Symptom assessment in children receiving cancer therapy: The parents' perspective

Supportive Care in Cancer

Volumn 18, Issue 3, 2010, Pages 281-299

  Dupuis, L Lee ^a,b   Milne Wren, Cindy ^d   Cassidy, Marilyn ^e   Barrera, Maru ^a,b,c   Portwine, Carol ^f   Johnston, Donna L ^e   Silva, Mariana Pradier ^g   Sibbald, Cathryn ^a   Leaker, Michael ^h   Routh, Stacey ⁱ   Sung, Lillian ^a  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

^d LONDON HEALTH SCIENCES CENTRE   (Canada)

^e CHILDREN S HOSPITAL OF EASTERN ONTARIO   (Canada)

^f MCMASTER UNIVERSITY   (Canada)

^g KINGSTON GENERAL HOSPITAL   (Canada)

^h ALBERTA CHILDREN'S HOSPITAL   (Canada)

ⁱ Kingston Military Family Resource Centre   (Canada)

Author keywords

Cancer; Chemotherapy; Pediatrics; Side effects; Supportive care; Symptoms

Indexed keywords

ADULT; ARTHRALGIA; ARTICLE; CANCER CHEMOTHERAPY; CHILD; CHILDHOOD CANCER; DISEASE SEVERITY; FATIGUE; HUMAN; MOOD CHANGE; MYALGIA; PARENT; PATIENT ATTITUDE; PRIORITY JOURNAL; SOCIAL BEHAVIOR; SYMPTOMATOLOGY;

ADOLESCENT; ADULT; ANTINEOPLASTIC AGENTS; CHILD; CHILD, PRESCHOOL; FEMALE; HEARING LOSS; HUMANS; INJECTIONS, INTRAVENOUS; MALE; MENTAL DISORDERS; MOOD DISORDERS; NAUSEA; NEOPLASMS; PAIN; PARENT-CHILD RELATIONS; PARENTS; POPULATION SURVEILLANCE; QUESTIONNAIRES;

EID: 77949270326     PISSN: 09414355     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00520-009-0651-1     Document Type: Article

References (24)

