Daily burdens of recipients and family caregivers after lung transplant

Progress in Transplantation

Volumn 22, Issue 1, 2012, Pages 41-47

  Xu, Jiayun ^a   Adeboyejo, Oluwatobi ^b   Wagley, Erin ^c   Aubrecht, Jill ^c   Song, Mi Kyung ^d   Thiry, Lori ^c   DeVito Dabbs, Annette ^c  

^a JOHNS HOPKINS UNIVERSITY SCHOOL OF NURSING   (United States)

^b HOWARD UNIVERSITY HOSPITAL   (United States)

^c UNIVERSITY OF PITTSBURGH   (United States)

^d UNIVERSITY OF NORTH CAROLINA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; COST OF ILLNESS; DAILY LIFE ACTIVITY; EMOTION; FEMALE; HUMAN; LUNG TRANSPLANTATION; MALE; MIDDLE AGED; QUALITY OF LIFE;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; CAREGIVERS; COST OF ILLNESS; EMOTIONS; FEMALE; HUMANS; LUNG TRANSPLANTATION; MALE; MIDDLE AGED; QUALITY OF LIFE;

EID: 84861497096     PISSN: 15269248     EISSN: None     Source Type: Journal    
DOI: 10.7182/pit2012815     Document Type: Article

References (38)

