'Dying from' to 'living with': Framing institutions and the coping processes of African American women living with HIV/AIDS

Social Science and Medicine

Volumn 74, Issue 12, 2012, Pages 2028-2036

  Watkins Hayes, Celeste ^a   Pittman Gay, LaShawnDa ^b   Beaman, Jean ^a  

^a NORTHWESTERN UNIVERSITY   (United States)

^b UNIVERSITY OF MICHIGAN   (United States)

Author keywords

Black Americans; Coping; Experience of illness; Gender; HIV AIDS; Institutions; Organizations; Stigma; Support; USA; Women

Indexed keywords

ANTIRETROVIRUS AGENT; ZIDOVUDINE;

ACQUIRED IMMUNE DEFICIENCY SYNDROME; AFRICAN AMERICAN; BLACK POPULATION; COPING STRATEGY; GENDER DISPARITY; HUMAN IMMUNODEFICIENCY VIRUS; WOMENS HEALTH;

ACQUIRED IMMUNE DEFICIENCY SYNDROME; AFRICAN AMERICAN; ALCOHOL REHABILITATION PROGRAM; ARTICLE; CONCEPTUAL FRAMEWORK; CONSULTATION; COPING BEHAVIOR; GOVERNMENT; HEALTH BELIEF; HEALTH CARE PLANNING; HEALTH ECONOMICS; HEALTH STATUS; HIGHLY ACTIVE ANTIRETROVIRAL THERAPY; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INSTITUTIONAL CARE; LANGUAGE; MEDICAL INFORMATION; MENTAL HEALTH; NON PROFIT ORGANIZATION; PATIENT ATTITUDE; PRACTICE GUIDELINE; QUALITATIVE RESEARCH; SEXUAL BEHAVIOR; SOCIAL SUPPORT; WOMEN'S HEALTH;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AFRICAN AMERICANS; ATTITUDE TO HEALTH; FEMALE; HIV INFECTIONS; HUMANS; MIDDLE AGED; QUALITATIVE RESEARCH; SOCIAL SUPPORT; STEREOTYPING; YOUNG ADULT;

UNITED STATES;

EID: 84860482469     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2012.02.001     Document Type: Article

References (67)

