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Volumn 18, Issue 4, 2012, Pages 568-574

Current prescription of prophylactic factor infusions and perceived adherence for children and adolescents with haemophilia: A survey of haemophilia healthcare professionals in the United States

Author keywords

Haemarthrosis; Haemophilia; Prophylactic treatment; Treatment adherence

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CHILD CARE; FAMILY HISTORY; HEMARTHROSIS; HEMOPHILIA; HEMOPHILIC ARTHROPATHY; HUMAN; NURSE; OUTCOME ASSESSMENT; PATIENT COMPLIANCE; PEDIATRIC NURSE PRACTITIONER; PERSONALIZED MEDICINE; PHYSICIAN; PRESCHOOL CHILD; PRESCRIPTION; PRIMARY PREVENTION; PRIORITY JOURNAL; SCHOOL CHILD; SECONDARY PREVENTION; UNITED STATES;

EID: 84863186626     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2012.02756.x     Document Type: Article
Times cited : (31)

References (27)
  • 1
    • 0141955858 scopus 로고    scopus 로고
    • Practice patterns in haemophilia A therapy - a survey of treatment centres in the United States
    • Butler RB, McClure W, Wulff K. Practice patterns in haemophilia A therapy - a survey of treatment centres in the United States. Haemophilia 2003; 9: 549-54.
    • (2003) Haemophilia , vol.9 , pp. 549-554
    • Butler, R.B.1    McClure, W.2    Wulff, K.3
  • 2
    • 0038779279 scopus 로고    scopus 로고
    • Prophylaxis in factor IX deficiency product and patient variation
    • Kisker CT, Eisberg A, Schwartz B. Prophylaxis in factor IX deficiency product and patient variation. Haemophilia 2003; 9: 279-84.
    • (2003) Haemophilia , vol.9 , pp. 279-284
    • Kisker, C.T.1    Eisberg, A.2    Schwartz, B.3
  • 3
    • 0026635406 scopus 로고
    • Twenty-five years' experience of prophylactic treatment in severe haemophilia A and B
    • Nilsson I, Berntorp E, Lofqvist T, Pettersson H. Twenty-five years' experience of prophylactic treatment in severe haemophilia A and B. J Int Med 1992; 232: 25-32.
    • (1992) J Int Med , vol.232 , pp. 25-32
    • Nilsson, I.1    Berntorp, E.2    Lofqvist, T.3    Pettersson, H.4
  • 4
    • 0038441408 scopus 로고    scopus 로고
    • The overall effectiveness of prophylaxis in severe haemophilia
    • Panicker J, Warrier I, Thomas R, Lusher JM. The overall effectiveness of prophylaxis in severe haemophilia. Haemophilia 2003; 9: 272-8.
    • (2003) Haemophilia , vol.9 , pp. 272-278
    • Panicker, J.1    Warrier, I.2    Thomas, R.3    Lusher, J.M.4
  • 5
    • 0036862120 scopus 로고    scopus 로고
    • Prophylactic versus on-demand treatment strategies for severe haemophilia: a comparison of costs and long-term outcome
    • Fischer K, van der Bom JG, Molho P et al. Prophylactic versus on-demand treatment strategies for severe haemophilia: a comparison of costs and long-term outcome. Haemophilia 2002; 8: 745-52.
    • (2002) Haemophilia , vol.8 , pp. 745-752
    • Fischer, K.1    van der Bom, J.G.2    Molho, P.3
  • 6
    • 0037764701 scopus 로고    scopus 로고
    • Comparing outcomes of different treatment regimens for severe haemophilia
    • van den Berg HM, Fischer K, van der Bom JG. Comparing outcomes of different treatment regimens for severe haemophilia. Haemophilia 2003; 9(Suppl 1): 27-31.
    • (2003) Haemophilia , vol.9 , Issue.SUPPL. 1 , pp. 27-31
    • van den Berg, H.M.1    Fischer, K.2    van der Bom, J.G.3
  • 7
    • 0037810806 scopus 로고    scopus 로고
    • Prophylaxis for severe haemophilia: clinical and economical issues
    • Fischer K, Van Den Berg M. Prophylaxis for severe haemophilia: clinical and economical issues. Haemophilia 2003; 9: 376-81.
    • (2003) Haemophilia , vol.9 , pp. 376-381
    • Fischer, K.1    Van Den Berg, M.2
  • 8
    • 34547757915 scopus 로고    scopus 로고
    • Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
    • Manco-Johnson MJ, Abshire TC, Shapiro AD et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007; 357: 535-44.
    • (2007) N Engl J Med , vol.357 , pp. 535-544
