메뉴 건너뛰기




Volumn 21, Issue 1, 2012, Pages 35-44

What is a "balanced" description? Insight from parents of individuals with Down syndrome

Author keywords

Balanced description; Balanced information; Down syndrome; Genetic counseling; Opinions; Parents; Prenatal diagnosis; Prenatal screening

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO HEALTH; CANADA; DOWN SYNDROME; EDUCATION; FEMALE; GENETIC COUNSELING; GENETIC SCREENING; HEALTH PERSONNEL ATTITUDE; HUMAN; HUMAN RELATION; MALE; METHODOLOGY; PARENT; PRENATAL DIAGNOSIS; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SOCIAL SUPPORT;

EID: 84862244827     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-011-9417-2     Document Type: Article
Times cited : (23)

References (21)
  • 1
    • 33845942655 scopus 로고    scopus 로고
    • Screening for fetal chromosomal abnormalities
    • ACOG Practice Bulletin
    • ACOG Practice Bulletin. (2007). Screening for fetal chromosomal abnormalities. Obstetrics & Gynecology, 109(1), 217-225.
    • (2007) Obstetrics & Gynecology , vol.109 , Issue.1 , pp. 217-225
  • 2
    • 35748929052 scopus 로고    scopus 로고
    • 'Balance' is in the eye of the beholder: Providing information to support informed choices in antenatal screening via Antenatal Screening Web Resource
    • DOI 10.1111/j.1369-7625.2007.00455.x
    • Ahmed, S., Bryant, L., & Hewison, J. (2007). 'Balance' is in the eye of the beholder: providing information to support informed choices in antenatal screening via Antenatal Screening Web Resource. Health Expectations, 10, 309-320. (Pubitemid 350045738)
    • (2007) Health Expectations , vol.10 , Issue.4 , pp. 309-320
    • Ahmed, S.1    Bryant, L.2    Hewison, J.3
  • 3
    • 35948991809 scopus 로고    scopus 로고
    • What I wish I knew then... Reflections from personal experiences in counseling about Down syndrome
    • Brasington
    • Brasington. (2007). What I wish I knew then... Reflections from personal experiences in counseling about Down syndrome. Journal of Genetic Counseling, 16, 731-734.
    • (2007) Journal of Genetic Counseling , vol.16 , pp. 731-734
  • 4
    • 0035684282 scopus 로고    scopus 로고
    • Descriptive information about Down syndrome: A content analysis of serum screening leaflets
    • DOI 10.1002/pd.179
    • Bryant, L. D., Murray, J., Green, J. M., Hewison, J., Sehmi, I., & Ellis, A. (2001). Descriptive information about Down syndrome: a content analysis of serum screening leaflets. Prenatal Diagnosis, 21, 1057-1063. (Pubitemid 34056189)
    • (2001) Prenatal Diagnosis , vol.21 , Issue.12 , pp. 1057-1063
    • Bryant, L.D.1    Murray, J.2    Green, J.M.3    Hewison, J.4    Sehmi, I.5    Ellis, A.6
  • 5
    • 0027357287 scopus 로고
    • Supporting the family of the newborn with Down syndrome
    • Cooley, W. C. (1993). Supporting the family of the newborn with Down syndrome. Comprehensive Therapy, 19, 111-115.
    • (1993) Comprehensive Therapy , vol.19 , pp. 111-115
    • Cooley, W.C.1
  • 6
    • 84863618225 scopus 로고    scopus 로고
    • Down Syndrome Consensus Group, Canton: Lettercase
    • Down Syndrome Consensus Group. (2011). Understanding a Down syndrome diagnosis. Canton: Lettercase.
    • (2011) Understanding a Down Syndrome Diagnosis
  • 7
    • 48249122354 scopus 로고    scopus 로고
    • Environmental scans: How useful are they for primary care research?
    • Graham, P., Evitts, T., & Thomas-MacLean, R. (2008). Environmental scans: how useful are they for primary care research? Canadian Family Physician, 54, 1022-1023.
    • (2008) Canadian Family Physician , vol.54 , pp. 1022-1023
    • Graham, P.1    Evitts, T.2    Thomas-MacLean, R.3
  • 9
    • 0031989098 scopus 로고    scopus 로고
    • Prenatal diagnosis of Down syndrome: Mothers' reflections on supports needed from diagnosis to birth
    • Helm, D. T., Miranda, S., & Chedd, N. A. (1998). Prenatal diagnosis of Down syndrome: mothers' reflections on supports needed from diagnosis to birth. Mental Retardation, 36(1), 55-61. (Pubitemid 128714687)
    • (1998) Mental Retardation , vol.36 , Issue.1 , pp. 55-61
    • Helm, D.T.1    Miranda, S.2    Chedd, N.A.3
  • 10
    • 2942624331 scopus 로고    scopus 로고
    • A comparison of web and mail survey response rates
    • DOI 10.1093/poq/nfh006
    • Kaplowitz, M. D., Hadlock, T. D., & Levine, R. (2004). A comparison of web and mail survey response rates. Public Opinion Quarterly, 68(1), 94-101. (Pubitemid 38750629)
    • (2004) Public Opinion Quarterly , vol.68 , Issue.1 , pp. 94-101
