What lies behind the wish to hasten death? a systematic review and meta-ethnography from the perspective of patients

PLoS ONE

Volumn 7, Issue 5, 2012, Pages

  Monforte Royo, Cristina ^a   Villavicencio Chávez, Christian ^a,b   Tomás Sábado, Joaquin ^c   Mahtani Chugani, Vinita ^d,e   Balaguer, Albert ^a  

^a UNIVERSITAT INTERNACIONAL DE CATALUNYA   (Spain)

^b CATALAN INSTITUTE OF ONCOLOGY   (Spain)

^c UNIVERSITAT AUTÒNOMA DE BARCELONA   (Spain)

^d HOSPITAL UNIVERSITARIO NUESTRA SEÑORA DE CANDELARIA   (Spain)

^e INSTITUTO DE SALUD CARLOS III   (Spain)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CONSULTATION; DYING; EMOTIONAL STRESS; ETHNOGRAPHY; FEAR; HOPELESSNESS; HUMAN; PSYCHOLOGICAL ASPECT; PUBLIC HEALTH PROBLEM; QUALITATIVE ANALYSIS; SPIRITUAL CARE; SYSTEMATIC REVIEW; TERMINAL CARE; WISH TO HASTEN DEATH; ATTITUDE TO DEATH; CULTURAL ANTHROPOLOGY; ETHNOLOGY; FACTUAL DATABASE; MENTAL STRESS; META ANALYSIS; PSYCHOLOGICAL MODEL; REVIEW; TERMINALLY ILL PATIENT;

ANTHROPOLOGY, CULTURAL; ATTITUDE TO DEATH; DATABASES, FACTUAL; FEAR; HUMANS; MODELS, PSYCHOLOGICAL; STRESS, PSYCHOLOGICAL; TERMINALLY ILL;

EID: 84861002282     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0037117     Document Type: Article

References (87)

