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Volumn 34, Issue 3, 2012, Pages 269-275

Information-Sharing to Promote Informed Choice in Prenatal Screening in the Spirit of the SOGC Clinical Practice Guideline: A Proposal for an Alternative Model

Author keywords

Decision making; IDM informative decision making; Informed choice; Prenatal screening; SDM shared decision making

Indexed keywords

ANEUPLOIDY; ARTICLE; CLINICAL PRACTICE; COUNSELING; DECISION MAKING; DELIBERATION; FETAL ANEUPLOIDY; GENETIC COUNSELING; HUMAN; INFORMATION DISSEMINATION; INFORMATION PROCESSING; INFORMATIVE DECISION MAKING; MEDICAL INFORMATION; NON DIRECTIVE COUNSELLING; PATIENT AUTONOMY; PRACTICE GUIDELINE; PRENATAL SCREENING; SHARED DECISION MAKING; CANADA; FEMALE; METHODOLOGY; PREGNANCY; PRENATAL DIAGNOSIS; THEORETICAL MODEL;

EID: 84862624864     PISSN: 17012163     EISSN: None     Source Type: Journal    
DOI: 10.1016/S1701-2163(16)35188-X     Document Type: Article
Times cited : (27)

References (59)
  • 1
    • 82355181830 scopus 로고    scopus 로고
    • Genetics Committee of the Society of Obstetricians and Gynaecologists of Canada; Prenatal Diagnosis Committee of the Canadian College of Medical Geneticists. Prenatal screening for fetal aneuploidy in singleton pregnancies
    • Chitayat D., Langlois S., Wilson R. Genetics Committee of the Society of Obstetricians and Gynaecologists of Canada; Prenatal Diagnosis Committee of the Canadian College of Medical Geneticists. Prenatal screening for fetal aneuploidy in singleton pregnancies. SOGC Clinical Practice Guidelines, No. 261, July 2011. J Obstet Gynaecol Can 2011, 33:736-750.
    • (2011) SOGC Clinical Practice Guidelines, No. 261, July 2011. J Obstet Gynaecol Can , vol.33 , pp. 736-750
    • Chitayat, D.1    Langlois, S.2    Wilson, R.3
  • 3
    • 33846460036 scopus 로고    scopus 로고
    • Framing, truth telling and the problem with non-directive counselling
    • Kirklin D. Framing, truth telling and the problem with non-directive counselling. J Med Ethics 2007, 33:58-62.
    • (2007) J Med Ethics , vol.33 , pp. 58-62
    • Kirklin, D.1
  • 4
    • 0036136966 scopus 로고    scopus 로고
    • Is nondirectiveness possible within the context of antenatal screening and testing?
    • Williams C., Alderson P., Farsides B. Is nondirectiveness possible within the context of antenatal screening and testing?. Soc Sci Med 2002, 54:339-347.
    • (2002) Soc Sci Med , vol.54 , pp. 339-347
    • Williams, C.1    Alderson, P.2    Farsides, B.3
  • 5
    • 0346310718 scopus 로고    scopus 로고
    • Psychosocial genetic counseling in the post-nondirective era: a point of view
    • Weil J. Psychosocial genetic counseling in the post-nondirective era: a point of view. J Genet Couns 2003, 12:199-211.
    • (2003) J Genet Couns , vol.12 , pp. 199-211
    • Weil, J.1
  • 6
    • 0034012563 scopus 로고    scopus 로고
    • Shared decision making and non-directiveness in genetic counselling
    • Elwyn G., Gray J., Clarke A. Shared decision making and non-directiveness in genetic counselling. J Med Genet 2000, 37:135-138.
    • (2000) J Med Genet , vol.37 , pp. 135-138
    • Elwyn, G.1    Gray, J.2    Clarke, A.3
  • 7
    • 0026566658 scopus 로고
    • Four models of the physician-patient relationship
    • Emanuel E.J., Emanuel L.L. Four models of the physician-patient relationship. JAMA 1992, 267:2221-2226.
    • (1992) JAMA , vol.267 , pp. 2221-2226
    • Emanuel, E.J.1    Emanuel, L.L.2
  • 8
    • 0033018476 scopus 로고    scopus 로고
    • Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model
    • Charles C., Gafni A., Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med 1999, 49:651-661.
    • (1999) Soc Sci Med , vol.49 , pp. 651-661
    • Charles, C.1    Gafni, A.2    Whelan, T.3
  • 9
    • 0033581295 scopus 로고    scopus 로고
    • What do we mean by partnership in making decisions about treatment?
