Capabilities and quality of life in Dutch psycho-geriatric nursing homes: An exploratory study using a proxy version of the ICECAP-O

Quality of Life Research

Volumn 21, Issue 5, 2012, Pages 801-812

  Makai, Peter ^a   Brouwer, Werner B F ^a   Koopmanschap, Marc A ^a   Nieboer, Anna P ^a  

^a ERASMUS UNIVERSITY ROTTERDAM   (Netherlands)

Author keywords

Capabilities; ICECAP O; Psycho geriatric elderly

Indexed keywords

AGED; ARTICLE; COMPARATIVE STUDY; FEMALE; GERIATRIC ASSESSMENT; GERONTOPSYCHIATRY; HEALTH SURVEY; HUMAN; MALE; METHODOLOGY; NETHERLANDS; NONPARAMETRIC TEST; NURSING HOME; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY; STATISTICS; VALIDATION STUDY;

AGED, 80 AND OVER; FEMALE; GERIATRIC ASSESSMENT; GERIATRIC PSYCHIATRY; HEALTH STATUS INDICATORS; HUMANS; MALE; NETHERLANDS; NURSING HOMES; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; STATISTICS AS TOPIC; STATISTICS, NONPARAMETRIC;

EID: 84863631259     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-011-9997-1     Document Type: Article

References (47)