1. Christie JD, Edwards LB, Aurora P, et al. The Registry of the International Society for Heart and Lung Transplantation: Twenty-sixth official adult lung and heart-lung transplantation report-2009. J Heart Lung Transplant. 2009;28(10): 1031-1049.
2. Dew MA, Myaskovsky L, DiMartini AF, Switzer GE, Schulberg HC, Kormos RL. Onset, timing and risk for depression and anxiety in family caregivers to heart transplant recipients. Psychol Med. 2004;34(6):1065-1082.
3. Devins GM. Illness intrusiveness and the psycholsocial impact of lifestyle disruptions in chronic life-threatening disease. Adv Renal Replace Ther. 1994;1(3):251-263.
4. DeVito Dabbs AJ, Hoffman LA, Iacono AT, Zullo TG, McCurry KR, Dauber JH. Are symptom reports useful for differentiating between acute rejection and pulmonary infection after lung transplantation? Heart Lung. 2004;33(6):372-380.
5. Teichman BJ, Burker EJ, Weiner M, Egan TM. Factors associated with adherence to treatment regimens after lung transplantation. Prog Transplant. 2000;10(2):113-121.
6. Myaskovsky L, Dew MA, McNulty ML, et al. Trajectories of change in quality of life in 12 month survivors of lung or heart transplant. Am J Transplant. 2006;6(8):1939-1947.
7. Dew MA, Switzer GE, Goycoolea JM, et al. Does transplantation produce quality of life benefits? A quantitative analysis of the literature. Transplantation. 1997;64(9):1261-1273.
8. Gross CR, Savik K, Bolman RM, Hertz MI. Long term health status and quality of life outcomes of lung transplant recipients. Chest. 1995;108(6):1587-1593.
9. Kugler C, Geyer S, Gottlieb J, Simon A, Haverich A, Dracup K. Symptom experience after solid organ transplantation. J Psychosom Res. 2009;66(2):101-110.
10. Vermeulen KM, Ouwens JP, Van der Bij W, de Boer WJ, Koeter GH, TenVergert EM. Long-Term quality of life in patients surviving at least 55 months after lung transplantation. Gen Hosp Psychiatr. 2003;25(2):95-102.
11. Vermeulen KM, Groen H, van der Bij W, Erasmus ME, Koeter GH, TenVergert EM. The effect of bronchiolitis obliterans syndrome on health related quality of life. Clin Transplant. 2004;18(4):377-383.
12. Schulz R, Beach SR. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA. 1999;282(23):2215-2219.
13. Son J, Erno A, Dennis G, et al. The Caregiver Stress Process and Health Outcomes. J Aging Health. 2007;19(6):871-887.
14. Vitaliano PP, Zhang J, Scanlan JM. Is caregiving hazardous to one's physical health? A meta-analysis. Psychol Bull. 2003; 129(6):946-972.
15. Zhang J, Vitaliano PP, Lin HH. Relations of caregiving stress and health depend on the health indicators used and gender. Int J Behav Med. 2006;13(2):173-181.
16. Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist. 1990;30(5):583-594.
17. Zarit SH, Davey A, Edwards AB, Femia EE, Jarrott SE. Family caregiving: research findings and clinical implications. In: Edelstein B, ed. Clinical Geropsychology. Oxford, England: Elsevier; 1996:499-523.
18. Aneshensel CS, Pearlin LL, Mullan JT, Zarit SH, Whitlatch CJ. Profiles in Caregiving: The Unexpected Career. San Diego, CA: Academic Press; 1995.
19. Shaw WS, Patterson TL, Semple SJ, et al. Longitudinal analysis of multiple indicators of health decline among spousal caregivers. Ann Behav Med. 1997;19(2):101-109.
20. Dew MA, Manzetti JD, Goycoolea JR, et al. Psychosocial aspects of transplantation. In: Smith SL, Ohler L, eds. Organ Transplantation: Concepts, Issues, Practice and Outcomes. New York, NY: MedicaLogic/Medscape; 2002.
21. Kahneman D, Krueger AB, Schkade DA, Schwarz N, Stone AA. A survey method for characterizing daily life experiences: The Day Reconstruction Method. Science. 2004;306(5702): 1776-1780.
22. Ware JE, Kosinski M, Keller SD. SF-36 Physical and Mental Summary Scales: A User's Manual. Boston, MA: The Health Institute; 1994.
23. Ware JE, Sherbourne CD. THE MOS 36-item Short-Form Health Survey (SF-36): I. Conceptual Framework and Item Selection. Med Care. 1992;30(6):473-483.
24. DeVito Dabbs AJ, Dew MA, Myers B, et al. Evaluation of a hand-held, computer-based intervention to promote early selfcare behaviors after lung transplant. Clin Transplant. 2009; 23(4):537-545.
25. Karnofsky DA, Abelmann WH, Craver LF, Burchenal JH. The use of the nitrogen mustards in the palliative treatment of cancer. With particular reference to bronchogenic carcinoma. Cancer. 1948;1(4):634-656.
26. Karnofsky DA, Burchenal JH: The clinical evaluation of chemotherapeutic agents in cancer. In: MacLeod CM, ed. Evaluation of Chemotherapeutic Agents. New York, NY: Columbia University Press; 1949:191-205.
27. Buccheri G, Ferrigno D, Tamburini M. Karnofsky and ECOG performance status scoring in lung cancer: a prospective, longitudinal study of 536 patients from a single institution. Eur J Cancer. 1996;32A(7):1135-1141.
28. Mor V, Laliberte L, Morris JN, Wiemann M. The Karnofsky Performance Status Scale: an examination of its reliability and validity in a research setting. Cancer. 1984;53(9):2002-2007.
29. Schag CC, Heinrich RL, Ganz PA. Karnofsky Performance Status revisited: reliability, validity, and guidelines. J Clin Oncol. 1984;2(3):187-193.
30. Derogatis L. SCL-90-R: Symptom Checklist 90-Revised: Administration, Scoring, and Procedures Manual. Towson, MD: Clinical Psychometrics Research; 1994.
31. DeVito Dabbs AJ, Hoffman L, Dauber J, Zullo T, Iacono A. Evaluating the reliability and validity of the Questionnaire for Lung Transplant Patients. Prog Transplant. 2002;12(3):191-200.
32. DeVito Dabbs AJ, Kim Y, Vensak J, Studer S, Iacono A. Validation and refinement of the questionnaire for lung transplant patients. Prog Transplant. 2004;14(4):338-345.
33. DeVito Dabbs AJ, Johnson B, Wardzinski WT, Iacono A, Studer S. Development and evaluation of the electronic version of the Questionnaire for Lung Transplant Patients (e-QLTP). Prog Transplant. 2007;17(1):29-35.
34. Hsieh H, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277-1288.
35. DeVito Dabbs AJ, Hoffman LA, Swigart V, et al. Striving for normalcy: symptoms and the threat of rejection after lung transplantation. Soc Sci Med. 2004;59(7):1473-1484.
36. Lefaiver CA, Keough VA, Letizia M, Lanuza DM. Quality of life in caregivers providing care for lung transplant candidates. Prog Transplant. 2009;19(2):142-152.
37. Ullrich G, Jansch H, Schmidt S, Struber M, Niedermeyer J. The experience of the support person involved in a lung transplant programme: results of a pilot study. Eur J Med Res. 2004;9(12):555-652.
38. Kurz JM. Experiences of well spouses after lung transplantation. J Adv Nurs. 2001;34(4):493-500.