    • Charles C., Whelan T., Gafni A. What do we mean by partnership in making decisions about treatment?. BMJ 1999, 319:780-782.
    • (1999) BMJ , vol.319 , pp. 780-782
    • Charles, C.1    Whelan, T.2    Gafni, A.3
  • 10
    • 0031023489 scopus 로고    scopus 로고
    • Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango)
    • Charles C., Gafni A., Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med 1997, 44:681-692.
    • (1997) Soc Sci Med , vol.44 , pp. 681-692
    • Charles, C.1    Gafni, A.2    Whelan, T.3
  • 11
    • 33646344981 scopus 로고    scopus 로고
    • Genetics Committee of the Society of Obstetricians and Gynaecologists of Canada. Amended Canadian guideline for prenatal diagnosis (2005) change to 2005-techniques for prenatal diagnosis
    • Wilson R.D., Davies G., Gagnon A., Desilets V., Reid G., Summers A., et al. Genetics Committee of the Society of Obstetricians and Gynaecologists of Canada. Amended Canadian guideline for prenatal diagnosis (2005) change to 2005-techniques for prenatal diagnosis. SOGC Clinical Practice Guidelines, No. 168, November 2005. J Obstet Gynaecol Can 2005, 27:1048-1062.
    • (2005) SOGC Clinical Practice Guidelines, No. 168, November 2005. J Obstet Gynaecol Can , vol.27 , pp. 1048-1062
    • Wilson, R.D.1    Davies, G.2    Gagnon, A.3    Desilets, V.4    Reid, G.5    Summers, A.6
  • 15
    • 4243474561 scopus 로고    scopus 로고
    • Provisional normalcy and "perfect babies": pregnant women's attitudes toward disability in the context of prenatal testing
    • University of Pennsylvania Press, Philadelphia, S. Franklin, H. Ragone (Eds.)
    • Press N., Browner C.H., Tran D. Provisional normalcy and "perfect babies": pregnant women's attitudes toward disability in the context of prenatal testing. Reproducing reproduction: kinship, power, and technological innovation 1998, 46. University of Pennsylvania Press, Philadelphia. S. Franklin, H. Ragone (Eds.).
    • (1998) Reproducing reproduction: kinship, power, and technological innovation , pp. 46
    • Press, N.1    Browner, C.H.2    Tran, D.3
  • 16
    • 77952180102 scopus 로고    scopus 로고
    • Information and decision support needs of parents considering amniocentesis: interviews with pregnant women and health professionals
    • Durand M., Stiel M., Boivin J., Elwyn G. Information and decision support needs of parents considering amniocentesis: interviews with pregnant women and health professionals. Health Expect 2010, 13:125-138.
    • (2010) Health Expect , vol.13 , pp. 125-138
    • Durand, M.1    Stiel, M.2    Boivin, J.3    Elwyn, G.4
  • 17
    • 77955868855 scopus 로고    scopus 로고
    • Interrogating the dynamics between power, knowledge and pregnant bodies in amniocentesis decision making
    • Markens S., Browner C.H., Mabel Preloran H. Interrogating the dynamics between power, knowledge and pregnant bodies in amniocentesis decision making. Sociol Health Illn 2010, 32:37-56.
    • (2010) Sociol Health Illn , vol.32 , pp. 37-56
    • Markens, S.1    Browner, C.H.2    Mabel Preloran, H.3
  • 19
    • 0346727456 scopus 로고    scopus 로고
    • A typology of shared decision making, informed consent, and simple consent
    • Whitney S.N., McGuire A.L., McCullough L.B. A typology of shared decision making, informed consent, and simple consent. Ann Intern Med 2004, 140:54-60.
    • (2004) Ann Intern Med , vol.140 , pp. 54-60
    • Whitney, S.N.1    McGuire, A.L.2    McCullough, L.B.3
  • 20
    • 0035017702 scopus 로고    scopus 로고
    • Is informed choice in genetic testing a different breed of informed decision-making? A discussion paper
    • Emery J. Is informed choice in genetic testing a different breed of informed decision-making? A discussion paper. Health Expect 2001, 4:81-86.
    • (2001) Health Expect , vol.4 , pp. 81-86
    • Emery, J.1
  • 21
    • 33846221504 scopus 로고    scopus 로고
    • Midwifery, informed choice, and reproductive autonomy: a relational approach
    • Thachuk A. Midwifery, informed choice, and reproductive autonomy: a relational approach. Fem Psychol 2007, 17:39-56.
