Living with dementia yields a heteronomous and lost existence

Western Journal of Nursing Research

Volumn 26, Issue 6, 2004, Pages 671-687

  Svanström, Rune ^a   Dahlberg, Karin ^a  

^a LINNAEUS UNIVERSITY   (Sweden)

Author keywords

Dementia; Experience; Heteronomous; Interview

Indexed keywords

ARTICLE; DEMENTIA; EMOTION; HEALTH CARE; HUMAN; INTERVIEW; MEDICAL RESEARCH; PHENOMENOLOGY;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; COMMUNICATION; COST OF ILLNESS; DEMENTIA; FEMALE; HUMANS; INTERNAL-EXTERNAL CONTROL; INTERPERSONAL RELATIONS; LIFE CHANGE EVENTS; LONELINESS; MALE; MEDICAL FUTILITY; MORALE; NURSING METHODOLOGY RESEARCH; QUALITY OF LIFE; QUESTIONNAIRES; SHAME; SPOUSES; SWEDEN; UNCERTAINTY;

EID: 4644316623     PISSN: 01939459     EISSN: None     Source Type: Journal    
DOI: 10.1177/0193945904265920     Document Type: Article

References (27)

1. Aguero-Torres, H., & Fratiglioni, L. (1998). Dementia is the major cause of functional dependence in the elderly: 3-year follow-up data from a population-based study. American Journal of Public Health, 88(10), 1452-1456.
2. Almberg, B., Grafström, M., & Winblad, B. (1997). Caring for a demented elderly person: Burden and burnout among caregiving relatives. Journal of Advanced Nursing, 25, 109-116.
3. Basun, H., Ekman, S.-L., Englund, E., Gustafson, L., Lannfelt, L., Nygård, L., et al. (1999). Om demens. Klinisk bild, utredning, vård, omvårdnad [About dementia. Clinical picture, investigation, care, and nursing]. Stockholm: Förlaget Hagman.
4. Bengtsson, J. (1993). Sammanflätningar, Husserls och Merleau-Pontys fenomenologi [Intertwinements, the phenomenology of Husserl and Merleau-Ponty]. Göteborg, Sweden: Bokförlaget Daidalos AB.
5. Braudy-Harris, P., & Sterin, G. J. (1999). Insider's perspective: Defining and preserving the self of dementia. Journal of Mental Health and Aging, 5(3), 241-256.
6. Cotrell, W., & Schulz, R. (1993). The perspective of the patient with Alzheimer's disease: A neglected dimension of dementia research. The Gerontologist, 33(2), 205-211.
7. Dahlberg, K., Drew, N., & Nyström, M. (2001). Reflective lifeworld research. Lund, Sweden: Studentlitteratur.
8. Giorgi, A. (1997). The theory, practice, and evaluation of the phenomenological method as a qualitative research procedure. Journal of Phenomenological Psychology. 2, 235-260.
9. Grafström, M. (1994). The experience of burden in the care of elderly persons with dementia. Unpublished doctoral dissertation, Karolinska Institute, Stockholm.
10. Holst, G. (2000). Bridging the communicative gap between a person with dementia and caregivers: A nursing perspective. Unpublished doctoral dissertation, Lund University, Sweden.
11. Johansson, L. (2001). Bokslut över 1990-talets äldreomsorg [Making up a balance sheet on the care of the elderly in the 1990s]. Nordisk Geriatrik, 1(1), 65-69.
12. Kitwood, T. (1999). En revurdering af demens-personen kommer i förste räkke [Dementia reconsidered: The person comes first]. Frederikshavn, Denmark: Dafolo Forlag.
13. Krause, A. M., Grant, L. D., & Long, B. C. (1999). Sources of stress reported by daughters of nursing home residents. Journal of Aging Studies, 13(3), 349-364.
14. Nolan, M. R., Grant, G., & Keady, J. (1996). Understanding Family Care: A multidimensional model of caring and coping. Buckingham, UK: Open University Press.
15. O'Donnell, M. E. (2000). The long grey tunnel: The day-to-day experience of spouse caregivers of people with Alzheimer's disease. Scholarly Inquiry for Nursing Practice, 4(1), 47-71.
16. Phinney, A. (1998). Living with dementia from the patient's perspective. Journal of Gerontological Nursing, 24(6), 8-15.
17. Robinson, P. (2000). Younger persons with suspected and early stage dementia: Their experiences, concerns and need for support. Unpublished licentiate dissertation, Karolinska Institute, Stockholm.
18. Sällström, C. (1994). Spouse's experiences of living with a partner with Alzheimer's disease (Dissertations New Series No. 391). Sweden: Umeå University Medical.
19. Sandberg, J. (2001). Placing a spouse in a care home for older people: (Re)-Constructing Roles and Relationships. Unpublished doctoral dissertation, Linköping University, Sweden.
20. Socialstyrelsen. (2000). Demenssjukdomarnas samhällskostnader. Äldreuppdraget [The dementia disease's cost of society, the Elderly Commission]. Stockholm: Socialstyrelsen.
21. Stuckey, J. C., Neundorfer, M. M., & Smyth, K. A. (1996). Burden and well-being: The same coin or related currency? The Gerontologist, 36(5), 686-693.
22. Svenaeus, F. (1999). The hermeneutics of medicine and the phenomenology of health: Steps towards a philosophy of medical practice. Unpublished doctoral dissertation, Linköping University, Sweden.
23. Tothill, C. (1992). Diary of a carer. Nursing Times, 88(47), 34-36.
24. Winslow, B. W., & Carter, P. (1999). Patterns of burden in wives who care for husbands with dementia. Nursing Clinics of North America, 34(2), 257-287.
25. Williams, O., Keady, J., & Nolan, M. (1995). Younger-onset Alzheimer's disease: Learning from experience of one spouse carer. Journal of Clinical Nursing, 4(1), 31-36.
26. Wuest, J., Ericson, P. K., & Stern, P. N. (1994). Becoming strangers: The changing family caregiving relationship in Alzheimer's disease. Journal of Advanced Nursing, 20, 437-443.
27. Zingmark, K. (2000). Experiences related to home in people with Alzheimer's disease (Medical Dissertation New Series No. 700). Sweden: Umeå University.