1. Arnold EM, (2004) Factors that influence consideration of hastening death among people with life-threatening illnesses. Health & Social Work 29: 17-26.
2. Grzybowska P, Finlay I, (1997) The incidence of suicide in palliative care patients. Palliative Medicine 11: 313-316.
3. Hudson PL, Kristjanson LJ, Ashby M, Kelly B, Schofield P, et al. (2006) Desire for hastened death in patients with advanced disease and the evidence base of clinical guidelines: a systematic review. Palliative Medicine 20: 693-701.
4. Lynn J, (2000) Learning to care for people with chronic illness facing the end of life. The Journal of the American Medical Association 284: 2508-2511.
5. Carmel S, (2001) The will to live: gender differences among elderly persons. Social Science & Medicine 52: 949-958.
6. Doyal L, (2001) Why active euthanasia and physician assisted suicide should be legalised. British Medical Journal 323: 1079-1080.
7. Misono S, Weiss NS, Fann JR, Redman M, Yueh B, (2008) Incidence of suicide in persons with cancer. Journal of Clinical Oncology 26: 4731-4738.
8. Monforte-Royo C, Villavicencio-Chávez C, Tomás-Sábado J, Balaguer A, (2011) The wish to hasten death: A review of clinical studies. Psycho-Oncology 20: 795-804.
9. Albert SM, Rabkin JG, Del Bene ML, Tider T, O'Sullivan I, et al. (2005) Wish to die in end-stage ALS. Neurology 65: 68-74.
10. Seale C, Addington-Hall J, (1994) Euthanasia: Why people want to die earlier. Social Science & Medicine 39: 647-654.
11. Chochinov HM, Wilson KG, Enns M, Mowchun N, (1995) Desire for death in the terminally ill. The American Journal of Psychiatry 152: 1185.
12. Morita T, Sakaguchi Y, Hirai K, Tsuneto S, Shima Y, (2004) Desire for death and request to hasten death of Japanese terminally ill cancer patients receiving specialized inpatient palliative care. Journal of Pain and Symptom Management 27: 44-52.
13. Kelly B, Burnett P, Pelusi D, Badger S, Varghese F, et al. (2002) Terminally ill cancer patients' wish to hasten death. Palliative Medicine 16: 339-345.
14. Coyle N, Sculco L, (2004) Expressed desire for hastened death in seven patients living with advanced cancer: a phenomenologic inquiry. Oncology Nursing Forum 31: 699-709.
15. Tiernan E, Casey P, O'Boyle C, Birkbeck G, Mangan M, et al. (2002) Relations between desire for early death, depressive symptoms and antidepressant prescribing in terminally ill patients with cancer. Journal of The Royal Society of Medicine 95: 386-390.
16. Cohen LM, Steinberg MD, Hails KC, Dobscha SK, Fischel SV, (2000) Psychiatric evaluation of death-hastening requests. Lessons from dialysis discontinuation. Psychosomatics 41: 195-203.
17. Muskin PR, (1998) The request to die: role for a psychodynamic perspective on physician-assisted suicide. The Journal of the American Medical Association 279: 323-328.
18. Block SD, Billings JA, (1995) Patient requests for euthanasia and assisted suicide in terminal illness. The role of the psychiatrist. Psychosomatics 36: 445-457.
19. Rietjens JA, van der Heide A, Onwuteaka-Philipsen BD, van der Maas PJ, van der Wal G, (2006) Preferences of the Dutch general public for a good death and associations with attitudes towards end-of-life decision-making. Palliative Medicine 20: 685-692.
20. Breitbart W, Rosenfeld B, Pessin H, Kaim M, Funest-Esch J, et al. (2000) Depresssion, hopelessness, and desire for hastened death in terminally ill patients with cancer. The Journal of the American Medical Association 284: 2907-2911.
21. Rosenfeld B, Breitbart W, Gibson C, Kramer M, Tomarken A, et al. (2006) Desire for hastened death among patients with advanced AIDS. Psychosomatics 47: 504-512.
22. Rosenfeld B, (2000) Methodological issues in assisted suicide and euthanasia research. Psychology, Public Policy, and Law 6: 559-574.
23. Brown JH, Henteleff P, Barakat S, Rowe CJ, (1986) Is it normal for terminally ill patients to desire death? The American Journal of Psychiatry 143: 208-211.
24. Onwuteaka-Philipsen BD, van der Heide A, Koper D, Keij-Deerenberg I, Rietjens JA, et al. (2003) Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001. Lancet 362: 395-399.
25. Rodin G, Zimmermann C, Rydall A, Jones J, Shepherd FA, et al. (2007) The desire for hastened death in patients with metastatic cancer. Journal of Pain and Symptom Management 33: 661-675.
26. Kelly B, Burnett P, Pelusi D, Badger S, Varghese F, et al. (2003) Factors associated with the wish to hasten death: a study of patients with terminal illness. Psychological Medicine 33: 75-81.
27. Rosenfeld B, Breitbart W, Galietta M, Kaim M, Funesti-Esch J, et al. (2000) The Schedule of attitudes toward hastened death. Measuring desire for death in terminally ill cancer patients. Cancer 88: 2868-2875.
28. Kelly B, Pelusi D, Burnett P, Varghese F, (2004) The prevalence of psychiatric disorder and the wish to hasten death among terminally ill cancer patients. Palliative & Supportive Care 2: 163-169.
