prof Nurse 2000;15:316-319.
66. Swan E: Equal care for all. Nursing Standard (Royal College of Nursing, Great Britain: 1987) 1999;13:42.
67. Vydelingum V: South Asian patients' lived experience of acute care in an English hospital: A phenomenological study. J Advanced Nurs 2000;32:100-107.
68. Gerrish K: Individualized care: Its conceptualization and practice within a multiethnic society. J Advanced Nurs 2000; 32:91-99.
69. Feser L, Bon B: Enhancing cultural competence in palliative care: Perspective of an elderly Chinese community in Calgary. J Palliat Care 2003;19:133.
70. Polaschek NR: Cultural safety: A new concept in nursing people of different ethnicities. J Advanced Nurs 1998;27:452-457.
71. Jones M, Cason C, Bond M: Cultural attitudes, knowledge, and skills of a health workforce. J Transcultural Nurs 2004; 15:283.
72. Leininger M: Response to Cooney article, "a comparative analysis of transcultural nursing and cultural safety". Nurs Praxis NZ 1996;11:13.
73. Coup A: Cultural safety and culturally congruent care: A comparative analysis of Irihapeti Ramsden's and Madeleine Leininger's educational projects for practice. Nurs Praxis NZ 1996;11:4.
74. Ramsden I: Kawawhakaruruhau: Cultural Safety in New Zealand. Wellington: Ministry of Education, 1990.
75. Ramsden I: Kawawhakaruruhau, cultural safety in nursing education in Aotearoa. Nurs Praxis 1993;8:4-10.
76. Papadopoulos I, Tilki M, Taylor G: Transcultural Care: A Guide for Health Care Professionals. Salisbury: Quay Books, 1998.
77. Leininger M: Leininger's theory of nursing: Cultural care diversity and universality. Nurs Sci Quarterly 1988;1:152.
78. Purnell LD, Paulanka BJ: Transcultural Health Care: A Culturally Competent Approach. Philadelphia: FA Davis, 1998.
79. Giger J, Davidhizar R: Transcultural Nursing: Assessment and Intervention. St. Louis: Mosby-YearBook, 1995.
80. Giger J, Davidhizar R: The Giger and Davidhizar transcultural assessment model. J Transcultural Nurs 2002;13:185.
81. Leininger M: Culture care theory: A major contribution to advance transcultural nursing knowledge and practices. J Transcultural Nurs 2002;13:189.
82. Purnell LD: A description of the Purnell model for cultural competence. J Transcultural Nurs 2000;11:40.
83. Campinha-Bacote J: The Process of Cultural Competence in the Delivery of Healthcare Services: A Culturally Competent Model of Care, 4th ed., 2003. www.transculturalcare.net. (Last accessed July 2010).
84. Gunaratnam Y: Care, artistry and what might be. Ethnicity Inequalities Health Social Care 2008;1:9-17.
85. Lister P: A taxonomy for developing cultural competence. Nurse Ed Today 1999;19:313-318.
86. Somerville J: The paradox of palliative care nursing across cultural boundaries. Int J Palliat Nurs 2007;13:580.
87. Kim-Godwin Y, Clarke P, Barton L: A model for the delivery of culturally competent community care. J Advanced Nurs 2001;35:918-925.
88. Gatrad AR, Sheikh A: Palliative care for Muslims and issues before death. Int J Palliat Nurs 2002;8:526-531.
89. Kittler PG, Sucher C: Diet counseling in a multicultural society. Diabetes Educator 1990;16:127-131.
90. O'Neill A: Cultural issues in palliative care. Eur Palliat Care 1995;2:127-131.
91. Diver F, Molassiotis A, Weeks L: The palliative care needs of ethnic minority patients attending a day-care centre: A qualitative study. Int J Palliat Nurs 2003;9:389-396.
92. Saha S, Beach M, Cooper L: Patient centeredness, cultural competence and healthcare quality. J Natl Med Assn 2008; 100:1275.
93. Jones K: Diversities in approach to end-of-life: A view from Britain of the qualitative literature. J Res Nurs 2005;10:431.
94. World Health Organization: WHO Definition of Palliative Care. www.who.int/cancer/palliative/definition/en/, 2011; www.who.int/cancer/ palliative/definition/en/. (Last accessed February 2011).
95. Evans N, Meñ aca A, Andrew E, Koffman J, Harding R, Higginson IJ, Pool R, Gysels M, PRISMA: Appraisal of literature reviews on end-of-life care for minority ethnic groups in the UK and a critical comparison with policy recommendations from the UK end-of-life care strategy. BMC Health Services Res 2011;11:141.
96. Gunaratnam Y: Implications of the Stephen Lawrence Inquiry for palliative care. Int J Palliat Nurs 2000;6:147-149.
97. Culley L: A critique of multiculturalism in health care: The challenge for nurse education. J Advanced Nurs 1996;23: 564-570.