-
1
-
-
0036046339
-
Health services research for children with disabilities
-
Perrin JM. Health services research for children with disabilities. Milbank Q. 2002; 80(2):303-324
-
(2002)
Milbank Q
, vol.80
, Issue.2
, pp. 303-324
-
-
Perrin, J.M.1
-
2
-
-
0029012015
-
Guidelines for home care of infants, children, and adolescents with chronic disease
-
American Academy of Pediatrics Committee on Children with Disabilities.
-
American Academy of Pediatrics Committee on Children with Disabilities. Guidelines for home care of infants, children, and adolescents with chronic disease. Pediatrics. 1995;96(1 pt 1):161-164
-
(1995)
Pediatrics
, vol.96
, Issue.1 PART 1
, pp. 161-164
-
-
-
3
-
-
0031804649
-
A new definition of children with special health care needs
-
DOI 10.1542/peds.102.1.137
-
McPherson M, Arango P, Fox H, et al. A new definition of children with special health care needs. Pediatrics. 1998;102(1 pt 1): 137-140 (Pubitemid 28309258)
-
(1998)
Pediatrics
, vol.102
, Issue.1 I
, pp. 137-140
-
-
McPherson, M.1
Arango, P.2
Fox, H.3
Lauver, C.4
McManus, M.5
Newacheck, P.W.6
Perrin, J.M.7
Shonkoff, J.P.8
Strickland, B.9
-
4
-
-
71749114230
-
Building systems of care: Findings from the National Survey of Children with Special Health Care Needs
-
Kogan MD, Strickland BB, Newacheck PW. Building systems of care: findings from the National Survey of Children With Special Health Care Needs. Pediatrics. 2009;124 (suppl 4):S333-S336
-
(2009)
Pediatrics
, vol.124
, Issue.SUPPL. 4
-
-
Kogan, M.D.1
Strickland, B.B.2
Newacheck, P.W.3
-
5
-
-
26444606406
-
Technology-dependency among patients discharged from a children's hospital: A retrospective cohort study
-
Feudtner C, Villareale NL, Morray B, Sharp V, Hays RM, Neff JM. Technology-dependency among patients discharged from a children's hospital: a retrospective cohort study. BMC Pediatr. 2005;5 (1):8
-
(2005)
BMC Pediatr
, vol.5
, Issue.1
, pp. 8
-
-
Feudtner, C.1
Villareale, N.L.2
Morray, B.3
Sharp, V.4
Hays, R.M.5
Neff, J.M.6
-
6
-
-
33644688252
-
Care coordination in the medical home: Integrating health and related systems of care for children with special health care needs
-
American Academy of Pediatrics Council on Children with Disabilities
-
American Academy of Pediatrics Council on Children with Disabilities. Care coordination in the medical home: integrating health and related systems of care for children with special health care needs. Pediatrics. 2005; 116(5):1238-1244
-
(2005)
Pediatrics
, vol.116
, Issue.5
, pp. 1238-1244
-
-
-
7
-
-
79960198295
-
-
Available at: Accessed April 18, 2011
-
Healthy People 2020 objectives. Available at: www.healthypeople.gov/ hp2020/Objectives/ ViewObjective.aspx?Id=454&TopicArea= Disability+and+Secondary+Conditions& Objective=DSC+HP2020%e2%80%9310& TopicAreaId=17. Accessed April 18, 2011
-
Healthy People 2020 Objectives
-
-
-
8
-
-
77957707493
-
Children with complex chronic conditions in inpatient hospital settings in the United States
-
Simon TD, Berry J, Feudtner C, et al. Children with complex chronic conditions in inpatient hospital settings in the United States. Pediatrics. 2010;126(4):647-655
-
(2010)
Pediatrics
, vol.126
, Issue.4
, pp. 647-655
-
-
Simon, T.D.1
Berry, J.2
Feudtner, C.3
-
9
-
-
84860564487
-
-
American Academy of Pediatrics 2nd ed. Elk Grove Village, IL: American Academy of Pediatrics
