A qualitative study of professional and client perspectives on information flows and decision aid use

BMC Medical Informatics and Decision Making

Volumn 12, Issue 1, 2012, Pages

  Stirling, Christine ^a   Lloyd, Barbara ^a   Scott, Jenn ^a   Abbey, Jenny ^a   Croft, Toby ^b   Robinson, Andrew ^a  

^a UNIVERSITY OF TASMANIA   (Australia)

^b ROYAL HOBART HOSPITAL   (Australia)

Author keywords

Aged care; Carers; Decision making; Dementia; Qualitative

Indexed keywords

AGED; ARTICLE; ATTITUDE TO HEALTH; CAREGIVER; COMMUNITY CARE; DECISION SUPPORT SYSTEM; DEMENTIA; ELDERLY CARE; FEMALE; HUMAN; HUMAN RELATION; INFORMATION DISSEMINATION; INFORMATION PROCESSING; INTERVIEW; MALE; PATHOPHYSIOLOGY; PATIENT CARE; PROFESSIONAL STANDARD; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; RESPITE CARE; SPOUSE;

AGED; ATTITUDE TO HEALTH; CAREGIVERS; COMMUNITY HEALTH SERVICES; CONTINUITY OF PATIENT CARE; DECISION SUPPORT TECHNIQUES; DEMENTIA; FEMALE; FOCUS GROUPS; HEALTH SERVICES FOR THE AGED; HUMANS; INFORMATION DISSEMINATION; INTERVIEWS AS TOPIC; MALE; PROFESSIONAL ROLE; PROFESSIONAL-FAMILY RELATIONS; QUALITATIVE RESEARCH; RESPITE CARE; SPOUSES;

EID: 84858976861     PISSN: None     EISSN: 14726947     Source Type: Journal    
DOI: 10.1186/1472-6947-12-26     Document Type: Review

References (39)