    • (2007) Fem Psychol , vol.17 , pp. 39-56
    • Thachuk, A.1
  • 25
    • 20244376137 scopus 로고    scopus 로고
    • Relational autonomy, self-trust, and health care for patients who are oppressed
    • Oxford University Press, New York, C. Mackenzie, N. Stoljar (Eds.)
    • McLeod C., Sherwin S. Relational autonomy, self-trust, and health care for patients who are oppressed. Relational autonomy 2000, 314. Oxford University Press, New York. C. Mackenzie, N. Stoljar (Eds.).
    • (2000) Relational autonomy , pp. 314
    • McLeod, C.1    Sherwin, S.2
  • 27
    • 85122275635 scopus 로고
    • The evolution of nondirectiveness in genetic counseling and implications of the human genome project
    • Aldine de Gruyter, New York, D.M. Bartels, B. LeRoy, A.L. Caplan (Eds.)
    • Fine B. The evolution of nondirectiveness in genetic counseling and implications of the human genome project. Prescribing our future: ethical challenges in genetic counseling 1993, 101. Aldine de Gruyter, New York. D.M. Bartels, B. LeRoy, A.L. Caplan (Eds.).
    • (1993) Prescribing our future: ethical challenges in genetic counseling , pp. 101
    • Fine, B.1
  • 29
    • 0000464523 scopus 로고    scopus 로고
    • Counselling the genetically 'at risk': the poetics and politics of 'non-directiveness.'
    • Petersen A. Counselling the genetically 'at risk': the poetics and politics of 'non-directiveness.'. Health Risk Soc 1999, 11(1):253-265.
    • (1999) Health Risk Soc , vol.11 , Issue.1 , pp. 253-265
    • Petersen, A.1
  • 30
    • 35148852020 scopus 로고    scopus 로고
    • Comparing genetic counseling with non-genetic health care interactions: two of a kind?
    • Smets E., van Zwieten M., Michie S. Comparing genetic counseling with non-genetic health care interactions: two of a kind?. Patient Educ Couns 2007, 68:225-234.
    • (2007) Patient Educ Couns , vol.68 , pp. 225-234
    • Smets, E.1    van Zwieten, M.2    Michie, S.3
  • 31
    • 39749134115 scopus 로고    scopus 로고
    • Rethinking autonomy in the context of prenatal screening decision-making
    • Garcia E., Timmermans D.R.M., van Leeuwen E. Rethinking autonomy in the context of prenatal screening decision-making. Prenat Diagn 2008, 28:115-120.
    • (2008) Prenat Diagn , vol.28 , pp. 115-120
    • Garcia, E.1    Timmermans, D.R.M.2    van Leeuwen, E.3
  • 32
    • 13844277431 scopus 로고    scopus 로고
    • Autonomy, danger, and choice: the moral imperative of an "at risk" pregnancy for a group of low-income Latinas in Texas
    • Greenwood Publishing Group, Westport CT, B. Harthorn, L. Oaks (Eds.)
    • Hunt L., deVoogd K. Autonomy, danger, and choice: the moral imperative of an "at risk" pregnancy for a group of low-income Latinas in Texas. Risk, culture, and health inequality: shifting perceptions of danger and blame 2003, Greenwood Publishing Group, Westport CT. B. Harthorn, L. Oaks (Eds.).
    • (2003) Risk, culture, and health inequality: shifting perceptions of danger and blame
    • Hunt, L.1    deVoogd, K.2
  • 33
    • 0025998982 scopus 로고
    • Is non-directive genetic counselling possible?
    • Clarke A. Is non-directive genetic counselling possible?. Lancet 1991, 338:998-1001.
    • (1991) Lancet , vol.338 , pp. 998-1001
    • Clarke, A.1
  • 34
    • 0030823283 scopus 로고    scopus 로고
    • Nondirectiveness in genetic counseling: a survey of practitioners
    • Bartels D.M., LeRoy B.S., McCarthy P., Caplan A.L. Nondirectiveness in genetic counseling: a survey of practitioners. Am J Med Genet 1997, 72:172-179.
    • (1997) Am J Med Genet , vol.72 , pp. 172-179
    • Bartels, D.M.1    LeRoy, B.S.2    McCarthy, P.3    Caplan, A.L.4
  • 35
    • 33644627374 scopus 로고    scopus 로고
    • "SLANG"-Sensitive language and the new genetics-an exploratory study
    • Hodgson J., Hughes E., Lambert C. "SLANG"-Sensitive language and the new genetics-an exploratory study. J Genet Counsel 2005, 14:415-421.
