Self-reported needs and expectations of parents of children with autism spectrum disorders who participate in support groups

Research in Autism Spectrum Disorders

Volumn 4, Issue 4, 2010, Pages 653-660

  Papageorgiou, Vaya ^a   Kalyva, Efrosini ^b  

^a Psychiatric Hospital of Thessaloniki   (Greece)

^b UNIVERSITY OF SHEFFIELD   (Greece)

Author keywords

Autism spectrum disorders; Expectations; Parents; Self reported needs; Support groups

Indexed keywords

ADULT; AGE DISTRIBUTION; ARTICLE; AUTISM; BEHAVIOR DISORDER; CHILD BEHAVIOR; CHILD CARE; CONTROLLED STUDY; EDUCATION; EXPECTATION; FATHER; FEMALE; GENDER; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MATERNAL CARE; MOTHER; MOTIVATION; NORMAL HUMAN; OCCUPATION; OPEN ENDED QUESTIONNAIRE; PARENTAL ATTITUDE; PATIENT PARTICIPATION; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; SELF HELP; SELF REPORT; SOCIAL BEHAVIOR; SOCIAL INTERACTION; SUPPORT GROUP; THEMATIC ANALYSIS;

EID: 77957571933     PISSN: 17509467     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.rasd.2010.01.001     Document Type: Article

References (60)

