메뉴 건너뛰기




Volumn 5, Issue 3, 2012, Pages 190-200

Challenges, Coping Strategies, and Unmet Needs of Families with a Child with Autism Spectrum Disorder in Goa, India

Author keywords

Autism Spectrum Disorders; Impact; India; Qualitative

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; AUTISM; CHILD; COPING BEHAVIOR; EMOTION; FAMILY STRESS; FEMALE; HEALTH CARE PERSONNEL; HUMAN; INDIA; MALE; PERSONAL EXPERIENCE; PRESCHOOL CHILD; PRIORITY JOURNAL; PSYCHOSOCIAL WITHDRAWAL; SCHOOL CHILD; SEMI STRUCTURED INTERVIEW; SOCIAL NETWORK; SOCIAL SUPPORT;

EID: 84862218823     PISSN: 19393792     EISSN: 19393806     Source Type: Journal    
DOI: 10.1002/aur.1225     Document Type: Article
Times cited : (143)

References (44)
  • 1
    • 20444506048 scopus 로고    scopus 로고
    • Respite care needs of parents of children with developmental disabilities
    • Abelson, G. (1999). Respite care needs of parents of children with developmental disabilities. Focus on Autism and Other Developmental Disabilities, 14, 96-100.
    • (1999) Focus on Autism and Other Developmental Disabilities , vol.14 , pp. 96-100
    • Abelson, G.1
  • 2
    • 68349095331 scopus 로고    scopus 로고
    • Searching for acceptance: Challenges encountered while raising a child with autism
    • Altiere, M.J., & von Kluge, S. (2009). Searching for acceptance: Challenges encountered while raising a child with autism. Journal of Intellectual and Developmental Disability, 34, 142-152.
    • (2009) Journal of Intellectual and Developmental Disability , vol.34 , pp. 142-152
    • Altiere, M.J.1    von Kluge, S.2
  • 3
    • 82755189802 scopus 로고    scopus 로고
    • Beyond an autism diagnosis: children's functional independence and parents' unmet needs
    • Brown, H. K., Ouellette-Kuntz, H., Hunter, D., Kelley, E., Cobigo, V., & Lam, M. (2010). Beyond an autism diagnosis: children's functional independence and parents' unmet needs. J Autism Dev Disord, 41, 1291-1302.
    • (2010) J Autism Dev Disord , vol.41 , pp. 1291-1302
    • Brown, H.K.1    Ouellette-Kuntz, H.2    Hunter, D.3    Kelley, E.4    Cobigo, V.5    Lam, M.6
  • 5
    • 0842305125 scopus 로고    scopus 로고
    • From symptom recognition to diagnosis: Children with autism in urban India
    • Daley, T.C. (2004). From symptom recognition to diagnosis: Children with autism in urban India. Social Science and Medicine, 58, 1323-1335.
    • (2004) Social Science and Medicine , vol.58 , pp. 1323-1335
    • Daley, T.C.1
  • 6
    • 0036481124 scopus 로고    scopus 로고
    • Diagnostic conceptualization of autism among Indian psychiatrists, psychologists, and pediatricians
    • Daley, T.C., & Sigman, M.D. (2002). Diagnostic conceptualization of autism among Indian psychiatrists, psychologists, and pediatricians. Journal of Autism and Developmental Disorders, 32, 13-23.
    • (2002) Journal of Autism and Developmental Disorders , vol.32 , pp. 13-23
    • Daley, T.C.1    Sigman, M.D.2
  • 7
    • 74049153754 scopus 로고    scopus 로고
    • Randomized, controlled trial of an intervention for toddlers with autism: The Early Start Denver Model
    • Dawson, G. (2010). Randomized, controlled trial of an intervention for toddlers with autism: The Early Start Denver Model. Pediatrics, 125, 17-23.
    • (2010) Pediatrics , vol.125 , pp. 17-23
    • Dawson, G.1
  • 8
    • 84878727056 scopus 로고    scopus 로고
    • The discovery of autism: Indian parents' experiences of caring for their child with an autism spectrum disorder
