Evaluation of a web portal for improving public access to evidence-based health information and health literacy skills: A pragmatic trial

PLoS ONE

Volumn 7, Issue 5, 2012, Pages

  Austvoll Dahlgren, Astrid ^a,b   Bjørndal, Arild ^c,d   Odgaard Jensen, Jan ^b   Helseth, Sølvi ^a  

^a OSLO METROPOLITAN UNIVERSITY   (Norway)

^b NORWEGIAN KNOWLEDGE CENTRE FOR THE HEALTH SERVICES   (Norway)

^c ULLEVÅL UNIVERSITY HOSPITAL   (Norway)

^d UNIVERSITY OF OSLO   (Norway)

Author keywords

[No Author keywords available]

Indexed keywords

ACCESS TO INFORMATION; ARTICLE; ATTITUDE TO HEALTH; CONTROLLED STUDY; EVIDENCE BASED MEDICINE; FEMALE; HEALTH BEHAVIOR; HEALTH LITERACY SKILL; HEALTH PROMOTION; HUMAN; INFORMATION PROCESSING; INTERNET; MALE; MEDICAL INFORMATION; MEDICAL INFORMATION SYSTEM; MEDICAL RESEARCH; PARALLEL DESIGN; PREDICTION; PUBLIC HEALTH; RANDOMIZED CONTROLLED TRIAL; RELIABILITY; SKILL; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; HEALTH LITERACY;

FEMALE; HEALTH LITERACY; HUMANS; INTERNET; MALE;

EID: 84861668220     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0037715     Document Type: Article

References (64)

