Needs, experiences, and preferences of sexual minorities for end-of-life care and palliative care: A systematic review

Journal of Palliative Medicine

Volumn 15, Issue 5, 2012, Pages 602-611

  Harding, Richard ^a   Epiphaniou, Eleni ^a   Chidgey Clark, Jayne ^b  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b GUY'S AND ST THOMAS' NHS FOUNDATION TRUST   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

BISEXUALITY; HETEROSEXUALITY; HUMAN; LESBIAN; MALE HOMOSEXUAL; MEDLINE; PALLIATIVE THERAPY; PATIENT DECISION MAKING; REVIEW; SEXUAL MINORITY; SYSTEMATIC REVIEW; TERMINAL CARE; TRANSSEXUALISM;

ADULT; AGED; FEMALE; HOMOSEXUALITY; HUMANS; MALE; MIDDLE AGED; MINORITY GROUPS; PALLIATIVE CARE; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT PREFERENCE; TERMINAL CARE;

EID: 84861025841     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2011.0279     Document Type: Review

References (58)

1. Koffman J, Camps M: No way in: Including disadvantaged population and patient groups at the end of life. In: Sheila Payne JSCI (ed). Palliative Care Nursing: Principles and Evidence for Practice, 2nd ed. Berkshire, UK: Open University Press, 2008. 362-382
2. Stall RD, Greenwood GL, Acree M, Paul J, Coates TJ: Cigarette smoking among gay and bisexual men. Am J Public Health 1999;89(12):1875-1878
3. Heffernan K: The nature and predictors of substance use among lesbians. Addict Behav 1998;23(4):517-528
4. Gruskin EP, Hart S, Gordon N, Ackerson L: Patterns of cigarette smoking and alcohol use among lesbians and bisexual women enrolled in a large health maintenance organization. Am J Public Health 2001;91(6):976-979
5. Ryan H, Wortley PM, Easton A, Pederson L, Greenwood G: Smoking among lesbians, gays, and bisexuals: A review of the literature. Am J Prev Med 2001;21(2):142-149
6. Burgard SA, Cochran SD, Mays VM: Alcohol and tobacco use patterns among heterosexually and homosexually experienced California women. Drug Alcohol Depend 2005; 77(1):61-70
7. Valanis BG, Bowen DJ, Bassford T, Whitlock E, Charney P, Carter RA: Sexual orientation and health: Comparisons in the women's health initiative sample. Arch Fam Med 2000;9(9):843-853
8. Ryan CM, Huggins J, Beatty R: Substance use disorders and the risk of HIV infection in gay men. J Stud Alcohol 1999;60(1):70-77
9. Tang H, Greenwood GL, Cowling DW, Lloyd JC, Roeseler AG, Bal DG: Cigarette smoking among lesbians, gays, and bisexuals: How serious a problem? (United States). Cancer Causes & Control 2004;15(8):797-803
10. McCabe SE, Hughes TL, Bostwick WB, West BT, Boyd CJ: Sexual orientation, substance use behaviors and substance dependence in the United States. Addiction 2009;104(8): 1333-1345
11. O'Hanlan KA: Health policy considerations for our sexual minority patients. Obstetrics & Gynecology 2006;107(3):709-714
12. Mayer KH, Bradford JB, Makadon HJ, Stall R, Goldhammer H, Landers S: Sexual and gender minority health: What we know and what needs to be done. Am J Public Health 2008;98(6):989-995
13. Evans A, Hughes C: Health needs of women who have sex with women. BMJ 2003;327(7421): 939-940
14. Dibble SL, Roberts SA, Nussey B: Comparing breast cancer risk between lesbians and their heterosexual sisters. Women's Health Issues 2004;14(2):60-68
15. Brown JP, Tracy JK: Lesbians and cancer: An overlooked health disparity. Cancer Causes & Control 2008;(10):1009-1020
16. Anderson JS, Vajdic C, Grulich AE: Is screening for anal cancer warranted in homosexual men? Sexual Health 2004;1(3):137-140