-
American Academy of Pediatrics. Guidelines for Pediatric Home Health Care. 2nd ed. Elk Grove Village, IL: American Academy of Pediatrics; 2009
-
(2009)
Guidelines for Pediatric Home Health Care
-
-
-
10
-
-
80053480446
-
Parent-provider-community partnerships: Optimizing outcomes for children with disabilities
-
Council on Children With Disabilities; American Academy of Pediatrics
-
Murphy NA, Carbone PS; Council on Children With Disabilities; American Academy of Pediatrics. Parent-provider-community partnerships: optimizing outcomes for children with disabilities. Pediatrics. 2011; 128(4):795-802
-
(2011)
Pediatrics
, vol.128
, Issue.4
, pp. 795-802
-
-
Murphy, N.A.1
Carbone, P.S.2
-
11
-
-
33644874998
-
Progress toward a national objective of Healthy People 2010: "Reduce to zero the number of children 17 years and younger living in congregate care"
-
DOI 10.1352/0047-6765(2005)43[456:PTANOO]2.0.CO;2
-
Prouty R, Lakin KC, Coucouvanis K, Anderson L. Progress toward a national objective of healthy people 2010: "reduce to zero the number of children 17 years and younger living in congregate care". Ment Retard. 2005;43(6):456-460 (Pubitemid 43381127)
-
(2005)
Mental Retardation
, vol.43
, Issue.6
, pp. 456-460
-
-
Prouty, R.1
Coucouvanis, K.2
Anderson, L.3
-
12
-
-
49649104016
-
Children with new tracheostomies: Planning for family education and common impediments to discharge
-
Graf JM, Montagnino BA, Hueckel R, McPherson ML. Children with new tracheostomies: planning for family education and common impediments to discharge. Pediatr Pulmonol. 2008;43(8):788-794
-
(2008)
Pediatr Pulmonol
, vol.43
, Issue.8
, pp. 788-794
-
-
Graf, J.M.1
Montagnino, B.A.2
Hueckel, R.3
McPherson, M.L.4
-
13
-
-
35348901944
-
The Future Pediatrician: The Challenge of Chronic Illness
-
DOI 10.1016/j.jpeds.2007.08.013, PII S0022347607007809, The Future of Pediatrics: A Festschrift for M. Douglas Jones, Jr, MD
-
Wise PH. The future pediatrician: the challenge of chronic illness. J Pediatr. 2007;151 (suppl 5):S6-S10 (Pubitemid 47592847)
-
(2007)
Journal of Pediatrics
, vol.151
, Issue.5
-
-
Wise, P.H.1
-
14
-
-
71749118865
-
Care coordination for CSHCN: Associations with family-provider relations and family/child outcomes
-
Turchi RM, Berhane Z, Bethell C, Pomponio A, Antonelli R, Minkovitz CS. Care coordination for CSHCN: associations with family-provider relations and family/child outcomes. Pediatrics. 2009;124(suppl 4): S428-S434
-
(2009)
Pediatrics
, vol.124
, Issue.SUPPL. 4
-
-
Turchi, R.M.1
Berhane, Z.2
Bethell, C.3
Pomponio, A.4
Antonelli, R.5
Minkovitz, C.S.6
-
15
-
-
57049153060
-
Current and future state of the US nursing workforce
-
Buerhaus PI. Current and future state of the US nursing workforce. JAMA. 2008;300 (20):2422-2424
-
(2008)
JAMA
, vol.300
, Issue.20
, pp. 2422-2424
-
-
Buerhaus, P.I.1
-
16
-
-
36049015405
-
Role of the medical home in family-centered early intervention services
-
American Academy of Pediatrics Council on Children With Disabilities
-
Duby JC; American Academy of Pediatrics Council on Children With Disabilities. Role of the medical home in family-centered early intervention services. Pediatrics. 2007;120(5):1153-1158
-
(2007)
Pediatrics
, vol.120
, Issue.5
, pp. 1153-1158
-
-
Duby, J.C.1
-
17
-
-
0033016314
-