    • (2005) J Genet Counsel , vol.14 , pp. 415-421
    • Hodgson, J.1    Hughes, E.2    Lambert, C.3
  • 36
    • 35549002716 scopus 로고    scopus 로고
    • Prenatal screening for fetal aneuploidy: a commentary by the Canadian Down Syndrome Society
    • Grant R., Flint K. Prenatal screening for fetal aneuploidy: a commentary by the Canadian Down Syndrome Society. J Obstet Gynaecol Can 2007, 29:580.
    • (2007) J Obstet Gynaecol Can , vol.29 , pp. 580
    • Grant, R.1    Flint, K.2
  • 37
    • 0000246936 scopus 로고
    • Resistance and adherence to the norms of genetic counseling
    • Brunger F., Lippman A. Resistance and adherence to the norms of genetic counseling. J Genet Couns 1995, 4:151-167.
    • (1995) J Genet Couns , vol.4 , pp. 151-167
    • Brunger, F.1    Lippman, A.2
  • 39
    • 0033181465 scopus 로고    scopus 로고
    • Defining the 'social': towards an understanding of scientific and medical discourses on the social aspects of the new human genetics
    • Cunningham-Burley S., Kerr A. Defining the 'social': towards an understanding of scientific and medical discourses on the social aspects of the new human genetics. Sociol Health Illn 1999, 21:647-668.
    • (1999) Sociol Health Illn , vol.21 , pp. 647-668
    • Cunningham-Burley, S.1    Kerr, A.2
  • 41
    • 0028519765 scopus 로고
    • Informed choice in prenatal screening
    • 1694-7
    • Summers A.M. Informed choice in prenatal screening. Can Fam Physician 1994, 40:1688-1691. 1694-7.
    • (1994) Can Fam Physician , vol.40 , pp. 1688-1691
    • Summers, A.M.1
  • 42
    • 0031027825 scopus 로고    scopus 로고
    • Nondirectiveness in genetic counseling: an empirical study
    • Michie S., Bron F., Bobrow M., Marteau T.M. Nondirectiveness in genetic counseling: an empirical study. Am J Hum Genet 1997, 60:40-47.
    • (1997) Am J Hum Genet , vol.60 , pp. 40-47
    • Michie, S.1    Bron, F.2    Bobrow, M.3    Marteau, T.M.4
  • 43
    • 0034776464 scopus 로고    scopus 로고
    • Does indirect speech promote nondirective genetic counseling? Results of a sociolinguistic investigation
    • Benkendorf J.L., Prince M.B., Rose M.A., De Fina A., Hamilton H.E. Does indirect speech promote nondirective genetic counseling? Results of a sociolinguistic investigation. Am J Med Genet 2001, 106:199-207.
    • (2001) Am J Med Genet , vol.106 , pp. 199-207
    • Benkendorf, J.L.1    Prince, M.B.2    Rose, M.A.3    De Fina, A.4    Hamilton, H.E.5
  • 44
    • 0032087287 scopus 로고    scopus 로고
    • Value neutrality and nondirectiveness: comments on "future directions in genetic counselling."
    • Suter S.M. Value neutrality and nondirectiveness: comments on "future directions in genetic counselling.". Kennedy Inst Ethics J 1998, 8:161-163.
    • (1998) Kennedy Inst Ethics J , vol.8 , pp. 161-163
    • Suter, S.M.1
  • 45
    • 0003015247 scopus 로고
    • Neutrality is not morality: the ethics of genetic counseling
    • Walter de Gruyer, New York, B. Bartels, B. LeRoy, A. Caplan (Eds.)
    • Caplan A. Neutrality is not morality: the ethics of genetic counseling. Prescribing our future: ethical challenges in genetic counselling 1993, Walter de Gruyer, New York. B. Bartels, B. LeRoy, A. Caplan (Eds.).
    • (1993) Prescribing our future: ethical challenges in genetic counselling
    • Caplan, A.1
  • 46
    • 0034775852 scopus 로고    scopus 로고
    • Empowering primary care health professionals in medical genetics: how soon? How fast? How far?
    • Greendale K., Pyeritz R.E. Empowering primary care health professionals in medical genetics: how soon? How fast? How far?. Am J Med Genet 2001, 106:223-232.
    • (2001) Am J Med Genet , vol.106 , pp. 223-232
    • Greendale, K.1    Pyeritz, R.E.2
  • 47
    • 0033090266 scopus 로고    scopus 로고
    • Nondirectiveness in prenatal genetics: patients read between the lines
    • Anderson G. Nondirectiveness in prenatal genetics: patients read between the lines. Nurs Ethics 1999, 6:126-136.