    • Desai, M., Divan, G., Wertz, F., & Patel, V. (In Press). The discovery of autism: Indian parents' experiences of caring for their child with an autism spectrum disorder. Transcultural Psychiatry.
    • Transcultural Psychiatry
    • Desai, M.1    Divan, G.2    Wertz, F.3    Patel, V.4
  • 9
    • 71649094499 scopus 로고    scopus 로고
    • Living with a developmentally disabled child: Attitude of family members in India
    • Dhar, R. (2009). Living with a developmentally disabled child: Attitude of family members in India. The Social Science Journal, 46, 738-755.
    • (2009) The Social Science Journal , vol.46 , pp. 738-755
    • Dhar, R.1
  • 11
    • 67049118065 scopus 로고    scopus 로고
    • Epidemiology of pervasive developmental disorders
    • Fombonne, E. (2009). Epidemiology of pervasive developmental disorders. Pediatric Research, 65, 591-598.
    • (2009) Pediatric Research , vol.65 , pp. 591-598
    • Fombonne, E.1
  • 14
    • 0027414661 scopus 로고
    • Negotiating autism: Relations between parents and treatment staff
    • Gray, D.E. (1993). Negotiating autism: Relations between parents and treatment staff. Social Science and Medicine, 36, 1037-1046.
    • (1993) Social Science and Medicine , vol.36 , pp. 1037-1046
    • Gray, D.E.1
  • 15
    • 84995018647 scopus 로고
    • Coping with autism: Stresses and strategies
    • Gray, D.E. (1994). Coping with autism: Stresses and strategies. Sociology of Health & Illness, 16, 275-300.
    • (1994) Sociology of Health & Illness , vol.16 , pp. 275-300
    • Gray, D.E.1
  • 16
    • 0034865022 scopus 로고    scopus 로고
    • Accommodation, resistance and transcendence: Three narratives of autism
    • Gray, D.E. (2001). Accommodation, resistance and transcendence: Three narratives of autism. Social Science and Medicine, 53, 1247-1257.
    • (2001) Social Science and Medicine , vol.53 , pp. 1247-1257
    • Gray, D.E.1
  • 17
    • 0037294647 scopus 로고    scopus 로고
    • Gender and coping: The parents of children with high functioning autism
    • Gray, D.E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science and Medicine, 56, 631-642.
    • (2003) Social Science and Medicine , vol.56 , pp. 631-642
    • Gray, D.E.1
  • 18
    • 33750696947 scopus 로고    scopus 로고
    • Coping over time: The parents of children with autism
    • Gray, D.E. (2006). Coping over time: The parents of children with autism. Journal of Intellectual Disability Research, 50(Pt 12), 970-976.
    • (2006) Journal of Intellectual Disability Research , vol.50 , Issue.PART 12 , pp. 970-976
    • Gray, D.E.1
  • 19
    • 33751245900 scopus 로고    scopus 로고
    • "We're tired, not sad": Benefits and burdens of mothering a child with a disability
    • Green, S.E. (2007). "We're tired, not sad": Benefits and burdens of mothering a child with a disability. Social Science and Medicine, 64, 150-163.
    • (2007) Social Science and Medicine , vol.64 , pp. 150-163
    • Green, S.E.1
  • 21
    • 35448988982 scopus 로고    scopus 로고
    • The economic consequences of autistic spectrum disorder among children in a Swedish municipality
    • Jarbrink, K. (2007). The economic consequences of autistic spectrum disorder among children in a Swedish municipality. Autism, 11, 453-463.
    • (2007) Autism , vol.11 , pp. 453-463
    • Jarbrink, K.1
  • 23
    • 17244363894 scopus 로고    scopus 로고
    • Autism - experiences in a tertiary care hospital
    • Kalra, V., Seth, R., & Sapra, S. (2005). Autism - experiences in a tertiary care hospital. Indian Journal of Pediatrics, 72, 227-230.
    • (2005) Indian Journal of Pediatrics , vol.72 , pp. 227-230
    • Kalra, V.1    Seth, R.2    Sapra, S.3