The pediatrician's role in development and implementation of an individual education plan (IEP) and/or an individual family service plan
-
American Academy of Pediatrics. Committee on Children with Disabilities
-
American Academy of Pediatrics. Committee on Children with Disabilities. The pediatrician's role in development and implementation of an individual education plan (IEP) and/or an individual family service plan. Pediatrics. 1999;104(1 pt 1): 124-127
-
(1999)
Pediatrics
, vol.104
, Issue.1 PART 1
, pp. 124-127
-
-
-
18
-
-
16644367507
-
Policy versus practice: Comparison of prescribing therapy and durable medical equipment in medical and educational settings
-
Available at
-
Sneed RC, May WL, Stencel C. Policy versus practice: comparison of prescribing therapy and durable medical equipment in medical and educational settings. Pediatrics. 2004;114(5). Available at: www.pediatrics. org/cgi/content/full/114/5/e612
-
(2004)
Pediatrics
, vol.114
, Issue.5
-
-
Sneed, R.C.1
May, W.L.2
Stencel, C.3
-
19
-
-
33748429626
-
Financing of pediatric home health care
-
Committee on Child Health Financing, Section on Home Care, American Academy of Pediatrics
-
Committee on Child Health Financing, Section on Home Care, American Academy of Pediatrics. Financing of pediatric home health care. Pediatrics. 2006;118(2):834-838
-
(2006)
Pediatrics
, vol.118
, Issue.2
, pp. 834-838
-
-
-
20
-
-
34948849374
-
Disability in children and young adults: The unintended consequences
-
DOI 10.1001/archpedi.161.10.930
-
Murphy N, Christian B. Disability in children and young adults: the unintended consequences. Arch Pediatr Adolesc Med. 2007; 161(10):930-932 (Pubitemid 47529408)
-
(2007)
Archives of Pediatrics and Adolescent Medicine
, vol.161
, Issue.10
, pp. 930-932
-
-
Murphy, N.1
Christian, B.2
-
21
-
-
71949101592
-
Supplemental Security Income (SSI) for children and youth with disabilities
-
Council on Children With Disabilities, Academy of Pediatrics
-
Council on Children With Disabilities, Academy of Pediatrics. Supplemental Security Income (SSI) for children and youth with disabilities. Pediatrics. 2009;124(6):1702-1708
-
(2009)
Pediatrics
, vol.124
, Issue.6
, pp. 1702-1708
-
-
-
22
-
-
0033048028
-
Family factors influencing out-of-home placement decisions
-
DOI 10.1046/j.1365-2788.1999.00189.x
-
Llewellyn G, Dunn P, Fante M, Turnbull L, Grace R. Family factors influencing out-ofhome placement decisions. J Intellect Disabil Res. 1999;43(pt 3):219-233 (Pubitemid 29271630)
-
(1999)
Journal of Intellectual Disability Research
, vol.43
, Issue.3
, pp. 219-233
-
-
Llewellyn, G.1
Dunn, P.2
Fante, M.3
Turnbull, L.4
Grace, R.5
-
23
-
-
0033754913
-
Prevalence and severity of feeding and nutritional problems in children with neurological impairment: Oxford Feeding Study
-
Sullivan PB, Lambert B, Rose M, Ford- Adams M, Johnson A, Griffiths P. Prevalence and severity of feeding and nutritional problems in children with neurological impairment: Oxford Feeding Study. Dev Med Child Neurol. 2000;42(10):674-680
-
(2000)
Dev Med Child Neurol
, vol.42
, Issue.10
, pp. 674-680
-
-
Sullivan, P.B.1
Lambert, B.2
Rose, M.3
Ford-Adams, M.4
Johnson, A.5
Griffiths, P.6
-
24
-
-
84855259682
-
Scope of health care benefits for children from birth through age 26
-
Committee On Child Health Financing
-
