The practice of continuous deep sedation until death in Flanders (Belgium), the Netherlands, and the U.K.: A comparative study

Journal of Pain and Symptom Management

Volumn 44, Issue 1, 2012, Pages 33-43

  Anquinet, Livia ^a   Rietjens, Judith A C ^a,b   Seale, Clive ^c   Seymour, Jane ^d   Deliens, Luc ^a,e   Van Der Heide, Agnes ^b  

^a GHENT UNIVERSITY   (Belgium)

^b ERASMUS MEDICAL CENTER   (Netherlands)

^c QUEEN MARY UNIVERSITY OF LONDON   (United Kingdom)

^d UNIVERSITY OF NOTTINGHAM   (United Kingdom)

^e VU UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

continuous deep sedation; Continuous deep sedation until death; end of life care; palliative sedation

Indexed keywords

BENZODIAZEPINE;

ADOLESCENT; ADULT; AGE DISTRIBUTION; AGED; ARTICLE; BELGIUM; CHILD; CLINICAL PRACTICE; COMPARATIVE STUDY; CONTINUOUS DEEP SEDATION; DEATH; DEATH CERTIFICATE; DEEP SEDATION; FEMALE; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; NEOPLASM; NETHERLANDS; PHYSICIAN; PRESCHOOL CHILD; QUESTIONNAIRE; SCHOOL CHILD; SEX RATIO; TERMINAL CARE; TREATMENT DURATION; UNITED KINGDOM;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; BELGIUM; CHILD; CHILD, PRESCHOOL; DECISION MAKING; DEEP SEDATION; EUTHANASIA; FEMALE; GREAT BRITAIN; HEALTH CARE SURVEYS; HUMANS; INFANT; INFANT, NEWBORN; MALE; MIDDLE AGED; NETHERLANDS; PHYSICIAN'S PRACTICE PATTERNS; PREVALENCE; QUESTIONNAIRES; SUICIDE, ASSISTED; TERMINAL CARE;

EID: 84863561988     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2011.07.007     Document Type: Article

References (50)