1. Adimora A.A., Schoenbach V.J. Social context, sexual networks, and racial disparities in rates of sexually transmitted infections. The Journal of Infectious Diseases 2005, 191:S115-S122.
2. Alonzo A.A., Reynolds N.R. Stigma, HIV and AIDS: an exploration and elaboration of a stigma trajectory. Social Science & Medicine 1995, 41:303-315.
3. Ball J., Tannenbaum L., Armistead L., Maguen S. Coping and HIV infection in African American women. Women & Health 2002, 35(1):17-35.
4. Barbot J. How to build an " active" patient? The work of AIDS associations in France. Social Science & Medicine 2006, 62:538-551.
5. Barnes D., Alforque B.A., Carter K. 'Like I just got a death sentence': conditions affecting women's reactions to being told their HIV antibody test results and the impact on access to care. Research in the Sociology of Health Care 2000, 18:3-33.
6. Battle S. The bond is called blackness: black women and AIDS. The gender politics of HIV/AIDS in women: Perspectives in the United States 1997, 282-291. New York University Press, New York. N. Goldstein, J.L. Manlowe (Eds.).
7. Benford R., Snow D. Framing processes and social movements: an overview and assessment. Annual Review of Sociology 2000, 26:611-639.
8. Berger M.T. Workable sisterhood: The political journey of stigmatized women with HIV/AIDS 2004, Princeton University Press, Princeton, NJ.
9. Brander P., Norton V. Women living with HIV/AIDS: Issues and needs confronting women with HIV/AIDS and women who care for people with HIV/AIDS 1993.
10. Brown P. Social construction of diagnosis and illness. Journal of Health and Social Behavior 1995, 35:34-52.
11. Bury M.R. The sociology of chronic illness: a review of research and prospects. Sociology of Health & Illness 1991, 13(4):452-468.
12. Catz S.L., Gore-Felton C., McClure J.B. Psychological distress among minority and low-income women living with HIV. Behavioral Medicine 2002, 28:53-60.
13. Charmaz K. Experiencing chronic illness. Handbook of social studies in health and medicine 2000, 277-292. Sage, London. G. Albrecht, R. Fitzpatrick, S. Schrimshaw (Eds.).
14. Ciambrone D. Illness and other assaults on self: the relative impact of HIV/AIDS on women's lives. Sociology of Health & Illness 2001, 23:517-540.
15. Cohen C. The boundaries of blackness: AIDS and the breakdown of black politics 1999, University of Chicago Press, Chicago.
16. Crossley M. 'Sick role' or 'empowerment'? The ambiguities of life with an HIV positive diagnosis. Sociology of Health & Illness 1998, 20:507-531.
17. Dill A. Institutional environments and organizational responses to AIDS. Journal of Health and Social Behavior 1994, 35(4):349-369.
18. Doyal L., Anderson J. 'My fear is to fall in love again....' How HIV-positive African American women survive in London. Social Science & Medicine 2005, 60:1729-1738.
19. Epstein S. Impure science: AIDS, activism, and the politics of knowledge 1996, University of California Press, Berkeley.
20. Women, poverty, and AIDS: Sex, drugs and structural violence 1996, Common Courage Press, Monroe, ME. P. Farmer, M. Connors, J. Simmons (Eds.).
21. Feist-Price S., Wright L.B. Mental health issues among women with HIV and AIDS. Women & Therapy 2003, 26(1/2):27-38.
22. Ford C., Whetten K., Hall S., Kaufman J., Thrasher A.D. Black sexuality, social construction, and research targeting 'The Down Low' ('The DL'). Annals of Epidemiology 2007, 17:209-216.
23. Gardner L.I., Marks G., Metsch L.R., Loughlin A.M., O'Daniels C., Del Rio C., et al. Psychological and behavioral correlates of entering care for HIV infection: the antiretroviral treatment access study (ARTAS). AIDS Patient Care and STDs 2007, 21(6):418-425.
24. Gielen A.C., McDonnell K.A., Wu A.W., O'Campo P., Faden R. Quality of life among women living with HIV: the importance of violence, social support, and self care behaviors. Social Science & Medicine 2001, 52:315-322.
25. Gilbert D.J., Wright E.M. African American women and HIV/AIDS: Critical responses 2003, Praeger, Westport, CT.
26. Goffman E. Frame analysis: An essay on the organization of experience 1974, Harper & Row, New York, New York.
27. Goldstein N., Manlowe J.L. The gender politics of HIV/AIDS in women: Pandemic in the United States 1997, New York University Press, New York.
28. Grinstead O.B., Zack, Faigeles B. Reducing postrelease risk behavior among HIV seropositive prison inmates: the health promotion program. AIDS Education and Prevention 2001, 13(2):109-119.
29. Hackl K.L., Somlai A.M., Kelly J.A., Kalichman S.C. Women living with HIV/AIDS: the dual challenge of being a patient and caregiver. Health and Social Work 1997, 22(1):53-62.
30. Ickovics J.R., Forsyth B., Ethier K.A., Harris P., Rodin J. Delayed entry into health care for women with HIV disease. AIDS Patient Care and STDs 1996, 10(1):21-24.
31. Ingram D., Hutchinson S.A. Defensive mothering in HIV-positive mothers. Qualitative Health Research 1999, 9(2):243-258.
32. Jones-DeWeever A.A. Saving ourselves: African American women and the HIV/AIDS crisis. Harvard Journal of African American Public Policy 2005, 11:79-83.
33. Kim A., Page-Shafer K., Ruiz J., Reyes L., Delgado V., Klausner J., et al. Vulnerability to HIV among women formerly incarcerated and women with incarcerated sexual partners. AIDS and Behavior 2002, 6:331-338.
34. Kobasa S.C.O. AIDS and volunteer associations: perspectives on social and individual change. The Milbank Quarterly 1990, 68(2):280-294.
