Using the salutogenic approach to unravel informal caregivers resources to health: Theory and methodology

Aging and Mental Health

Volumn 16, Issue 3, 2012, Pages 391-402

  Wennerberg, Mia M T ^a,b   Lundgren, Solveig M ^a   Danielson, Ella ^a,c  

^a UNIVERSITY OF GOTHENBURG   (Sweden)

^b Municipality of Orust ^*  (Sweden)

^c MID SWEDEN UNIVERSITY   (Sweden)

Author keywords

caregivinghood; general resistance resources; health promotion; homecare; mixed methods

Indexed keywords

AGED; AGING; ARTICLE; CAREGIVER; FEMALE; HEALTH CARE PLANNING; HEALTH PROMOTION; HUMAN; INFORMATION PROCESSING; MALE; MIDDLE AGED; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SENSE OF COHERENCE; SWEDEN;

AGED; AGED, 80 AND OVER; AGING; CAREGIVERS; DATA COLLECTION; FEMALE; HEALTH PROMOTION; HEALTH RESOURCES; HUMANS; MALE; MIDDLE AGED; QUALITY OF LIFE; SENSE OF COHERENCE; SWEDEN;

EID: 84859725525     PISSN: 13607863     EISSN: 13646915     Source Type: Journal    
DOI: 10.1080/13607863.2011.628974     Document Type: Article

References (62)