  • 25
    • 65449119595 scopus 로고    scopus 로고
    • Economic cost of autism in the UK
    • Knapp, M., Romeo, R., & Beecham, J. (2009). Economic cost of autism in the UK. Autism, 13, 317-336.
    • (2009) Autism , vol.13 , pp. 317-336
    • Knapp, M.1    Romeo, R.2    Beecham, J.3
  • 26
    • 68049120380 scopus 로고    scopus 로고
    • Southeast Asian parents raising a child with autism: A qualitative investigation of coping styles
    • Luong, J., Yoder, M.K., & Canham, D. (2009). Southeast Asian parents raising a child with autism: A qualitative investigation of coping styles. The Journal of School Nursing, 25, 222-229.
    • (2009) The Journal of School Nursing , vol.25 , pp. 222-229
    • Luong, J.1    Yoder, M.K.2    Canham, D.3
  • 27
  • 29
    • 66549108775 scopus 로고    scopus 로고
    • Parental stress associated with caring for children with Asperger's syndrome or autism
    • Mori, K., Ujiie, T., Smith, A., & Howlin, P. (2009). Parental stress associated with caring for children with Asperger's syndrome or autism. Pediatrics International, 51, 364-370.
    • (2009) Pediatrics International , vol.51 , pp. 364-370
    • Mori, K.1    Ujiie, T.2    Smith, A.3    Howlin, P.4
  • 30
    • 67349161392 scopus 로고    scopus 로고
    • "'My greatest joy and my greatest heart ache:'" Parents' own words on how having a child in the autism spectrum has affected their lives and their families' lives
    • Myers, B.J., Mackintosh, V. H., & Goin-Kochel, R. P. (2009). "'My greatest joy and my greatest heart ache:'" Parents' own words on how having a child in the autism spectrum has affected their lives and their families' lives. Research in Autism Spectrum Disorders, 3, 670-684.
    • (2009) Research in Autism Spectrum Disorders , vol.3 , pp. 670-684
    • Myers, B.J.1    Mackintosh, V.H.2    Goin-Kochel, R.P.3
  • 31
    • 84855444057 scopus 로고    scopus 로고
    • National Family Health Survey 3 (NFHS-3) 2005-2006 India Mumbai, International Institute for Population Sciences and Macro International.
    • National Family Health Survey 3 (NFHS-3) 2005-2006 India. (2007). International Institute of Population Sciences. Mumbai, International Institute for Population Sciences and Macro International.
    • (2007) International Institute of Population Sciences
  • 32
    • 0036333653 scopus 로고    scopus 로고
    • Help-seeking patterns for children with epilepsy in rural India: Implications for service delivery
    • Pal, D.K., Das, T., Sengupta, S., & Chaudhury, G. (2002). Help-seeking patterns for children with epilepsy in rural India: Implications for service delivery. Epilepsia, 43, 904-911.
    • (2002) Epilepsia , vol.43 , pp. 904-911
    • Pal, D.K.1    Das, T.2    Sengupta, S.3    Chaudhury, G.4
  • 33
    • 77957571933 scopus 로고    scopus 로고
    • Self-reported needs and expectations of parents of children with autism spectrum disorders who participate in support groups
    • Papageorgiou, V., & Kalyva, E. (2010). Self-reported needs and expectations of parents of children with autism spectrum disorders who participate in support groups. Research in Autism Spectrum Disorders, 4, 653-660.
    • (2010) Research in Autism Spectrum Disorders , vol.4 , pp. 653-660
    • Papageorgiou, V.1    Kalyva, E.2
  • 34
    • 34548687697 scopus 로고    scopus 로고
    • Prevalence of severe mental and neurological disorders in Mozambique: a population-based survey
    • Patel, V., Simbine, A. P., Soares, I. C., Weiss, H. A., & Wheeler, E. (2007). Prevalence of severe mental and neurological disorders in Mozambique: a population-based survey. Lancet, 370, 1055-1060.
