The illness experience: State of knowledge and perspectives for research

Sociology of Health and Illness

Volumn 25, Issue SPEC. ISS., 2003, Pages 4-22

  Pierret, Janine ^a,b  

^a ÉCOLE DES HAUTES ÉTUDES EN SCIENCES SOCIALES   (France)

^b CNRS   (France)

Author keywords

Coping; Everyday life; Experience; Illness; Social structure; Strategies; Subjectivity

Indexed keywords

BODY IMAGE; CHRONIC DISEASE; COPING BEHAVIOR; DISEASE SEVERITY; EXPERIENCE; HUMAN; ILLNESS BEHAVIOR; LIFE; MEDICAL PROFESSION; MEDICAL RESEARCH; PARKINSON DISEASE; PHYSICIAN; PUBLICATION; REVIEW; RHEUMATOID ARTHRITIS; SOCIAL STATUS; SOCIAL STRUCTURE; SOCIOECONOMICS;

EID: 0038806272     PISSN: 01419889     EISSN: None     Source Type: Journal    
DOI: 10.1111/1467-9566.t01-1-00337     Document Type: Review

References (85)

1. Adamson, C. (1997) Existential and clinical uncertainty in the medical encounter: an idiographic account of an illness trajectory defined by Inflammatory Bowel Disease and Avascular Necrosis, Sociology of Health and Illness, 19, 133-59.
2. Albrecht, G.L., Walker, V.G. and Levy, J.A. (1982) Social distance from the stigmatized: a test of two theories, Social Science and Medicine, 16, 1319-27.
3. Alonzo, A. (1984) An illness behavior paradigm: a conceptual exploration of a situational-adaptation perspective, Social Science and Medicine, 19, 499-510.
4. Anderson, R. and Bury, M. (eds) (1988) Living with Chronic Illness. The Experience of Patients and their Families. London: Unwin Hyman.
5. Anderson, J.M., Elfert, H. and Lai, M. (1989) Ideology in the clinical context: chronic illness, ethnicity and the discourse of normalisation, Sociology of Health and Illness, 11, 253-78.
6. Atkin, K. and Ahmad, W (2000) Pumping iron: compliance with chelation therapy among young people who have thalassaemia major, Sociology of Health and Illness, 22, 500-24.
7. Ballard, K., Kuh, D. and Wadsworth, M. (2001) The role of the menopause in women's experiences of the 'change of life', Sociology of Health and Illness, 23, 397-424.
8. Berkanovic, E. (1972) Lay conceptions of the sick role, Social Forces, 51, 53-64.
9. Blaxter, M. and Paterson, E. (1982) Mothers and Daughters: a Three-generational Study of Health Attitudes and Behaviour. London: Heinemann.
10. Bransen, E. (1992) Has menstruation been medicalised? Or will it never happen . . . , Sociology of Health and Illness, 14, 98-110.
11. Brown, P. (1995) Naming and framing: the social construction of diagnosis and illness, Journal of Health and Social Behavior, Special Issue, Forty years of Medical Sociology, 35-42.
12. Bury, M. (1982) Chronic illness as biographical disruption, Sociology of Health and Illness, 4, 167-82.
13. Bury, M. (1991) The sociology of chronic illness: a review of research and prospects, Sociology of Health and Illness, 13, 451-68.
14. Bury, M. (2001) Illness narratives: fact or fiction? Sociology of Health and Illness, 23, 263-85.
15. Carricaburu, D. and Pierret, J. (1995) From biographical disruption to biographical reinforcement: the case of HIV-positive men. Sociology of Health and Illness, 17, 65-88.
16. Charles, N. and Walters, V. (1998) Age and gender in women's accounts of their Health: interviews with women in South Wales, Sociology of Health and Illness, 20, 331-50.
17. Charmaz, K. (1983) Loss of self: a fundamental form of suffering in the chronically ill, Sociology of Health and Illness, 5, 168-95.
18. Charmaz, K. (2000) Experiencing chronic illness. In Albrecht, G.L., Fitzpatrick, R. and Scrimshaw, S.C. (eds) The Handbook of Social Studies in Health and Medicine. London: Sage Publications, 277-92.
19. Conrad, P. (1987) The experience of illness: recent and new directions. In Roth, J.A. and Conrad, P. (eds) Research in the Sociology of Health Care: the Experience and Management of Chronic Illness, Volume 6. Greenwich, CT: JAI Press, 1-32.
20. Cook Gotay, C. (1985) Why me? Attributions and adjustment by cancer patients and their mates at two stages in the disease process, Social Science and Medicine, 20, 825-31.
21. Crossley, M. (1998) 'Sick role' or 'empowerment'? The ambiguities of life with an HIV-positive diagnosis, Sociology of Health and Illness, 20, 507-31.
22. Damen, S., Mortelmans, D. and Van Hove, E. (2000) Self-help groups in Belgium: their places in the care network, Sociology of Health and Illness, 22, 331-48.
23. Davis, F. (1963) Passage through Crisis: Polio Victims and their Families. Indianapolis, IL: Bobbs-Merrill.
