Differences between community professional and patient perceptions of chronic obstructive pulmonary disease treatment outcomes: A qualitative study

Journal of Clinical Nursing

Volumn 21, Issue 11-12, 2012, Pages 1524-1533

  Cooke, Mary ^a   Thackray, Sue ^b  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

^b NATIONAL HEALTH SERVICE   (United Kingdom)

Author keywords

Chronic obstructive pulmonary disease; Professional patient priorities; Service development primary care

Indexed keywords

ARTICLE; CHRONIC OBSTRUCTIVE LUNG DISEASE; HEALTH CARE PERSONNEL; HUMAN; PATIENT; PSYCHOLOGICAL ASPECT; TREATMENT OUTCOME; UNITED KINGDOM;

GREAT BRITAIN; HEALTH PERSONNEL; HUMANS; PATIENTS; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; TREATMENT OUTCOME;

EID: 84862072162     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2012.04094.x     Document Type: Article

References (46)

1. Barbour R & Kitzinger J (eds) (1999) Developing focus group Research; Politics, Theory and Practice. Sage Thousand Oaks, London.
2. British Lung Foundation, Chronic Obstructive Pulmonary Disease (2007) Invisible lives: COPD - finding the missing millions.
3. British Lung Foundation (2008) Chronic Obstructive Pulmonary Disease (COPD). British Lung Foundation, London, Available at: (accessed 14 February 2012).
4. British Thoracic Society (2001) The Burden of Lung Disease. BTS, London.
5. Caress A, Luker KA, Chalmers K & Salmon MP (2009) A review of the information and support needs of family carers of patients with chronic obstructive pulmonary disease. Journal of Clinical Nursing 18, 479-491.
6. Curry R (2006) Vision to reality: using patient's voices to develop and improve services. British Journal of Community Nursing 11, 438-445.
7. Curtis JR (2008) Palliative and end of life care for patients with severe COPD. European Respiratory Journal 32, 796-803.
8. Curtis JR, Weinrich MD, Carline JD, Shannon SE, Ambrozy DM & Ramsey PG (2002) Patient's perspectives on physician skill in end-of-life care: differences between patients with COPD, cancer and AIDS. Chest 122, 356-362.
9. Curtis J, Engelberg R, Nielsen EL, Au DH & Patrick DL (2004) Patient-physician communication about end of life care for patients with COPD. European Respiratory Journal 24, 200-205.
10. Dean M (2008) End of life care for COPD patients. Primary Care Respiratory Journal 17, 46-50.
11. Department of Health (2005) The National Service Framework for Long Term Conditions, Available at: (accessed 14 February 2012).
12. DoH Consultation on a Strategy for Services for COPD in England (2010) Consultation Impact Assessment. Department of Health, London.
13. Duvall K & Frank GW (2010) Identifying COPD in primary care of urban underserved patients: tools, applications and challenges. Journal of the National Medical Association 102, 570-578.
14. Elkington H, White P, Addington-Hall J, Higgs R & Edmonds P (2005) The healthcare needs of COPD patients in the last year of life. Palliative Medicine 19, 485-491.
15. Gallagher M, Hares T, Spencer J, Bradshaw C & Webb I (1993) The nominal group technique: a research tool for general practice? Family Practice 10, 76-81.
16. Gardiner C, Gott M, Small N, Barnes S, Halpin D, Ruse C & Seamark D (2009) Living with advanced COPD: patients concerns regarding death and dying. Palliative Medicine 23, 691-697.
17. GOLD (2011) Global Strategy for the Diagnosis, Management, and Prevention of Chronic Obstructive Pulmonary Disease (Revised 2011). Available at: (accessed 23 June 2012).
18. Gott M, Gardiner C, Small N, Payne S, Seamark D, Barnes S, Halpin D & Ruse C (2009) Barriers to advanced care planning in COPD. Palliative Medicine 23, 642-648.
19. Greenbaum TL (1998) The Handbook for focus group Research, 2nd edn. Sage Thousand Oaks, London.
20. Gysels M & Higginson I (2008) Access to services for patients with COPD: the invisibility of breathlessness. Journal of Pain and Symptom Management 36, 451-460.
21. Hancock P & Cox K (2008) Setting up a buddy scheme for pulmonary rehabilitation. Nursing Times 104, 31-33.
22. Homel P, Billings A, Tennstedt S & Portenoy R (2008) Symptom distress and QoL in patients with advanced COPD. Journal of Pain and Symptom Management 38, 115-123.