1. Andrén, S., & Elmståhl, S. (2008). The relationship between caregiver burden, caregivers' perceived health and their sense of coherence in caring for elders with dementia. Journal of Clinical Nursing, 17, 790-799.
2. Andrén, S., & Elmståhl, S. (2005). Family caregivers' subjective experiences of satisfaction in dementia care: aspects of burden, subjective health and sense of coherence. Scandinavian Journal of Caring Sciences, 19, 157-168.
3. Antonovsky, A. (1987). Unraveling the mystery of health. How people manage stress and stay well. San Francisco: Jossey-Bass Publishers.
4. Antonovsky, A. (1990). Salutogenesis. Studying health vs. studying disease. (Lecture at the Congress for Clinical Psychology and Psychotherapy, Berlin, 19 February 1990). Retrieved from http://www.angelfire.com/ok/soc/ aberlim.html
5. Antonovsky, A. (1991). Hälsans mysterium. [Unravelling the mystery of health. How people manage stress and stay well]. Stockholm: Natur och Kultur.
6. Antonovsky, A. (1993). The structure and properties of the sense of coherence scale. Social Science and Medicine, 36, 725-733.
7. Antonovsky, A. (1996). The salutogenic model as a theory to guide health promotion. Health Promotion International, 11, 11-18.
8. Balducci, C., Mnich, E., McKee, K.J., Lamura, G., Beckmann, A., Krevers, B., ⋯,Öberg, B. (2008). Negative impact and positive value in caregiving: validation of the COPE Index in six-country sample of carers. The Gerontologist, 48, 276-286.
9. Benzein, E.G., Hagberg, M., & Saveman, B.-I. (2008). Being appropriately unusual: A challenge for nurses in healthpromoting conversations with families. Nursing Inquiry, 15, 106-115.
10. Blair, T., & Minkler, M. (2009). Participatory action research with older adults: Key principles in practice. The Gerontologist, 49, 651-662.
11. Chumbler, N.R., Rittman, M.R., & Wu, S.S. (2008). Associations in sense of coherence and depression in caregivers of stroke survivors across 2 years. The Journal of Behavioral Health Service & Research, 35, 226-234.
12. Clarke, P. (2009). Understanding the experience of stroke: A mixed-method research agenda. The Gerontologist, 49, 293-302.
13. Coe, R.M., Miller, D.K., & Flaherty, J. (1992). Sense of coherence and perception of caregiving burden. Behavior, Health, and Aging, 2, 93-98.
14. Cohen, C.A., Colantonio, A., & Vernich, L. (2002). Positive aspects of caregiving: Rounding out the caregiver experience. International Journal of Geriatric Psychiatry, 17, 184-188.
15. Cowley, S., & Billings, J.R. (1999). Resources revisited: salutogenesis from a lay perspective. Journal of Advanced Nursing, 29, 994-1004.
16. Council of Europe ( 2007). Achieving full participation through Universal Design. (Resolution ResAP 2007) 3 adopted by the Committee of Ministers on 12 December 2007 at the 1014th meeting of the Ministers' Deputies). Retrieved from https://wcd.coe.int/wcd/ViewDoc.jsp?id=1226267
17. Eriksson, M. (2007). Unraveling the mystery of Salutogenesis -The evidence base of the salutogenic research as measured by Antonovsky's sense of coherence scale. (Doctoral dissertation, Research Report No 2007:1). Helsinki: Folkhälsan Research Centre, Health Promotion Research Programme.
18. Eriksson, M., & Lindström, B. (2005). Validity of Antonovsky's sense of coherence scale: A systematic review. Journal of Epidemiology and Community Health, 59, 460-466.
19. Eriksson, M., & Lindström, B. (2006). Antonovsky's sense of coherence scale and the relationship with health: A systematic review. Journal of Epidemiology and Community Health, 60, 376-381.
20. Eriksson, M., & Lindström, B. (2008). A salutogenic interpretation of the Ottawa Charter. Health Promotion International, 23, 190-199.
21. Farran, C.J., Miller, B.H., Kaufman, J.E., Donner, E., & Fogg, L. (1999). Finding meaning through caregiving: Development of an instrument for family caregivers to persons with Alzheimer's disease. Journal of Clinical Psychology, 55, 1107-1125.
22. Forsberg-Wärleby, G., Möller, A., & Blomstrand, C. (2002). Spouses of first-ever stroke victims: Sense of coherence in the first phase after stroke. Journal of Rehabilitation Medicine, 34, 128-133.
23. Gallagher, T.J., Wagenfeld, M.O., Baro, F., & Haepers, K. (1994). Sense of coherence and caregiver role overload. Social Science and Medicine, 39, 1615-1622.
24. Gibson, C.H. (1991). A concept analysis of empowerment. Journal of Advanced Nursing, 16, 354-361.
25. Goodman, C. (1986). Research on the informal carer: A selected literature review. Journal of Advanced Nursing, 11, 705-712.
26. Guberman, N., Nicholas, E., Nolan, M., Rembicki, D., Lundh, U., & Keefe, J. (2003). Impacts on practitioners of using research-based carer assessment tools: Experiences from the UK, Canada and Sweden, with insights from Australia. Health and Social Care in the Community, 11, 345-355.
27. Hollnagel, H., & Malterud, K. (1995). Shifting attention from risk factors to patients' self-assessed health resources: A clinical model for general practice. Family Practice, 12, 423-429.
28. Hollnagel, H., & Malterud, K. (2000). From risk factors to health resources in medical practice. Medicine, Health Care and Philosophy, 3, 257-264.
29. Kramer, B.J. (1997). Gain in the caregiving experience: Where are we? What next? The Gerontologist, 37, 218-232.
30. Krevers, B., Magnusson, H., Johansson, L., & Öberg, B. (2006). The National Survey Report for Sweden. In EUROFAMCARE Consortium (Eds.) Services for supporting family carers of older dependent people in Europe: Characteristics, coverage and usage. (Deliverable 18). Retrieved from http://www.uke.de/extern/eurofamcare/ documents/deliverables/nasure-se.pdf
31. Kristensson Ekwall, A., & Rahm Hallberg, I. (2007). The association between caregiving satisfaction, difficulties and coping among older family caregivers. Journal of Clinical Nursing, 16.
32. Kristensson Ekwall, A., Sivberg, B., & Rahm Hallberg, I. (2007). Older caregivers' coping strategies and sense of coherence in relation to quality of life. Journal of Advanced Nursing, 57, 584-596.
33. Lawton, M.P., Moss, M., Kleban, M.H., Glicksman, A., & Rovine, M. (1991). A two-factor model of caregiving appraisal and psychological well-being. Journal of Gerontology, 46, 181-189.