17. Palefsky JM, Shiboski S, Moss A: Risk factors for anal human papillomavirus infection and anal cytologic abnormalities in HIV-positive and HIV-negative homosexual men. J Acquired Immune Deficiency Syndromes 1994;7(6):599-606
18. Palefsky JM, Holly EA, Ralston ML, Jay N: Prevalence and risk factors for human papillomavirus infection of the anal canal in human immunodeficiency virus (HIV)-positive and HIVnegative homosexual men. J Infect Dis 1998;177(2):361-367
19. D'Souza G, Wiley DJ, Li X, Chmiel JS, Margolick JB, Cranston RD, Jacobson LP. Incidence and epidemiology of anal cancer in the multicenter AIDS cohort study. J Acquir Immune Defic Syndr 2008;48(4):491-499
20. van der Snoek EM, Niesters HG, Mulder PG, van Doornum GJ, Osterhaus AD, van der Meijden WI: Human papillomavirus infection in men who have sex with men participating in a Dutch gay-cohort study. Sex Transm Dis 2003;30(8):639-644
21. Katz MH, Hessol NA, Buchbinder SP, Hirozawa A, O'Malley P, Holmberg SD: Temporal trends of opportunistic infections and malignancies in homosexual men with AIDS. J Infect Dis 1994; 170(1):198-202
22. Biggar RJ, Rosenberg PS, Cote T: Kaposi's sarcoma and non-Hodgkin's lymphoma following the diagnosis of AIDS. Multistate AIDS/Cancer Match Study Group.[Erratum appears in Int J Cancer 1997 Mar 17;70(6):727]
23. Int J Cancer 1996; 68(6):754-758
24. Jacobson LP, Armenian HK: An integrated approach to the epidemiology of Kaposi's sarcoma. Current Opinion in Oncology 1995; 7(5):450-455
25. Clements-Nolle K, Marx R, Guzman R, Katz M: HIV prevalence, risk behaviors, health care use, and mental health status of transgender persons: Implications for public health intervention. Am J Public Health:915-921
26. Feldman JL, Goldberg JM: Transgender primary medical care. Int J Transgenderism 2007;(3-4):3-34
27. Johnson MJ, Jackson NC, Arnette JK, Koffman SD: Gay and lesbian perceptions of discrimination in retirement care facilities. J Homosex 2005; 49(2):83-102
28. Stein GL, Beckerman NL, Sherman PA: Lesbian and gay elders and long-Term care: Identifying the unique psychosocial perspectives and challenges. J Gerontol Soc Work 2010; 53(5):421-435
29. Clark ME, Landers S, Linde R, Sperber J: The GLBT Health Access Project: A state-funded effort to improve access to care. Am J Public Health 2001; 91(6):895-896
30. Albarran JW, Salmon D: Lesbian, gay and bisexual experiences within critical care nursing, 1988-1998: A survey of the literature. Int J Nurs Stud 2000; 37(5):445-455
31. Stein GL, Bonuck KA: Physician-patient relationships among the lesbian and gay community. J Gay Lesbian Med Assoc 2001; 5(3):87-93
32. Cohen HL, Curry LC, Jenkins D, Walker CA, Hogstel MO: Older lesbians and gay men: Long-Term care issues. Annals Long Term Care 2008; 16(2):33-38
33. Brotman S, Ryan B, Cormier R: The health and social service needs of gay and lesbian elders and their families in Canada. Gerontologist 2003; 43(2):192-202
34. Neville S, Henrickson M: Perceptions of lesbian, gay and bisexual people of primary healthcare services. J Advanced Nurs 2006;55(4):407-415
35. Sanchez NF, Sanchez JP, Danoff A: Health care utilization, barriers to care, and hormone usage among male-To-female transgender persons in New York City. Am J Public Health 2009; 99(4):713-719
36. Williamson C: Providing care to transgender persons: A clinical approach to primary care, hormones, and HIV management. J Assoc Nurs AIDS Care 2010;21(3):221-229
37. Vermette L, Godin G: Nurses' intentions to provide home care: The impact of AIDS and homosexuality. AIDS Care 1996;8(4):479-488
38. Rondahl G, Innala S, Carlsson M: Nursing staff and nursing students' attitudes towards HIV-infected and homosexual HIV-infected patients in Sweden and the wish to refrain from nursing. J Advance Nurs 2003;41:454-461