1. Drummond, M., Schulpher, M., Torrance, G., O'Brien, B., & Stoddart, G. (2005). Methods for the economic evaluation of healthcare programmes (p. 379). Oxford: Oxford University Press.
2. Ryan, M., Netten, A., Skatun, D., & Smith, P. (2006). Using discrete choice experiments to estimate a preference-based measure of outcome-an application to social care for older people. Journal of Health Economics, 25, 927-944. (Pubitemid 44251229)
3. Makai, P., Nieboer, A. B., Koopmanschap, M. A., Stolk, E., & Brouwer, W. B. F. (2011). Quality of life instruments for economic evaluations of elderly care. Draft.
4. Nieboer, A. P., Koolman, X., & Stolk, E. A. (2010). Preferences for long-term care services: Willingness to pay estimates derived from a discrete choice experiment. Social Science and Medicine, 70, 1317-1325.
5. Hamers, J. (2005). Why do we use physical restraints in the elderly? Zeitschrift für Gerontologie und Geriatrie, 38, 19.
6. Cookson, R. (2005). QALYs and the capability approach. Health Economics, 14, 817-829. (Pubitemid 41093978)
7. Sen, A. (1982). Choice, welfare and measurement (p. 440). Cambridge, MA: Harvard University Press.
8. Coast, J., Flynn, T. N., Natarajan, L., Sproston, K., Lewis, J., Louviere, J. J., et al. (2008). Valuing the ICECAP capability index for older people. Social Science and Medicine, 67, 874-882.
9. Coast, J., Peters, T. J., Natarajan, L., Sproston, K., & Flynn, T. (2008). An assessment of the construct validity of the descriptive system for the ICECAP capability measure for older people. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 17, 967-976.
10. Flynn, T. N., Louviere, J. J., Marley, A. A. J., Coast, J., & Peters, T. J. (2008). Rescaling quality of life values from discrete choice experiments for use as QALYs: A cautionary tale. Population Health Metrics, 6. doi:10.1186/1478-7954-6-6.
11. Grewal, I., Lewis, J., Flynn, T., Brown, J., Bond, J., & Coast, J. (2006). Developing attributes for a generic quality of life measure for older people: Preferences or capabilities? Social Science and Medicine, 62, 1891-1901.
12. Macdonald, A., & Cooper, B. (2007). Long-term care and dementia services: An impending crisis. Age and Ageing, 36, 16-22. (Pubitemid 47072029)
13. Kwasky, A. N., Harrison, B. E., & Whall, A. L. (2010). Quality of life and dementia: An integrated review of literature. Alzheimer's Care Today, 11, 186-195.
14. Banerjee, S., Samsi, K., Petrie, C. D., Alvir, J., Treglia, M., Schwam, E. M., et al. (2009). What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. International Journal of Geriatric Psychiatry, 24, 15-24.
15. Brod, M., Stewart, A. L., Sands, L., & Walton, P. (1999). Conceptualization and measurement of quality of life in dementia: The dementia quality of life instrument (DQoL). The Gerontologist, 39, 25-36.
16. Ready, R. E. (2003). Quality of life measures for dementia. Health and Quality of Life Outcomes, 1 (11). doi:10.1186/1477-7525-1-11. (Pubitemid 39111985)
17. Logsdon, R. G., Gibbons, L. E., McCurry, S. M., & Teri, L. (1999). Quality of life in alzheimer's disease: Patient and caregiver reports. Journal of Mental Health and Aging, 5, 21-32. (Pubitemid 29235115)
18. Selai, C. C. E. (2001). Assessing quality of life in dementia: Preliminary psychometric testing of the quality of life assessment schedule (QOLAS). Neuropsychological Rehabilitation, 11, 219-243.
19. Smith, S. C., Lamping, D. L., Banerjee, S., Harwood, R. H., Foley, B., Smith, P., et al. (2007). Development of a new measure of health-related quality of life for people with dementia: DEMQOL. Psychological Medicine, 37, 737.
20. Ettema, T. P., Dröes, R., de Lange, J., Mellenbergh, G. J., & Ribbe, M. W. (2007). QUALIDEM: Development and evaluation of a dementia specific quality of life instrument. scalability, reliability and internal structure. International Journal of Geriatric Psychiatry, 22, 549-556. (Pubitemid 46951753)
21. Hoe, J., Katona, C., Roch, B., & Livingston, G. (2005). Use of the QOL-AD for measuring quality of life in people with severe dementia-the LASER-AD study. Age and Ageing, 34, 130-135. (Pubitemid 40331093)
22. Neyens, J. C. L., Dijcks, B. P. J., Twisk, J., Schols, J. M. G. A., van Haastregt, J. C. M., van den Heuvel, W. J. A., et al. (2009). A multifactorial intervention for the prevention of falls in psychogeriatric nursing home patients, a randomised controlled trial (RCT). Age and Ageing, 38, 194-199.
23. Pickard, A. S., & Knight, S. J. (2005). Proxy evaluation of healthrelated quality of life: A conceptual framework for understanding multiple proxy perspectives. Medical Care, 43, 493-499. (Pubitemid 40694611)
24. Strating, M. M. H., Zuiderent, T., Nieboer, A. P., & Bal, R. A. (2008). Evaluating the care for better collaborative. Results: of the first year of evaluation, pp. 1-132.
25. Strating, M. M. H., Nieboer, A. P., Zuiderent-Jerak, T., & Bal, R. A. (2011). Creating effective quality-improvement collaboratives: A multiple case study. BMJ Quality and Safety, 20, 344-350.
26. Burgerlijke wetboek [civil code of the netherlands]. (1992). Article 446-Article 468.
27. Miller, F. G., & Emanuel, E. J. (2008). Quality-improvement research and informed consent. New England Journal of Medicine, 358, 765-767. (Pubitemid 351281639)
28. EuroQol. (1990). A new facility for the measurement of healthrelated quality of life. The EuroQol group. Health Policy, 16, 199-208.
29. Jonsson, L., Andreasen, N., Kilander, L., Soininen, H., Waldemar, G., Nygaard, H., et al. (2006). Patient-and proxy-reported utility in alzheimer disease using the EuroQoL. Alzheimer Disease and Associated Disorders, 20, 49-55. (Pubitemid 44356894)
30. Cantril, H. (1966). The pattern of human concerns. New Brunswick: Rutgers University Press.
31. Bengtsson-Tops, A., Hansson, L., Sandlund, M., Bjarnason, O., Korkeila, J., Merinder, L., et al. (2005). Subjective versus interviewer assessment of global quality of life among persons with schizophrenia living in the community: A nordic multicentre study. Quality of Life Research, 14, 221-229. (Pubitemid 40249096)
32. Veenhoven, R. (2010). World database of happiness. From http://worlddatabaseofhappiness.eur.nl. Asessed 3 Jan 2010.
33. Bjelland, I., Dahl, A. A., Haug, T. T., & Neckelmann, D. (2002). The validity of the hospital anxiety and depression scale: An updated literature review. Journal of Psychosomatic Research, 52, 69-77. (Pubitemid 34192886)
34. Carod-Artal, F. J., Coral, L. F., Trizotto, D. S., & Moreira, C. M. (2009). Self-and proxy-report agreement on the stroke impact scale. Stroke, 40, 3308-3314.
35. Spinhoven, P., Ormel, J., Sloekers, P. P., Kempen, G. I., Speckens, A. E., & Van Hemert, A. M. (1997). A validation study of the hospital anxiety and depression scale (HADS) in different groups of dutch subjects. Psychological Medicine, 27, 363-370. (Pubitemid 27139969)
36. Dijkstra, A., Buist, G., & Dassen, T. (1996). Nursing-care dependency. Development of an assessment scale for demented and mentally handicapped patients. Scandinavian Journal of Caring Sciences, 10, 137-143.
37. Valimaki, M., Dijkstra, A., Soini, H., M., Antila., Zanotti, R., & Dassen, T. (2004). Elderly patient's care dependency. Hallym International Journal of Aging, 6, 79-93. (Pubitemid 40227586)
38. Dijkstra, A., Coleman, M., Tomas, C., Valimaki, M., & Dassen, T. (2003). Cross-cultural psychometric testing of the care dependency scale with data. Journal of Advanced Nursing, 43, 181-187. (Pubitemid 37255884)
39. Lee, K. J., & Carlin, J. B. (2010). Multiple imputation for missing data: Fully conditional specification versus multivariate normal imputation. American Journal of Epidemiology, 171, 624-632.
40. Alexopoulos, G. S., Abrams, R. C., Young, R. C., & Shamoian, C. A. (1988). Cornell scale for depression in dementia. Biological Psychiatry, 23, 271-284. (Pubitemid 18047596)
41. Al-Janabi, H., Flynn, T., & Coast, J. (2011). Development of a self-report measure of capability wellbeing for adults: The ICE-CAP-A. Quality of Life Research.
42. Huizing, A. R., Hamers, J. P. H., Gulpers, M. J. M., & Berger, M. P. F. (2009). A cluster-randomized trial of an educational intervention to reduce the use of physical restraints with psychogeriatric nursing home residents. Journal of the American Geriatrics Society, 57, 1139-1148.
43. Nussbaum, M. (Ed.). (1993). The quality of life (p. 453). Oxford: Clarendon Press.
44. Robeyns, I. (2005). The capability approach: A theoretical survey. Journal of Human Development, 6(1), 93-114.
45. Coast, J., Smith, R., & Lorgelly, P. (2008). Should the capability approach be applied in health economics? Health Economics, 17, 667-670. (Pubitemid 351983391)
46. Brouwer, W. B. F., Culyer, A. J., van Exel, N. J. A., & Rutten, F. F. H. (2008). Welfarism vs. extra-welfarism. Journal of Health Economics, 27, 325-338.
47. Gullone, E., & Cummins, R. A. (Eds.). (2002). Universality of subjective wellbeing indicators (p. 196). Dordrecht: Kluwer.