Lived experiences of Iranian family member caregivers of persons with Alzheimer's disease: Caring as 'captured in the whirlpool of time'

Journal of Clinical Nursing

Volumn 21, Issue 7-8, 2012, Pages 1078-1086

  Navab, Elham ^a   Negarandeh, Reza ^a   Peyrovi, Hamid ^a  

^a TEHRAN UNIVERSITY OF MEDICAL SCIENCES   (Iran)

Author keywords

Dementia care; Iran; Nurses; Nursing; Phenomenological hermeneutics; Qualitative study

Indexed keywords

ALZHEIMER DISEASE; ARTICLE; CAREGIVER; FEMALE; HOME CARE; HUMAN; INTERVIEW; IRAN; LIFE EVENT; LONELINESS; LONG TERM CARE; MALE; MENTAL STRESS; NEEDS ASSESSMENT; NURSING; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUALITY OF LIFE; SOCIAL ISOLATION; SOCIAL SUPPORT;

ALZHEIMER DISEASE; CAREGIVERS; FEMALE; HOME NURSING; HUMANS; INTERVIEWS AS TOPIC; IRAN; LIFE CHANGE EVENTS; LONELINESS; LONG-TERM CARE; MALE; NEEDS ASSESSMENT; QUALITATIVE RESEARCH; QUALITY OF LIFE; SOCIAL ISOLATION; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 84858298963     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2011.03960.x     Document Type: Article

References (35)

1. Alzheimer's Association (2010) Alzheimer's disease: facts and figures. Alzheimer's & Dementia 6, 158-194.
2. Babamohamadi H, Negarandeh R & Dehghan-Nayeri N (2011) Coping strategies used by people with spinal cord injury: a qualitative study. Spinal Cord 49, 832-837.
3. Boggatz T & Dassen T (2005) Ageing, care dependency and care for older people in Egypt: a review of the literature. Journal of Clinical Nursing 14, 56-63.
4. Burns N & Grove SK (2007) Understanding Nursing Research: building an Evidence-Based Practice. Saunders Elsevier, St Louis, MO, USA.
5. Butcher HK, Holkup PA & Buckwalter KC (2001) The experience of caring for a family member with Alzheimer's disease. Western Journal of Nursing Research 23, 33-55.
6. Cohen D (1999) Family systems and caregiving: opportunities for research and application in the new millennium. Journal of Mental Health and Aging 5, 203-206.
7. Cohen D (2000) Caregivers for persons with Alzheimer's disease. Current Psychiatry Reports 2, 32-39.
8. Creswell JW (1998) Qualitative Inquiry and Research Design: choosing among Five Traditions. Sage, Thousand Oaks, CA, USA.
9. Evans MJ & Hallett CE (2007) Living with dying: a hermeneutic phenomenological study of the work of hospice nurses. Journal of Clinical Nursing 16, 742-751.
10. Ferri C, Prince M, Brayne C, Brodaty H, Fratiglioni L, Ganguli M, Hall K, Hasegawa K, Hendrie H, Huang Y, Jorm A, Mathers C, Menezes P, Rimmer E & Scazufca M (2006) Global prevalence of dementia: a Delphi consensus study. The Lancet 366, 2112-2117.
11. Foley KL, Tung HJ & Mutran EJ (2002) Self-gain and self-loss among African American and white caregivers. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences 57, S14-S22.
12. Furlong KE & Wuest J (2008) Self-care behaviors of spouses caring for significant others with Alzheimer's disease: the emergence of self-care worthiness as a salient condition. Qualitative Health Research 18, 1662-1672.
13. Grbich C (2007) Qualitative Data Analysis: an Introduction. Sage Publications Ltd, London.
14. Health Canada (1997) Canada health action: building on the legacy - volume II - synthesis reports and issues papers.
15. Heidegger M (1962) Being and Time. Harper and Row, New York.
16. Hinton L (2002) Improving care for ethnic minority elderly and their family caregivers across the spectrum of dementia severity. Alzheimer Disease & Associated Disorders 16, s50-s100.
17. Kabitsi N & Powers DV (2002) Spousal motivations of care for demented older adults: a cross-cultural comparison of Greek and American female caregivers. Journal of Aging Studies 16, 383-399.
18. Kitwood T (1999) Dementia reconsidered: the person comes first. British Medical Journal 318, 880.
19. Liken MA (2001) Caregivers in crisis: moving a relative with Alzheimer's to assisted living. Clinical Nursing Research 10, 52-68.
20. Lincoln YS & Guba EG (1985) Naturalistic Inquiry. Sage Publications Inc, London.
21. Morce J (1994) Critical Issues in Qualitative Research Method. Sage Publication, Thousand Oaks, CA, USA.
22. Patton MQ (2002) Qualitative Research and Evaluation Methods. Sage Publications Inc, London.
23. Pinquart M & Sorensen S (2005) Ethnic differences in stressors, resources and psychological outcomes of family caregiving: a meta-analysis. The Gerontologist 45, 90-106.
24. Rochester NY (2006) The Experiences of Alzheimer's Caregivers. Available at: (accessed 21 August 2010).
25. Salguero RH, Kohn R, Salguero LF & Marotta CA (1998) Caregivers of persons with Alzheimer's disease: cultural differences in perceived caregiver burden in Guatemala and Rhode Island. Journal of Cross-Cultural Gerontology 13, 229-240.
26. Schneider J, Murray J, Banerjee S & Mann A (1999) EUROCARE: a cross-national study of co-resident spouse carers for people with Alzheimer's disease: I - factors associated with carer burden. International Journal of Geriatric Psychiatry 14, 651-661.
27. Struebert J & Carpenter DR (2003) Qualitative Research in Nursing, 3rd edn. Lippincott, Williams &Wilkins, Philadelphia, PA, USA.
28. Svanstrom R & Dahlberg K (2004) Living with dementia yields a heteronomous and lost existence. Western Journal of Nursing Research 26, 671-687.
29. Thomas P, Chantoin Merlet S, Hazif Thomas C, Belmin J, Montagne B, Clément J, Lebruchec M & Billon R (2002) Complaints of informal caregivers providing home care for dementia patients: the Pixel study. International Journal of Geriatric Psychiatry 17, 1034-1047.
30. Van Manen M (1990) Researching Lived Experience. Human Science for Action Sensitive Pedagogy. State University of New York Press, Albany, NY, USA; Althouse, London, UK.
31. Van Manen M (1996) From meaning to method. Qualitative Health Research 7, 345-369.
32. Van Manen M (2001) Researching Lived Experience. Human Science for an Action Sensitive Pedagogy. Suny Press, London, ON, Canada.
33. Vellone E, Sansoni J & Cohen MZ (2002) The experience of Italians caring for family members with Alzheimer's disease. Journal of Nursing Scholarship 34, 323-329.
34. Wångblad C, Ekblad M, Wijk H & Ivanoff SD (2009) Experiences of physical strain during person transfer situations in dementia care units. Scandinavian Journal of Caring Sciences 23, 644-650.
35. Wu H, Wang J, Cacioppo JT, Glaser R, Kiecolt-Glaser JK & Malarkey WB (1999) Chronic stress associated with spousal caregiving of patients with Alzheimer's dementia Is associated with downregulation of B-lymphocyte GH mRNA. Journals of Gerontology. Series A, Biological Sciences and Medical Sciences 54, 212-215.