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Volumn 16, Issue 4, 2012, Pages 448-463

The use of routinely collected patient data for research: A critical review

Author keywords

data sharing; electronic records; ethics of care; informed consent; patient attitudes

Indexed keywords

CONFIDENTIALITY; DECISION MAKING; ELECTRONIC MEDICAL RECORD; ETHICS; FACTUAL DATABASE; HUMAN; INFORMED CONSENT; NATIONAL HEALTH SERVICE; PATIENT; PUBLIC OPINION; RESEARCH; REVIEW; UNITED KINGDOM;

EID: 84862734532     PISSN: 13634593     EISSN: 14617196     Source Type: Journal    
DOI: 10.1177/1363459311425513     Document Type: Review
Times cited : (12)

References (46)
  • 1
    • 31344433911 scopus 로고    scopus 로고
    • London: The Academy of Medical Sciences
    • Personal Data for Public Good. London: The Academy of Medical Sciences; 2006:.
    • (2006) Personal Data for Public Good
  • 3
    • 0034727367 scopus 로고    scopus 로고
    • Using patient-identifiable data for observational research and audit: Overprotection could damage the public interest
    • Al-Shahi R,Warlow C.Using patient-identifiable data for observational research and audit: Overprotection could damage the public interest.British Medical Journal. 2000;321 (7268): 1031-1032.
    • (2000) British Medical Journal , vol.321 , Issue.7268 , pp. 1031-1032
    • Al-Shahi, R.1    Warlow, C.2
  • 5
    • 0033859590 scopus 로고    scopus 로고
    • What proportion of patients refuse consent to data collection from their records for research purposes?
    • Baker R,Shiels C,Stevenson K,Fraser R,Stone M.What proportion of patients refuse consent to data collection from their records for research purposes?.British Journal of General Practice. 2000;50 (457): 655-656.
    • (2000) British Journal of General Practice , vol.50 , Issue.457 , pp. 655-656
    • Baker, R.1    Shiels, C.2    Stevenson, K.3    Fraser, R.4    Stone, M.5
  • 6
    • 51849164610 scopus 로고    scopus 로고
    • Critical commentary: Social work ethics
    • Banks S.Critical commentary: Social work ethics.British Journal of Social Work. 2008;38 (6): 1238-1249.
    • (2008) British Journal of Social Work , vol.38 , Issue.6 , pp. 1238-1249
    • Banks, S.1
  • 7
    • 0038721863 scopus 로고    scopus 로고
    • Secondary use of personal data for health and health services research: Why identifiable data are essential
    • Black N.Secondary use of personal data for health and health services research: Why identifiable data are essential.Journal of Health Services Research & Policy. 2003;8 (1): 36-40.
    • (2003) Journal of Health Services Research & Policy , vol.8 , Issue.1 , pp. 36-40
    • Black, N.1
  • 8
    • 67650305666 scopus 로고    scopus 로고
    • Clinical intuition versus statistics: Different modes of tacit knowledge in clinical epidemiology and evidence-based medicine
    • Braude HD.Clinical intuition versus statistics: Different modes of tacit knowledge in clinical epidemiology and evidence-based medicine.Theoretical Medicine and Bioethics. 2009;30 (3): 181-198.
    • (2009) Theoretical Medicine and Bioethics , vol.30 , Issue.3 , pp. 181-198
    • Braude, H.D.1
  • 9
    • 47749102098 scopus 로고    scopus 로고
    • Whose interest? British newspaper reporting of use of medical records for research
    • Brown L,Parker M,Dixon-Woods M.Whose interest? British newspaper reporting of use of medical records for research.Journal of Health Service Research Policy. 2008;13 (3): 140-145.
    • (2008) Journal of Health Service Research Policy , vol.13 , Issue.3 , pp. 140-145
    • Brown, L.1    Parker, M.2    Dixon-Woods, M.3
  • 11
    • 0037420510 scopus 로고    scopus 로고
    • Patient privacy and confidentiality
    • Chalmers J,Muir R.Patient privacy and confidentiality.British Medical Journal. 2003;326 (7392): 725-726.
    • (2003) British Medical Journal , vol.326 , Issue.7392 , pp. 725-726
    • Chalmers, J.1    Muir, R.2
  • 12
    • 84937384624 scopus 로고    scopus 로고
    • Resolving uncertainties? The contribution of some recent feminist ethical theory to the social professions
