Quality of life in pediatric heart transplant recipients: A comparison with children with and without heart disease

Journal of Heart and Lung Transplantation

Volumn 31, Issue 6, 2012, Pages 571-578

  Uzark, Karen ^a   Griffin, Lisa ^b   Rodriguez, Rose ^c   Zamberlan, Meg ^d   Murphy, Paula ^e   Nasman, Colleen ^f   Dupuis, Joanne ^g   Rodgers, Sherrie ^h   Limbers, Christine A ⁱ   Varni, James W ^j  

^a CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER   (United States)

^b LOMA LINDA UNIVERSITY   (United States)

^c Department of Medicine   (United States)

^d UNIVERSITY OF MICHIGAN HEALTH SYSTEM   (United States)

^e ST LOUIS CHILDREN S HOSPITAL   (United States)

^f LERNER RESEARCH INSTITUTE   (United States)

^g CHILDREN'S HOSPITAL OF MICHIGAN   (United States)

^h CHILDREN'S MEMORIAL HOSPITAL   (United States)

ⁱ BAYLOR UNIVERSITY   (United States)

^j TEXAS A AND M UNIVERSITY   (United States)

more..

Author keywords

children; congenital heart disease; pediatric heart transplant; psychosocial impact; quality of life; transplant outcomes

Indexed keywords

ARTICLE; CHILD; COMPARATIVE STUDY; CONTROLLED STUDY; DISEASE SEVERITY; EMOTION; FEMALE; GRAFT RECIPIENT; HEART DISEASE; HEART TRANSPLANTATION; HUMAN; MAJOR CLINICAL STUDY; MALE; OUTCOMES RESEARCH; PARENT; PEDIATRIC SURGERY; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SCHOOL; SCORING SYSTEM; SELF REPORT; SOCIAL INTERACTION;

ADOLESCENT; CARDIAC SURGICAL PROCEDURES; CASE-CONTROL STUDIES; CHILD; FEMALE; FOLLOW-UP STUDIES; HEART DISEASES; HEART TRANSPLANTATION; HUMANS; MALE; OUTCOME ASSESSMENT (HEALTH CARE); PARENTS; PROXY; PSYCHOLOGY; QUALITY OF LIFE; RISK FACTORS; SELF REPORT; SEVERITY OF ILLNESS INDEX; TRANSPLANTATION;

EID: 84861187368     PISSN: 10532498     EISSN: 15573117     Source Type: Journal    
DOI: 10.1016/j.healun.2012.01.867     Document Type: Article

References (26)

1. R. Kirk, L.B. Edwards, P. Aurora Registry of the International Society for Heart and Lung Transplantation: thirteenth official pediatric heart transplantation report-2010 DK J Heart Lung Transplant 29 2010 1119 1128
2. J. Wray, R. Radley-Smith Longitudinal assessment of psychological functioning in children after heart or heart-lung transplantation J Heart Lung Transplant 25 2006 345 352
3. E. Serrano-Ikkos, B. Lask, B. Whitehead, P. Rees, P. Graham Heart or heart-lung transplantation: psychosocial outcome Pediatr Transplant 3 1999 301 308
4. D.R. DeMaso, S. Douglas Kelley, H. Bastardi, P. O'Brien, E.D. Blume The longitudinal impact of psychological functioning, medical severity, and family functioning in pediatric heart transplantation J Heart Lung Transplant 23 2004 473 480
5. D.R. DeMaso, A.W. Twente, E.G. Spratt, P. O'Brien Impact of psychologic functioning, medical severity, and family functioning in pediatric heart transplantation J Heart Lung Transplant 14 1995 1102 1108
6. J. Wray, T. Long, R. Radley-Smith, M. Yacoub Returning to school after heart or heart-lung transplantation: how well do children adjust? Transplantation 72 2001 100 106
7. K. Uzark, K. Jones, J. Slusher, C. Limbers, T.M. Burwinkle, J.W. Varni Quality of life in children with heart disease as perceived by children and parents Pediatrics 121 2008 e1060 e1067
8. J.W. Varni, M. Seid, P.S. Kurtin PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 Generic Core Scales in healthy and patient populations Med Care 39 2001 800 812
9. J.W. Varni, T.M. Burwinkle, M. Seid, D. Skarr The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity Ambul Pediatr 3 2003 329 341
10. J.W. Varni, M. Seid, C.A. Rode The PedsQL: measurement model for the Pediatric Quality of Life Inventory Med Care 37 1999 126 139
11. K. Uzark, K. Jones, T.M. Burwinkle, J.W. Varni The Pediatric Quality of Life Inventory in Children with Heart Disease Prog Pediatr Cardiol 18/2 2003 243 250
12. J.F. Todaro, E.B. Fennell, S.F. Sears, J.R. Rodrigue, A.K. Roche Review: cognitive and psychological outcomes in pediatric heart transplantation J Ped Psych 25 2000 567 576
13. J.C. Bucuvalas, M. Britto, S. Krug Health-related quality of life in pediatric liver transplant reicpients: a single-center study Liver Transpl 9 2003 62 71
14. A. Green, J. McSweeney, K. Ainley, J. Bryant In my shoes: children's quality of life after transplantation Prog Transpl 17 2007 199 208
15. A. Green, J. Meaux, A. Huett, K. Ainley "It has its ups and downs": adolescents' quality of life after heart transplantation Prog Transplant 21 2011 115 120
16. K.C. Uzark, S. Sauer, K. Lawrence, J. Miller, L. Addonizio, D.C. Crowley The psychosocial impact of pediatric heart transplantation J Heart Lung Transplant 11 1992 1160 1167
17. C. Brosig, M. Hintermeyer, J. Zlotocha, D. Behrens, J. Mao An exploratory study of the cognitive, academic, and behavioral functioning of pediatric cardiothoracic transplant recipients Prog Transplant 16 2006 38 45
18. J. Wray, R. Radley-Smith Depression in pediatric patients before and 1 year after heart or heart-lung transplantation J Heart Lung Transplant 23 2004 1103 1110
19. L.L. Mintzer, M.L. Stuber, D. Seacord, M. Castaneda, V. Mesrkhani, D. Glover Traumatic stress symptoms in adolescent organ transplant recipients Pediatrics 115 2005 1640 1644
20. L.M. Farley, D.R. DeMaso, E.D. D'Angelo Parenting stress and parental post-traumatic stress disorder in families after pediatric heart transplantation J Heart Lung Transplant 26 2007 120 126
21. K. Uzark, D. Beebe, R. Spicer Neurodevelopmental outcomes in pediatric heart transplant recipients J Heart Lung Transplant 28 2009 1306 1311
22. J. Wray, R. Radley-Smith Developmental and behavioral status of infants and young children awaiting heart or heart-lung transplantation Pediatrics 113 2004 488 495
23. J. Wray, C. Pot-Mees, Radley-Smith, H. Zeitlin, M. Yacoub Cognitive function and behavioural status in paediatric heart and heart lung transplant recipients: the Harefield experience BMJ 309 1994 837 841
24. A.B. Hirshfeld, A.L. Kahle, B.J. Clark 3rd, N.D. Bridges Parent-reported health status after pediatric thoracic organ transplant J Heart Lung Transplant 23 2004 1111 1118
25. P.A. Nixon, K.A. Morris Quality of life in pediatric heart, heart-lung, and lung transplant recipients Int J Sports Med 21 Suppl 2 2000 S109 S112
26. J. Wray, R. Radley-Smith Prospective evaluation of pediatric heart and heart-lung recipients J Pediatr Psychol 32 2007 217 222