1. N Carelle E Piotto A Bellanger J Germanaud A Thuillier D Khayat 2002 Changing patient perceptions of the side effects of cancer chemotherapy Cancer 95 155 163 10.1002/cncr.10630 10.1002/cncr.10630 12115329 (Pubitemid 34743494)
2. A Coates S Abraham SB Kaye T Sowerbutts C Frewin RM Fox MH Tattersall 1983 On the receiving end-patient perception of the side-effects of cancer chemotherapy Eur J Cancer Clin Oncol 19 203 208 10.1016/0277-5379(83)90418-2 10.1016/0277-5379(83)90418-2 1:STN:280:DyaL3s7jtFyitw%3D%3D 6681766 (Pubitemid 13155858)
3. JJ Collins ME Byrns IJ Dunkel J Lapin T Nadel HT Thaler T Polyak B Rapkin RK Portenoy 2000 The measurement of symptoms in children with cancer J Pain Symptom Manag 19 363 377 10.1016/S0885-3924(00) 00127-5 10.1016/S0885-3924(00) 00127-5 1:STN:280:DC%2BD3czjtVWrug%3D%3D
4. JJ Collins TD Devine GS Dick EA Johnson HA Kilham CR Pinkerton MM Stevens HT Thaler RK Portenoy 2002 The measurement of symptoms in young children with cancer: the validation of the Memorial Symptom Assessment Scale in children aged 7-12 J Pain Symptom Manag 23 10 16 10.1016/S0885-3924(01)00375-X 10.1016/S0885-3924(01)00375-X (Pubitemid 34093875)
5. M de Boer-Dennert R de Wit PI Schmitz J Djontono V v Beurden G Stoter J Verweij 1997 Patient perceptions of the side-effects of chemotherapy: the influence of 5HT3 antagonists Br J Cancer 76 1055 1061 9376266
6. JC de Haes FC van Knippenberg JP Neijt 1990 Measuring psychological and physical distress in cancer patients: structure and application of the Rotterdam Symptom Checklist Br J Cancer 62 1034 1038 2257209
7. K Enskar M Carlsson M Golsater E Hamrin 1997 Symptom distress and life situation in adolescents with cancer Cancer Nurs 20 23 33 10.1097/00002820- 199702000-00004 10.1097/00002820-199702000-00004 1:STN:280:DyaK2s7osFCisQ%3D%3D 9033147 (Pubitemid 27068885)
8. P Feyer UR Kleeberg M Steingraber W Gunther M Behrens 2008 Frequency of side effects in outpatient cancer care and their influence on patient satisfaction-a prospective survey using the PASQOC questionnaire Support Care Cancer 16 567 575 10.1007/s00520-008-0422-4 10.1007/s00520-008-0422-4 18322707
9. AM Griffin PN Butow AS Coates AM Childs PM Ellis SM Dunn MH Tattersall 1996 On the receiving end. V: Patient perceptions of the side effects of cancer chemotherapy in 1993 Ann Oncol 7 189 195 1:STN:280:DyaK283mt1ejtw%3D%3D 8777177
10. M Hedstrom K Haglund I Skolin L von Essen 2003 Distressing events for children and adolescents with cancer: child, parent, and nurse perceptions J Pediatr Oncol Nurs 20 120 132 10.1053/jpon.2003.76 10.1053/jpon.2003.76 12776260 (Pubitemid 38251128)
11. DH Henry HN Viswanathan EP Elkin S Traina S Wade D Cella 2008 Symptoms and treatment burden associated with cancer treatment: results from a cross-sectional national survey in the U.S. Support Care Cancer 16 791 801 10.1007/s00520-007-0380-2 10.1007/s00520-007-0380-2 18204940
12. PS Hinds M Hockenberry SN Rai L Zhang BI Razzouk L Cremer K McCarthy C Rodriguez-Galindo 2007 Clinical field testing of an enhanced-activity intervention in hospitalized children with cancer J Pain Symptom Manag 33 686 697 10.1016/j.jpainsymman.2006.09.025 10.1016/j.jpainsymman.2006.09.025 (Pubitemid 46783988)
13. PS Hinds MJ Hockenberry JS Gattuso DK Srivastava X Tong H Jones N West KS McCarthy A Sadeh M Ash C Fernandez CH Pui 2007 Dexamethasone alters sleep and fatigue in pediatric patients with acute lymphoblastic leukemia Cancer 110 2321 2330 10.1002/cncr.23039 10.1002/cncr.23039 1:CAS:528:DC%2BD2sXhsVWrtbrP 17926333 (Pubitemid 350100755)
14. J Kirkova MP Davis D Walsh E Tiernan N O'Leary SB LeGrand RL Lagman KM Russell 2006 Cancer symptom assessment instruments: a systematic review J Clin Oncol 24 1459 1473 10.1200/JCO.2005.02.8332 10.1200/JCO.2005.02.8332 16549841 (Pubitemid 46622014)
15. A Munro S Potter 1996 A quantitative approach to the distress caused by symptoms in patients treated with radical radiotherapy Br J Cancer 74 640 647 1:STN:280:DyaK28zlvVeqsg%3D%3D 8761383
16. PC Nathan W Furlong RD Barr PC Nathan W Furlong RD Barr 2004 Challenges to the measurement of health-related quality of life in children receiving cancer therapy Pediatr Blood Cancer 43 215 223 10.1002/pbc.20096 10.1002/pbc.20096 15266404 (Pubitemid 39025302)
17. A Richardson J Medina V Brown J Sitzia 2007 Patients' needs assessment in cancer care: a review of assessment tools Support Care Cancer 15 1125 1144 10.1007/s00520-006-0205-8 10.1007/s00520-006-0205-8 17235503 (Pubitemid 47459859)
18. J Sitzia C Dikken J Hughes 1997 Psychometric evaluation of a questionnaire to document side-effects of chemotherapy J Adv Nurs 25 999 1007 10.1046/j.1365-2648.1997.1997025999.x 10.1046/j.1365-2648.1997.1997025999.x 1:STN:280:DyaK2s3pt1Kqtg%3D%3D 9147205
19. JW Varni ER Katz M Seid DJ Quiggins A Friedman-Bender CM Castro 1998 The Pediatric Cancer Quality of Life Inventory (PCQL). I. Instrument development, descriptive statistics, and cross-informant variance J Behav Med 21 179 204 10.1023/A:1018779908502 10.1023/A:1018779908502 1:STN:280:DyaK1c3ltleqtg%3D%3D 9591169 (Pubitemid 28231996)
20. PD Williams J Schmideskamp EL Ridder AR Williams 2006 Symptom monitoring and dependent care during cancer treatment in children. Pilot study Cancer Nurs 29 188 197 10.1097/00002820-200605000-00004 10.1097/00002820-200605000-00004 16783117 (Pubitemid 44309578)
21. RL Woodgate 2008 Feeling states: a new approach to understanding how children and adolescents with cancer experience symptoms Cancer Nurs 31 229 238 10.1097/01.NCC.0000305731.95839.ca 10.1097/01.NCC.0000305731.95839.ca 18453880 (Pubitemid 351652221)
22. RL Woodgate LF Degner 2003 Expectations and beliefs about children's cancer symptoms: perspectives of children with cancer and their families Oncol Nurs Forum Online 30 479 491 10.1188/03.ONF.479-491 10.1188/03.ONF.479-491
23. C-H Yeh Y-C Chiang L-C Chien L Lin C-P Yang H-L Chuang 2008 Symptom clustering in older Taiwanese children with cancer Oncol Nurs Forum 35 273 281 10.1188/08.ONF.273-281 10.1188/08.ONF.273-281 18321840
24. M Youngblood PD Williams H Eyles J Waring S Runyon 1994 A comparison of two methods of assessing cancer therapy-related symptoms Cancer Nurs 17 37 44 10.1097/00002820-199402000-00004 10.1097/00002820-199402000-00004 1:STN:280:DyaK2c3js1Gqsg%3D%3D 8180975