Recordings of consultations are beneficial in the transition from curative to palliative cancer care: A pilot-study in patients with oesophageal or head and neck cancer

European Journal of Oncology Nursing

Volumn 16, Issue 2, 2012, Pages 109-114

  Uitdehaag, Madeleen J ^a   van der Velden, Lilly Ann ^a   de Boer, Maarten F ^a   Spaander, Manon C W ^a   Steyerberg, Ewout W ^a   Kuipers, Ernst J ^a   Siersema, Peter D ^a   Pruijn, Jean F A ^a  

^a ERASMUS MEDICAL CENTER   (Netherlands)

Author keywords

CD recording; Feasibility study; Head and neck cancer; Oesophageal cancer; Oncology consultations; Palliative care

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ARTICLE; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; ESOPHAGUS TUMOR; FAMILY RELATION; FEASIBILITY STUDY; FEMALE; FOLLOW UP; HEAD AND NECK TUMOR; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; PALLIATIVE THERAPY; PATIENT REFERRAL; PATIENT SATISFACTION; PILOT STUDY; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; VIDEORECORDING;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; AGED, 80 AND OVER; COMMUNICATION; ESOPHAGEAL NEOPLASMS; FAMILY RELATIONS; FEASIBILITY STUDIES; FEMALE; FOLLOW-UP STUDIES; HEAD AND NECK NEOPLASMS; HUMANS; MALE; MIDDLE AGED; PALLIATIVE CARE; PATIENT SATISFACTION; PILOT PROJECTS; QUALITY OF LIFE; REFERRAL AND CONSULTATION; VIDEODISC RECORDING;

EID: 84857654495     PISSN: 14623889     EISSN: 15322122     Source Type: Journal    
DOI: 10.1016/j.ejon.2011.04.006     Document Type: Article

References (49)

