메뉴 건너뛰기




Volumn 3, Issue 2, 2011, Pages 207-227

The daily experience of people with achondroplasia

Author keywords

Achondroplasia; Daily contexts; Quality of experience; Socialisation; Well being

Indexed keywords


EID: 84859624747     PISSN: 17580846     EISSN: 17580854     Source Type: Journal    
DOI: 10.1111/j.1758-0854.2010.01046.x     Document Type: Article
Times cited : (15)

References (70)
  • 2
    • 0025194438 scopus 로고
    • Ambiguity and difference: Families with dwarf children
    • Ablon, J. (1990). Ambiguity and difference: Families with dwarf children. Social Science & Medicine, 30, 879-887.
    • (1990) Social Science & Medicine , vol.30 , pp. 879-887
    • Ablon, J.1
  • 3
    • 1942462205 scopus 로고    scopus 로고
    • The nature of stigma and medical conditions
    • Ablon, J. (2002). The nature of stigma and medical conditions. Epilepsy and Behavior, 3, S2-S9.
    • (2002) Epilepsy and Behavior , vol.3
    • Ablon, J.1
  • 6
    • 0033051553 scopus 로고    scopus 로고
    • The disability paradox: High quality of life against all odds
    • Albrecht, G.L., & Devlieger, P.J. (1999). The disability paradox: High quality of life against all odds. Social Science & Medicine, 48, 977-988.
    • (1999) Social Science & Medicine , vol.48 , pp. 977-988
    • Albrecht, G.L.1    Devlieger, P.J.2
  • 8
    • 0017472917 scopus 로고
    • Self-efficacy: Toward a unifying theory of behavioural change
    • Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioural change. Psychological Review, 84, 191-215.
    • (1977) Psychological Review , vol.84 , pp. 191-215
    • Bandura, A.1
  • 10
    • 84909289625 scopus 로고    scopus 로고
    • Bronstein, M.H., Davidson, L., Keyes, C.L.M., Moore, K.A., & the Centre for Child Well-Being (Eds.). Mahwah, NJ: Lawrence Erlbaum Associates
    • Bronstein, M.H., Davidson, L., Keyes, C.L.M., Moore, K.A., & the Centre for Child Well-Being (Eds.) (2003). Well-being: Positive development across the life course. Mahwah, NJ: Lawrence Erlbaum Associates.
    • (2003) Well-being: Positive development across the life course
  • 11
    • 21144432217 scopus 로고    scopus 로고
    • The experience and effects of emotional support: What the study of cultural and gender differences can tell us about close relationships, emotion, and interpersonal communication
    • Burleson, B.R. (2003). The experience and effects of emotional support: What the study of cultural and gender differences can tell us about close relationships, emotion, and interpersonal communication. Personal Relationships, 10, 1-23.
    • (2003) Personal Relationships , vol.10 , pp. 1-23
    • Burleson, B.R.1
  • 12
    • 0029850680 scopus 로고    scopus 로고
    • The gender division of labour and family change in industrial societies: A theoretical accounting
    • Chafetz, J.S., & Hagan, J. (1996). The gender division of labour and family change in industrial societies: A theoretical accounting. Journal of Comparative Family Studies, 27, 187-219.
    • (1996) Journal of Comparative Family Studies , vol.27 , pp. 187-219
    • Chafetz, J.S.1    Hagan, J.2
  • 13
    • 85004878864 scopus 로고
    • Flow experience in the daily lives of sixth-form college students
    • Clarke, S.H., & Haworth, J.T. (1994). Flow experience in the daily lives of sixth-form college students. British Journal of Psychology, 85, 511-523.
    • (1994) British Journal of Psychology , vol.85 , pp. 511-523
    • Clarke, S.H.1    Haworth, J.T.2
  • 17
    • 84931157007 scopus 로고
    • Life themes: A theoretical and empirical exploration of their origins and effects
    • Csikszentmihalyi, M., & Beattie, O. (1979). Life themes: A theoretical and empirical exploration of their origins and effects. Journal of Humanistic Psychology, 19, 677-693.
