Relational autonomy in assisted living: A focus on diverse care settings for older adults

Journal of Aging Studies

Volumn 26, Issue 2, 2012, Pages 214-225

  Perkins, Molly M ^a   Ball, Mary M ^b,d   Whittington, Frank J ^c,e   Hollingsworth, Carole ^b,d  

^a EMORY UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b GEORGIA STATE UNIVERSITY   (United States)

^c GEORGE MASON UNIVERSITY   (United States)

^d UMass Boston   (United States)

^e NONE   (United States)

Author keywords

Assisted living; Conceptual model; Place; Qualitative research synthesis; Relational autonomy; Residential care; Symbolic capital

Indexed keywords

EID: 84857452502     PISSN: 08904065     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jaging.2012.01.001     Document Type: Article

References (73)

1. Adler N.E., Rehkopf D.H. U.S. disparities in health: Descriptions, causes, and mechanisms. Annual Review of Public Health 2008, 29:235-252.
2. Agich G.J. Dependence and autonomy in old age: An ethical framework for long-term care 2003, Cambridge University Press, Cambridge.
3. Aging Services of Georgia (2011). SB 178: Creation of assisted living communities and use of the term "assisted living" [White paper]. Unpublished manuscript.
4. Atkins K. Autonomy and autonomy competencies: A practical and relational approach. Nursing Philosophy 2006, 7:205-215.
5. Ball M.M., Perkins M.M., Hollingsworth C., Kemp C.L. Frontline workers in assisted living 2010, Johns Hopkins University Press, Baltimore.
6. Ball M.M., Perkins M.M., Hollingsworth C., Whittington F.J., King S.V. Pathways to assisted living: The influence of race and class. Journal of Applied Gerontology 2009, 28:81-108.
7. Ball M.M., Perkins M.M., Whittington F.J., Connell B.R., Hollingsworth C., King S.V. Managing decline in assisted living: The key to aging in place. Journal of Gerontology: Social Sciences 2004, 59B:S202-S212.
8. Ball M.M., Perkins M.M., Whittington F.J., Hollingsworth C., King S.V., Combs B.L. Independence in assisted living. Journal of Aging Studies 2004, 18:467-483.
9. Ball M.M., Perkins M.M., Whittington F.J., Hollingsworth C., King S.V., Combs B.L. Communities of care: Assisted living for African American elders 2005, Johns Hopkins University Press, Baltimore.
10. Ball M.M., Whittington F.J. Surviving dependence: Voices of African American elders 1995, Baywood Publishers, Amityville, NY.
11. Ball M.M., Whittington F.J., Perkins M.M., Patterson V.L., Hollingsworth C., King S.V., et al. Quality of life in assisted living facilities: Viewpoints of residents. Journal of Applied Gerontology 2000, 19:304-325.
12. Bourdieu P. Distinction: A social critique of judgment of taste 1984, Routledge, London.
13. Bourdieu P. The forms of capital. Handbook of theory and research for the sociology of education 1986, 242-258. Greenwood Press, Westport, CT. J.G. Richardson (Ed.).
14. Browne C.V., Braun K.L. Globalization, women's migration, and the long-term care workforce. The Gerontologist 2008, 48:16-24.
15. Carder P.C. The social world of assisted living. Journal of Aging Studies 2002, 16:1-18.
16. Carder P.C., Hernandez M. Consumer discourse in assisted living. Journal of Gerontology: Social Sciences 2004, 59B:S58-S67.
17. Charmaz K. Loss of self: A fundamental form of suffering in the chronically ill. Sociology of Health & Illness 1983, 5:168-195.
18. Charmaz K.C. Good days, bad days: The self in chronic illness in time 1997, Rutgers University Press, New Brunswick, New Jersey.
19. Charmaz K.C. Constructing grounded theory: A practical guide to qualitative analysis 2006, Sage, Thousand Oaks, CA.
20. Corbin J., Strauss A. Basics of qualitative research 2008, Sage Publications, Inc., Thousand Oaks, CA.
21. Cutchin M.P. The process of mediated aging-in-place: A theoretically and empirically based model. Social Science & Medicine 2003, 57:1077-1090.
22. Cutchin M.P., Owen S.V., Chang P.J. Becoming at home in assisted living residences: Exploring place integration processes. Journal of Gerontology: Social Sciences 2003, 58B:S234-S243.
23. Dobbs D., Eckert J.K., Rubenstein B., Keimig L., Clark L., Frankowski A.C., et al. An ethnographic study of stigma and ageism in residential care or assisted living. The Gerontologist 2008, 48:517-526.
24. Downie J., Llewellyn J. Being relational: Reflections on relational theory and health law and policy 2011, University of British Columbia Press, Toronto, Ontario.
25. Eckert J.K., Carder P.C., Morgan L.A., Frankowski A.C., Roth E.G. Inside assisted living: The search for home 2009, Johns Hopkins University Press, Baltimore.