24. Ezzy, D. (2000) Illness narratives: time, hope and HIV, Social Science and Medicine, 50, 605-17.
25. Faircloth, C.A. (1999) Revisiting thematisation in the narrative study of epilepsy, Sociology of Health and Illness, 21, 210-27.
26. Fife, B.L. (1994) The conceptualization of meaning in illness, Social Science and Medicine, 38, 309-16.
27. Frankenberg, R. (1986) Sickness as cultural performance: drama, trajectory, and pilgrimage root metaphors and the making social of disease, International Journal of Health Services, 16, 603-26.
28. Freund, P. (1990) The expressive body: a common ground for the sociology of emotions and health and illness, Sociology of Health and Illness, 12, 452-77.
29. Gallagher, E. (1976) Lines of reconstruction and extension in Parsonian sociology of illness, Social Science and Medicine, 10, 207-18.
30. Gerhardt, U. (1979a) The Parsonian paradigm and the identity of medical sociology, Sociological Review, 27, 2, 229-51.
31. Gerhardt, U. (1979b) Coping and social action: theoretical reconstruction of the life-event approach, Sociology of Health and Illness, 1, 195-225.
32. Gerson, E. (1976) The social character of illness: Deviance or politics?, Social Science and Medicine, 10, 219-24.
33. Gibbons, J. (1980) Review of Reynolds, D.K. and Farberow, N.L. Endangered hope: experience in psychiatric aftercare facilities, London: University Press of California, 1978, in Sociology of Health and Illness, 2, 349.
34. Giddens, A. (1979) Central Problems in Social Theory. London: Macmillan.
35. Glaser, B. and Strauss, A. (1965) Awareness of Dying. Chicago: Aldine.
36. Glaser, B. and Strauss, A. (1968) Time for Dying. Chicago: Aldine.
37. Goffman, E. (1963) Stigma. Englewood Cliffs, NJ: Prentice Hall.
38. Gray, D.E. (1993) Perceptions of stigma: the parents of autistic children, Sociology of Health and Illness, 15, 102-20.
39. Greil, A.L., Porter, K.L., Leitko, T.A. and Riscilli, C. (1989) Why me? Theodicies of infertile women and men, Sociology of Health and Illness, 11, 213-29.
40. Harden, A. and Ogden, J. (1999) Young women's experiences of arranging and having abortions, Sociology of Health and Illness, 21, 426-44.
41. Hydén, L.C. (1997) Illness and narrative, Sociology of Health and Illness, 19, 48-69.
42. Kaufert, P. (1982) Myth and the menopause, Sociology of Health and Illness, 4, 141-66.
43. Kelly, M. (1992) Self, identity and radical surgery, Sociology of Health and Illness, 14, 390-415.
44. Kelly, M.P. and Field, D. (1996) Medical sociology, chronic illness and the body, Sociology of Health and Illness, 18, 241-57.
45. Kelly, M.P. and Field, D. (1997) Body image and sociology, a reply to Simon Williams, Sociology of Health and Illness, 19, 359-66.
46. Kleinman, A. (1988) The Illness Narratives: Suffering, Healing and the Human Conditions, New York: Basic Books.
47. Kohler Riessman, C. (1990) Strategic uses of narrative in the presentation of self and illness: a research note, Social Science and Medicine, Special Issue, Qualitative Research on Chronic Illness, 30, 1195-200.
48. Lawton, J. (1998) Contemporary hospice care: the sequestration of the unbounded body and 'dirty dying', Sociology of Health and Illness, 20, 121-43.
49. Locker, D. and Kaufert, J. (1988) The breath of life: medical technology and the careers of people with post-respiratory poliomyelitis, Sociology of Health and Illness, 10, 23-40.
50. MacRae, H. (1999) Managing courtesy stigma: The case of Alzheimer's disease, Sociology of Health and Illness, 21, 54-70.
51. Mathieson, C. and Stam, H.J. (1995) Renegotiating identity: cancer narratives, Sociology of Health and Illness, 17, 283-306.
52. Mattingly, C. and Garro, L. (eds) (1994) Narrative representations of illness and healing, Social Science and Medicine, Special Issue, 38, 771-860.
53. McIntosh, J. and McKeganey, N. (2000) Addicts' narratives of recovery from drug use: Constructing a non-addict identity, Social Science and Medicine, 50, 1501-10.
54. McQueen, D. and Siegrist, J. (eds) (1982) Sociocultural Factors in Chronic Disease, a Special Issue of Social Science and Medicine, 16, 353-498.
55. Mechanic, D. (1995) Sociological dimensions of illness behavior, Social Science and Medicine, 41, 1207-16.
56. Mishler, E.G. (1986) Research Interviewing: Context and Narrative. Cambridge: Harvard University Press.
