Parenting: The forgotten role of women living with systemic lupus erythematosus

Clinical Rheumatology

Volumn 31, Issue 6, 2012, Pages 995-1000

  Poole, Janet L ^a   Rymek Gmytrasiewicz, Monika ^b   Mendelson, Cindy ^c   Sanders, Margaret ^d   Skipper, Betty ^d  

^a UNIVERSITY OF NEW MEXICO   (United States)

^b MSC09 5350 ^*

^c UNIVERSITY OF NEW MEXICO   (United States)

^d UNIVERSITY OF NEW MEXICO SCHOOL OF MEDICINE   (United States)

Author keywords

Motherhood; Parenting activities; Systemic lupus erythematosus

Indexed keywords

ACADEMIC ACHIEVEMENT; ADULT; ARTICLE; CHILD PARENT RELATION; DAILY LIFE ACTIVITY; FATIGUE; FEMALE; HOUSEHOLD; HUMAN; MAJOR CLINICAL STUDY; MOTHER; PAIN; PLAY; PRIORITY JOURNAL; QUESTIONNAIRE; SELF REPORT; SHOPPING; STATISTICAL ANALYSIS; SYMPTOM; SYSTEMIC LUPUS ERYTHEMATOSUS;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; FATIGUE; FEMALE; HUMANS; INFANT; INFANT, NEWBORN; LUPUS ERYTHEMATOSUS, SYSTEMIC; MIDDLE AGED; MOTHERS; PAIN MEASUREMENT; PARENTING; QUESTIONNAIRES;

EID: 84863724296     PISSN: 07703198     EISSN: 14349949     Source Type: Journal    
DOI: 10.1007/s10067-011-1929-5     Document Type: Article

References (21)

1. Bauernfeind B, Aringer M, Prodinger B, Kirchberger I, Machold K, Smolen J, Stamm T (2009) Identification of relevant concepts of functioning in daily life in people with systemic lupus erythematosus: a patient Delphi experience. Arthritis Rheum 61:21-28
2. Da Costa D, Bernatsky S, Dritsa M, Clarke AE, Dasgupta K, Keshani A, Pineau C (2003) Determinates of sleep quality in women with systemic lupus erythematosus. Arthritis Rheum 53:272-278
3. Dhanhani MA, Gignac MAM, Su J, Fortin PR (2009) Work in systemic lupus erythematosus. Arthritis Rheum 61:378-385
4. Johnson SR, Gladman DD, Schentag CT, Lee P (2006) Quality of life and functional status in systemic sclerosis compared to other rheumatic diseases. J Rheumatol 33:1117-1122
5. Katz PP, Morris A, Trupin L, Yazdany J, Yelin E (2008) Disability in valued life activities among individuals with systemic lupus erythematosus. Arthritis Rheum 59:465-473
6. Yelin E, Tonner C, Truplin L, Panoplis P, Yazdany J, Julian L, Katz PP, Criswell LA (2009) Work loss and work entry among persons with systemic systemic lupus erythematosus: comparison with a national matched sample. Arthritis Rheum 61:247-258
7. Thomas SP (1997) Distressing aspects of women's roles, vicarious stress, and health consequences. Issues Mental Health Nurs 18:539-557
8. Lopata HZ, Barnewolt D (1984) The middle years: Changes and variations in social role commitments. In: Baruch G, Brooks- Gunn J (eds) Women in Midlife, Plenum Press, New York, pp 83-108.
9. Allaire S (1988) How clinically ill a mother manages. Am J Nurs 88:46-49
10. Backman CL, Smith LDF, Smith S, Montie PL, Suto M (2007) Experiences of mothers living with inflammatory arthritis. Arthritis Rheum 57:381-388
11. Barlow JH, Cullen LA, Foster NE, Harison K, Wade M (1999) Does arthritis influence perceived ability to fulfill a parenting role? Perception of mothers, fathers and grandparents. Patient Educ Couns 37:141-151
12. Katz PP, Pasch LA, Wong B (2003) Development of an instrument to measure disability in parenting activities among women with rheumatoid arthritis. Arthritis Rheum 48:935-943
13. Poole JL, Willer K, Mendelson C, Sanders M, Skipper B (2011) Perceived parenting ability and systemic sclerosis. Muscoskel Care 9:32-40
14. Fries J, Spitz P, Kaine G, Homan H (1980) Measurement of patient outcome in arthritis. Arthritis Rheum 23:137-145
15. Burckhardt CS, Jones KD (2003) Adult measure of pain. Arthritis Care Res 49:96-104
16. Belza B (1995) Comparison of self-reported fatigue in rheumatoid arthritis and controls. J Rheumatol 22:639-643
17. Goligher EC, Pouchot J, Brant R, Kherani RB, Avina-Zubieta JA, Lacaile D, Lehman AJ, Ensworth S, Kopec J, Esdaile J, Liang MH (2008) Minimal clinically important difference for 7 measures of fatigue in patients with systemic lupus erythematosus. J Rheumatol 35:635-642
18. Kozora E, Ellison MC, West S (2006) Depression, fatigue, and pain in systemic lupus erythematosus (SLE): relationship to the American College of Rheumatology SLE neuropsychological battery. Arthritis Rheum 55:628-635
19. Poole JL,Willer K,Mendelson C (2009) Occupation of motherhood: challenges for mothers with scleroderma. Am J Occup Ther 63:214-219
20. Da Costa D, Dritsa M, Bernatsky S, Pineau C, MénardHA, Dasgupta K, Keshani A, Rippen N, Clarke AE (2006) Dimensions of fatigue in systemic lupus erythematosus: relationships to disease status and behavioral and psychosocial factors. J Rheumatol 33:1282-1288
21. Tench CM, McCurdie I, White PD, D'Cruz DP (2000) The prevalence and associations of fatigue in systemic lupus erythematosus. Rheumatol 39:1249-1254