1. Barnett M.M. Does it hurt to know the worst?-psychological morbidity, information preferences and understanding of prognosis in patients with advanced cancer. Psychooncology 2006, 15(1):44-55.
2. Belkora J.K., Loth M.K., Chen D.F., Chen J.Y., Volz S., Esserman L.J. Monitoring the implementation of consultation planning, recording, and summarizing in a breast care center. Patient Education and Counseling 2008, 73(3):536-543.
3. Bertero C., Vanhanen M., Appelin G. Receiving a diagnosis of inoperable lung cancer: patients' perspectives of how it affects their life situation and quality of life. Acta Oncologica 2008, 47(5):862-869.
4. Bruera E., Pituskin E., Calder K., Neumann C.M., Hanson J. The addition of an audiocassette recording of a consultation to written recommendations for patients with advanced cancer: a randomized, controlled trial. Cancer 1999, 86(11):2420-2425.
5. Clayton J.M., Butow P.N., Tattersall M.H. The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end-of-life issues. Cancer 2005, 103(9):1957-1964.
6. Coulter A., Entwistle V., Gilbert D. Sharing decisions with patients: is the information good enough?. British Medical Journal 1999, 318(7179):318-322.
7. de Moor J.S., Partridge A.H., Winer E.P., Ligibel J., Emmons K.M. The role of socioeconomic status in adjustment after ductal carcinoma in situ. Cancer 2010, 116(5):1218-1225.
8. Dunn S.M., Butow P.N., Tattersall M.H., Jones Q.J., Sheldon J.S., Taylor J.J., Sumich M.D. General information tapes inhibit recall of the cancer consultation. Journal of Clinical Oncology 1993, 11(11):2279-2285.
9. Dunn S.M., Patterson P.U., Butow P.N., Smartt H.H., McCarthy W.H., Tattersall M.H. Cancer by another name: a randomized trial of the effects of euphemism and uncertainty in communicating with cancer patients. Journal of Clinical Oncology 1993, 11(5):989-996.
10. Fallowfield L.J., Jenkins V.A., Beveridge H.A. Truth may hurt but deceit hurts more: communication in palliative care. Palliative Medicine 2002, 16(4):297-303.
11. Ford S., Fallowfield L., Hall A., Lewis S. The influence of audiotapes on patient participation in the cancer consultation. European Journal of Cancer 1995, 31A(13-14):2264-2269.
12. Friedrichsen M.J., Strang P.M., Carlsson M.E. Breaking bad news in the transition from curative to palliative cancer care-patient's view of the doctor giving the information. Support Care Cancer 2000, 8(6):472-478.
13. Friedrichsen M.J., Strang P.M., Carlsson M.E. Receiving bad news: experiences of family members. Journal of Palliative Care 2001, 17(4):241-247.
14. Friedrichsen M.J., Strang P.M., Carlsson M.E. Cancer patients' interpretations of verbal expressions when given information about ending cancer treatment. Palliative Medicine 2002, 16(4):323-330.
15. Gattellari M., Voigt K.J., Butow P.N., Tattersall M.H. When the treatment goal is not cure: are cancer patients equipped to make informed decisions?. Journal of Clinical Oncology 2002, 20(2):503-513.
16. Groenvold M., Petersen M.A., Aaronson N.K., Arraras J.I., Blazeby J.M., Bottomley A., Fayers P.M., de Graeff A., Hammerlid E., Kaasa S., Sprangers M.A., Bjorner J.B. The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care. European Journal of Cancer 2006, 42(1):55-64.
17. Hack T.F., Pickles T., Bultz B.D., Ruether J.D., Degner L.F. Impact of providing audiotapes of primary treatment consultations to men with prostate cancer: a multi-site, randomized, controlled trial. Psychooncology 2007, 16(6):543-552.
18. Hack T.F., Pickles T., Bultz B.D., Ruether J.D., Weir L.M., Degner L.F., Mackey J.R. Impact of providing audiotapes of primary adjuvant treatment consultations to women with breast cancer: a multisite, randomized, controlled trial. Journal of Clinical Oncology 2003, 21(22):4138-4144.
19. Hoff L., Tidefelt U., Thaning L., Hermeren G. In the shadow of bad news - views of patients with acute leukaemia, myeloma or lung cancer about information, from diagnosis to cure or death. BMC Palliative Care 2007, 24(6):1.
20. Hogbin B., Fallowfield L. Getting it taped: the 'bad news' consultation with cancer patients. British Journal of Hospital Medicine 1989, 41(4):330-333.
21. Hogbin B., Jenkins V.A., Parkin A.J. Remembering 'bad news' consultations: an evaluation of tape recorded consultations. Psycho-Oncology 1992, 1:147-154.
22. Islami F., Kamangar F., Nasrollahzadeh D., Aghcheli K., Sotoudeh M., Abedi-Ardekani B., Merat S., Nasseri-Moghaddam S., Semnani S., Sepehr A., Wakefield J., Moller H., Abnet C.C., Dawsey S.M., Boffetta P., Malekzadeh R., Socio-economic status and oesophageal cancer: results from a population-based case-control study in a high-risk area. International Journal of Epidemiology 2009, 38(4):978-988.
23. Jansen J., Butow P.N., van Weert J.C., van Dulmen S., Devine R.J., Heeren T.J., Bensing J.M., Tattersall M.H. Does age really matter? Recall of information presented to newly referred patients with cancer. Journal of Clinical Oncology 2008, 26(33):5450-5457.
24. Jenkins V., Fallowfield L., Saul J. Information needs of patients with cancer: results from a large study in UK cancer centres. British Journal of Cancer 2001, 84(1):48-51.