    • Clifford D.Resolving uncertainties? The contribution of some recent feminist ethical theory to the social professions.European Journal of Social Work. 2002;5 (1): 31-41.
    • (2002) European Journal of Social Work , vol.5 , Issue.1 , pp. 31-41
    • Clifford, D.1
  • 15
    • 84862728421 scopus 로고    scopus 로고
    • Politics.co.uk. Available at
    • DuntI (2010) Privacy Fears Raised as NHS IT Project Ploughs Ahead. Politics.co.uk. Available at: http://www.politics.co.uk/news/health/privacy-fears-raised-as-nhs-it-project-ploughs-ahead-$1362552.htm.
    • (2010) Privacy Fears Raised as NHS IT Project Ploughs Ahead
    • Dunt, I.1
  • 17
    • 0004108379 scopus 로고
    • Cambridge, MA: Harvard University Press
    • Gilligan CIn a Different Voice. Cambridge, MA: Harvard University Press; 1982:.
    • (1982) In a Different Voice
    • Gilligan, C.1
  • 19
    • 34248667900 scopus 로고    scopus 로고
    • Legal and ethical considerations in processing patient-identifiable data without patient consent: Lessons learnt from developing a disease register
    • Haynes CL,Cook GA,Jones MA.Legal and ethical considerations in processing patient-identifiable data without patient consent: Lessons learnt from developing a disease register.Journal of Medical Ethics. 2007;33 (5): 302-307.
    • (2007) Journal of Medical Ethics , vol.33 , Issue.5 , pp. 302-307
    • Haynes, C.L.1    Cook, G.A.2    Jones, M.A.3
  • 20
    • 0037707548 scopus 로고    scopus 로고
    • The Patient Information Advisory Group and the use of patient-identifiable data
    • Higgins J.The Patient Information Advisory Group and the use of patient-identifiable data.Journal of Health Services Research and Policy. 2003;8 (1): 8-11.
    • (2003) Journal of Health Services Research and Policy , vol.8 , Issue.1 , pp. 8-11
    • Higgins, J.1
  • 22
    • 33745610447 scopus 로고    scopus 로고
    • Traces of doubt and sources of trust: Health professions in an uncertain society
    • Kuhlmann E.Traces of doubt and sources of trust: Health professions in an uncertain society.Current Sociology. 2006;54 (4): 607-620.
    • (2006) Current Sociology , vol.54 , Issue.4 , pp. 607-620
    • Kuhlmann, E.1
  • 23
    • 84937338199 scopus 로고    scopus 로고
    • Community work as critical pedagogy: Re-envisioning Freire and Gramsci
    • Ledwith M.Community work as critical pedagogy: Re-envisioning Freire and Gramsci.Community Development Journal. 2001;36 (3): 171-182.
    • (2001) Community Development Journal , vol.36 , Issue.3 , pp. 171-182
    • Ledwith, M.1
  • 24
    • 33644829844 scopus 로고    scopus 로고
    • A well placed trust? Public perceptions of the governance of DNA databases
    • Levitt M,Weldon S.A well placed trust? Public perceptions of the governance of DNA databases.Critical Public Health. 2005;15 (4): 311-321.
    • (2005) Critical Public Health , vol.15 , Issue.4 , pp. 311-321
    • Levitt, M.1    Weldon, S.2
  • 27
    • 0036935706 scopus 로고    scopus 로고
    • Virtue ethics and social work: Being lucky, realistic, and not doing one's duty
    • McBeath G,Webb SA.Virtue ethics and social work: Being lucky, realistic, and not doing one's duty.British Journal of Social Work. 2002;32 (8): 1015-1036.
    • (2002) British Journal of Social Work , vol.32 , Issue.8 , pp. 1015-1036
    • McBeath, G.1    Webb, S.A.2
  • 28
    • 17244382963 scopus 로고    scopus 로고
    • A feasibility study of signed consent for the collection of patient identifiable information for a national paediatric clinical audit database
    • McKinney P,Jones S,Parslow R, et al.A feasibility study of signed consent for the collection of patient identifiable information for a national paediatric clinical audit database.British Medical Journal. 2005;330 (7496): 877-879.
    • (2005) British Medical Journal , vol.330 , Issue.7496 , pp. 877-879
    • McKinney, P.1    Jones, S.2    Parslow, R.3
  • 29
    • 38049075409 scopus 로고    scopus 로고
    • Low risk research using routinely collected identifiable health information without informed consent: Encounters with the Patient Information Advisory Group
