Access to care in advanced COPD: Factors that influence contact with general practice services

Primary Care Respiratory Journal

Volumn 18, Issue 4, 2009, Pages 273-278

  Shipman, Cathy ^a   White, Suzanne ^a   Gysels, Marjolein ^a   White, Patrick ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

Access; COPD; End of life care; General practice; Palliative care; Primary medical care; Service use

Indexed keywords

ADULT; AGED; ARTICLE; CHRONIC OBSTRUCTIVE LUNG DISEASE; DISEASE SEVERITY; DOCTOR PATIENT RELATION; DYSPNEA; EMERGENCY CARE; FEMALE; FORCED EXPIRATORY VOLUME; GENERAL PRACTICE; HEALTH CARE ACCESS; HEALTH SERVICE; HUMAN; INTERVIEW; MALE; PROSPECTIVE STUDY; SPIROMETRY; UNITED KINGDOM;

AGED; AGED, 80 AND OVER; FAMILY PRACTICE; FEMALE; HEALTH SERVICES ACCESSIBILITY; HUMANS; INTERVIEWS AS TOPIC; LONDON; MALE; MIDDLE AGED; PHYSICIAN-PATIENT RELATIONS; PROSPECTIVE STUDIES; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; RESPIRATORY FUNCTION TESTS; URBAN POPULATION;

EID: 72149128428     PISSN: 14714418     EISSN: 14751534     Source Type: Journal    
DOI: 10.4104/pcrj.2009.00013     Document Type: Article

References (28)

1. Rocker GM, Sinuff T, Horton R, Hernandez P. Advanced chronic obstructive pulmonary disease: innovative approaches to palliation. J Palliat Med 2007;10(3):783-797 doi:10.1089/jpm.2007.9951 (Pubitemid 47025679)
2. Seamark DA, Seamark CJ, Halpin MG. Palliative care in chronic obstructive pulmonary disease: a review for clinicans. J R Soc Med 2007;100:225-233 doi:10.1258/jrsm.100.5.225 (Pubitemid 46814778)
3. Curtis JR. Palliative care and end-of-life care for patients with severe COPD. Eur Respir J 2008;32(3):796-803. Epub 2007 Nov 7. doi:10.1183/09031936. 00126107
4. Elkington H, White P, Addington-Hall J, Higgs R, Edmonds P. The healthcare needs of COPD patients in the last year of life. Palliat Med 2005;19:485-491 doi:10.1191/0269216305pm1056oa
5. Knauft, E, Neilson EL, Engelberg RA, Patrick DL, Curtis JR. Barriers and facilitators to end of life care communication for patients with COPD. Chest 2005;127:2188-2196 doi:10.1378/chest.127.6.2188 (Pubitemid 46260112)
6. Mulcahy, P, Buetow S, Osman L, Coster G, Bray Y, White P, Elkington H. GPs' attitudes to discussing prognosis in severe COPD: an Auckland (NZ) to London (UK) comparison. Family Practice 2005;22:538-540 doi:10.1093/fampra/ cmi052 (Pubitemid 41418774)
7. Murray, S, Pinnock H, and Sheikh A. Palliative care for people with COPD: we need to meet the challenge. Prim Care Resp J 2006;15(6):362-364 doi:10.1016/j.pcrj.2006.08.008 (Pubitemid 44810151)
8. Varkey, B. Unfulfilled palliative care needs of chronic obstructive pulmonary disease patients. Curr Opin Pulm Med 2006;12:103-105 doi:10.1097/01.mcp.0000208448.65478.8f (Pubitemid 44384783)
9. Gore JM, Brophy CJ, Greenstone MA. How well do we care for patients with end stage chronic obstructive pulmonary disease (COPD). A comparison of palliative care and quality of life in COPD and lung cancer. Thorax 2000;55:1000-1006 doi:10.1136/thorax.55.12.1000
10. Goodridge D. People with chronic obstructive pulmonary disease at the end of life: A review of the literature. Int J Palliat Nurs 2006;12(8):390-396
11. World Health Organisation. National cancer control programmes: policies and managerial gudielines, 2nd ed. World Health Organization, Geneva, 2002.
12. Edmonds, P, Karlson S, Khan S, Addington-Hall J. A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer. Palliat Med 2001;15:287-295 doi:10.1191/026921601678320278 (Pubitemid 32640547)
13. Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Patients' perspectives on physician skill in end-of-life care: differences between patients with COPD, Cancer and AIDS. Chest 2002;122:356-362 doi:10.1378/chest.122.1.356
14. Oliver S. Living with failing lungs: the doctor patient relationship. Family Practice 2001;18(4):430-439 doi:10.1093/fampra/18.4.430 (Pubitemid 32771647)
15. Gysels M, Higginson IJ. Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness. J Pain Symptom Manage 2008;36(5):451-460 Epub 2008 May 20. doi:10.1016/j.jpainsymman. 2007.11.008
16. Adams R, Chavannes N, Jones K, Ostergaard MS, Price D. Exacerbations of chronic obstructive pulmonary disease - A patients' perspective. Prim Care Resp J 2006;15(2):102-109 doi:10.1016/j.pcrj.2006.01.003
17. Burge S, Wedzicha WA. COPD exacerbations: definitions and classifications Eur Resp J 2003;21:46S-53S.
18. Wedzicha AJ, Seemungal TAR. COPD exacerbations: defining their cause and prevention. The Lancet 2007;370:786-796 doi:10.1016/S0140-6736(07)61382-8
19. Wilkinson TMA, Donaldson GC, Hurst JR, Seemungal TAR, Wedzicha JA. Early therapy improves outcomes of exacerbations of chronic obstructive pulmonary disease. Am J Resp Crit Care Med 2004;169:1298-1393 doi:10.1164/rccm.200310- 1443OC
20. Fletcher CM (Chairman). Standardised questionnaire on respiratory symptoms: a statement prepared and approved by the MRC Committee on the Aetiology of Chronic Bronchitis (MRC breathlessness score). BMJ 1960;2:1665.
21. Ritchie J and Lewis J (eds) (2004) Qualitative Research Practice. A Guide for Social Science Students. Sage Publications: London.
22. NVivo 7 (QSR International Ltd, Victoria, Australia).
23. Ostrowski S, Grzywa-Celinska A, Mieczkowska J, et al. Pulmonary function between 40 and 80 years of age. J Physiol Pharm 2005;56Suppl 4:127-133
24. Garcia-Rio F, Pino JM, Dorgham A, Alonso A, Villamor J. Spirometric reference equations for European females and males aged 65-85 yrs. Eur Resp J 2004;24(3):397-405. doi:10.1183/09031936.04.00088403 (Pubitemid 39232262)
25. Curtis, JR, Engelberg RA, Nielson EL, Au DH, Patrick DL. Patient-physician communication about end-of-life care for patients with severe COPD. Eur Resp J 2004;24:200-205 doi:10.1183/09031936.04.00010104
26. Gulliford MC, Naithani S, and Morgan S. Continuity of care and intermediate outcomes of type 2 diabetes mellitus. Family Practice 2007;24:245-251 doi:10.1093/fampra/cmm014 (Pubitemid 47249456)
27. Baker R, Boulton M, Windridge K, Tarrant C, Bankart J, Freeman GK. Interpersonal continuity of care: A cross sectional survey of primary care patients preferences and their experience. Br J Gen Pract 2007;57:283-289 (Pubitemid 46534191)
28. Thomas K. Caring for the Dying at Home (2003) Radcliffe.