The experience of being an 'extracorporeal membrane oxygenation' relative within the CESAR trial

Nursing in Critical Care

Volumn 17, Issue 1, 2012, Pages 9-18

  Harris Fox, Samantha ^a  

^a GLENFIELD HOSPITAL   (United Kingdom)

Author keywords

Adult intensive care; Clinical research; Family care in critical care

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; EXTRACORPOREAL OXYGENATION; FAMILY; HUMAN; HUMAN RELATION; MENTAL STRESS; NEEDS ASSESSMENT; NURSING METHODOLOGY RESEARCH; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; RANDOMIZED CONTROLLED TRIAL; RANDOMIZED CONTROLLED TRIAL (TOPIC); RETROSPECTIVE STUDY; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADULT; EXTRACORPOREAL MEMBRANE OXYGENATION; FAMILY; HUMANS; NEEDS ASSESSMENT; NURSING METHODOLOGY RESEARCH; PROFESSIONAL-FAMILY RELATIONS; QUALITATIVE RESEARCH; RANDOMIZED CONTROLLED TRIALS AS TOPIC; RETROSPECTIVE STUDIES; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 84859225111     PISSN: 13621017     EISSN: 14785153     Source Type: Journal    
DOI: 10.1111/j.1478-5153.2011.00452.x     Document Type: Article

References (55)

