Review of symptom experiences in children and adolescents with cancer

Cancer Nursing

Volumn 35, Issue 2, 2012, Pages

  Kestler, Susan A ^a   Lobiondo Wood, Geri ^b  

^a UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON   (United States)

^b UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER   (United States)

Author keywords

Adolescents; Cancer; Children; Experiences; Symptoms

Indexed keywords

ADOLESCENT DISEASE; CANCER PAIN; CHILDHOOD CANCER; DISEASE SEVERITY; FATIGUE; HUMAN; MEDICAL LITERATURE; NAUSEA AND VOMITING; NURSE; PATIENT CARE; PRIORITY JOURNAL; REVIEW;

ADOLESCENT; CHILD; FATIGUE; HUMANS; NAUSEA; NEOPLASMS; NURSING RESEARCH; PAIN; VOMITING;

EID: 84857915016     PISSN: 0162220X     EISSN: 15389804     Source Type: Journal    
DOI: 10.1097/NCC.0b013e3182207a2a     Document Type: Review

References (72)

1. National Cancer Institute. Surveillance Epidemiology and End Results: SEER Cancer Statistics Review 1975-2006. http://seer.cancer.gov/csr/1975-2007/ index.html. Accessed April 13, 2010.
2. Hockenberry M, Hooke MC. Symptom clusters in children with cancer. Semin Oncol Nurs. 2007;23(2):152-157.
3. Docherty SL. Symptom experiences of children and adolescents with cancer. Ann Rev Nurs Res. 2003;21:123-149.
4. Forgeron PA, Finley GA, Arnaout M. Pediatric pain prevalence and parents' attitudes at a cancer hospital in Jordan. J Pain Symptom Manage. 2006;31:440-448.
5. Friedrichsdorf SJ, Finney D, Bergin M. Breakthrough pain in children with cancer. J Pain Symptom Manage. 2007;34(2):209-216.
6. Jacob E, Hesselgrave J, Sambuco G, Hockenberry M. Variations in pain, sleep, and activity during hospitalization in children with cancer. J Pediatr Oncol Nurs. 2007;24(4):208-219.
7. Jacob E, McCarthy KS, Sambuco G, Hockenberry M. Intensity, location, and quality of pain in Spanish-speaking children with cancer. Pediatr Nurs. 2008;34(1):45-52.
8. Ljungman G, Krueger A, Gordh T, Sörensen S. Pain in pediatric oncology: do the experiences of children and parents differ from those of nurses and physicians? Ups J Med Sci. 2006;111(1):87-96.
9. Spagrud LJ, Baeyer CL, Ali K, Mpofu C. Pain, distress, adult-child interaction during venipuncture in pediatric oncology: an examination of three types of venous puncture. J Pain Symptom Manage. 2008;36(2):173-184.
10. Van Cleve L, Bossert E, Beecroft P. The pain experience of children with leukemia during the first year after diagnosis. Nurs Res. 2004;53(1):1-10.
11. Zernikow B, Meyerhoff U, Michel E, Wiesel T. Pain in pediatric oncologyVchildren's and parents' perspectives. Eur J Pain. 2005;9:395-406.
12. Chiang YC, Hinds PS, Yeh CH, Yang CP. Development and psychometric testing of a Chinese version of the Fatigue Scale-Children in Taiwan. J Clin Nurs. 2008;17(9):1201-1210.
13. Chiang YC, Hinds PS, Yeh CH, et al. Reliability and validity of the Chinese version of the Fatigue Scale-Adolescent. Cancer Nurs. 2008;31(3):E1-E8.
14. Davies B, Whitsett S, Bruce A, McCarthy P. A typology of fatigue in children with cancer. J Pediatr Oncol Nurs. 2002;19(1):12-21.
15. Edwards JL, Gibson F, Richardson A, Sepion B, Ream E. Fatigue in adolescents with and following a cancer diagnosis: developing an evidence base for practice. Eur J Cancer. 2003;39:2671-2680.
16. Erickson JM, Beck SL, Christian B, et al. Patterns of fatigue in adolescents receiving chemotherapy. Oncol Nurs Forum. 2010;37(4):444-455.
17. Genc ER, Conk Z. Impact of effective nursing interventions to the fatigue syndrome in children who receive chemotherapy. Cancer Nurs. 2008;31(4): 312-317.
18. Gibson F, Garnett M, Richardson A, Edwards J, Sepion B. Heavy to carry: a survey of parents' and healthcare professionals' perceptions of cancer-related fatigue in children and young people. Cancer Nurs. 2005;28(1):27-35.
19. Hicks J, Bartholomew J, Ward-Smith P, Hutto CJ. Quality of life among childhood leukemia patients. J Pediatr Oncol Nurs. 2003;20(4):192-200.
20. Hinds PS, Yang J, Gattuso JS, et al. Psychometric and Clinical Assessment of the 10-item reeducated version of the Fatigue Scale-Child instrument. J Pain Symptom Manage. 2010;39(3):572-578.
21. Hinds P, Hockenberry M, Rai SN, et al. Nocturnal awakenings, sleep environment interruptions, and fatigue in hospitalized children with cancer. Oncol Nurs Forum. 2007;34(2):393-402.