1. Coulter A, (2002) The Autonomous patient: ending paternalism in medical care. London TSO.
2. Nutbeam D, (2000) Health literacy as a public health goal: A challenge for contemporary health education and communication strategies into the 21st century. Health Promotion International 15: 259-267.
3. Dawes M, Summerskill W, Glasziou P, Cartabellotta A, Martin J, et al. (2005) Sicily statement on evidence-based practice. BMC Medical Education.
4. Zarcadoolas C, Pleasant A, Greer D, (2006) Advancing health literacy: a framework for understanding and action. San Francisco, CA Jossey-Bass.
5. Nutbeam D, (1998) Health promotion glossary. Geneva World Health Organization.
6. Freedman DA, Bess KD, Tucker HA, Boyd DL, Tuchman AM, et al. (2009) Public Health Literacy Defined. American Journal of Preventive Medicine 36: 446-451.
7. Peerson A, Saunders M, (2009) Health literacy revisited: what do we mean and why does it matter? Health Promotion International 24: 285-296.
8. Berkman N, Sheridan S, Donahue K, Halpern D, Crotty K, (2011) Low Health Literacy and Health Outcomes: An Updated Systematic Review. Annals of Internal Medicine 155: 97-101.
9. Glenton C, Paulsen E, Oxman A, (2005) Portals to Wonderland? Health portals lead confusing information about the effects of health care. BMC Medical Informatics and Decision Making. 15 March ed.
10. Hoye S, Hjortdahl P, (2002) ["New wonder pill!"-what do Norwegian newspapers write]. Tidsskrift for Den norske Legeforening. 122(17): 1671-1676 (June 30).
11. Johansen L, Bjørndal A, Flottorp S, Grøtting T, Oxman A, (1996) [Evaluation of health information in newspapers and brochures. What can we believe?]. Tidsskrift for Den norske Legeforening 116: 260-264.
12. Andreassen H, Sandaune A, Gammon D, Hjortdahl P, (2002) [Norwegian use of Internet health services]. Tidsskrift for Den norske Legeforening 122: 1640-1644.
13. Fox S, (2006) Online health search. PEW Internet and American Life Project PEW Internet and American Life Project.
14. Schwartz K, Roe T, Northrup J, Meza J, Seifeldin R, et al. (2006) Family medicine patients' use of the Internet for health information: a MetroNet study. Journal of the American Board of Family Medicine 19: 39-45.
15. Fox S, Jones S, (2009) The Social Life of Health Information. Washington, DC PEW Internet and American Life Project.
16. Sillence E, Briggs P, Harris PR, Fishwick L, (2007) How do patients evaluate and make use of online health information? Social Science & Medicine 64: 1853-1862.
17. Robinson E, Kerr C, Stevens A, Lilford R, Braunholtz D, et al. (2005) Lay public's understanding of equipoise and randomisation in randomised controlled trials. NHS R&D HTA Programme.
18. Glenton C, Oxman A, (1998) The use of evidence by health care user organizations. Health Expectations 1: 14-22.
19. Woloshin S, Schwartz L, Byram S, Sox H, Fischhoff B, et al. (2000) Women's understanding of the mammography screening debate. Archives of Internal Medicine 160: 1434-1440.
20. Weinstein N, (1999) What does it mean to understand a risk? Evaluating risk comprehension. Journal of the National Cancer Institute pp. 15-20.
21. Lloyd A, (2001) The extent of patients' understanding of the risk of treatments. Quality in Health Care 10 (Suppl 1): i14-18.
22. Schwartz L, Woloshin S, Black W, Welch H, (1997) The role of numeracy in understanding the benefit of screening mammography. Annals of Internal Medicine 127: 966-972.
23. Tickner S, Leman P, Woodcock A, (2006) Factors underlying suboptimal childhood immunisation. Vaccine 24: 7030-7036.
24. Austvoll-Dahlgren A, Helseth S, (2010) What informs parents' decision-making about childhood vaccinations? Journal of Advanced Nursing 66: 2421-2430.
25. Legare F, Ratte S, Gravel K, Graham I, (2008) Barriers and facilitators to implementing shared decision-making in clinical practice: update of a systematic review of health professionals' perceptions. Patient Education and Counseling 73: 526-535.
26. Bugge C, Entwistle V, Watt I, (2006) The significance for decision-making of information that is not exchanged by patients and health professionals during consultations. Social Science & Medicine 63: 2065-2078.
27. Detmer D, Singleton P, MacLeod S, Wait S, Taylor M, et al. (2003) The informed patient: Study Report. Cambridge University of Cambridge.
28. Coulter A, Jenkinson C, (2005) European patients' views on the responsiveness of health systems and healthcare providers. European Journal of Public Health 15: 355-360.
29. Nutbeam D, (2008) The evolving concept of health literacy. Social Science and Medicine 67: 2072-2078.
30. Coulter A, Ellins J, (2006) Patient-focused interventions: a review of the evidence. London Picker Institute Europe.
31. Wantland D, Portillo C, Holzemer W, Slaughter R, McGhee E, (2004) The effectiveness of Web-based vs. non-Web-based interventions: a meta-analysis of behavioral change outcomes. Journal of Medical Internet Research 6: 40.
32. Murray E, Burns J, See T, Lai R, Nazareth I, (2005) Interactive Health Communication Applications for people with chronic disease. Cochrane Database of Systematic Reviews.
33. Austvoll-Dahlgren A, Helseth S, (2011) Public health nurses' barriers and facilitators to the use of research in consultations about childhood vaccinations. Scandinavian Journal of Caring Sciences. 15 Dec.