    • (1999) Nurs Ethics , vol.6 , pp. 126-136
    • Anderson, G.1
  • 48
    • 0001359943 scopus 로고    scopus 로고
    • The process of genetic counselling
    • BIOS Scientific Publishers, Oxford, P. Harper, A. Clarke (Eds.)
    • Clarke A. The process of genetic counselling. Genetics, society and clinical practice 1997, 179. BIOS Scientific Publishers, Oxford. P. Harper, A. Clarke (Eds.).
    • (1997) Genetics, society and clinical practice , pp. 179
    • Clarke, A.1
  • 49
    • 0026833597 scopus 로고
    • Psychological aspects of genetic counseling. VII. Thoughts on directiveness
    • Kessler S. Psychological aspects of genetic counseling. VII. Thoughts on directiveness. J Genet Couns 1992, 1:9-17.
    • (1992) J Genet Couns , vol.1 , pp. 9-17
    • Kessler, S.1
  • 51
    • 0030868986 scopus 로고    scopus 로고
    • Psychological aspects of genetic counseling. XI. Nondirectiveness revisited
    • Kessler S. Psychological aspects of genetic counseling. XI. Nondirectiveness revisited. Am J Med Genet 1997, 72:164-171.
    • (1997) Am J Med Genet , vol.72 , pp. 164-171
    • Kessler, S.1
  • 52
    • 66149137298 scopus 로고    scopus 로고
    • Why do women choose or decline maternal serum screening?
    • Park A., Mathews M. Why do women choose or decline maternal serum screening?. J Obstet Gynaecol Can 2009, 31:149-155.
    • (2009) J Obstet Gynaecol Can , vol.31 , pp. 149-155
    • Park, A.1    Mathews, M.2
  • 53
    • 79952739860 scopus 로고    scopus 로고
    • Prenatal screening for Down syndrome: a survey of willingness in women and family physicians to engage in shared decision-making
    • Legare F., St-Jaques S., Gagnon S., Njoya M., Brisson M., Fremont P., et al. Prenatal screening for Down syndrome: a survey of willingness in women and family physicians to engage in shared decision-making. Prenat Diagn 2011, 31:319-326.
    • (2011) Prenat Diagn , vol.31 , pp. 319-326
    • Legare, F.1    St-Jaques, S.2    Gagnon, S.3    Njoya, M.4    Brisson, M.5    Fremont, P.6
  • 54
    • 13844275639 scopus 로고    scopus 로고
    • The routine and the traumatic in prenatal genetic diagnosis: does clinical information inform patient decision-making?
    • Hunt L.M., de Voogd K.B., Castaneda H. The routine and the traumatic in prenatal genetic diagnosis: does clinical information inform patient decision-making?. Patient Educ Couns 2005, 56:302-312.
    • (2005) Patient Educ Couns , vol.56 , pp. 302-312
    • Hunt, L.M.1    de Voogd, K.B.2    Castaneda, H.3
  • 56
    • 78049442101 scopus 로고    scopus 로고
    • Prenatal genetic counselling in cross-cultural medicine
    • Bhogal A.K., Brunger F. Prenatal genetic counselling in cross-cultural medicine. Can Fam Physician 2010, 56:993-999.
    • (2010) Can Fam Physician , vol.56 , pp. 993-999
    • Bhogal, A.K.1    Brunger, F.2
  • 57
    • 3543052808 scopus 로고    scopus 로고
    • Commentary on genetic counseling-a profession in search of itself
    • McCarthy Veach P., Bartels D.M., LeRoy B.S. Commentary on genetic counseling-a profession in search of itself. J Genet Couns 2002, 11:187-191.
    • (2002) J Genet Couns , vol.11 , pp. 187-191
    • McCarthy Veach, P.1    Bartels, D.M.2    LeRoy, B.S.3
  • 58
    • 0038621620 scopus 로고    scopus 로고
    • A survey of genetic counselors' strategies for addressing ethical and professional challenges in practice
    • Bower M.A., McCarthy Veach P., Bartels D.M., LeRoy B.S. A survey of genetic counselors' strategies for addressing ethical and professional challenges in practice. J Genet Couns 2002, 11:163-186.
    • (2002) J Genet Couns , vol.11 , pp. 163-186
    • Bower, M.A.1    McCarthy Veach, P.2    Bartels, D.M.3    LeRoy, B.S.4


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