25. Knox R., Butow P.N., Devine R., Tattersall M.H. Audiotapes of oncology consultations: only for the first consultation?. Annals of Oncology 2002, 13(4):622-627.
26. Ledeboer, Q.C., van der Schroeff, M.P., Pruyn, J.F., de Boer, M.F., Baatenburg de Jong, R.J. and van der Velden, L.A. Survival of patients with palliative head and neck cancer. Head & Neck. in press, doi: 10.1002/hed.21572.
27. McClement S.E., Hack T.F. Audio-taping the oncology treatment consultation: a literature review. Patient Education and Counseling 1999, 36(3):229-238.
28. McConnell D., Butow P.N., Tattersall M.H. Audiotapes and letters to patients: the practice and views of oncologists, surgeons and general practitioners. British Journal of Cancer 1999, 79(11-12):1782-1788.
29. McHugh P., Lewis S., Ford S., Newlands E., Rustin G., Coombes C., Smith D., O'Reilly S., Fallowfield L. The efficacy of audiotapes in promoting psychological well-being in cancer patients: a randomised, controlled trial. British Journal of Cancer 1995, 71(2):388-392.
30. Mesters I., van den Borne B., De Boer M., Pruyn J. Measuring information needs among cancer patients. Patient Education and Counseling 2001, 43(3):253-262.
31. Mesters I., van den Borne H., McCormick L., Pruyn J., de Boer M., Imbos T. Openness to discuss cancer in the nuclear family: scale, development, and validation. Psychosomatic Medicine 1997, 59(3):269-279.
32. Myer L., Stein D.J., Grimsrud A., Seedat S., Williams D.R. Social determinants of psychological distress in a nationally-representative sample of South African adults. Social Science Medicine 2008, 66(8):1828-1840.
33. North N., Cornbleet M.A., Knowles G., Leonard R.C. Information giving in oncology: a preliminary study of tape-recorder use. The British Journal of Clinical Psychology 1992, 31(3):357-359.
34. Ong L.M., de Haes J.C., Hoos A.M., Lammes F.B. Doctor-patient communication: a review of the literature. Social Science Medicine 1995, 40(7):903-918.
35. Ong L.M., Visser M.R., Lammes F.B., van Der Velden J., Kuenen B.C., de Haes J.C. Effect of providing cancer patients with the audiotaped initial consultation on satisfaction, recall, and quality of life: a randomized, double-blind study. Journal of Clinical Oncology 2000, 18(16):3052-3060.
36. Pitkethly M., Macgillivray S., Ryan R. Recordings or summaries of consultations for people with cancer. Cochrane Database of Systematic Reviews 2008, CD001539.
37. Robertson G., Greenlaw N., Bray C.A., Morrison D.S. Explaining the effects of socio-economic deprivation on survival in a national prospective cohort study of 1909 p.tients with head and neck cancers. Cancer Epidemiology 2010, 34(6):682-688.
38. Rutten L.J., Arora N.K., Bakos A.D., Aziz N., Rowland J. Information needs and sources of information among cancer patients: a systematic review of research (1980-2003). Patient Education and Counseling 2005, 57(3):250-261.
39. Sapir R., Catane R., Kaufman B., Isacson R., Segal A., Wein S., Cherny N.I. Cancer patient expectations of and communication with oncologists and oncology nurses: the experience of an integrated oncology and palliative care service. Supportive Care in Cancer 2000, 8(6):458-463.
40. Scott J.T., Harmsen M., Prictor M.J., Entwistle V.A., Sowden A.J., Watt I. Recordings or summaries of consultations for people with cancer. Cochrane Database of Systematic Reviews 2003, CD001539.
41. Siersema P.D. New developments in palliative therapy. Best Practice & Research. Clinical Gastroenterology 2006, 20(5):959-978.
42. Simon A.E., Wardle J. Socioeconomic disparities in psychosocial wellbeing in cancer patients. European Journal of Cancer 2008, 44(4):572-578.
43. Stephens M.R., Gaskell A.L., Gent C., Pellard S., Day-Thompson R., Blackshaw G.R., Lewis W.G. Prospective randomised clinical trial of providing patients with audiotape recordings of their oesophagogastric cancer consultations. Patient Education and Counseling 2008, 72(2):218-222.
44. Tattersall M.H., Butow P.N. Consultation audio tapes: an underused cancer patient information aid and clinical research tool. The Lancet Oncology 2002, 3(7):431-437.
45. Tattersall M.H., Butow P.N., Griffin A.M., Dunn S.M. The take-home message: patients prefer consultation audiotapes to summary letters. Journal of Clinical Oncology 1994, 12(6):1305-1311.
46. Terwee C.B., Bot S.D., de Boer M.R., van der Windt D.A., Knol D.L., Dekker J., Bouter L.M., de Vet H.C. Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology 2007, 60(1):34-42.
47. van den Borne H.W., Pruyn J. Contacts Between Fellow Cancer Patients 1985, Van Gorcum, Assen/Maastricht.
48. van der Meulen N., Jansen J., van Dulmen S., Bensing J., van Weert J. Interventions to improve recall of medical information in cancer patients: a systematic review of the literature. Psychooncology 2008, 17(9):857-868.
49. Watson M., Greer S., Blake S., Shrapnell K. Reaction to a diagnosis of breast cancer. relationship between denial, delay and rates of psychological morbidity. Cancer 1984, 53(9):2008-2012.