    • (1979) Journal of Humanistic Psychology , vol.19 , pp. 677-693
    • Csikszentmihalyi, M.1    Beattie, O.2
  • 18
    • 0004074650 scopus 로고
    • Csikszentmihalyi, M., & Csikszentmihalyi, I. (Eds.). New York: Cambridge University Press
    • Csikszentmihalyi, M., & Csikszentmihalyi, I. (Eds.) (1988). Optimal experience: Psychological studies of flow in consciousness. New York: Cambridge University Press.
    • (1988) Optimal experience: Psychological studies of flow in consciousness
  • 21
    • 0003199172 scopus 로고
    • On the psychological selection of bio-cultural information
    • Csikszentmihalyi, M., & Massimini, F. (1985). On the psychological selection of bio-cultural information. New Ideas in Psychology, 3, 115-138.
    • (1985) New Ideas in Psychology , vol.3 , pp. 115-138
    • Csikszentmihalyi, M.1    Massimini, F.2
  • 24
    • 34147129038 scopus 로고    scopus 로고
    • The impact of subjective experience on the quality of life: A central issue for health professionals
    • M. Csikszentmihalyi & I. Csikszentmihalyi (Eds.), New York: Oxford University Press
    • Delle Fave, A. (2006). The impact of subjective experience on the quality of life: A central issue for health professionals. In M. Csikszentmihalyi & I. Csikszentmihalyi (Eds.), A life worth living: Contributions to positive psychology (pp. 262-290). New York: Oxford University Press.
    • (2006) A life worth living: Contributions to positive psychology , pp. 262-290
    • Delle Fave, A.1
  • 25
    • 0034251740 scopus 로고    scopus 로고
    • The quality of experience in adolescents' daily life: Developmental perspectives
    • Delle Fave, A., & Bassi, M. (2000). The quality of experience in adolescents' daily life: Developmental perspectives. Genetic, Social and General Psychology Monographs, 126, 347-367.
    • (2000) Genetic, Social and General Psychology Monographs , vol.126 , pp. 347-367
    • Delle Fave, A.1    Bassi, M.2
  • 26
    • 68349104155 scopus 로고    scopus 로고
    • Sharing optimal experiences and promoting good community life in a multicultural society
    • Delle Fave A., & Bassi M. (2009). Sharing optimal experiences and promoting good community life in a multicultural society. Journal of Positive Psychology, 4, 280-289.
    • (2009) Journal of Positive Psychology , vol.4 , pp. 280-289
    • Delle Fave, A.1    Bassi, M.2
  • 27
    • 0040784352 scopus 로고
    • Modernization and quality of daily experience in a southern Italy village
    • N. Bleichrodt & P.J.D. Drenth (Eds.), Amsterdam: Swets & Zeitlinger
    • Delle Fave, A., & Massimini, F. (1991). Modernization and quality of daily experience in a southern Italy village. In N. Bleichrodt & P.J.D. Drenth (Eds.), Contemporary issues in cross- cultural psychology (pp. 110-119). Amsterdam: Swets & Zeitlinger.
    • (1991) Contemporary issues in cross- cultural psychology , pp. 110-119
    • Delle Fave, A.1    Massimini, F.2
  • 28
    • 84954232845 scopus 로고    scopus 로고
    • Bringing subjectivity into focus: Optimal experience, life themes, and person-centered rehabilitation
    • P.A. Linley & S. Joseph (Eds.), New York: Wiley
    • Delle Fave, A., & Massimini, F. (2004a). Bringing subjectivity into focus: Optimal experience, life themes, and person-centered rehabilitation. In P.A. Linley & S. Joseph (Eds.), Positive psychology in practice (pp. 581-597). New York: Wiley.
    • (2004) Positive psychology in practice , pp. 581-597
    • Delle Fave, A.1    Massimini, F.2
  • 29
    • 1242299109 scopus 로고    scopus 로고
    • Parenthood and the quality of experience in daily life: A longitudinal study
    • Delle Fave, A., & Massimini, F. (2004b). Parenthood and the quality of experience in daily life: A longitudinal study. Social Indicators Research, 67, 75-106.
    • (2004) Social Indicators Research , vol.67 , pp. 75-106
    • Delle Fave, A.1    Massimini, F.2
  • 30
    • 67649276496 scopus 로고    scopus 로고
    • The relevance of subjective wellbeing to social policies: Optimal experience and tailored intervention
    • F. Huppert, B. Keverne, & N. Baylis (Eds.), Oxford: Oxford University Press
    • Delle Fave, A., & Massimini, F. (2005a). The relevance of subjective wellbeing to social policies: Optimal experience and tailored intervention. In F. Huppert, B. Keverne, & N. Baylis (Eds.), The science of wellbeing (pp. 379-404). Oxford: Oxford University Press.