    • Metcalfe C,Martin RM,Noble S, et al.Low risk research using routinely collected identifiable health information without informed consent: Encounters with the Patient Information Advisory Group.Journal of Medical Ethics. 2008;34 (1): 37-40.
    • (2008) Journal of Medical Ethics , vol.34 , Issue.1 , pp. 37-40
    • Metcalfe, C.1    Martin, R.M.2    Noble, S.3
  • 31
    • 0842305807 scopus 로고    scopus 로고
    • Patients' consent preferences regarding the use of their health information for research purposes: A qualitative study
    • Nair K,Williamson D,Holbrook A,Keshavjee K.Patients' consent preferences regarding the use of their health information for research purposes: A qualitative study.Journal of Health Service Research Policy. 2004;9 (1): 23-27.
    • (2004) Journal of Health Service Research Policy , vol.9 , Issue.1 , pp. 23-27
    • Nair, K.1    Williamson, D.2    Holbrook, A.3    Keshavjee, K.4
  • 32
    • 0002795767 scopus 로고    scopus 로고
    • Women and the new paradigm of health and medicine
    • Nettleton S.Women and the new paradigm of health and medicine.Critical Social Policy. 1996;16 (48): 33-53.
    • (1996) Critical Social Policy , vol.16 , Issue.48 , pp. 33-53
    • Nettleton, S.1
  • 34
    • 0037327183 scopus 로고    scopus 로고
    • Confidentiality and the duties of care
    • O'Brien J,Chantler C.Confidentiality and the duties of care.Journal of Medical Ethics. 2003;29 (1): 36-40.
    • (2003) Journal of Medical Ethics , vol.29 , Issue.1 , pp. 36-40
    • O'Brien, J.1    Chantler, C.2
  • 35
    • 0036374498 scopus 로고    scopus 로고
    • Social work: Gender, care and justice
    • Orme J.Social work: Gender, care and justice.British Journal of Social Work. 2002;32 (6): 799-814.
    • (2002) British Journal of Social Work , vol.32 , Issue.6 , pp. 799-814
    • Orme, J.1
  • 37
    • 77956212568 scopus 로고    scopus 로고
    • Ethos, pathos, logos, kairos: Using a rhetorical heuristic to mediate digital-survey recruitment strategies
    • Rife MC.Ethos, pathos, logos, kairos: Using a rhetorical heuristic to mediate digital-survey recruitment strategies.IEEE Transactions on Professional Communication. 2010;53 (3): 260-277.
    • (2010) IEEE Transactions on Professional Communication , vol.53 , Issue.3 , pp. 260-277
    • Rife, M.C.1
  • 39
    • 33645128520 scopus 로고    scopus 로고
    • Understanding trust and confidence: Two paradigms and their significance for health and social care
    • Smith C.Understanding trust and confidence: Two paradigms and their significance for health and social care.Journal of Applied Philosophy. 2005;22 (3): 299-316.
    • (2005) Journal of Applied Philosophy , vol.22 , Issue.3 , pp. 299-316
    • Smith, C.1
  • 40
    • 33747587821 scopus 로고    scopus 로고
    • Governance of research that uses identifiable personal data
    • Souhami R.Governance of research that uses identifiable personal data.British Medical Journal. 2006;333 (7563): 315-316.
    • (2006) British Medical Journal , vol.333 , Issue.7563 , pp. 315-316
    • Souhami, R.1
  • 41
    • 0034619083 scopus 로고    scopus 로고
    • Data protection legislation: Interpretation and barriers to research
    • Strobl J,Cave E,Walley T.Data protection legislation: Interpretation and barriers to research.British Medical Journal. 2000;321 (7265): 890-892.
    • (2000) British Medical Journal , vol.321 , Issue.7265 , pp. 890-892
    • Strobl, J.1    Cave, E.2    Walley, T.3
  • 43
    • 0037129623 scopus 로고    scopus 로고
    • Consent, confidentiality, and the threat to public health surveillance
    • Verity C,Nicholl A.Consent, confidentiality, and the threat to public health surveillance.British Medical Journal. 2002;324 (7347): 1210-1213.
    • (2002) British Medical Journal , vol.324 , Issue.7347 , pp. 1210-1213
    • Verity, C.1    Nicholl, A.2
  • 44
    • 0345137962 scopus 로고
    • A political critique of Kantian ethics in social work
    • Webb SA,McBeath GB.A political critique of Kantian ethics in social work.British Journal of Social Work. 1989;19 (1): 491-506.
    • (1989) British Journal of Social Work , vol.19 , Issue.1 , pp. 491-506
    • Webb, S.A.1    McBeath, G.B.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.