39. Moss V: Caring for persons with AIDS: Initiatives. The Mildmay approach. J Palliat Care 1988;4(4):102-106
40. Buffie WC: Public health implications of same-sex marriage. Am J Public Health 2011;101(6):986-990
41. Institue of Medicine: The Health of Lesbian, Gay, Bisexual, and Transgender People Building a Foundation for Better Understanding. Washington, DC:National Academy of Science, 2011
42. Obedin-Maliver J, Goldsmith ES, Stewart L, White W, Tran E, Brenman S, Wells M, Fetterman DM, Garcia G, Lunn MR. Lesbian, gay, bisexual, and transgender-related content in undergraduate medical education. JAMA 2011;306(9):971-977
43. PRISMA Transparent Reporting of Systematic Reviews and Meta-Analysis. 2011. http://www.prisma-statement.org. (Last accessed January 10, 2011
44. Price E: Coming out to care: Gay and lesbian carers experiences of dementia services. Health & Social Care in the Community 2010;(2):160-168
45. Boehmer U, Case P: Physicians don't ask, sometimes patients tell: Disclosure of sexual orientation among women with breast carcinoma. Cancer 2004; 101(8):1882-1889
46. Katz M: Gay and lesbian patients with cancer. Oncology Nurs Forum 2009;36(2):203-207
47. Hash KM, Netting FE: Long-Term planning and decision making among midlife and older gay men and lesbians. J Social Work in End-of-Life & Palliative Care 2007;3(2):59-77
48. Varner A: Spirituality and religion among lesbian women diagnosed with cancer: A qualitative study. J Psychosocial Oncology 2004;22(1):75-89
49. Matthews AK: Lesbians and cancer support: Clinical issues for cancer patients. Health Care Women Int 1998;19(3):193-203
50. Teno J, Fleishman J, Brock DW, Mor V: The use of formal prior directives among patients with HIV-related diseases. J Gen Intern Med 1990;5(6):490-494
51. Stein GL, Bonuck KA: Attitudes on end-of-life care and advance care planning in the lesbian and gay community. J Palliat Med 2001;4(2):173-190
52. Fobair P, O'Hanlan K, Koopman C, Classen C, Dimiceli S, Drooker N, Warner D, Davids H, Loulan J, Wallsten D, Goffinet D, Morrow G, Spiegel D. Comparison of lesbian and heterosexual women's response to newly diagnosed breast cancer. Psychooncology 2001;(1):40-51
53. Boehmer U, Linde R, Freund KM: Sexual minority women's coping and psychological adjustment after a diagnosis of breast cancer. J Women's Health 2005;(3):214-224
54. Curtis JR, Patrick DL, Caldwell E, Greenlee H, Collier AC: The quality of patient-doctor communication about end-oflife care: A study of patients with advanced AIDS and their primary care clinicians. AIDS 1999;13(9):1123-1131
55. Matthews AK, Peterman AH, Delaney P, Menard L, Brandenburg D: A qualitative exploration of the experiences of lesbian and heterosexual patients with breast cancer. Oncol Nurs Forum 2002;29(10):1455-1462
56. King M, McKeown E, Warner J, Ramsay A, Johnson K, Cort C, Wright L, Blizard R, Davidson O. Mental health and quality of life of gay men and lesbians in England and Wales: Controlled, cross-sectional study. Br J Psychiatry 2003;183:552-558
57. Warner J, McKeown E, Griffin M, Johnson K, Ramsay A, Cort C, King M. Rates and predictors of mental illness in gay men, lesbians and bisexual men and women: Results from a survey based in England and Wales. Br J Psychiatry 2004; 185:479-485
58. World Health Organization: Guidelines: Prevention and treatment of HIV and other sexually transmitted infections among men who have sex with men and transgender people: Recommendations for a public health approach 2011. Geneva: WHO, 2011.