29. Kinsella TD, Verhoef MJ, (1995) Assisted suicide: opinions of Alberta physicians. Clinical and Investigative Medicine 18: 406-412.
30. Chochinov HM, Wilson KG, Enns M, Lander S, (1998) Depression, Hopelessness, and suicidal ideation in the terminally ill. Psychosomatics 39: 366-370.
31. Kissane DW, Street A, Nitschke P, (1998) Seven deaths in Darwin: case studies under the Rights of the Terminally Ill Act, Northern Territory, Australia. Lancet 352: 1097-1102.
32. Abbey JG, Rosenfeld B, Pessin H, Breitbart W, (2006) Hopelessness at the end of life: the utility of the hopelessness scale with terminally ill cancer patients. British Journal of Health Psychology 11: 173-183.
33. Breitbart W, (2003) Reframing hope: meaning-centered care for patients near the end of life. Interview by Karen S. Heller. Journal of Palliative Medicine 6: 979-988.
34. Ganzini L, Silveira MJ, Johnston WS, (2002) Predictors and correlates of interest in assisted suicide in the final month of life among ALS patients in Oregon and Washington. Journal of Pain and Symptom Management 24: 312-317.
35. Willems DL, Daniels ER, van der Wal G, van der Maas PJ, Emanuel EJ, (2000) Attitudes and practices concerning the end of life: a comparison between physicians from the United States and from The Netherlands. Archives of Internal Medicine 160: 63-68.
36. Pessin H, Rosenfeld B, Burton L, Breitbart W, (2003) The role of cognitive impairment in desire for hastened death: a study of patients with advanced AIDS. General Hospital Psychiatry 25: 194-199.
37. Kissane DW, Kelly B, (2000) Demoralization, depression and desire for death: problems with the Dutch guidelines for euthanasia of the mentally ill. The Australian and New Zealand Journal of Phychiatry 34: 325-333.
38. Gourie-Devi M, (2007) Wish to die in end-stage ALS. Neurology 68: 79.
39. Monforte-Royo C, Tomás-Sábado J, Villavicencio-Chávez C, Balaguer A, (2011) Psychometric properties of the Spanish form of the Schedule for Meaning in Life Evaluation (SMiLE). Quality of Life Research 20: 759-762.
40. Giorgi Rossi P, Beccaro M, Miccinesi G, Borgia P, Costantini M, et al. (2007) Dying of cancer in Italy: impact on family and caregiver. The Italian Survey of Dying of Cancer. Journal of Epidemiology & Community Health 61: 547-554.
41. Morita T, Tsunoda J, Inoue S, Chihara S, (2000) An exploratory factor analysis of existential suffering in Japanese terminally ill cancer patients. Phycho-oncology 9: 164-168.
42. Ganzini L, Goy ER, Miller LL, Harvath TA, Jackson A, et al. (2003) Nurses' experiences with hospice patients who refuse food and fluids to hasten death. The New England Journal of Medicine 349: 359-365.
43. Morse JM, Field PA, (1995) Qualitative research methods for health professionals: Thousand Oaks, CA: Sage.
44. Editors TPM, (2007) Qualitative research: Understanding patients' needs and experiences. PLoS Medicine 4: e258.
45. Lavery JV, Boyle J, Dickens BM, Maclean H, Singer PA, (2001) Origins of the desire for euthanasia and assisted suicide in people with HIV-1 or AIDS: a qualitative study. Lancet 358: 362-367.
46. Mak YY, Elwyn G, (2005) Voices of the terminally ill: uncovering the meaning of desire for euthanasia. Palliative Medicine 19: 343-350.
47. Mahtani Chugani V, Axpe Caballero M, Serrano Aguilar P, González Castro I, Fernández Vega E, (2006) Metodología para incorporar los estudios cualitativos en la evaluación de tecnologías sanitarias. Madrid Plan Nacional para el SNS del MSC. Servicio de Evaluación del Servicio Canario de la Salud.
48. Thorne S, Jensen L, Kearney MH, Noblit G, Sandelowski M, (2004) Qualitative metasynthesis: reflections on methodological orientation and ideological agenda. Qualitative Health Research 14: 1342-1365.
49. Noblit G, Hare R, (1988) Meta-ethnography: Sinthesizing qualitative studies Newbury Park: Sage.
50. Hannes K, (2001) Chapter 4: Critical appraisal of qualitative research. In: Noyes J, Booth A, Hannes K, Harden A, Harris J et al, editors. Supplementary Guidance for Inclusion of Qualitative Research in Cochrane Systematic Reviews of Interventions Cochrane Collaboration Qualitative Methods Group.
51. Schreiber R, Crooks D, Stern P, (1997) Qualitative meta-analysis. In: Morse J, editors. Completing a qualitative project Thousand Oaks, CA Sage pp. 311-326.
52. Nesbit K, (2002) Evidence-based Filters for Ovid Medline. University of Rochester.
53. McKibbon A, Walker-Dilks C, (2002) Evidence-based Filters for Ovid-CINAHL.
54. Lavin MA, Krieger MM, Meyer GA, Spasser MA, Cvitan T, et al. (2005) Development and evaluation of evidence-based nursing (EBN) filters and related databases. Journal of Medical Library Association 93: 104-115.
55. Jones ML, (2004) Application of systematic review methods to qualitative research: practical issues. Journal of Advanced Nursing 48: 271-278.
56. Dixon-Woods M, Shaw RL, Agarwal S, Smith JA, (2004) The problem of appraising qualitative research. Quality & Safety in Health Care 13: 223-225.