22. Hinds PS, Hockenberry M, Tong X, et al. Validity and reliability of a new instrument to measure cancer-related fatigue in adolescents. J Pain Symptom Manage. 2007;34:607-618.
23. Hockenberry M, Hinds P, Barrera P, et al. Three instruments to assess fatigue in children with cancer: the child, parent and staff perspectives. J Pain Symptom Manage. 2003;25(4):319-328.
24. Hedström M, Haglund K, Skolin I, von Essen L. Distressing events for children and adolescents with cancer: child, parents and nurse perceptions. J Pediatr Nurs. 2003;20(3):120-132.
25. Perdikaris P, Merkouris A, Patiraki E, et al. Changes in children's fatigue during the course of treatment for paediatric cancer. Intl Nurs Rev. 2008; 55(4):412-419.
26. Ream E, Gibbons F, Edwards J, Sepion B. Experience of fatigue in adolescents living with cancer. Cancer Nurs. 2006;29(4):317-326.
27. Enskär K, von Essen L. Physical problems and psychosocial function in children with cancer. Pediatr Nurs. 2008;20(3):37-41.
28. Enskär K, von Essen L. Prevalence of aspects of distress, coping, support and care among adolescents and young adults undergoing and being off cancer treatment. Eur J Oncol Nurs. 2007;11:400-408.
29. Sanford SD, Okuma PO, Pan J, et al. Gender differences in sleep, fatigue, and daytime activity in a pediatric oncology sample receiving dexamethasone. J Pediatr Psychol. 2007;33(3):298-306.
30. Whitsett S, Gudmundsdottir M, Davies B, et al. Chemotherapy-related fatigue in childhood cancer: correlates, consequences, and coping strategies. J Pediatr Oncol Nurs. 2008;25(2):86-96.
31. Phillips RW. Symptom Distress in Pediatric Oncology Patients [dissertation]. Carbondale, IL: University of Southern Illinois; 2004.
32. Yeh C-H, Chiang Y-C, Chien L-C, et al. Clinical factors associated with fatigue overtime in paediatric oncology patients receiving chemotherapy. Br J Cancer. 2008;99:23-29.
33. Zupanec S, Jones, H, Stremler R. Sleep habits and fatigue of children receiving maintenance chemotherapy for ALL and their parents. J Pediatr Oncol Nurs. 2010;27(4):217-228.
34. Baker PD, Ellett ML. Measuring nausea and vomiting in adolescents. Gastroenterol Nurs. 2007;30(1):18-28.
35. Holdsworth MT, RaischDW, Frost J. Acute and delayed nausea and emesis control in pediatric oncology patients. Cancer. 2006;106(4):931-940.
36. Dupuis LL, Taddio A, Kerr EN, Kelly A, MacKeigan L. Development and validation of the pediatric nausea assessment tool for use in children receiving antineoplastic agents. Phamacotherapy. 2006;26:1221-1231.
37. Reindl TK, Geilen W, Hartmann R, et al. Acupuncture against chemotherapy-induced nausea and vomiting in pediatric oncology. Support Care Cancer. 2006;14:172-176.
38. Baggott C, Dodd M, Kennedy C, et al. Changes in children's reports of symptom occurrence and severity during a course of myelosuppressive chemotherapy. J Pediatr Oncol Nurs. 2010;27(6):307-315.
39. Dupuis LL, Milne-Wren C, Cassidy M, et al. Symptom assessment in children receiving cancer therapy: the parents' perspective. Support Care Cancer. 2010;18:281-299.
40. Enskär K, Carlsson M, Golsäter M, Hamrin E. Symptom distress and life situation in adolescents with cancer. Cancer Nurs. 1997;20(1):23-33.
41. Morrow GR. The assessment of nausea and vomiting: past problems current issues and suggestions for future research. Cancer. 1984;53(suppl 10):2267-2278.
42. Gedaly-Duff V, Lee KA, Nail LM, et al. Pain, sleep disturbance, and fatigue in children with leukemia and their parents: a pilot study. Oncol Nurs Forum. 2006;33(3):641-646.
43. Hedström M, Ljungman G, von Essen L. Perceptions of distress among adolescents recently diagnosed with cancer. J Pediatr Hematol Oncol. 2005; 27(1):15-22.
44. Hedström M, Kreuger A, Ljungman G, et al. Accuracy of assessment of distress, anxiety and depression by physicians and nurses in adolescents recently diagnosed with cancer. Pediatr Blood Cancer. 2006;46:773-779.
45. Hockenberry MJ, Hooke MC, Gregurich M, et al. Symptom clusters in children and adolescents receiving cisplatin, doxorubicin, or ifosfamide. Oncol Nurs Forum. 2010;37(1):E16-E27.
46. McCaffrey CN. Major stressors and their effects on the well-being of children with cancer. J Pediatr Nurs. 2006;2191:59-66.