1. M. Agorastou, E. Kalyva, E. Kaderoglou, and F. Stefanidis Attitudes towards inclusion in primary education in Greece C.A. Marshall, E. Kendall, M. Banks, R.M.S. Gover, Disabilities: Insights from across fields and around the world 3 Vol. book set 2009 Praeger Press Westport, CT
2. American Psychiatric Association Diagnostic and statistical manual of mental disorders 4th ed. - text revision 2000 Author Washington, DC
3. M.L. Anderegg, G.A. Vergason, and M.C. Smith A visual representation of the grief cycle for use by teachers with families of children with disabilities Remedial and Special Education 13 2 1992 17 23
4. S.R. Anderson, A.L. Jablonski, M.L. Thomeer, and V.M. Knapp Self-help skills for people with autism: A systematic teaching approach 2008 Woodbine House
5. E. Avramidis, and E. Kalyva Research methods in special needs: Theory and practice 2006 Papazisis Athens
6. E.T. Baker, M.C. Wang, and H.J. Walberg The effects of inclusion on learning Educational Leadership 52 1994 33 35
7. T. Bennett, and D.A. De Luca Families of children with disabilities: Positive adaptation across the life cycle Social Work in Education 18 1996 31 45
8. P.R. Benson, and K.L. Karlof Anger, stress proliferation, and depressed mood among parents of children with ASD: A longitudinal replication Journal of Autism and Developmental Disorders 39 2009 350 362
9. B.A. Beresford Resources and strategies: How parents cope with the care of a disabled child Journal of Child Psychology and Psychiatry 35 1994 171 209
10. C. Betz, O. Unger, B. Frager, L. Test, and C. Smith A survey of self help groups in California for parents of children with chronic conditions Pediatric Nursing 16 1990 293 296
11. A. Bitterman, T.C. Daley, S. Misra, E. Carlson, and J. Markowitz A national sample of preschoolers with autism spectrum disorders: Special education services and parent satisfaction Journal of Autism and Developmental Disorders 38 2008 1509 1517
12. B.A. Boyd Examining the relationship between stress and lack of social support in mothers of children with autism Focus on Autism and Other Developmental Disabilities 17 2002 208 215
13. V.J. Callan, and P.K. Kee Sons or daughters? Cross-cultural comparisons of the sex preferences of Australian, Greek, Italian, Malay, Chinese and Indian parents in Australia and Malaysia Population & Environment 4 1981 97 108
14. J.B. Chan, and J. Sigafoos Does respite care reduce parental stress in families with developmentally disabled children? Child and Youth Care Forum 30 2001 253 263
15. S. Cobb Social support as a moderator of life stress Psychosomatic Medicine 38 1976 300 314
16. L. Eisenberg The fathers of autistic children American Journal of Orthopsychiatry 27 1957 715 724
17. M.P. Farrell, and C.M. Barnes Family systems and social support: A test of the effects of cohesion and adaptability on the functioning of parents and adolescents National Council on Family Relations 1993
18. S. Fisman, and L. Wolf The handicapped child: Psychological effects of parental, marital, and sibling relationships Psychiatric Clinics of North America 14 1991 199 217
19. R.I. Freedman, and N.C. Boyer The power to choose: Supports for families caring for individuals with developmental disabilities Health and Social Work 25 2000 59 68
20. D. Gray Perceptions of stigma: The parents of autistic children Sociology of Health & Illness 15 1993 102 120
21. S.L. Harris, and J.S. Handleman Age and IQ at intake as predictors of placement for young children with autism: A four- to six-year follow-up Journal of Autism and Developmental Disorders 30 2000 137 142
22. R.P. Hastings Grandparents of children with disabilities: A review. International Journal of Disability Development and Education 44 1997 329 340
23. R.P. Hastings, and E. Johnson Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism Journal of Autism and Developmental Disorders 31 2001 327 336
24. D. Henderson, and B. Vandenberg Factors influencing adjustment in the families of autistic children Psychological Reports 71 1992 167 171
25. S.E. Herman, and L. Thompson Families' perceptions of their resources for caring for children with developmental disabilities Mental Retardation 33 1995 73 83
26. K. Hoppes, and Harris Perceptions of child attachment and maternal gratification in mothers of children with autism and down syndrome Journal of Clinical Child Psychology 19 1990 365 370
27. J. Huws, R.S. Jones, and D.K. Ingledew Parents of children with autism using an email group: A grounded theory study Journal of Health Psychology 6 2001 569 584
28. E. Kalyva Autism: Educational and therapeutic approaches 2005 Papazisis Athens
29. E. Kalyva Teachers' perspectives of the sexuality of children with autism spectrum disorders Research in Autism Spectrum Disorders 2009 doi:org/10.1016/j.rasd.2009.10.014
30. H. Kataki I tris taftotites tis ellinikis ikogenias[nl]The three identities of the Greek family 1984 Kedros Athens
31. J. Kitzinger Qualitative research: Introducing focus groups British Medical Journal 311 1995 299 302
32. L.K. Koegel, R.L. Koegel, C. Hurley, and W.D. Frea Improving social skills and disruptive behavior in children with autism through self-management Journal of Applied Behavior Analysis 125 1992 341 353
33. M.M. Konstantareas, and S. Homatidis Assessing child symptom severity and stress in parents of autistic children Journal of Child Psychology and Psychiatry 30 1989 459 470
34. M.K. Konstantareas Autistic, learning disabled and delayed children's impact on their parents Canadian Journal of Behavioural Science 23 1991 358 375
35. M.M. Konstantareas, and V. Papageorgiou Effects of temperament, symptom severity and level of functioning on maternal stress in Greek children and youth with ASD Autism 10 2006 593 607
36. N.M. Koroloff, and B.J. Friesen Support groups for parents of children with emotional disorders: A comparison of members and non-members Community Mental Health Journal 27 1991 265 279
37. G.K. Lee Parents of children with high functioning autism: How well do they cope and adjust? Journal of Developmental and Physical Disabilities 21 2009 93 114
38. C. Lord, S. Risi, L. Lambrecht, and E.H. Cook The autism diagnostic observation schedule-generic: A standard measure of social and communication deficits associated with the spectrum of autism Journal of Autism and Developmental Disorders 30 2000 205 223
39. K.A. Loveland, D.A. Pearson, B. Tunali-Kotoski, J. Ortegon, and M. Cullen Gibbs Judgments of social appropriateness by children and adolescents with autism Journal of Autism and Developmental Disorders 31 2001 367 376
40. E.H. Luther, D.L. Canham, and V.Y. Cureton Coping and social support for parents of children with autism The Journal of School Nursing 21 2005 40 47
41. J.L. Matson, M.L. Gonzalez, and T.T. Rivet Reliability of the autism spectrum disorder - behavior problems for children (ASD-BPC) Research in Autism Spectrum Disorders 2 2008 696 706
42. H.I. McCubbin, and J.M. Patterson The family stress process: The double ABCX model of family adjustment and adaptation Marriage and Family Review 6 1983 7 37
43. N.A. Milgram, and M. Atzil Parenting stress in raising autistic children Journal of Autism and Developmental Disorders 18 1998 415 424
44. E.M. Ornitz, D. Guthrie, and A.H. Farley The early development of autistic children Journal of Autism and Developmental Disorders 7 1977 207 229
45. L.A. Osborne, L. McHugh, J. Saunders, and P. Reed Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders Journal of Autism and Developmental Disorders 38 2008 1092 1103
46. P. Randall, and J. Parker Supporting the families of children with autism 1999 Wiley Chichester
47. P.S. Rawlins, and M.M. Horner Does membership in a support group alter needs of parents of chronically ill children? Pediatric Nursing 14 1988 70 72
48. J.R. Rodrigue, S.B. Morgan, and G. Geffken Families of autistic children: Psychological functioning of mothers Journal of Clinical Child Psychology 19 1990 371 379
49. T. Salovita, M. Italinna, and E. Leinonen Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: A double ABCX model Journal of Intellectual Disability Research 47 2003 300 312
50. J.L. Sanders, and S.B. Morgan Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention Child and Family Behavior Therapy 19 1997 15 32
51. M.M. Seltzer, M.W. Krauss, P.T. Shattuck, G. Orsmond, A. Swe, and C. Lord The symptoms of autism spectrum disorders in adolescence and adulthood Journal of Autism and Developmental Disorders 33 2003 565 581
52. C. Sharpley, and V. Bitsika Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism Journal of Intellectual and Developmental Disability 22 1997 19 29
53. S. Siklos, and K.A. Kerns Assessing need for social support in parents of children with autism and Down syndrome Journal of Autism and Developmental Disorders 36 2006 921 933
54. P. Sloper, C. Knussen, S. Turner, and C. Cunningham Factors related to stress and satisfaction with life in families of children with Down syndrome Journal of Child Psychology and Psychiatry 32 1991 655 676
55. K. Smith, D. Gabard, D. Dale, and A. Drucker Parental opinions about attending parent support groups Children's Health Care 23 1994 127 136
56. S. Tellen, A. Herzog, and T.L. Kilbane Impact of a family support program on mothers' social support and parenting stress American Journal of Orthopsychiatry 59 1989 410 419
57. M.J. Weiss Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation Autism 6 2002 115 130
58. B. Weissbourd, and S.L. Kagan Family support programs: Catalysts for change American Journal of Orthopsychiatry 59 1989 20 31
59. N. White, and R.P. Hastings Social and professional support for parents of adolescents with severe intellectual disabilities Journal of Applied Research in Intellectual Disabilities 17 2004 181 190
60. L.C. Wolf, S. Noh, S.N. Fisman, and M. Speechley Brief report: Psychological effects of parenting stress on parents of autistic children Journal of Autism and Developmental Disorders 19 1989 157 166