57. Mays N, Pope C, (2000) Qualitative research in health care. Assessing quality in qualitative research. British Medical Journal 320: 50-52.
58. Malterud K, (2001) Qualitative research: standards, challenges, and guidelines. Lancet 358: 483-488.
59. Rowan M, Huston P, (1997) Qualitative research articles: information for authors and peer reviewers. CMAJ: Canadian Medical Association Journal 157: 1442-1446.
60. Casp P, (1999) Critical Appraisal Skills Programme. Ten questions to help you make sense of qualitative research. Oxford CASP.
61. Sale JE, Hawker GA, (2005) Critical appraisal of qualitative research in clinical journals challenged. Arthritis and Rheumatism 53: 314-316.
62. Dixon-Woods M, Agarwal S, Jones D, Young B, Sutton A, (2005) Synthesising qualitative and quantitative evidence: a review of possible methods. Journal of Health Service Research & Policy 10: 45-53.
63. Campbell R, Pound P, Pope C, Britten N, Pill R, et al. (2003) Evaluating meta-ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care. Social Science & Medicine 56: 671-684.
64. Munro SA, Lewin SA, Smith HJ, Engel ME, Fretheim A, et al. (2007) Patient adherence to tuberculosis treatment: a systematic review of qualitative research. PLoS Medicine 4: e238.
65. Dixon-Woods M, Sutton A, Shaw R, Miller T, Smith J, et al. (2007) Appraising qualitative research for inclusion in systematic reviews: a quantitative and qualitative comparison of three methods. Journal of Health Service Research & Policy 12: 42-47.
66. Smith LK, Pope C, Botha JL, (2005) Patients' help-seeking experiences and delay in cancer presentation: a qualitative synthesis. Lancet 366: 825-831.
67. Sandelowski M, Barroso J, (2003) Toward a metasynthesis of qualitative findings on motherhood in HIV-positive women. Research in Nursing & Health 26: 153-170.
68. Thomas J, Harden A, (2008) Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol 8: 45.
69. Nissim R, Gagliese L, Rodin G, (2009) The desire for hastened death in individuals with advanced cancer: a longitudinal qualitative study. Soc Sci Med 69: 165-171.
70. Pearlman RA, Hsu C, Starks H, Back AL, Gordon JR, et al. (2005) Motivations for physician-assisted suicide. Journal of General Internal Medicine 20: 234-239.
71. Schroepfer TA, (2006) Mind frames towards dying and factors motivating their adoption by terminally ill elders. The Journals of Gerontology 61: S129-139.
72. Chochinov HM, (2006) Dying, dignity, and new horizons in palliative end-of-life care. CA: A Cancer Journal for Clinicians 56: 84-103.
73. Chochinov HM, Hack T, McClement S, Kristjanson L, Harlos M, (2002) Dignity in the terminally ill: a developing empirical model. Social Science & Medicine (1982) 54: 433-443.
74. Pullman D, (2002) Human dignity and the ethics and aesthetics of pain and suffering. Theor Med Bioeth 23: 75-94.
75. Chochinov HM, (2002) Dignity-conserving care-a new model for palliative care: helping the patient feel valued. Journal of the American Medical Association 287: 2253-2260.
76. Strohbuecker B, Eisenmann Y, Galushko M, Montag T, Voltz R Palliative care needs of chronically ill nursing home residents in Germany: focusing on living, not dying. Int J Palliat Nurs 17: 27-34.
77. Chochinov HM, Hack T, Hassard T, Kristjanson LJ, McClement S, et al. (2005) Understanding the will to live in patients nearing death. Psychosomatics 46: 7-10.
78. Brady MJ, Peterman AH, Fitchett G, Mo M, Cella D, (1999) A case for including spirituality in quality of life measurement in oncology. Psycho-Oncology 8: 417-428.
79. Nelson CJ, Rosenfeld B, Breitbart W, Galietta M, (2002) Spirituality, religion, and depression in the terminally ill. Psychosomatics 43: 213-220.
80. Kissane DW, Clarke DM, Street AF, (2001) Demoralization syndrome-a relevant psychiatric diagnosis for palliative care. Journal of Palliative Care 17: 12-21.
81. Meier DE, Emmons CA, Wallenstein S, Quill T, Morrison RS, et al. (1998) A national survey of physician-assisted suicide and euthanasia in the United States. The New England Journal of Medicine 338: 1193-1201.
82. McClain CS, Rosenfeld B, Breitbart W, (2003) Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients. Lancet 361: 1603-1607.
83. Dierckx de Casterlé B, Verpoort C, De Bal N, Gastmans C, (2006) Nurses' views on their involvement in euthanasia: a qualitative study in Flanders (Belgium). Journal of Medical Ethics 32: 187-192.
84. Kübler-Ross E, eds. (1969) On death and dying. Touchstone.
85. Saunders C, (1965) The last stages of life. The American Journal of Nursing 65: 70-75.
86. Clarke DM, Kissane DW, (2002) Demoralization: its phenomenology and importance. The Australian and New Zealand Journal of Psychiatry 36: 733-742.
87. Sandelowski M, Docherty S, Emden C, (1997) Focus on qualitative methods. Qualitative metasynthesis: issues and techniques. Research in Nursing & Health 20: 365-371.