1. Paternalism or partnership? Patients have grown-up and there's no going back. Coulter A, BMJ 1999 319 719 720 10.1136/bmj.319.7212.719 10487980
2. Studying delays in breast cancer diagnosis and treatment: critical realism as a new foundation for inquiry. Angus J, Miller K, Pulfer T, McKeever P, Oncol Nurs Forum 2006 33 62 E70 10.1188/06.ONF.E62-E70 16858449
3. Publics, patients, citizens, consumers? Power and decision making in primary health care. Callaghan GD, Wistow G, Public Admin 2006 84 583 601 10.1111/j.1467-9299.2006.00603.x (Pubitemid 44227618)
4. Power imbalance between nurses and patients: a potential inhibitor of partnership in care. Henderson S, J Clin Nurs 2003 12 501 508 10.1046/j.1365-2702.2003.00757.x 12790863 (Pubitemid 37260201)
5. 2008, 'Arduous implementation: does the normalisation process model explain why it's so difficult to embed decision support technologies for patients in routine clinical practice'. Elwyn G, Legare F, van der Wijden T, Edwards A, May C, Implement Sci 2011 3 57 doi:10.1186/1748-5908-3-57
6. Barriers and facilitators to to implementing shared decision-making in clinical practice: a systematic review of health professionals' perceptions. Gravel K, Legare F, Graham I, Implement Sci 2006 1 16 10.1186/1748-5908-1-16 16899124
7. Decision aids for people facing health treatment or screening decisions. O'Connor A, Bennett C, Stacey D, Barry M, Col N, Eden K, Entwistle V, Fiset V, Holmes-Rovner M, Khangura S, Llewellyn-Thomas H, Rovner D, Cochrane Db Syst Rev 2009 doi: 10.1002/14651858.CD001431.pub2
8. Physicians' intentions and use of three patient decision aids. Graham I, Logan J, Bennett C, Presseau J, O'Connor A, Mitchell S, Tetroe J, Cranney A, Hebert P, Aaron S, BMC Med Inform and Decis Making 2007 7 1 10.1186/1472-6947-7- 1 (Pubitemid 46169622)
9. Decision aids for respite service choices by carers of people with dementia: development and pilot RCT. Stirling C, Leggett S, Lloyd B, Scott J, Blizzard L, Quinn S, Robinson A, BMC Med Inform and Decis Making 2012 12 1 21 10.1186/1472-6947-12-21
10. Effect of the meeting centres support program on informal carers of people with dementia: results from a multi-centre study. Droes R, Meiland FJM, Schmitz MJ, van Tilburg W, Aging Ment Health 2006 10 2 112 124 10.1080/13607860500310682 16517486 (Pubitemid 43355121)
11. Unmet care needs and key outcomes in Dementia. Gaugler JE, Kane RL, Kane RA, Newcomer R, J Am Geriatr Soc 2005 53 12 2098 2105 10.1111/j.1532-5415.2005. 00495.x 16398893 (Pubitemid 43001189)
12. Why caregivers of people with dementia and memory loss don't use services. Brodaty H, Thomson C, Thompson C, Fine M, Int J Geriatr Psych 2005 20 537 546 10.1002/gps.1322 (Pubitemid 40873346)
13. Depressive disorders in care givers of dementia: a systematic review. Cuijpers P, Aging Ment Health 2005 9 325 330 10.1080/13607860500090078 16019288 (Pubitemid 40895843)
14. Australian Institute of Health and Welfare, Dementia in Australia: National data analysis and development Canberra: AIHW 2007
15. Dementia care: mental health effects, intervention strategies, and clinical implications. Sorenson S, Duberstein P, Gill D, Pinquart M, Lancet Neurol 2006 5 961 973 10.1016/S1474-4422(06)70599-3 17052663 (Pubitemid 44556552)
16. A multinational review of recent trends and reports in dementia caregiver burden. Torti FM, Gwyther LP, Reed SD, Friedman JY, Schulman KA, Alzheimer Dis Assoc Disord 2004 18 99 109 10.1097/01.wad.0000126902.37908.b2 15249854 (Pubitemid 38737785)
17. Evaluation of an information booklet for caregivers of people with dementia: an Australian perspective. Chang E, Easterbrook S, Hancock K, Johnson A, Davidson P, Nurs Health Sci 2010 12 1 45 51 10.1111/j.1442-2018.2009.00486.x 20487325
18. Stirling C, Lloyd B, Vickers J, Croft T, Turner P, Abbey J, Robinson A, The GOLD Book for carers: guiding options for life with dementia Hobart: Wicking Dementia Research and Education Centre 2009
19. Validation of a decisional conflict scale. O'Connor A, Med Decis Making 1995 15 1 25 30 10.1177/0272989X9501500105 7898294
20. Contextual or general stress outcomes: making choices through caregiving appraisals. Braithwaite V, Gerontologist 2000 40 706 717 10.1093/geront/40.6.706 11131087 (Pubitemid 32010255)
21. Caregiver burden among dementia patient caregivers: a review of the literature. Etters L, Goodall D, Harrison BE, J Am Acad Nurse Pract 2008 20 423 428 10.1111/j.1745-7599.2008.00342.x 18786017
22. Can burdened caregivers be effective facilitators of elder care-recipient health care? Greenberger H, Litwin H, J Adv Nurs 2003 41 332 341 10.1046/j.1365-2648.2003.02531.x 12581098 (Pubitemid 37255964)
23. Power in telephone-advice nursing. Leppänen V, Nursing Inquiry 2010 17 15 26 10.1111/j.1440-1800.2009.00480.x 20137027
24. Modeling a dynamic decision process: supporting the decisions of caregivers of family members with Dementia. Wackerbarth S, Qual Health Res 1999 9 3 294 314 10.1177/104973299129121875
25. Carers' knowledge of dementia, their coping strategies and morbidity. Graham C, Ballard C, Sham P, Int J Geriatr Psych 1997 12 931 936 10.1002/(SICI)1099-1166(199709)12:9<931::AID-GPS666>3.0.CO;2-8 (Pubitemid 27420574)
26. When a little knowledge is a dangerous thing.: a study of carers' knowledge about dementia, preferred coping style and psychological distress. Proctor R, Martin C, Hewison J, Int J Geriatr Psych 2002 17 1133 1139 10.1002/gps.762 (Pubitemid 35469221)
27. Delany C, Molloy E, Clinical education in the health professions Chatswood: Elsevier 2009
28. Testing twigg and atkin's typology of caring: a study of primary care professionals' perceptions of dementia care using a modified focus group method. Manthorpe J, Iliffe S, Eden A, Health Soc Care Community 2003 11 477 485 10.1046/j.1365-2524.2003.00453.x 14629578 (Pubitemid 38422648)
29. Counselling supervision and the production of professional selves. Crocket K, Couns Psychotherapy Res 2007 7 1 19 25 10.1080/14733140601140402
30. Burnard P, Effective communication for health professionals Cheltenham UK: Nelson Thornes 1997
31. Family care-giving for people with dementia: some implications for policy and professional practice. Clarke CL, J Adv Nurs 1999 29 712 720 10.1046/j.1365-2648.1999.00940.x 10210470
32. Ambiguous gain: Uncertain benefits of service use for dementia carers. Lloyd B, Stirling C, Sociol Health Ill 2011 Mar 4. doi: 10.1111/j.1467-9566. 2010.01332.x.
33. How do we facilitate carers' involvement in decision making? Walker E, Dewar BJ, J Adv Nurs 2001 34 329 337 10.1046/j.1365-2648.2001.01762.x 11328438 (Pubitemid 33612941)
34. Positioning Theory. Harre R, The Sage Dictionary of Social Research Methods London: Sage, Jupp V, 2006
35. Heaton J, Reworking qualitative data London: Sage 2004
36. Situational analyses: grounded theory after the postmodern turn. Clarke A, Symb Interact 2003 26 553 576 10.1525/si.2003.26.4.553 (Pubitemid 38148787)
37. Physicians' reactions to uncertainty in the context of shared decision making. Politi MC, Legare F, Patient Educ Couns 2010 80 155 157 10.1016/j.pec.2009.10.030 19948387
38. Qualitative research and the generalizability question: Standing firm with Proteus. Myers M, The Qualitative Report [On-line serial] 2000 4 3/4 http://www.nova.edu/ssss/QR/QR4-1/myers.html
39. Understanding treatment decision-making: contexts, commonlaities, complexities, and challenges. Blank T, Graves K, Sepucha K, Llewellyn-Thomas H, Ann Behav Med 2006 32 211 217 10.1207/s15324796abm3203-6 17107293 (Pubitemid 44906934)