    • (2005) The science of wellbeing , pp. 379-404
    • Delle Fave, A.1    Massimini, F.2
  • 31
    • 27744501746 scopus 로고    scopus 로고
    • The investigation of optimal experience and apathy: Developmental and psychosocial implications
    • Delle Fave, A., & Massimini, F. (2005b). The investigation of optimal experience and apathy: Developmental and psychosocial implications. European Psychologist, 10, 264-274.
    • (2005) European Psychologist , vol.10 , pp. 264-274
    • Delle Fave, A.1    Massimini, F.2
  • 34
    • 0020046838 scopus 로고
    • The biopsychosocial model and medical education
    • Engel, G.L. (1982). The biopsychosocial model and medical education. New England Journal of Medicine, 306, 802-805.
    • (1982) New England Journal of Medicine , vol.306 , pp. 802-805
    • Engel, G.L.1
  • 35
    • 0034391896 scopus 로고    scopus 로고
    • Measurement issues in health-related quality of life: Challenges for health psychology
    • Fitzpatrick, R. (2000). Measurement issues in health-related quality of life: Challenges for health psychology. Psychology & Health, 15, 99-108.
    • (2000) Psychology & Health , vol.15 , pp. 99-108
    • Fitzpatrick, R.1
  • 38
    • 84986720744 scopus 로고
    • Challenge, skill and positive subjective states in the daily life of a sample of YTS students
    • Haworth, J.J., & Evans, S. (1995). Challenge, skill and positive subjective states in the daily life of a sample of YTS students. Journal of Occupational and Organizational Psychology, 68, 109-121.
    • (1995) Journal of Occupational and Organizational Psychology , vol.68 , pp. 109-121
    • Haworth, J.J.1    Evans, S.2
  • 40
    • 0031811396 scopus 로고    scopus 로고
    • Some psychosocial aspects of nonlethal chondrodysplasias: I. Assessment using a life-styles questionnaire
    • Hunter, A.G.W. (1998a). Some psychosocial aspects of nonlethal chondrodysplasias: I. Assessment using a life-styles questionnaire. American Journal of Medical Genetics, 78, 1-8.
    • (1998) American Journal of Medical Genetics , vol.78 , pp. 1-8
    • Hunter, A.G.W.1
  • 41
    • 0031811286 scopus 로고    scopus 로고
    • Some psychosocial aspects of nonlethal chondrodysplasias: II. Depression and anxiety
    • Hunter, A.G.W. (1998b). Some psychosocial aspects of nonlethal chondrodysplasias: II. Depression and anxiety. American Journal of Medical Genetics, 78, 9-12.
    • (1998) American Journal of Medical Genetics , vol.78 , pp. 9-12
    • Hunter, A.G.W.1
  • 42
    • 0031811397 scopus 로고    scopus 로고
    • Some psychosocial aspects of nonlethal chondrodysplasias: V. Assessment of personal social support using the personal resource questionnaire
    • Hunter, A.G.W. (1998c). Some psychosocial aspects of nonlethal chondrodysplasias: V. Assessment of personal social support using the personal resource questionnaire. American Journal of Medical Genetics, 78, 22-24.
    • (1998) American Journal of Medical Genetics , vol.78 , pp. 22-24
    • Hunter, A.G.W.1
  • 44
    • 0033612871 scopus 로고    scopus 로고
    • The myth of disability in developing nations
    • Ingstad, B. (1999). The myth of disability in developing nations. The Lancet, 354, 757-758.
    • (1999) The Lancet , vol.354 , pp. 757-758
    • Ingstad, B.1
  • 45
    • 84859623698 scopus 로고    scopus 로고
    • ISTAT (Istituto Nazionale di Statistica). Demografia. downloaded 22 October
    • ISTAT (Istituto Nazionale di Statistica). Demografia. downloaded 22 October 2010.