    • Manco-Johnson, M.J.1    Abshire, T.C.2    Shapiro, A.D.3
  • 9
    • 79953306825 scopus 로고    scopus 로고
    • A randomized clinical trial of prophylaxis in children with hemophilia A (the ESPRIT Study)
    • Gringeri A, Lundin B, Mackensen SV, Mantovani L, Mannucci PM. A randomized clinical trial of prophylaxis in children with hemophilia A (the ESPRIT Study). J Thromb Haemost 2011; 9: 700-10.
    • (2011) J Thromb Haemost , vol.9 , pp. 700-710
    • Gringeri, A.1    Lundin, B.2    Mackensen, S.V.3    Mantovani, L.4    Mannucci, P.M.5
  • 10
    • 37749043474 scopus 로고    scopus 로고
    • Physicians' perceptions of adherence to prophylactic clotting factor infusions
    • Thornburg CD. Physicians' perceptions of adherence to prophylactic clotting factor infusions. Haemophilia 2008; 14: 25-9.
    • (2008) Haemophilia , vol.14 , pp. 25-29
    • Thornburg, C.D.1
  • 11
    • 33748970047 scopus 로고    scopus 로고
    • Medication treatment adherence
    • Bosworth H, Oddone E, Weinberger M eds. Mahweh: Lawrence Erlbaum Associates, Publishers, 158.
    • Bosworth H. Medication treatment adherence. In: Bosworth H, Oddone E, Weinberger M eds. Patient Treatment Adherence: Concepts, Interventions, and Measurement. Mahweh: Lawrence Erlbaum Associates, Publishers, 2006: 158.
    • (2006) Patient Treatment Adherence: Concepts, Interventions, and Measurement
    • Bosworth, H.1
  • 12
    • 0017154547 scopus 로고
    • Improvement of medication compliance in uncontrolled hypertension
    • Haynes RB, Sackett DL, Gibson ES et al. Improvement of medication compliance in uncontrolled hypertension. Lancet 1976; 1: 1265-8.
    • (1976) Lancet , vol.1 , pp. 1265-1268
    • Haynes, R.B.1    Sackett, D.L.2    Gibson, E.S.3
  • 13
    • 0025361280 scopus 로고
    • The relative risk of incident coronary heart disease associated with recently stopping the use of beta-blockers
    • Psaty BM, Koepsell TD, Wagner EH, LoGerfo JP, Inui TS. The relative risk of incident coronary heart disease associated with recently stopping the use of beta-blockers. JAMA 1990; 263: 1653-7.
    • (1990) JAMA , vol.263 , pp. 1653-1657
    • Psaty, B.M.1    Koepsell, T.D.2    Wagner, E.H.3    LoGerfo, J.P.4    Inui, T.S.5
  • 14
  • 15
    • 84863217264 scopus 로고    scopus 로고
    • Centers for Disease Control and Prevention (CDC) HTC staff database. Available at. Accessed 2010.
    • Centers for Disease Control and Prevention (CDC) HTC staff database. Available at. Accessed 2010.
  • 16
    • 33646759553 scopus 로고    scopus 로고
    • Tailored prophylaxis in severe hemophilia A: interim results from the first 5years of the Canadian Hemophilia Primary Prophylaxis Study
    • Feldman BM, Pai M, Rivard GE et al. Tailored prophylaxis in severe hemophilia A: interim results from the first 5years of the Canadian Hemophilia Primary Prophylaxis Study. J Thromb Haemost 2006; 4: 1228-36.
    • (2006) J Thromb Haemost , vol.4 , pp. 1228-1236
    • Feldman, B.M.1    Pai, M.2    Rivard, G.E.3
  • 17
    • 77950211350 scopus 로고    scopus 로고
    • New early prophylaxis regimen that avoids immunological danger signals can reduce FVIII inhibitor development
    • Kurnik K, Bidlingmaier C, Engl W, Chehadeh H, Reipert B, Auerswald G. New early prophylaxis regimen that avoids immunological danger signals can reduce FVIII inhibitor development. Haemophilia 2010; 16: 256-62.
    • (2010) Haemophilia , vol.16 , pp. 256-262
    • Kurnik, K.1    Bidlingmaier, C.2    Engl, W.3    Chehadeh, H.4    Reipert, B.5    Auerswald, G.6
  • 18
    • 84863210086 scopus 로고    scopus 로고
    • Universal Data Collection Project. Available at. Accessed 2002, 2006 and 2010.
    • Universal Data Collection Project. Available at. Accessed 2002, 2006 and 2010.
  • 19
    • 77950240992 scopus 로고    scopus 로고
    • VERITAS-Pro: a new measure of adherence to prophylactic regimens in haemophilia
    • Duncan N, Kronenberger W, Roberson C, Shapiro A. VERITAS-Pro: a new measure of adherence to prophylactic regimens in haemophilia. Haemophilia 2010; 16: 247-55.