47. Moody K, Meyer M, Mancuso CA, Charlson M, Robbins L. Exploring concerns of children with cancer. Support Care Cancer. 2006;14:960-966.
48. McCorkle R, Young K. Development of a symptom distress scale. Cancer Nurs. 1978;1:373-378.
49. Pöder U, Ljungman G, von Essen L. Parents' perceptions of their children's cancer-related symptoms during treatment: a prospective, longitudinal study. J Pain Symptom Manage. 2010;40(5):661-670.
50. Rheingans JI. Relationship Between Nurses' Management of Pediatric Oncology Patients' Symptoms and Job Satisfaction [dissertation]. Tampa, FL: University of South Florida; 2007.
51. Tseng T-H, Cleeland CS, Wang X, Lin C-C. Assessing cancer symptoms in adolescents with cancer using the Taiwanese version of the M. D. Anderson symptom inventory. Cancer Nurs. 2008;31(3):E9-E16.
52. Walker AJ, Gedaly-Duff V, Miaskowski C, Nail L. Differences in symptom occurrence, frequency, intensity, and distress in adolescents prior to and one week after the administration of chemotherapy. J Pediatr Oncol Nurs. 2010;27(5):259-265.
53. Williams P, Schmideskamp J, Ridder EL, Williams AR. Symptom monitoring and dependent care during cancer treatment in children. Cancer Nurs. 2006;29(3):188-197.
54. Woodgate RL, Degner LF. "Nothing is carved in stone! ": uncertainty in children with cancer and their families. Eur J Oncol Nurs. 2002;6(4):191-202.
55. Woodgate RL, Degner LF, Yanofsky R. A different perspective to approaching cancer symptoms in children. J Pain Symptom Manage. 2003; 26(3):800-817.
56. Woodgate RL. Feeling states: a new approach to understanding how children and adolescents with cancer experience symptoms. Cancer Nurs. 2008;31(3):229-238.
57. Yeh CH, Chiang YC, Chien LC, Lin L. Symptom clustering in older Taiwanese children with cancer. Oncol Nurs Forum. 2008;35(2):273-281.
58. Hicks CL, von Baeyer CL, Spafford PA, et al. The Faces Pain Scale-Revised: toward a common measure in pediatric pain measurement. Pain. 2001;93(2):173-183.
59. Hester NO, Foster RL, Kristensen K. Measurement of pain in children: generalizability and validity of the pain ladder and the poker chip tool. In: Tyler DC, Krane EJ eds. Advances in Pain Research and Therapy: Vol 15: Pediatric Pain. New York: Raven Press; 1990.
60. Saver MC, Holeyer WL, Teller MD, Willie DJ. Assessment of postoperative pain in children and adolescents using the Adolescent Pediatric Pain Tool. Nurs Res. 1993;42:5-9.
61. Hinds PS, Hockenberry MJ, Gattuso JS, et al. Dexamethasone alters sleep and fatigue in pediatric patients with acute lymphoblastic leukemia. Cancer. 2007;110(10):2321-2330.
62. Achenbach TM. Manual for the Child Behavior Checklist/4-18 & 1991 Profile. Burlington, VT: University of Vermont, Department of Psychiatry; 1991.
63. Varni JW, Burwinkle T, Katz ER, et al. The PedsQL™ in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer. 2002;94:2090-2016.
64. Roberts RE, Vernon SW. The Center for Epidemiological Studies Depression Scale: its use in a community sample. Am J Psychiatry. 1983; 140:41-46.
65. Curt GA. Impact of fatigue on the quality of life in oncology patients. Semin Hematol. 2000;37(suppl 6):14-l7.
66. Visser M, Smets E. Fatigue, depression and quality of life in cancer patients: how are they related? Support Care Cancer. 1998;6(2):101-108.
67. Holdsworth MT, Raisch DW, Duncan MH, et al. Assessment of chemotherapy-induced emesis and evaluation of a reduced-dose intravenous ondansetron regimen in pediatric outpatients with leukemia. Ann Pharmacother. 1995;29:16-21.
68. Wong DL, Baker CM. Pain in children: comparison of assessment scales. Pediatr Nurs. 1988;14(1):8-17.
69. Cotanch P. Measuring nausea and vomiting. In: Frank-Stromberg M, ed. Instruments for Clinical Nursing Research. East Norwalk, CT: Appleton & Lange; 1988:313-3210.
70. Rhodes VA, McDaniel RW. The index of nausea, vomiting, and retching: a new format of the index of nausea and vomiting. Oncol Nurs Formu. 1999; 26:889-894.
71. Collins JJ, Devine TD, Dick GS, et al. The measurement of symptoms in young children with cancer: the validation of the Memorial Symptom Assessment Scale in children aged 7-12. J Pain Symptom Manage. 2002; 23(1):10-16.
72. Lansky LL, List MA, Lansky SB, Cohen ME, Sinks LF. Toward the development of a play performance scale for children (PPSC ). Cancer. 1985;56(suppl 7):1837-1840.