    • (2010)
  • 46
    • 34247854933 scopus 로고    scopus 로고
    • Health status of adults with short-stature: A comparison with the normal population and one well-known chronic disease (Rheumatoid Arthritis). Orphanet Journal of Rare Disease, 2:10 doi:10.1186/1750-1172-2-10
    • Johansen, H., Andresen, I.L., Naes, E.E., & Birger Hagen, K. (2007). Health status of adults with short-stature: A comparison with the normal population and one well-known chronic disease (Rheumatoid Arthritis). Orphanet Journal of Rare Disease, 2:10 doi:10.1186/1750-1172-2-10.
    • (2007)
    • Johansen, H.1    Andresen, I.L.2    Naes, E.E.3    Birger Hagen, K.4
  • 47
    • 0034841026 scopus 로고    scopus 로고
    • Consequences of disease: Testing the WHO International Classification of Impairments, Disabilities and Handicaps (ICIDH) model
    • Johnston, M., & Pollard, B. (2001). Consequences of disease: Testing the WHO International Classification of Impairments, Disabilities and Handicaps (ICIDH) model. Social Science & Medicine, 53, 1261-1273.
    • (2001) Social Science & Medicine , vol.53 , pp. 1261-1273
    • Johnston, M.1    Pollard, B.2
  • 49
    • 2342430114 scopus 로고    scopus 로고
    • Narrating intersections of gender and dwarfism in everyday spaces
    • Kruse, R.J. II. (2003). Narrating intersections of gender and dwarfism in everyday spaces. Canadian Geographer, 47, 494-508.
    • (2003) Canadian Geographer , vol.47 , pp. 494-508
    • Kruse II, R.J.1
  • 50
    • 0001967304 scopus 로고
    • Analysing experience sampling data: A guidebook for the perplexed
    • M. deVries (Ed.), Cambridge: Cambridge University Press
    • Larson, R., & Delespaul, P. (1992). Analysing experience sampling data: A guidebook for the perplexed. In M. deVries (Ed.), The experience of psychopathology (pp. 58-78). Cambridge: Cambridge University Press.
    • (1992) The experience of psychopathology , pp. 58-78
    • Larson, R.1    Delespaul, P.2
  • 53
    • 84954214667 scopus 로고    scopus 로고
    • Linley, P.A., & Joseph, S. (Eds.). London: Wiley & Sons
    • Linley, P.A., & Joseph, S. (Eds.) (2004). Positive psychology in practice. London: Wiley & Sons.
    • (2004) Positive psychology in practice
  • 55
    • 85047676907 scopus 로고    scopus 로고
    • Individual development in a bio-cultural perspective
    • Massimini, F., & Delle Fave, A. (2000). Individual development in a bio-cultural perspective. American Psychologist, 55, 24-33.
    • (2000) American Psychologist , vol.55 , pp. 24-33
    • Massimini, F.1    Delle Fave, A.2
  • 56
    • 0036804065 scopus 로고    scopus 로고
    • Barriers, facilitators and access for wheelchair users: Substantive and methodologic lessons from a pilot study of environmental effects
    • Meyers, A.R., Anderson, J.J., Miller, D.R., Shipp, K., & Hoenig H. (2002). Barriers, facilitators and access for wheelchair users: Substantive and methodologic lessons from a pilot study of environmental effects. Social Science & Medicine, 55, 1435-1446.
    • (2002) Social Science & Medicine , vol.55 , pp. 1435-1446
    • Meyers, A.R.1    Anderson, J.J.2    Miller, D.R.3    Shipp, K.4    Hoenig, H.5
  • 57
    • 85047677376 scopus 로고    scopus 로고
    • The funds, friends, and faith of happy people
    • Myers, D.G. (2000). The funds, friends, and faith of happy people. American Psychologist, 55, 56-67.
    • (2000) American Psychologist , vol.55 , pp. 56-67
    • Myers, D.G.1
  • 58
    • 85008834256 scopus 로고    scopus 로고
    • The experience of everyday occupations and its relation to sense of coherence-a methodological study
    • Persson, D., Eklund, M., & Isacsson, Å. (1999). The experience of everyday occupations and its relation to sense of coherence-a methodological study. Journal of Occupational Science, 6, 13-26.
    • (1999) Journal of Occupational Science , vol.6 , pp. 13-26
    • Persson, D.1    Eklund, M.2    Isacsson, A.3
  • 59
    • 85043751872 scopus 로고    scopus 로고
    • Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being
    • Ryan, R.M., & Deci, E.L. (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist, 55, 68-78.