1. Al-Hassan MA, Hweidi IM. (2004). The perceived needs of Jordanian families of hospitalised critically ill patients. International Journal of Nursing Practice; 10: 64-71.
2. Appleton JV. (1995). Analysing qualitative data: addressing issues of validity and reliability. Journal of Advanced Nursing; 23: 441-447.
3. Audit Commission. (1993). What Seems to Be the Matter: Communication Between Hospital and Patients. London: HMSO.
4. Auerbach SM, Kiesler DJ, Wartella J, Rausch S. (2005). Optimism, satisfaction with needs met, interpersonal perceptions of the health care team and emotional distress in patients family members during critical care hospitalisation. American Journal of Critical Care; 14: 202-211.
5. Aylott M. (2000). Parents' experience of their child's extracorporeal membrane oxygenation: a qualitative study. Nursing in Critical Care; 5: 228-235.
6. Banks-Wallace J. (1998). Emancipatory potential of story telling in a group. IMAGE: Journal of Nursing Scholarship; 30: 17-21.
7. Beauchamp TL, Childress JF. (1994). Principles of Biomedical Ethics, 4th edn. New York: Oxford University Press.
8. Blacher RS. (1997). The psychological and psychiatric consequences of the ICU stay. European Journal of Anaesthesiology; 14: 45-47.
9. Bokinskie JC. (1992). Family conferences: a method to diminish transfer anxiety. Journal of Neuroscience Nursing; 24: 129-133.
10. Bowman KW. (2000). Communication, negotiation and mediation: dealing with conflict in end of life decisions. Journal of Palliative Care; 16: 517-523.
11. Broomhead LR, Brett SJ. (2002). Clinical review: intensive care follow-up what has it told us. Critical Care; 6: 411-417.
12. Chaboyer W, Grace J. (2003). Following the path of ICU survivors: a quality improvement activity. Nursing in Critical Care; 8: 149-155.
13. Charmaz K. (1990). Discovering chronic illness: using grounded theory. Social Science and Medicine; 30: 1161-1172.
14. Charmaz, K. (2000). Grounded theory: objectivist and constructivist methods. In: Denzin NK, Lincoln YS, (eds), Handbook of Qualitative Research, 2nd edn. Thousand Oaks: Sage.
15. Department of Health. (2000). Comprehensive Critical Care: a Review of Adult Critical Care Services. London: The Stationary Office.
16. Fleury J, Moore SM. (1999). Family centred care after acute myocardial infarction. Journal of Cardiovascular Nursing; 13: 73-82.
17. Fontana A, Frey JH. (1994). Interviewing: the art of science. In: Denzin N, Lincoln Y, (eds), Handbook of Qualitative Research. London: Sage.
18. Fontes Pinto Novaes MA, Knobel E, Bork MA, Pavao OF, Nogueira-Martins LA, Bosi Ferraz M. (1999). Stressors in ICU- perception of the patient, relatives and health care team. Intensive Care Medicine; 25: 1421-1426.
19. Frazier P, Berman M, Steward J. (2001). Perceived control and post traumatic stress: a temporal model. Applied Preventative Psychology; 10: 207-223.
20. Geary SM. (1994). Intensive care psychosis revisited: understanding and managing delirium in the critical care setting. Critical Care Nurse; 17: 51-63.
21. Grassley JS, Nelms TP. (2009). Tales of resistance and other emancipatory functions of story telling. Journal of Advanced Nursing; 65: 2447-2453.
22. Hammond F. (1995). Involving families in care within intensive care environment: a descriptive study. Intensive Care Nursing; 11: 256-264.
23. Harris SJ. (2002). Nurses views on withdrawing ECMO: a grounded theory study. Nursing in Critical Care; 7: 144-151.
24. Holden J, Harrison L, Johnson M. (2002). Families, nurses and intensive care patients: a review of the literature. Journal of Clinical Nursing; 11: 140-148.
25. Hughes F, Bryan K, Robbins I. (2005). Relatives experiences of critical care. Nursing in Critical Care; 10: 23-29.
26. Hupcey JE. (1999). Looking out for the patient and ourselves - the process of family integration into the ICU. Journal of Clinical Nursing; 8: 253-262.
27. Jones C, Griffiths RD, Macmillan RR, Palmer TEA. (1994). Psychological problems occurring after intensive care. British Journal of Intensive Care; 2: 46-53.
28. Lee RM. (1993). Doing Research on Sensitive Topics. London: Sage.
29. Leith BA. (1999). Patients' and family members of perceptions of transfer from intensive care. Heart and Lung; 28: 210-218.
30. Liehr PR, Smith MJ. (2008). Story telling. In: Middle Range Theory for Nursing, 2nd edn. New York: Springer.
31. Lincoln YS, Guba EG. (2000). Paradigmatic controversies, contradictions and emerging confluences. In: Denzin N, Lincoln JS, (eds), Handbook of Qualitative Research. Thousand Oaks: Sage Publications.
32. Mason SA, Allmark PJ. (2000). Obtaining informed consent to neonatal randomized controlled trials: interviews with parents clinicians in the Euricon study. Lancet; 356: 2045-2051.
33. McClowry SG. (1992). Family functioning during a critical illness: a systems theory perspective. Critical Care Nursing Clinics of North America; 4: 559-564.
34. Molter NC. (1979). Needs of relatives of critically ill patients: a descriptive study. Heart and Lung; 8: 229-232.
35. Mulla H, Lawson G, McCormack P, Firmin RK, Upton DR. (2003). Pharmacokinetics of midazolam in neonates receiving extracorporeal membrane oxygenation. Anesthesiology; 99: 275-282.
36. Patton MQ. (1990). Qualitative Evaluation and Research Methods. Newbury Park: Sage.
37. Pavis S, Cunningham-Burley S, Amos A. (1996). Young people and smoking: exploring meaning and social context. Social Science in Health; 2: 228-243.
38. Peek GJ, Clemens F, Elbourne D, Firmin R, Hardy P, Hibbert C, Killer H, Mugford M, Thalanany M, Tiruvoipati R, Truesdale A, Wilson A. (2006). BMC Health Service Research; 6: 163.
39. Peek GJ, Mugford M, Tiruvoipati R, Wilson A, Allen E, Thalanany MM, Hibbert CL, Truesdale A, Clemens F, Cooper N, Firmin RK, Elbourne D, CESAR Trial Collaboration. (2009). Efficacy and economic assessment of conventional ventilatory support versus extracorporeal membrane oxygenation for severe adult respiratory failure (CESAR): a multicentre randomised controlled trial. Lancet; 374: 1351-1363.
40. Pochard F, Azoulay E, Chevret S, Lemaire F, Hubert P, Canoui P, Grassin M, Zittoun R, Le Gall JR, Dhainaut JF, Schlemmer B. (2001). Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision making capacity. Critical Care Medicine; 29: 1893-1897.
41. Porter S. (1996). Qualitative research. In: Cormack DFS, (eds), The Research Process in Nursing, 3rd edn. Edinburgh: Blackwell Science.
42. Rattray J, Crocker C. (2007). The intensive care follow-up clinic: current provision and future direction. Nursing in Critical Care; 12: 1-3.
43. Roberts BL. (2001). Managing delirium in adult intensive care patients. Critical Care Nurse; 21: 48-55.
44. Roberts BL. (2004). Screening for delirium in an adult intensive care unit. Intensive and Critical Care Nursing; 20: 206-213.
45. Smith K, Biley F. (1997). Understanding grounded theory: principles and evaluation. Nurse Researcher; 4: 17-30.
46. Strauss A, Corbin J. (1998). Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. Thousand Oaks: Sage.
47. Strauss A, Corbin J. (2008). Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory Research. Thousand Oaks: Sage Publications.
48. Too SK. (1996). Issues in qualitative research: practical experiences in the field. Nurse Researcher; 3: 80-91.
49. Van Horn E, Tesh A. (2000). The effect of critical care hospitalisation on family members: stress and responses. Dimensions of Critical Care Nursing; 19: 40-49.
50. Viejo A, Swoboda SM, Lipsett PA. (2002). Impact of a prolonged surgical critical illness on patients families. American Journal of Critical Care; 5: 459-469.
51. Walters AJ. (1995). A hermeneutic study of the experience of relatives of critically ill patients. Journal of Advanced Nursing; 22: 998-1005.
52. Wilkinson P. (1995). A qualitative study to establish the self perceived needs of family members of patients in a general intensive care unit. Intensive and Critical Care Nursing; 11: 77-86.
53. William R, Harris S, Randall L, Nichols R, Brown S. (2003). A bereavement aftercare service for intensive care relatives and staff: the story so far. Nursing in Critical Care; 8: 109-115.
54. Zainal G, Scholes J. (1997). Adapting to crisis: the relatives experience of intensive care and the nurses therapeutic role with the family. In: William CMA, (ed), The identification of family members contribution to patients care in the intensive care unit: A naturalistic enquiry. Nursing in Critical Care; 10: 6-14.
55. Zwischenberger JB, Bartlett RH. (2005). Extracorporeal life support: an overview. In: Meurs KV, Lally KP, Peek G, Zwischenberger JB, (eds), ECMO Extracorporeal Cardiopulmonary Support in Critical Care, 3rd edn. Ann Arbor: Extracorporeal Life Support Organization.