23. Kotz D, Huibers MJH, West RJ, Wesseling G & van Schayck O (2009) What mediates the effect of confrontational counselling on smoking cessation in smokers with COPD? Patient Education and Counseling 76, 16-24.
24. Laniado-Laborin R (2009) Smoking and chronic obstructive pulmonary disease (COPD). Parallel epidemics of the 21(st) century. International Journal of Environmental Research and Public Health 6, 209-224.
25. Leidy NK & Traver GA (2006) Adjustment and social behaviour in older adults with COPD: the family's perspective. Journal of Advanced Nursing 23, 252-259.
26. Lemmens KMM, Neiboer AP & Huijsman R (2008) Designing patient-related interventions in COPD care: empirical test of a theoretical model. Patient Education and Counseling 72, 223-231.
27. Leung LY, Molassiotis A & Chau JPC (2002) Coping and adjustment in Chinese patients with chronic obstructive pulmonary disease. International Journal of Nursing Studies 39, 383-395.
28. Lhussier M, Watson B, Reed J & Clarke CL (2005) The SEIQoL and functional status: how do they relate? ... Schedule for the evaluation of individual quality of life Scandinavian Journal of Caring Sciences 19, 403-409.
29. Lomborg K & Kirkevold M (2008) Achieving therapeutic clarity in assisted personal body care: professional challenges in interactions with severely ill COPD patients. Journal of Clinical Nursing 17, 2155-2163.
30. Luker K, Chalmers K, Caress A & Salmon M (2007) Smoking cessation interventions in chronic obstructive pulmonary disease and role of the family: a systematic literature review. Journal of Advanced Nursing 59, 559-568.
31. National Statistics (2006) Health Statistics Quarterly 30. Available at: (accessed 14 February 2012).
32. NICE Clinical Guideline 12 (2004) Chronic obstructive pulmonary disease; management of chronic obstructive pulmonary disease in adults in primary and secondary care. Available at: (accessed 7 July 2011).
33. Nici L & ZuWallack R (2010) Pulmonary rehabilitation: today and tomorrow. Breathe 6, 305-311.
34. O'Connor J, Cartwright T, Evans P, Clow A, Peters D, Lee C & Elkin S (2009) COPD patients' beliefs and expectations of pulmonary rehabilitation. Thorax 64, A97-A98.
35. Oliver S (2001) Living with failing lungs: the doctor patient relationship. Family Practice 18, 430-439.
36. Pinnock H, Huby G, Tierney A, Hamilton S, Powell A, Kielmann T & Sheikh A (2009) Is multidisciplinary teamwork the key? A qualitative study of the development of respiratory services in the UK. Journal of the Royal Society of Medicine 102, 378-390.
37. Rabe KF (2006) Guidelines for COPD treatment and issues of implementation. Processes of the American Thoracic Society 3, 641-644.
38. Ritchie J, Spencer L & O'Connor W (2003) Carrying out qualitative analysis. In Qualitative Research Practice (Ritchie J & Lewis J eds). Sage, London, pp. 219-262.
39. Rozenbaum W (2008) Patients with COPD: between reality and expectations - a patient's perspective. Disease Management and Health Outcomes 16, 353-358.
40. Schaefer KM (2001) Patients with end stage COPD did not ask for help because they felt normal and did not realise the situation could be improved. Evidence Based Nursing 12, 95.
41. Shipman C, White S, Gysels M & White P (2009) Access to care in advanced COPD: factors that influence contact with general practice services. Primary Care Respiratory Journal 18, 273-278.
42. Small SP & Lamb M (2000) Measurement of fatigue in chronic obstructive pulmonary disease and in asthma. International Journal of Nursing Studies 37, 127-133.
43. Strassmann R, Bausch B, Spaar A, Keijnen J, Braendli O & Puhan MA (2000) Smoking cessation interventions in COPD: a network meta-analysis of randomised trials. European Respiratory Journal 34, 634-640.
44. Sveger T, Thelin T & McNeil TF (1997) Young adults with 1-antitrypsin deficiency identified neonatally: their health, knowledge about and adaptation to the high risk condition. Acta Paediatrica 86, 37-40.
45. Taylor S, Candy B, Bryar R, Ransay J, Vrijhoef H, Esmond G, Wedzicha J & Griffiths C (2005) Effectiveness of innovations on nurse led chronic disease management for patients with COPD: systematic review of evidence. British Medical Journal 331, 485.
46. The Healthcare Commission (2006) The combined predictive model final report (December 2006) on the Parr ++ model King's Fund (2007). Available at: (accessed 7 July 2011).