34. Lindström, B., & Eriksson, M. (2009). The salutogenic approach to the making of HiAP/healthy public policy: Illustrated by a case study. Global Health Promotion, 16, 17-28.
35. Louderback, P. (2000). Elder care: A positive approach to caregiving. Journal of the American Academy of Nurse Practitioners, 12, 97-99.
36. Malterud, K. (2001). Qualitative research: Standards, challenges, and guidelines. The Lancet, 358, 483-488.
37. Malterud, K., & Hollnagel, H. (1998). Talking with women about personal health resources in general practice. Key questions about salutogenesis. Scandinavian Journal of Primary Health Care, 16, 66-71.
38. Malterud, K., & Hollnagel, H. (1999). Encouraging the strengths of women patients. A case study from general practice on empowering dialogues. Scandinavian Journal of Public Health, 27, 254-259.
39. McKee, K., Spazzafumo, L., Nolan, M., Wojszel, B., Lamura, G., & Bien, B. (2009). Components of the difficulties, satisfactions and management strategies of carers of older people: A principal component analysis of CADI-CASI-CAMI. Aging & Mental Health, 13, 255-264.
40. Malterud, K., & Hollnagel, H. (2004). Positive self-assessed health in patients with medical problems. A qualitative study from general practice. Scandinavian Journal of Primary Health Care, 22, 11-15.
41. Milberg, A., & Strang, P. (2004). Exploring comprehensibility and manageability in palliative home care: An interview study of dying cancer patients' informal carers. Psycho-Oncology, 13, 605-618.
42. Milberg, A., & Strang, P. (2007). What to do when 'there is nothing more to do'? A study within a salutogenic framework of family members' experience of palliative home care staff. Psycho-Oncology, 16, 741-751.
43. Miller, B., & Lawton, M.P. (1997). Positive aspects of caregiving. Introduction: Finding balance in caregiver research. The Gerontologist, 37, 216-217.
44. Mockler, D., Riordan, J., & Murphy, M. (1998). Psychosocial factors associated with the use/non-use of mental health services by primary caregivers of individuals with dementia. International Journal of Geriatric Psychiatry, 13, 310-314.
45. National Board of Health and Welfare. (2001). Närståendes vård av äldre. Anhörigas och professionellas perspektiv. (Anhörig 300), [Next of kins' care of the elderly. The perspective of Carers and professionals (Next-of-kin 300)]. Retrieved from http://www. socialstyrelsen.se/publikationer2001/ 2001-124-6
46. National Board of Health and Welfare (2007). ICF -en grund för tvärprofessionell journaldokumentation -Förstudie 2006-10-01 (Publication No: 2007-131-11). [ICF -a base for trans-professional patient medical record information systems -Pre-study 2006-10-01]. Retrieved from http:// www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/ 9265/2007-131-11-rev-200713112.pdf
47. Nolan, M., Grant, G., & Keady, J. (1998). Assessing the needs of family carers. A guide for practitioners. Brighton: Pavilion Publishing (Brighton) Limited.
48. Nolan, M., Keady, J., & Grant, G. (1995). Developing a typology of family care: Implications for nurses and other service providers. Journal of Advanced Nursing, 21, 256-265.
49. Nolan, M., & Lundh, U. (1999). Satisfaction and coping strategies of family carers. British Journal of Community Nursing, 4, 470-475.
50. Nolan, M., Lundh, U., Grant, G., & Keady, J. (2003). Partnership in family care: Understanding the caregiver career. Berkshire: Open University Press.
51. Nolan, M., Mesthenos, L., Kofahl, C., Johansson, L., Melchiorre, G., & Pedich, W. (2006). Issues and challenges in carer support: A consideration of the literature. In EUROFAMCARE Consortium (Eds.) Services for supporting family carers of older dependent people in Europe: Characteristics, coverage and usage. (Deliverable 19, pp. 15-40). Retrieved from extern/eurofamcare/ documents/deliverables/teusure-web-080215.pdf
52. Pearlin, L.I., Mullan, J.T., Semple, S.J.,&Skaff, M.M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583-594.
53. Pretorius, C., Walker, S., & Heyns, P.A. (2009). Sense of coherence amongst male caregivers in dementia. Dementia, 8, 79-94.
54. Potgieter, J.C., & Heyns, P.M. (2006). Caring for a spouse with Alzheimer's disease: Stressors and strengths. South African Journal of Psychology, 36, 547-563.
55. Skelton, R. (1994). Nursing and empowerment: Concepts and strategies. Journal of Advanced Nursing, 19, 415-423.
56. Swedish Council for Research in the Humanities and Social Sciences -HSFR (2002). Forskningsetiska principer inom humanistisk-samhällsvetenskaplig forskning. Retrieved from http://www.codex.vr.se/en/texts/ HSFR.pdf. (Homepage, English guidelines: CODEX http://www.codex.vr.se/en/forskningmanniska.shtml)
57. United Nations (1991). Implementation of the International Plan of Action on Ageing and related activities. ANNEX The United Nations Principles for Older Persons. To add life to the years that have been added to life. (A/Res/46/91, 74th plenary meeting). Retrieved from http://www.un.org/documents/ga/res/46/ a46r091.htm
58. Waldrop, D.P., & Rinfrette, E.S. (2009). Can short hospice enrollment be long enough? Comparing the perspectives of hospice professionals and family caregivers. Palliative and Supportive Care, 7, 37-47.
59. World Health Organization (1986). The Ottawa Charter on Health Promotion. Retrieved from http://www.wpro.who.int/NR/rdonlyres/798A711D-DC30-4E27-8DD6- 19561EB969CC/0/ottawa-charter.pdf
60. World Health Organization (2002). Active Ageing Policy Framework. Retrieved from http://www.who.int/ageing/ publications/active/en/index.html
61. World Health Organization (2010). International Classification of Functioning, Disability and Health (ICF). Retrieved from http://www.who.int/ classifications/icf/en/
62. Zarit, S.H. (2006). The history of caregiving in dementia. In S.M. LoboPrabhu & V.A. Lomax (Eds.), Supporting the caregiver in dementia: A guide for health care professionals (pp. 3-22). Baltimore, MD, US: John Hopkins University Press. Retrieved from http://site.ebrary.com/lib/gubselibrary/ Doc?id=10188487&ppg=20