Selective flows of knowledge in technoscientific interaction: Information control in genome research

British Journal for the History of Science

Volumn 45, Issue 2, 2012, Pages 267-280

  Hilgartner, Stephen ^a  

^a Department of Molecular Biology and Genetics   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACCESS TO INFORMATION; ARTICLE; CONFIDENTIALITY; CULTURAL ANTHROPOLOGY; GENETICS; GENOME; HISTORY; INTERPERSONAL COMMUNICATION;

ACCESS TO INFORMATION; ANTHROPOLOGY, CULTURAL; COMMUNICATION; CONFIDENTIALITY; GENETIC RESEARCH; GENOME; HISTORY, 20TH CENTURY; HISTORY, 21ST CENTURY;

EID: 84862318809     PISSN: 00070874     EISSN: 1474001X     Source Type: Journal    
DOI: 10.1017/S0007087412000106     Document Type: Article

References (42)

1. See, for example, the introduction to this issue. Michael A. Dennis, '"Our first line of defense": two university laboratories in the postwar American state', Isis (1994) 85, pp. 427-455.
2. Judith Reppy (ed.), Secrecy and Knowledge Production, Ithaca: Cornell University Peace Studies Program, 1999
3. John Cloud, 'Imaging the world in a barrel: CORONA and the clandestine convergence of the earth sciences', Social Studies of Science (2001) 31, pp. 231-251. (Pubitemid 33587945)
4. Brian Rappert, Experimental Secrets: International Security, Codes, and the Future of Research, Lanham, MD: University Press of America, 2009.
5. See, for example, James Secord, 'Knowledge in transit', Isis (2004) 95, pp. 654-672.
6. Peter Howlett and Mary Morgan (eds.), How Well Do Facts Travel?, Cambridge: Cambridge University Press, 2011.
7. Robert Proctor and Londa Schiebinger (eds.), Agnotology: The Making and Unmaking of Ignorance, Stanford: Stanford University Press, 2008.
8. On the importance of temporality as it pertains to secrecy and disclosure see Mario Biagioli in this issue. See also Stephen Hilgartner, 'Access to data and intellectual property: scientific exchange in genome research', in Intellectual Property and Research Tools in Molecular Biology: Report of a Workshop, Washington: National Academy Press, 1997, pp. 28-39.
9. James A. Evans, 'Industry collaboration, scientific sharing, and the dissemination of knowledge', Social Studies of Science (2010) 40, pp. 757-791.
10. Martina Franzen and PeterWeingart (eds.), The Sciences' Media Connection - Public Communication and Its Repercussions. Sociology of the Sciences Yearbook, Dordrecht: Springer, 2011.
11. See also John Sulston and Georgina Ferry, The Common Thread: A Story of Science, Politics, Ethics, and the Human Genome, Washington, DC: The Joseph Henry Press, 2002.
12. J. Craig Venter, A Life Decoded - My Genome: My Life, New York: Viking, 2007.
13. Adam Bostanci, 'Sequencing human genomes', in Jean-Paul Gaudilliére and Hans- Jörg Rheinberger (eds.), From Molecular Genetics to Genomics, Routledge: London, 2004.
14. Stephen Hilgartner, 'Data access policy in genome research', in Arnold Thackray (ed.), Private Science: Biotechnology and the Rise of the Molecular Sciences, Philadelphia: University of Pennsylvania Press, 1998, pp. 202-218.
15. Erving Goffman, The Presentation of Self in Everyday Life, New York: Doubleday, Anchor Books, 1959;
16. Asylums, New York: Penguin 1961
17. Stigma, New York: Simon & Schuster, 1963.
18. Peter Galison, 'Removing knowledge', Critical Inquiry (2004) 31, pp. 229-249, 237.
19. Stephen Hilgartner, Science on Stage: Expert Advice as Public Drama, Stanford: Stanford University Press, 2000.
20. Brian Balmer, 'A secret formula, a rogue patent and public knowledge about nerve gas: secrecy as a spatial-epistemic tool', Social Studies of Science (2006) 36, pp. 691-722. (Pubitemid 44342846)