    • Kaplowitz, M.D.1    Hadlock, T.D.2    Levine, R.3
  • 11
    • 69349101575 scopus 로고    scopus 로고
    • Improving residents' understanding of issues, comfort levels, and patient needs regarding screening for and diagnosing Down syndrome
    • Kleinert, H. L., Lunney, C. A., Campbell, L., & Ferguson, J. E. (2009). Improving residents' understanding of issues, comfort levels, and patient needs regarding screening for and diagnosing Down syndrome. American Journal of Obstetrics & Gynecology, 201, 328.e1-328.e6.
    • (2009) American Journal of Obstetrics & Gynecology , vol.201
    • Kleinert, H.L.1    Lunney, C.A.2    Campbell, L.3    Ferguson, J.E.4
  • 15
    • 80955178876 scopus 로고    scopus 로고
    • Practice guidelines for communicating a prenatal or postnatal diagnosis of Down syndrome: Recommendations of the National Society of Genetic Counselors
    • 2011 May 27, Epub ahead of print
    • Sheets, K. B., Crissman, B. G., Feist, C. D., Sell, S. L., Johnson, L. R., Donahue, K. C, et al. (2011b). Practice guidelines for communicating a prenatal or postnatal diagnosis of Down syndrome: recommendations of the National Society of Genetic Counselors. Journal of Genetic Counseling, 2011 May 27, [Epub ahead of print].
    • (2011) Journal of Genetic Counseling
    • Sheets, K.B.1    Crissman, B.G.2    Feist, C.D.3    Sell, S.L.4    Johnson, L.R.5    Donahue, K.C.6
  • 16
    • 14644444221 scopus 로고    scopus 로고
    • Prenatally diagnosed Down syndrome: Mothers who continued their pregnancies evaluate their health care providers
    • DOI 10.1016/j.ajog.2004.11.001
    • Skotko, B. G (2005). Prenatally diagnosed Down syndrome: mothers who continued their pregnancies evaluate their health care providers. American Journal of Obstetrics & Gynecology, 192, 670-677. (Pubitemid 40311255)
    • (2005) American Journal of Obstetrics and Gynecology , vol.192 , Issue.3 , pp. 670-677
    • Skotko, B.G.1
  • 17
    • 70349747042 scopus 로고    scopus 로고
    • Postnatal diagnosis of Down syndrome: Synthesis of the evidence on how best to deliver the news
    • The Down Syndrome Diagnosis Study Group
    • Skotko, B., Capone, G T., Kishnani, P. S., & The Down Syndrome Diagnosis Study Group. (2009). Postnatal diagnosis of Down syndrome: synthesis of the evidence on how best to deliver the news. Pediatrics, 124(4), e751-e758.
    • (2009) Pediatrics , vol.124 , Issue.4
    • Skotko, B.1    Capone, G.T.2    Kishnani, P.S.3
  • 18
    • 84971524827 scopus 로고    scopus 로고
    • Clinical practice guideline: Prenatal screening for fetal aneuploidy
    • Members of the Society of Obstetricians and Gynaecologists of Canada
    • Summers, A., Langlois, S., Wyatt, P., Wilson, R. D., & Members of the Society of Obstetricians and Gynaecologists of Canada. (2007). Clinical practice guideline: prenatal screening for fetal aneuploidy. Journal of Obstetrics & Gynaecology Canada, 29(2), 146-179.
    • (2007) Journal of Obstetrics & Gynaecology Canada , vol.29 , Issue.2 , pp. 146-179
    • Summers, A.1    Langlois, S.2    Wyatt, P.3    Wilson, R.D.4
  • 19
    • 0346310718 scopus 로고    scopus 로고
    • Psychosocial genetic counseling in the post-nondirective era: A point of view
    • DOI 10.1023/A:1023234802124
    • Weil, J. (2003). Psychosocial counseling in the post-nondirective era: a point of view. Journal of Genetic Counseling, 12(3), 199-211. (Pubitemid 39024189)
    • (2003) Journal of Genetic Counseling , vol.12 , Issue.3 , pp. 199-211
    • Weil, J.1
  • 20
    • 0033865640 scopus 로고    scopus 로고
    • Genetics services in a social, ethical and policy context: A collaboration between consumers and providers
    • DOI 10.1136/jme.26.4.261
    • Wertz, D. C, & Gregg, R. (2000). Genetics services in a social, ethical and policy context: a collaboration between consumers and providers. Journal of Medical Ethics, 26, 261-265. (Pubitemid 30616189)
    • (2000) Journal of Medical Ethics , vol.26 , Issue.4 , pp. 261-265
    • Wertz, D.C.1    Gregg, R.2
  • 21
    • 0036724999 scopus 로고    scopus 로고
    • What constitutes 'balanced information in the practitioners' portrayals of Down's syndrome?
    • DOI 10.1054/midw.2002.0316
    • Williams, C., Alderson, P., & Farsides, B. (2002). What constitutes 'balanced' information in the practitioners' portrayals of Down syndrome? Midwifery, 18, 230-237. (Pubitemid 40434342)
    • (2002) Midwifery , vol.18 , Issue.3 , pp. 230-237
    • Williams, C.1    Alderson, P.2    Farsides, B.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.