    • (2007) Lancet , vol.370 , pp. 1055-1060
    • Patel, V.1    Simbine, A.P.2    Soares, I.C.3    Weiss, H.A.4    Wheeler, E.5
  • 35
    • 70449090320 scopus 로고    scopus 로고
    • Packages of care for mental, neurological, and substance use disorders in low- and middle-income countries: PLoS Medicine Series
    • Patel, V., & Thornicroft, G. (2009). Packages of care for mental, neurological, and substance use disorders in low- and middle-income countries: PLoS Medicine Series. PLoS Medicine, 6, e1000160.
    • (2009) PLoS Medicine , vol.6
    • Patel, V.1    Thornicroft, G.2
  • 36
    • 79952105109 scopus 로고    scopus 로고
    • Towards achievement of universal health care in India by 2020: a call to action
    • Reddy, K. S., Patel, V., Jha, P., Paul, V. K., Kumar, A. K., & Dandona, L. (2011). Towards achievement of universal health care in India by 2020: a call to action. Lancet, 377, 760-768.
    • (2011) Lancet , vol.377 , pp. 760-768
    • Reddy, K.S.1    Patel, V.2    Jha, P.3    Paul, V.K.4    Kumar, A.K.5    Dandona, L.6
  • 37
    • 24344508767 scopus 로고    scopus 로고
    • The social trajectory of illness: Autism in the ultraorthodox community in Israel
    • Shaked, M. (2005). The social trajectory of illness: Autism in the ultraorthodox community in Israel. Social Science and Medicine, 61, 2190-2200.
    • (2005) Social Science and Medicine , vol.61 , pp. 2190-2200
    • Shaked, M.1
  • 38
    • 77957336318 scopus 로고    scopus 로고
    • Early concerns of mothers of children later diagnosed with autism. Implications for early identification
    • Thomas, K. (2011). Early concerns of mothers of children later diagnosed with autism. Implications for early identification. Research in Autism Spectrum Disorders, 5, 157-163.
    • (2011) Research in Autism Spectrum Disorders , vol.5 , pp. 157-163
    • Thomas, K.1
  • 40
    • 84862227553 scopus 로고    scopus 로고
    • A sociological study of families with autism in Delhi: Issues and challenges. Paper presented at The Asian Pacific Autism Conference.
    • Vaidya, S. (2009). A sociological study of families with autism in Delhi: Issues and challenges. Paper presented at The Asian Pacific Autism Conference.
    • (2009)
    • Vaidya, S.1
  • 41
    • 79956200137 scopus 로고    scopus 로고
    • Stresses and coping strategies of Chinese families with children with autism and other developmental disabilities
    • Wang, P., Michaels, C. A., & Day, M. S. (2011). Stresses and coping strategies of Chinese families with children with autism and other developmental disabilities. J Autism Dev Disord, 41, 783-795.
    • (2011) J Autism Dev Disord , vol.41 , pp. 783-795
    • Wang, P.1    Michaels, C.A.2    Day, M.S.3
  • 43
    • 48049111329 scopus 로고    scopus 로고
    • Living in a world of our own: The experience of parents who have a child with autism
    • Woodgate, R.L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18, 1075-1083.
    • (2008) Qualitative Health Research , vol.18 , pp. 1075-1083
    • Woodgate, R.L.1    Ateah, C.2    Secco, L.3
  • 44
    • 0025487888 scopus 로고
    • Explanatory models of major depression and implications for help-seeking among immigrant Chinese-American women
    • Ying, Y. W. (1990). Explanatory models of major depression and implications for help-seeking among immigrant Chinese-American women. Cult Med Psychiatry, 14, 393-408.
    • (1990) Cult Med Psychiatry , vol.14 , pp. 393-408
    • Ying, Y.W.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.