21. Kathleen M. Vogel, '"Iraqi Winnebagos of death": imagined and realized futures of US bioweapons threat assessments', Science and Public Policy (2008) 35, pp. 561-573.
22. Hugh Gusterson, Nuclear Rites: A Weapons Laboratory at the End of the Cold War, Berkeley: University of California Press, 1998.
23. See the discussion of data in Stephen Hilgartner and Sherry I. Brandt-Rauf, 'Data access, ownership, and control', Knowledge (1994) 15, pp. 355-372.
24. See, for example, Stephen Hilgartner, 'Mapping systems and moral order', in Sheila Jasanoff (ed.), States of Knowledge, London: Routledge, 2004, pp. 131-141, 138-139.
25. On authorship regimes see Mario Biagioli and Peter Galison (eds.), Scientific Authorship: Credit and Intellectual Property in Science, New York: Routledge, 2003.
26. On intellectual property regimes see, for example, James Boyle, Shamans, Software, Spleens: Law and the Construction of the Information Society, Cambridge, MA: Harvard University Press, 1996.
27. Charlotte Hess and Elinor Ostrom, 'Ideas, artifacts, and facilities: information as a common-pool resource', Law and Contemporary Problems (2003) 66, pp. 111-145.
28. Lawrence Lessig, Free Culture, New York: Penguin, 2004.
29. Sheila Jasanoff, Designs on Nature, Princeton: Princeton University Press, 2005, pp. 203-224.
30. Stephen Hilgartner, 'Intellectual property and the politics of emerging technology', Chicago-Kent Law Review (2009) 84, pp. 197-224.
31. see Karin Knorr Cetina, Epistemic Cultures: How the Sciences Make Knowledge, Cambridge, MA: MIT Press, 1998.
32. Human Genome Organisation, Singapore, 1996, available at www.ornl.gov/sci/techresources/Human-Genome/research/bermuda.shtml
33. Stephen Hilgartner, 'Biomolecular databases: new communication regimes for biology?', Science Communication (1995) 17, pp. 240-263.
34. Online publication may be even more open but also has limits; see Rob Kling, Lisa B. Spector and Joanna Fortuna, 'The real stakes of virtual publishing: the transformation of E-biomed into PubMed central', Journal of the American Society for Information Science and Technology (2004) 55, pp. 127-148.
35. See National Research Council, Mapping and Sequencing the Human Genome, Washington: National Academy Press, 1988
36. Lee Rowen, Gane K.S. Wong, Robert P. Lane and Leroy Hood, 'Publication rights in the era of open data release policies', Science (2000) 289, p. 1881.
37. National Research Council, Sharing Publication-Related Data and Materials: Responsibilities of Authorship in the Life Sciences,Washington: National Academy Press, 2003.
38. George Church et al., 'Public access to genome-wide data: five views on balancing research with privacy and protection', PLoS Genetics (2009) 5, e1000665.
39. Eric G. Campbell, Brian R. Clarridge, Manjusha Gokhale, Lauren Birenbaum, Stephen Hilgartner, Neil A. Holtzman and David Blumenthal, 'Data withholding in academic genetics: evidence from a national survey', Journal of the American Medical Association (2002) 287, pp. 473-480. (Pubitemid 34251986)
40. For examples of similar manoeuvring in the context of animal research see Tora Holmberg and Malin Ideland, 'Secrets and lies: "selective openness" in the apparatus of animal experimentation', Public Understanding of Science (in press), available at http://pus.sagepub.com/content/early/2010/ 08/23/0963662510372584.abstract.
41. On 'story stocks', hype and share prices see Michael Fortun, Promising Genomics: Iceland and deCODE Genetics in a World of Speculation, Berkeley: University of California Press, 2008.
42. Steven Shapin, The Scientific Life: A Moral History of a Late Modern Vocation, Chicago: Chicago University Press, 2008.