    • (2000) American Psychologist , vol.55 , pp. 68-78
    • Ryan, R.M.1    Deci, E.L.2
  • 61
    • 0034940310 scopus 로고    scopus 로고
    • Re-examining the psychology of spinal cord injury: A meaning-centered approach from a cultural perspective
    • Saravanan, B., Manigandam, C., Macaden, A., Tharion, G., & Bhattacharji, S. (2001). Re-examining the psychology of spinal cord injury: A meaning-centered approach from a cultural perspective. Spinal Cord, 39, 323-326.
    • (2001) Spinal Cord , vol.39 , pp. 323-326
    • Saravanan, B.1    Manigandam, C.2    Macaden, A.3    Tharion, G.4    Bhattacharji, S.5
  • 62
    • 12544250445 scopus 로고    scopus 로고
    • Experience sampling: Promises and pitfalls, strengths and weaknesses
    • Scollon, C., Kim-Prieto, C., & Diener, E. (2003). Experience sampling: Promises and pitfalls, strengths and weaknesses. Journal of Happiness Studies, 4, 5-34.
    • (2003) Journal of Happiness Studies , vol.4 , pp. 5-34
    • Scollon, C.1    Kim-Prieto, C.2    Diener, E.3
  • 64
    • 0034015411 scopus 로고    scopus 로고
    • Revision of the International Classification of Impairments, Disabilities, and Handicaps: Developmental issues
    • Simeonsson, R.J., Lollar, D., Hollowell, J., & Adams, M. (2000). Revision of the International Classification of Impairments, Disabilities, and Handicaps: Developmental issues. Journal of Clinical Epidemiology, 53, 113-124.
    • (2000) Journal of Clinical Epidemiology , vol.53 , pp. 113-124
    • Simeonsson, R.J.1    Lollar, D.2    Hollowell, J.3    Adams, M.4
  • 65
    • 37849049936 scopus 로고    scopus 로고
    • Medical and social aspects of the life course for adults with a skeletal dysplasia: A review of current knowledge
    • Thompson, S., Shakespeare, T., & Wright, M.J. (2008). Medical and social aspects of the life course for adults with a skeletal dysplasia: A review of current knowledge. Disability and Rehabilitation, 30, 1-12.
    • (2008) Disability and Rehabilitation , vol.30 , pp. 1-12
    • Thompson, S.1    Shakespeare, T.2    Wright, M.J.3
  • 67
    • 0036313716 scopus 로고    scopus 로고
    • Why social policy needs subjective indicators
    • Veenhoven, R. (2002). Why social policy needs subjective indicators. Social Indicators Research, 58, 33-45.
    • (2002) Social Indicators Research , vol.58 , pp. 33-45
    • Veenhoven, R.1
  • 68
    • 51449099401 scopus 로고    scopus 로고
    • The population-based prevalence of achondroplasia and thanatophoric dysplasia in selected regions of the US
    • Waller, D.K., Correa, A., Vo, T.M., Wang, Y., Hobbs, C., Langlois, P.H. etal. (2008). The population-based prevalence of achondroplasia and thanatophoric dysplasia in selected regions of the US. American Journal of Medical Genetics Annals, 146A(18), 2385-2389.
    • (2008) American Journal of Medical Genetics Annals , vol.146 , Issue.18 , pp. 2385-2389
    • Waller, D.K.1    Correa, A.2    Vo, T.M.3    Wang, Y.4    Hobbs, C.5    Langlois, P.H.6
  • 69
    • 0014265927 scopus 로고
    • The problems of midgets and dwarfs and organizational remedies: A study of the Little People of America
    • Weinberg, M.S. (1988). The problems of midgets and dwarfs and organizational remedies: A study of the Little People of America. Journal of Health and Social Behavior, 9(1), 65-71.
    • (1988) Journal of Health and Social Behavior , vol.9 , Issue.1 , pp. 65-71
    • Weinberg, M.S.1
  • 70
    • 84859623700 scopus 로고    scopus 로고
    • World Health Organization. Towards a language for functioning, disability and health
    • World Health Organization. (2002). Towards a language for functioning, disability and health.
    • (2002)


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.