35. Lather P., Smithies C. Troubling the angels: Women living with HIV/AIDS 1997, Westview Press, Boulder, CO.
36. Lutfey K., Freese J. Toward some fundamentals of fundamental causality: socioeconomic status and health in the routine clinic visits for diabetes. American Journal of Sociology 2005, 110(5):1326-1372.
37. Millett G., Malebranche D., Mason B., Spikes P. Focusing " Down Low": bisexual black men, HIV risk and heterosexual transmission. Journal of the National Medical Association 2005, 97(7):52S-59S.
38. Misener T.R., Sowell R.L. HIV-infected women's decisions to take antiretrovirals. Western Journal of Nursing Research 1998, 20(4):431-445.
39. Parmet W.E., Jackson D.J. No longer disabled: the legal impact of the new social construction of HIV. American Journal of Law & Medicine 1997, 23(1):7-44.
40. Parsons T. The social system 1951, Routledge, London.
41. Patterson O. Slavery and social death: A comparative study 1985, Harvard University Press, Cambridge.
42. Perakyla A. Authority and accountability: the delivery of diagnosis in primary health care. Social Psychology Quarterly 1998, 61(4):301-320.
43. Peterson J.L., Catania J.A., Dolcini M.M., Faigeles B. Multiple sexual partners among heterosexual African Americans in high risk cities of the United States: the National AIDS Behavioral Surveys (NABS). Family Planning Perspectives 1993, 25:263-267.
44. Pierret J. The illness experience: state of knowledge and perspectives for research. Sociology of Health & Illness 2003, 25(3):4-22.
45. Pierret J. An analysis over time (1990-2000) of the experiences of living with HIV. Social Science & Medicine 2007, 65:1595-1605.
46. Serovich J.M., Kimberly J.A., Mosack K.E., Lewis T.L. The role of family and friend social support in reducing emotional distress among HIV-positive women. AIDS Care 2001, 13:335-341.
47. Shilts R. And the band played on: Politics, people, and the AIDS epidemic 1987, St. Martin's Press, New York.
48. Siegel K., Krauss B.J. Living with HIV infection: adaptive tasks of seropositive gay men. Journal of Health and Social Behavior 1991, 32(1):17-32.
49. Siegel K., Schrimshaw E.W. Perceiving benefits in adversity: stress-related growth in women living with HIV/AIDS. Social Science & Medicine 2000, 51(10):1543-1554.
50. Simoni J.M., Montoya H.D., Huang B., Goodry E. Social support and depressive symptomatology among HIV-positive women: the mediating role of self-esteem and mastery. Women & Health 2005, 42:1-15.
51. Small M.L. Neighborhood institutions as resource brokers: childcare centers, interorganizational ties, and resource access among the poor. Social Problems 2006, 53(2):274-292.
52. Small M.L. 'How many cases do I need?' On science and the logic of case selection in field based research. Ethnography 2009, 10(1):5-38.
53. Smedley B.D., Stith A.Y., Nelson A.R., Committee on Understanding and Eliminating Racial and Ethnic Disparities in Health Care Unequal treatment: Confronting racial and ethnic disparities in health care 2003, National Academies Press, Washington D.C.
54. Sobo E.J. Choosing unsafe sex: AIDS-risk denial among disadvantaged women 1995, University of Pennsylvania Press, Philadelphia.
55. Sontag S. Illness as metaphor and AIDS and its metaphors 2001, Macmillan, New York.
56. Stein M.D., Crystal S., Cunningham W.E., Ananthanarayanan A., Andersen R.M., Turner B.J., et al. Delays in seeking HIV care due to competing caregiver responsibilities. American Journal of Public Health 2000, 90:1138-1140.
57. Stewart D., Sullivan T. Illness behavior and the sick role in chronic disease: the case of multiple sclerosis. Social Science & Medicine 1982, 16(15):1397-1404.
58. Strauss A., Corbin J.M. Basics of qualitative research: Grounded theory procedures and techniques 1990, Sage Publications, Thousand Oaks, CA.
59. Strauss A., Glaser B. Chronic illness and the quality of life 1975, Mosby, St. Louis.
60. Tangenberg K.M. Surviving two diseases: addiction, recovery, and spirituality among mothers living with HIV disease. Families in Society 2001, 82(5):517-524.
61. Tewksbury R. 'Speaking of someone with AIDS...': identity constructions of persons with HIV disease. Deviant Behavior 1994, 15(4):337-355.
62. U.S.Centers for Disease Control and Prevention (CDC) New CDC analysis reveals strong link between poverty and HIV infection: new study in low-income heterosexuals in America's inner cities reveals high HIV rates Press Release, July 19, 2010, Accessed 29.07.10. http://www.cdc.gov/nchhstp/newsroom/povertyandhivpressrelease.html.
63. U.S.Centers for Disease Control and Prevention HIV/AIDS among African Americans 2009, CDC HIV/AIDS Fact Sheet, U.S. Government Printing Office, Washington, DC.
64. Watkins-Hayes C. The social and economic context of black women living with HIV/AIDS in the US: implications for research. Sex, power and taboo: Gender and HIV in the Caribbean and beyond 2008, Ian Randle Publishers, Kingston, Jamaica. D. Roberts, R. Reddock, D. Douglas, S. Reid (Eds.).
65. Weitz R. Living with the stigma of AIDS. Qualitative Sociology 1990, 13:23-38.
66. Wyatt G.E., Myers H.F., Williams J.K., Kitchen C.R., Loeb T., Carmona J.V., et al. Does a history of trauma contribute to HIV risk for women of color? Implications for prevention and policy. American Journal of Public Health 2002, 92(4):660-665.
67. Zierler S., Krieger N. Reframing women's risk: social inequalities and HIV infection. Annual Review of Public Health 1997, 18:401-436.