Committee On Child Health Financing. Scope of health care benefits for children from birth through age 26. Pediatrics. 2012; 129(1):185-189
-
(2012)
Pediatrics
, vol.129
, Issue.1
, pp. 185-189
-
-
-
25
-
-
0037232361
-
Respiratory problems in children with neurological impairment
-
DOI 10.1136/adc.88.1.75
-
Seddon PC, Khan Y. Respiratory problems in children with neurological impairment. Arch Dis Child. 2003;88(1):75-78 (Pubitemid 36098973)
-
(2003)
Archives of Disease in Childhood
, vol.88
, Issue.1
, pp. 75-78
-
-
Seddon, P.C.1
Khan, Y.2
-
26
-
-
84855272630
-
Shared decision-making and health care expenditures among children with special health care needs
-
Fiks AG, Mayne S, Localio AR, Alessandrini EA, Guevara J. Shared decision-making and health care expenditures among children with special health care needs. Pediatrics. 2012;129(1):99-107
-
(2012)
Pediatrics
, vol.129
, Issue.1
, pp. 99-107
-
-
Fiks, A.G.1
Mayne, S.2
Localio, A.R.3
Alessandrini, E.A.4
Guevara, J.5
-
27
-
-
77950318128
-
Hospital admission medication reconciliation in medically complex children: An observational study
-
Stone BL, Boehme S, Mundorff MB, Maloney CG, Srivastava R. Hospital admission medication reconciliation in medically complex children: an observational study. Arch Dis Child. 2010;95(4):250-255
-
(2010)
Arch Dis Child
, vol.95
, Issue.4
, pp. 250-255
-
-
Stone, B.L.1
Boehme, S.2
Mundorff, M.B.3
Maloney, C.G.4
Srivastava, R.5
-
28
-
-
77950251710
-
Pediatric rehabilitation: 1. Common medical conditions in children with disabilities
-
Kim CT, Moberg-Wolff E, Trovato M, Kim H, Murphy N. Pediatric rehabilitation: 1. Common medical conditions in children with disabilities. PMR. 2010;2(3 suppl 1):S3-S11
-
(2010)
PMR
, vol.2
, Issue.3 SUPPL. 1
-
-
Kim, C.T.1
Moberg-Wolff, E.2
Trovato, M.3
Kim, H.4
Murphy, N.5
-
29
-
-
79955119660
-
Preventing skin breakdown in the immobile child in the home care setting
-
McCaskey MS, Kirl L, Gerdes C. Preventing skin breakdown in the immobile child in the home care setting. Home Healthc Nurse. 2011;29(4):248-255
-
(2011)
Home Healthc Nurse
, vol.29
, Issue.4
, pp. 248-255
-
-
McCaskey, M.S.1
Kirl, L.2
Gerdes, C.3
-
31
-
-
77951558515
-
Identifying and managing sources of pain and distress in children with neurological impairment
-
quiz 232-234
-
Hauer J. Identifying and managing sources of pain and distress in children with neurological impairment. Pediatr Ann. 2010;39 (4):198-205, quiz 232-234
-
(2010)
Pediatr Ann
, vol.39
, Issue.4
, pp. 198-205
-
-
Hauer, J.1
-
33
-
-
84860575557
-
Children with multiple disabilities and special health care needs
-
Carey WB, Crocker AC, Coleman WL, Elias ER, Feldman HM, eds. 4th ed. Philadelphia, PA: Elsevier
-
Elias ER. Children with multiple disabilities and special health care needs. In: Carey WB, Crocker AC, Coleman WL, Elias ER, Feldman HM, eds. Developmental-Behavioral Pediatrics. 4th ed. Philadelphia, PA: Elsevier; 2009:737-745
-
(2009)
Developmental-Behavioral Pediatrics
, pp. 737-745
-
-
Elias, E.R.1
-
34
-
-
77950552940
-
Policy statement - Emergency information forms and emergency preparedness for children with special health care needs
-
American Academy of Pediatrics; Committee on Pediatric Emergency Medicine and Council on Clinical Information Technology; American College of Emergency Physicians; Pediatric Emergency Medicine Committee
-