    • (2010) Haemophilia , vol.16 , pp. 247-255
    • Duncan, N.1    Kronenberger, W.2    Roberson, C.3    Shapiro, A.4
  • 20
    • 80052037954 scopus 로고    scopus 로고
    • Adherence with haemophilia treatments: a survey of haemophilia healthcare professionals in Canada
    • Chan AK, Decker K, Warner M. Adherence with haemophilia treatments: a survey of haemophilia healthcare professionals in Canada. Haemophilia 2011; 17: 816-7.
    • (2011) Haemophilia , vol.17 , pp. 816-817
    • Chan, A.K.1    Decker, K.2    Warner, M.3
  • 21
    • 44249113317 scopus 로고    scopus 로고
    • Prophylaxis for severe haemophilia: clinical challenges in the absence as well as in the presence of inhibitors
    • Fischer K, Valentino L, Ljung R, Blanchette V. Prophylaxis for severe haemophilia: clinical challenges in the absence as well as in the presence of inhibitors. Haemophilia 2008; 14(Suppl 3): 196-201.
    • (2008) Haemophilia , vol.14 , Issue.SUPPL. 3 , pp. 196-201
    • Fischer, K.1    Valentino, L.2    Ljung, R.3    Blanchette, V.4
  • 22
    • 33646003882 scopus 로고    scopus 로고
    • Compliance with treatment and understanding of own disease in patients with severe and moderate haemophilia
    • Lindvall K, Colstrup L, Wollter IM et al. Compliance with treatment and understanding of own disease in patients with severe and moderate haemophilia. Haemophilia 2006; 12: 47-51.
    • (2006) Haemophilia , vol.12 , pp. 47-51
    • Lindvall, K.1    Colstrup, L.2    Wollter, I.M.3
  • 23
    • 34548301667 scopus 로고    scopus 로고
    • Should prophylaxis be used in adolescent and adult patients with severe haemophilia? An European survey of practice and outcome data
    • Richards M, Altisent C, Batorova A et al. Should prophylaxis be used in adolescent and adult patients with severe haemophilia? An European survey of practice and outcome data. Haemophilia 2007; 13: 473-9.
    • (2007) Haemophilia , vol.13 , pp. 473-479
    • Richards, M.1    Altisent, C.2    Batorova, A.3
  • 24
    • 69949085125 scopus 로고    scopus 로고
    • Factor VIII prophylaxis for adult patients with severe haemophilia A: results of a US survey of attitudes and practices
    • Walsh CE, Valentino LA. Factor VIII prophylaxis for adult patients with severe haemophilia A: results of a US survey of attitudes and practices. Haemophilia 2009; 15: 1014-21.
    • (2009) Haemophilia , vol.15 , pp. 1014-1021
    • Walsh, C.E.1    Valentino, L.A.2
  • 25
    • 80052279733 scopus 로고    scopus 로고
    • Medication adherence: a call for action
    • Bosworth HB, Granger BB, Mendys P et al. Medication adherence: a call for action. Am Heart J 2011; 162: 412-24.
    • (2011) Am Heart J , vol.162 , pp. 412-424
    • Bosworth, H.B.1    Granger, B.B.2    Mendys, P.3
  • 26
    • 34548317170 scopus 로고    scopus 로고
    • Quantifying adherence to treatment and its relationship to quality of life in a well-characterized haemophilia population
    • du Treil S, Rice J, Leissinger CA. Quantifying adherence to treatment and its relationship to quality of life in a well-characterized haemophilia population. Haemophilia 2007; 13: 493-501.
    • (2007) Haemophilia , vol.13 , pp. 493-501
    • du Treil, S.1    Rice, J.2    Leissinger, C.A.3
  • 27
    • 80053190308 scopus 로고    scopus 로고
    • Survey of current prophylaxis practices and bleeding characteristics of children with severe haemophilia A in US haemophilia treatment centres
    • Ragni MV, Fogarty PJ, Josephson NC, Neff AT, Raffini LJ, Kessler CM. Survey of current prophylaxis practices and bleeding characteristics of children with severe haemophilia A in US haemophilia treatment centres. Haemophilia 2012; 18: 63-8.
    • (2012) Haemophilia , vol.18 , pp. 63-68
    • Ragni, M.V.1    Fogarty, P.J.2    Josephson, N.C.3    Neff, A.T.4    Raffini, L.J.5    Kessler, C.M.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.