Predictors of survival in children born with Down syndrome: A registry-based study

Pediatrics

Volumn 129, Issue 6, 2012, Pages

  Rankin, Judith ^a,b   Tennant, Peter W G ^a   Bythell, Mary ^b   Pearce, Mark S ^a  

^a NEWCASTLE UNIVERSITY   (United Kingdom)

^b Regional Maternity Survey Office   (United Kingdom)

Author keywords

Congenital abnormalities; Down syndrome; Mortality; Register; Survival; Trisomy 21

Indexed keywords

ARTICLE; BIRTH WEIGHT; CHILD DEATH; CONGENITAL MALFORMATION; DISEASE REGISTRY; DOWN SYNDROME; FEMALE; FETUS WASTAGE; GESTATIONAL AGE; HUMAN; INFANT; KARYOTYPE; LIVE BIRTH; MAJOR CLINICAL STUDY; MALE; PREGNANCY; PREGNANCY TERMINATION; PREVALENCE; PRIORITY JOURNAL; SPONTANEOUS ABORTION; STILLBIRTH; SURVIVAL FACTOR; SURVIVAL PREDICTION; SURVIVAL RATE; UNITED KINGDOM;

EID: 84861873653     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2011-3051     Document Type: Article

References (30)

1. Canfield MA, Honein MA, Yuskiv N, et al. National estimates and race/ethnic-specific variation of selected birth defects in the United States, 1999-2001. Birth Defects Res A Clin Mol Teratol. 2006;76(11):747-756
2. Baird PA, Sadovnick AD. Life tables for Down syndrome. Hum Genet. 1989;82(3):291-292 (Pubitemid 19160327)
3. Dastgiri S, Gilmour WH, Stone DH. Survival of children born with congenital anomalies. Arch Dis Child. 2003;88(5):391-394 (Pubitemid 36566720)
4. Forrester MB, Merz RD. First-year mortality rates for selected birth defects, Hawaii, 1986-1999. Am J Med Genet A. 2003;119A(3):311-318 (Pubitemid 37063861)
5. Nembhard WN, Waller DK, Sever LE, Canfield MA. Patterns of first-year survival among infants with selected congenital anomalies in Texas, 1995-1997. Teratology. 2001;64(5):267-275 (Pubitemid 33032709)
6. Rasmussen SA, Wong LY, Correa A, Gambrell D, Friedman JM. Survival in infants with Down syndrome, Metropolitan Atlanta, 1979-1998. J Pediatr. 2006;148(6):806-812
7. Hayes C, Johnson Z, Thornton L, et al. Ten-year survival of Down syndrome births. Int J Epidemiol. 1997;26(4):822-829 (Pubitemid 27367859)
8. Leonard S, Bower C, Petterson B, Leonard H. Survival of infants born with Down's syndrome: 1980-96. Paediatr Perinat Epidemiol. 2000;14(2):163-171 (Pubitemid 30199252)
9. Richmond S, Atkins J. A population-based study of the prenatal diagnosis of congenital malformation over 16 years. BJOG. 2005;112(10):1349-1357 (Pubitemid 43961263)
10. British Isles Network of Congenital Anomaly Registers. Available at: www.binocar.org/. Accessed March 19, 2012
11. European Surveillance of Congenital Anomalies. Available at: www.eurocat-network.eu/. Accessed on March 19, 2012
12. World Health Organization. International statistical classification of diseases and related health problems 10th revision: version for 2007. Available at: www.who.int/classifications/icd10/. Accessed March 19, 2012
13. European Surveillance of Congenital Anomalies. Coding of EUROCAT subgroups of congenital anomalies. Available at: www.eurocat-network.eu/content/ EUROCAT-Definition-New-Subgroups-Feb-2007.pdf. Accessed March 19, 2012
14. Hey EN, Welch RG, Lawson JB, et al. Perinatal mortality: a continuing collaborative regional survey. Br Med J (Clin Res Ed). 1984;288(6432):1717-1720
15. World Health Organization. Life tables for WHO member states. Available at: www.who.int/healthinfo/statistics/mortality-life-tables/en/. Accessed March 19, 2012
16. Tin W, Wariyar UK, Hey EN; The Northern Neonatal Network. Selection biases invalidate current low birthweight weight-for-gestation standards. Br J Obstet Gynaecol. 1997;104(2):180-185 (Pubitemid 27065140)
17. Noble M, Wright G, Dibben C, et al. The English Indices of Deprivation 2004 (Revised). London, UK: Neighbourhood Renewal Unit, Office of the Deputy Prime Minister; 2004
18. Tennant PWG, Pearce MS, Bythell M, Rankin J. 20-Year survival of children born with congenital anomalies: a population-based study. Lancet. 2010;375(9715):649-656
19. Irving CA, Chaudhari MP. Cardiovascular abnormalities in Down's syndrome: spectrum, management and survival over 22 years [published online ahead of print August 11, 2011]. Arch Dis Child. doi:10.1136/adc.2010.210534
20. Day SM, Strauss DJ, Shavelle RM, Reynolds RJ. Mortality and causes of death in persons with Down syndrome in California. Dev Med Child Neurol. 2005;47(3):171-176 (Pubitemid 40277822)
21. Masaki M, Higurashi M, Iijima K, et al. Mortality and survival for Down syndrome in Japan. Am J Hum Genet. 1981;33(4):629-639 (Pubitemid 11095654)
22. Glasson EJ, Sullivan SG, Hussain R, Petterson BA, Montgomery PD, Bittles AH. Comparative survival advantage of males with Down syndrome. Am J Hum Biol. 2003;15(2):192-195 (Pubitemid 36335916)
23. UK National Screening Committee. Antenatal Screening - Working Standards for Down's Syndrome Screening 2007. 2nd ed. Exeter, UK: UK NSC; 2007
24. Palta M, Weinstein MR, McGuinness G, Gabbert D, Brady W, Peters ME. A population study. Mortality and morbidity after availability of surfactant therapy. Newborn Lung Project. Arch Pediatr Adolesc Med. 1994;148(12):1295-1301 (Pubitemid 24375639)
25. Gilstrap LC III, Leveno KJ, Cox SM, Burris JS, Mashburn M, Rosenfeld CR. Intrapartum treatment of acute chorioamnionitis: impact on neonatal sepsis. Am J Obstet Gynecol. 1988;159(3):579-583
26. BMJ. Cot deaths. BMJ. 1995;310(6971):7-10
27. Perloff JK, Warnes CA. Challenges posed by adults with repaired congenital heart disease. Circulation. 2001;103(21):2637-2643 (Pubitemid 32521977)
28. Boghossian NS, Hansen NI, Bell EF, et al; Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. Survival and morbidity outcomes for very low birth weight infants with Down syndrome. Pediatrics. 2010;126(6):1132-1140
29. Vrijheid M, Dolk H, Stone D, Abramsky L, Alberman E, Scott JE. Socioeconomic inequalities in risk of congenital anomaly. Arch Dis Child. 2000;82(5):349-352 (Pubitemid 30307759)
30. Lopez PM, Stone D, Gilmour H. Epidemiology of Down's syndrome in a Scottish city. Paediatr Perinat Epidemiol. 1995;9(3):331-340