57. Navon, L. (1996) Beyond constructionism and pessimism: Theoretical implications of leprosy destigmatisation campaigns in Thailand, Sociology of Health and Illness, 18, 258-76.
58. Nijhof, G. (1995) Parkinsons's disease as a problem of shame in public appearance, Sociology of Health and Illness, 17, 193-205.
59. Parsons, T. (1951) The Social System. Glencoe, Il: Free Press.
60. Pierret, J. (2001) Interviews and biographical time: the case of long-term HIV non-progressors, Sociology of Health and Illness, 23, 159-79.
61. Pinder, R. (1992) Coherence and incoherence: doctors' and patients' perspectives on the diagnosis of Parkinson's disease, Sociology of Health and Illness, 14, 1-22.
62. Pinder, R. (1995) Bringing back the body without the blame? The experience of ill and disabled people at work, Sociology of Health and Illness, 17, 605-31.
63. Pound, P., Gompertz, P. and Ebrahim, S. (1998) Illness in the context of older age: The case of stroke, Sociology of Health and Illness, 20, 489-506.
64. Radley, A. (1989) Style, discourse and constraint in adjustment to chronic illness, Sociology of Health and Illness, 11, 230-52.
65. Radley, A. and Billig, M. (1996) Accounts of health and illness: dilemmas and representations, Sociology of Health and Illness, 18, 220-40.
66. Radley, A. and Green, R. (1987) Illness as adjustment: a methodology and conceptual framework, Sociology of Health and Illness, 9, 179-207.
67. Rier, D.A. (2000) The missing voice of the critically ill: a medical sociologist's first-person account, Sociology of Health and Illness, 22, 68-93.
68. Robinson, I. (1990) Personal narratives, social careers and medical courses: analysing life trajectories in autobiographies of people with multiple sclerosis, Social Science and Medicine, Special Issue, Qualitative research on chronic illness. 30, 1173-86.
69. Roth, J. and Conrad, P. (eds) (1987) The experience and management of chronic illness. In Roth, J.A. and Conrad, P. (eds) Research in the Sociology of Health Care: the Experience and Management of Chronic Illness, Volume 6. Greenwich, CT: JAI Press.
70. Roth, J. (1963) Timetables. New York: Bobbs-Merrill.
71. Sanders, C., Donovan, J. and Dieppe, P. (2002) The significance and consequences of having painful and disabled joints in older age: co-existing accounts of normal and disrupted biographies, Sociology of Health and Illness, 24, 227-53.
72. Scambler, G. and Hopkins, A. (1986) Being epileptic: coming to terms with stigma, Sociology of Health and Illness, 8, 26-43.
73. Schmied, V. and Lupton, D. (2001) Blurring the boundaries: breast-feeding and maternal subjectivity, Sociology of Health and Illness, 23, 234-50.
74. Schneider, J.W. and Conrad, P. (1983) Having Epilepsy: the Experience and Control of Illness. Philadelphia: Temple University Press.
75. Stewart, D.C. and Sullivan, TJ. (1982) Illness behavior and the sick role in chronic disease. The case of multiple sclerosis, Social Science and Medicine, 16, 1397-04.
76. Strauss, A. and Glaser, B. (eds) (1975) Chronic Illness and the Quality of Life. St. Louis: Mosby.
77. Viney, L. and Bousfield, L. (1991) Narrative analysis: a method of psychosocial research for AIDS-affected people, Social Science and Medicine, 32, 757-66.
78. Weitz, R. (1989) Uncertainty and the lives of persons with AIDS, Journal of Health and Social Behavior, 30, 270-81.
79. Williams, G. (1984a) The genesis of chronic illness: narrative re-construction, Sociology of Health and Illness, 6, 175-200.
80. Williams, G. (1984b) Review of J.W. Schneider and P. Conrad, Having Epilepsy: the Experience and Control of Illness, Philadelphia: Temple University Press, 1983, in Sociology of Health and Illness, 6, 371-7.
81. Williams, G. (1989) Hope for the humblest? the role of self-help in chronic illness: The case of ankylosing spondylitis, Sociology of Health and Illness, 11, 135-59.
82. Williams, R.G.A. (1981a) Logical analysis as a qualitative method I: themes in old age and chronic illness, Sociology of Health and Illness, 3, 140-64.
83. Williams, R.G.A. (1981b) Logical analysis as a qualitative method II: conflict of ideas and the topic of illness, Sociology of Health and Illness, 3, 165-87.
84. Williams, S.J. (1996) Medical sociology, chronic illness and the body: a rejoinder to Michael Kelly and David Field, Sociology of Health and Illness, 18, 699-709.
85. Williams, S.J. (2000) Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept, Sociology of Health and Illness, 22, 40-67.