American Academy of Pediatrics; Committee on Pediatric Emergency Medicine and Council on Clinical Information Technology; American College of Emergency Physicians; Pediatric Emergency Medicine Committee. Policy statement - emergency information forms and emergency preparedness for children with special health care needs. Pediatrics. 2010;125(4):829-837
-
(2010)
Pediatrics
, vol.125
, Issue.4
, pp. 829-837
-
-
-
35
-
-
48249156219
-
Care coordination for children and youth with special health care needs: A descriptive, multisite study of activities, personnel costs, and outcomes
-
Available at
-
Antonelli RC, Stille CJ, Antonelli DM. Care coordination for children and youth with special health care needs: a descriptive, multisite study of activities, personnel costs, and outcomes. Pediatrics. 2008;122(1). Available at: www.pediatrics.org/cgi/content/full/ 122/1/e209
-
(2008)
Pediatrics
, vol.122
, Issue.1
-
-
Antonelli, R.C.1
Stille, C.J.2
Antonelli, D.M.3
-
36
-
-
33644923866
-
Daily living with distress and enrichment: The moral experience of families with ventilator-assisted children at home
-
Available at
-
Carnevale FA, Alexander E, Davis M, Rennick J, Troini R. Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Pediatrics. 2006;117(1). Available at: www.pediatrics.org/cgi/content/full/117/1/e48
-
(2006)
Pediatrics
, vol.117
, Issue.1
-
-
Carnevale, F.A.1
Alexander, E.2
Davis, M.3
Rennick, J.4
Troini, R.5
-
37
-
-
77449128237
-
Impact of childhood chronic illnesses on siblings: A literature review
-
O'Brien I, Duffy A, Nicholl H. Impact of childhood chronic illnesses on siblings: a literature review. Br J Nurs. 2009-2010;18 (22):1358-, 1360-1365
-
(2009)
Br J Nurs
, vol.18
, Issue.22
-
-
O'Brien, I.1
Duffy, A.2
Nicholl, H.3
-
38
-
-
34248203110
-
Maltreatment of children with disabilities
-
American Academy of Pediatrics Committee on Child Abuse and Neglect;; American Academy of Pediatrics Council on Children With Disabilities
-
Hibbard RA, Desch LW; American Academy of Pediatrics Committee on Child Abuse and Neglect;; American Academy of Pediatrics Council on Children With Disabilities. Maltreatment of children with disabilities. Pediatrics. 2007;119(5):1018-1025
-
(2007)
Pediatrics
, vol.119
, Issue.5
, pp. 1018-1025
-
-
Hibbard, R.A.1
Desch, L.W.2
-
39
-
-
34249876668
-
Provision of educationally related services for children and adolescents with chronic diseases and disabling conditions
-
American Academy of Pediatrics Council on Children With Disabilities
-
Cartwright JD; American Academy of Pediatrics Council on Children With Disabilities. Provision of educationally related services for children and adolescents with chronic diseases and disabling conditions. Pediatrics. 2007;119(6):1218-1223
-
(2007)
Pediatrics
, vol.119
, Issue.6
, pp. 1218-1223
-
-
Cartwright, J.D.1
-
40
-
-
44449175670
-
Promoting the participation of children with disabilities in sports, recreation, and physical activities
-
American Academy of Pediatrics Council on Children With Disabilities
-
Murphy NA, Carbone PS; American Academy of Pediatrics Council on Children With Disabilities. Promoting the participation of children with disabilities in sports, recreation, and physical activities. Pediatrics. 2008;121(5):1057-1061
-
(2008)
Pediatrics
, vol.121
, Issue.5
, pp. 1057-1061
-
-
Murphy, N.A.1
Carbone, P.S.2
|