34. Austvoll-Dahlgren A, Sørum R, Helseth S, (2012) Cognitive factors predicting intentions to search for health information: an application of the Theory of Planned Behaviour. Unpublished.
35. Austvoll-Dahlgren A, Danielsen S, Opheim E, Bjørndal A, Reinar L, et al. (2012) A complex intervention: tailoring a web portal to improve user health literacy skills. Unpublished.
36. Bjørndal A, Flottorp S, Klovning A, (2007) Knowledge management in medicine and health sciences [Kunnskapshåndtering i medisin og helsefag] Oslo: Gyldendal akademisk.
37. DiCenso A, Bayley L, Haynes R, (2009) Accessing preappraised evidence: fine-tuning the 5S model into a 6S model. Annals of Internal Medicine 151: 99-101.
38. Charnock D, Shepperd S, Needham G, Gann R, (1999) DISCERN: an instrument for judging the quality of written consumer health information on treatment choices. Journal of Epidemiology and Community Health 53: 105-111.
39. Irwig L, Irwig J, Trevena L, Sweet M, (2008) Smart health choices: making sense of health advice. London: Hammersmith. xi: 242.
40. Statistics Norway, (2009) [Use of health services by sex and age]. Statistics Norway SSB.
41. Wangberg S, Andreassen H, Kummervold P, Wynn R, Sorensen T, (2009) Use of the internet for health purposes: trends in Norway 2000-2010. Scandinavian Journal of Caring Sciences 23: 691-696.
42. Radosevich D, (2006) Designing an outcomes research study. In: Kane R, editors. Understanding health care outcomes research 2nd ed. Sudbury, MA Jones and Bartlett pp. 23-58.
43. Charnock D, (1998) The DISCERN handbook: Quality criteria for consumer health information on treatment choices. Oxford Radcliffe Medical Press Ltd.
44. Mills E, Jadad AR, Ross C, Wilson K, (2005) Systematic review of qualitative studies exploring parental beliefs and attitudes toward childhood vaccination identifies common barriers to vaccination. Journal of Clinical Epidemiology 58: 1081-1088.
45. Wolfe R, Sharp L, Lipsky M, (2002) Content and design attributes of antivaccination web sites. Journal of American Medical Association 287: 3245-3248.
46. Goldacre B, (2007) Medicine and the media: MMR: the scare stories are back. The British Medical Journal 335: 126-127.
47. Haug C, (2009) [Fear and expectations]. Tidsskrift for Den norske Legeforening 129: 1619.
48. Teasdale E, Yardley L, (2011) Understanding responses to government health recommendations: public perceptions of government advice for managing the H1N1 (swine flu) influenza pandemic. Patient Education and Counseling 85: 413-418.
49. Ishikawa H, Yano E, (2008) Patient health literacy and participation in the health-care process. Health Expectations 11: 113-122.
50. Eysenbach G, Powell J, Kuss O, Eun-Ryoung S, (2002) Empirical studies assessing the quality of health information for consumers on the world wide web. Journal of American Medical Association 287: 2691-2700.
51. Steinsbekk A, (2008) [Patient Activation Measure]. Tidsskrift for den Norske Legeforening 128: 2316-2318.
52. Francis J, Eccles M, Johnston M, Walker A, Grimshaw J, et al. (2004) Constructing questionnaires based on the theory of planned behaviour: A manual for health services researchers. UK Centre for Health Services Research, University of Newcastle.
53. Armitage C, Conner M, (2001) Efficacy of the theory of planned behaviour: A meta-analytic review. British Journal of Social Psychology 40: 471-499.
54. Eccles M, Hrisos S, Francis J, Kaner E, Dickinson H, et al. (2006) Do self- reported intentions predict clinicians' behaviour: a systematic review. Implementation Science.
55. Ajzen I, (1991) The Theory of Planned Behavior. Organizational Behavior and Human Decision Processes 50: 179-211.
56. Hibbard JH, Mahoney ER, Stockard J, Tusler M, (2005) Development and testing of a short form of the patient activation measure. Health Services Research 40: 1918-1930.
57. Hibbard JH, Stockard J, Mahoney ER, Tusler M, (2004) Development of the patient activation measure (PAM): Conceptualizing and measuring activation in patients and consumers. Health Services Research 39: 1005-1026.
58. Morville P, (2004) User Experience Design. 2 Available: http://www.semanticstudios.com/publications/semantics/000029.php. Accessed: 2012 May.
59. Rosenbaum S, Glenton C, Cracknell J, (2008) User experiences of evidence-based online resources for health professionals: User testing of The Cochrane Library. BMC Medical Informatics and Decision Making.
60. Wainstein B, Sterling-Levis K, Baker S, Taitz J, Brydon M, (2006) Use of the Internet by parents of paediatric patients. Journal of Paediatrics and Child Health 42: 528-532.
61. Bylund C, Gueguen J, Sabee C, Imes R, Li Y, et al. (2007) Provider-patient dialogue about internet health information: An exploration of strategies to improve the provider-patient relationship. Patient Education and Counseling 66: 346-352.
62. Tuffrey C, Finlay F, (2002) Use of the internet by parents of paediatric outpatients. Archives of Disease in Childhood 87: 534-536.
63. Gordon MM, Capell HA, Madhok R, (2002) The use of the Internet as a resource for health information among patients attending a rheumatology clinic. Rheumatology 41: 1402-1405.
64. Sabel M, Strecher V, Schwartz J, Wang T, Karimipour D, et al. (2005) Patterns of Internet use and impact on patients with melanoma. Journal of the American Academy of Dermatology 52: 779-785.