1. J.A.C. Rietjens, A. van der Heide, B. Onwuteaka-Philipsen, P.J. van der Maas, and G. van der Wal Preferences of the Dutch general public for a good death and associations with attitudes towards end-of-life decision-making Palliat Med 20 2006 685 692
2. K.E. Steinhauser, N.A. Christakis, and E.C. Clipp Factors considered important at the end of life by patients, family, physicians, and other care providers JAMA 284 2000 2476 2482
3. K.E. Steinhauser, E.C. Clipp, and M. McNeilly In search of a good death: observations of patients, families, and providers Ann Intern Med 132 2000 825 832
4. K.E. Steinhauser, N.A. Christakis, and E.C. Clipp Preparing for the end of life: preferences of patients, families, physicians, and other care providers J Pain Symptom Manage 22 2001 727 737
5. E.J. Emanuel, and L.L. Emanuel The promise of a good death Lancet 351 Suppl 2 1998 SII21 SII29
6. A. de Graeff, and M. Dean Palliative sedation therapy in the last weeks of life: a literature review and recommendations for standards J Palliat Med 10 2007 67 85
7. N.I. Cherny, and R.K. Portenoy Sedation in the management of refractory symptoms: guidelines for evaluation and treatment J Palliat Care 10 1994 31 38
8. L.J. Materstvedt, and G. Bosshard Deep and continuous palliative sedation (terminal sedation): clinical-ethical and philosophical aspects Lancet Oncol 10 2009 622 627
9. T. Morita, S. Tsuneto, and Y. Shima Proposed definitions for terminal sedation Lancet 358 2001 335 336
10. G. Miccinesi, J.A.C. Rietjens, and L. Deliens Continuous deep sedation: physicians' experiences in six European countries J Pain Symptom Manage 31 2006 122 129
11. J.A. Billings, and S.D. Block Slow euthanasia J Palliat Care 12 1996 21 30
12. K. Chambaere, J. Bilsen, and J. Cohen Continuous deep sedation until death in Belgium: a nationwide survey Arch Intern Med 170 2010 490 494
13. J.A.C. Rietjens, J.J.M. van Delden, and B. Onwuteaka-Philipsen Continuous deep sedation for patients nearing death in the Netherlands: descriptive study BMJ 336 2008 810 813
14. C. Seale Continuous deep sedation in medical practice: a descriptive study J Pain Symptom Manage 39 2010 44 53
15. J.G. Hasselaar, R.P. Reuzel, and S.C. Verhagen Improving prescription in palliative sedation: compliance with Dutch guidelines Arch Intern Med 167 2007 1166 1171
16. T.E. Quill, and I.R. Byock Responding to intractable terminal suffering: the role of terminal sedation and voluntary refusal of food and fluids Ann Intern Med 132 2000 408 414
17. Royal Dutch Medical Association (KNMG). Guideline for Palliative Sedation. Available from: http://knmg.artsennet.nl/Publicaties/KNMGpublicatie/ Guideline-for-palliative-sedation-2009.htm. Accessed May 25, 2012.
18. N.I. Cherny, L. Radbruch Board of the European Association for Palliative Care European Association for Palliative Care (EAPC) recommended framework for the use of sedation in palliative care Palliat Med 23 2009 581 593
19. T. Morita, S. Bito, Y. Kurihara, and Y. Uchitomi Development of a clinical guideline for palliative sedation therapy using the Delphi method J Palliat Med 8 2005 716 729
20. T.C. Braun, N.A. Hagen, and T. Clark Development of a clinical practice guideline for palliative sedation J Palliat Med 6 2003 345 350
21. Z.D. Schuman, M. Lynch, and J.L. Abrahm Implementing institutional change: an institutional case study of palliative sedation J Palliat Med 8 2005 666 676
22. Broeckaert B, Mullie A, Gielen J, Desmet M, Vanden Berghe P. Ethics Steering Committee of the Federation for Palliative Care Flanders [Sedation]. 2010. Available from http://www.pallialine.be/template.asp?f=rl-sedatie.htm. Accessed January 31, 2012.
23. A. van der Heide, B. Onwuteaka-Philipsen, and M.L. Rurup End-of-life practices in the Netherlands under the Euthanasia Act N Engl J Med 356 2007 1957 1965
24. C. Seale End-of-life decisions in the UK involving medical practitioners Palliat Med 23 2009 198 204
25. L. Deliens, F. Mortier, and J. Bilsen End-of-life decisions in medical practice in Flanders, Belgium: a nationwide survey Lancet 356 2000 1806 1811
26. A. van der Heide, L. Deliens, and K. Faisst End-of-life decision-making in six European countries: descriptive study Lancet 362 2003 345 350
27. K. Chambaere, J. Bilsen, and J. Cohen A post-mortem survey on end-of-life decisions using a representative sample of death certificates in Flanders, Belgium: research protocol BMC Public Health 8 2008 299
28. C. Seale Characteristics of end-of-life decisions: survey of UK medical practitioners Palliat Med 20 2006 653 659
29. B.D. Onwuteaka-Philipsen, A. van der Heide, and D. Koper Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001 Lancet 362 2003 395 399
30. W. Mendenhall, L. Ott, and R. Scheaffer Elementary survey sampling 1971 Wadsworth Belmont, CA
31. N. Sykes, and A. Thorns The use of opioids and sedatives at the end of life Lancet Oncol 4 2003 312 318
32. J.D. Cowan, and D. Walsh Terminal sedation in palliative medicine - definition and review of the literature Support Care Cancer 9 2001 403 407
33. C. Peruselli, P. Di Giulio, and F. Toscani Home palliative care for terminal cancer patients: a survey on the final week of life Palliat Med 13 1999 233 241
34. J. Hardy Sedation in terminally ill patients Lancet 356 2000 1866 1867
35. R.L. Fainsinger, A. Waller, and M. Bercovici A multicentre international study of sedation for uncontrolled symptoms in terminally ill patients Palliat Med 14 2000 257 265
36. J. Cohen, J. Bilsen, and J. Addington-Hall Population-based study of dying in hospital in six European countries Palliat Med 22 2008 702 710
37. J. Cohen, D. Houttekier, and B. Onwuteaka-Philipsen Which patients with cancer die at home? A study of six European countries using death certificate data J Clin Oncol 28 2010 2267 2273
38. J. Cohen, J. Bilsen, and P. Hooft Dying at home or in an institution. Using death certificates to explore the factors associated with place of death Health Policy 78 2006 319 329
39. O.S. Rosengarten, Y. Lamed, T. Zisling, A. Feigin, and J.M. Jacobs Palliative sedation at home J Palliat Care 25 2009 5 11
40. S. Mercadante, G. Porzio, and A. Valle Palliative sedation in patients with advanced cancer followed at home: a systematic review J Pain Symptom Manage 41 2011 754 760
41. A. Alonso-Babarro, M. Varela-Cerdeira, I. Torres-Vigil, R. Rodríguez-Barrients, and E. Bruera At-home palliative sedation for end-of-life cancer patients Palliat Med 24 2010 486 492
42. F. Bulli, G. Miccinesi, and E. Biancalani Continuous deep sedation in home palliative care units: case studies in the Florence area in 2000 and in 2003-2004 Minerva Anestesiol 73 2007 291 298
43. J.G. Hasselaar, S.C. Verhagen, and A.P. Wolff Changed patterns in Dutch palliative sedation practices after the introduction of a national guideline Arch Intern Med 169 2009 430 437
44. J. Seymour, J. Rietjens, and J. Brown The perspectives of clinical staff and bereaved informal care-givers on the use of continuous sedation until death for cancer patients: the study protocol of the UNBIASED study BMC Palliat Care 10 2011 5
45. R.L. Fainsinger, D. De Moissac, I. Mancini, and D. Oneschuk Sedation for delirium and other symptoms in terminally ill patients in Edmonton J Palliat Care 16 2000 5 10
46. B.D. Onwuteaka-Philipsen, S. Fisher, and C. Cartwright End-of-life decision making in Europe and Australia: a physician survey Arch Intern Med 166 2006 921 929
47. J. Bilsen, R. Vander Stichele, B. Broeckaert, F. Mortier, and L. Deliens Changes in medical end-of-life practices during the legalization process of euthanasia in Belgium Soc Sci Med 65 2007 803 808
48. G. Miccinesi, S. Fisher, and E. Paci Physicians' attitudes towards end-of-life decisions: a comparison between seven countries Soc Sci Med 60 2005 1961 1974
49. J.E. Seymour, R. Janssens, and B. Broeckaert Relieving suffering at the end of life: practitioners' perspectives on palliative sedation from three European countries Soc Sci Med 64 2007 1679 1691
50. M. Rebagliato, M. Cuttini, and L. Broggin Neonatal end-of-life decision making. Physicians' attitudes and relationship with self-reported practices in 10 European countries JAMA 284 2000 2451 2459