26. Ellis C. Lessons about autonomy from the experience of disability. Social Theory and Practice 2001, 27:599-615.
27. Farrington A., Robinson W.P. Homelessness and strategies of identity maintenance: A participant observation study. Journal of Community & Applied Social Psychology 1999, 9:175-194.
28. Fisher B.J. The stigma of relocation to a retirement facility. Journal of Aging Studies 1990, 4:47-59.
29. Fitzpatrick K., LaGory M. The ecology of risk in the urban landscape: Unhealthy places 2000, Routledge, New York.
30. Frank J.B. The paradox of aging in place in assisted living 2002, Bergin & Garvey, Westport, CT.
31. Glaser B. Basics of grounded theory analysis: Emergence vs. forcing 1992, Sociology Press, Mill Valley, CA.
32. Goffman E. The presentation of self in everyday life 1959, Anchor Books, New York.
33. Goffman E. Asylums: Essays on the social situation of mental patients 1961, Doubleday Anchor, New York.
34. Golant S. The future status of assisted living residences: A response to uncertainty?. The assisted living residence: A vision for the future 2008, 3-45. Johns Hopkins University Press, Baltimore, MD. S. Golant, J. Hyde (Eds.).
35. Golant S. The quest for residential normalcy by older adults: Relocation but one pathway. Journal of Aging Studies 2011, 25:193-205.
36. Gubrium J.F. Living and dying at Murray Manor 1975, St. Martin's Press, New York.
37. Hawes C., Phillips C.D., Rose M. High service or high privacy assisted living facilities, their residents and staff: Results from a national survey 2000, U.S. Department of Health and Human Services, Washington DC.
38. Hernandez M., Newcomer R. Assisted living and special populations: What do we know about differences in use and potential access barriers?. The Gerontologist 2007, 47:110-117.
39. Hofland B. Why a special focus on autonomy?. Generations 1990, 14:9-12. (Supplement).
40. Holstein M.B., Parks J.A., Waymack M.H. Ethics, aging, and society 2011, Springer Publishing Company, New York.
41. Kawachi I., Berkman L.F. Neighborhood and health 2003, Oxford University Press, New York.
42. Kenny N.P., Sherwin S.B., Baylis F.E. Re-visioning public health ethics: A relational perspective. Canadian Journal of Public Health 2010, 101:9-11.
43. Leith K.H. "Home is where the heart is or is it?": A phenomenological exploration of the meaning of home for older women in congregate housing. Journal of Aging Studies 2006, 20:317-333.
44. Leroi I., Samus Q., Rosenblatt A., Onyike C., Brandt J., Baker A., et al. A comparison of small and large assisted living facilities for the diagnosis and care of dementia: The Maryland Assisted Living Study. International Journal of Geriatric Psychiatry 2006, 22:224-232.
45. Relational autonomy: Feminist perspectives on autonomy, agency, and the social self 2000, Oxford University Press, New York. C. Mackenzie, N. Stoljar (Eds.).
46. Markus H., Nurius P.S. Possible selves. American Psychologist 1986, 41:954-969.
47. McHugh K.E., Mings R.C. The circle of migration: Attachment to place in aging. Annals of the Association of American Geographers 1996, 86:530-550.
48. Metlife Mature Market Institute The 2009 Metlife market survey of nursing home, assisted living, adult day services, and home care costs 2009, Westport, CT: Author.
49. Meyers D.T. Intersectional identity and the authentic self. Relational autonomy: Feminist perspectives on autonomy, agency, and the social self 2000, 151-180. Oxford University Press, New York. C. Mackenzie, N. Stoljar (Eds.).
50. Mollica R. State Medicaid reimbursement policies and practices in assisted living 2009, National Center for Assisted Living (NCLA) and American Health Care Association, Washington, DC.
51. Mollica R., Johnson-Lamarche H. State residential care and assisted living policy: 2004. Office of the Assistant Secretary for Planning and Evaluation 2005, U.S. Department of Health and Human Services, Washington, DC.
52. Morgan L.A., Eckert J.K., Piggee T., Frankowski A.C. Two lives in transition: Agency and context for assisted living residents. Journal of Aging Studies 2006, 20:123-132.
53. Morse J.M., Field P.A. Qualitative research methods for health professionals 1995, Sage, Thousand Oaks, CA.
54. Perkins M.M., Ball M.M., Combs Finding meaning in assisted living: Maintaining continuity while integrating change. The Gerontologist 2003, 43(Special Issue 1):36.
55. Perkins M.M., Ball M.M., Whittington F.J., Combs B.L. Managing the needs of low-income board and care residents: A process of negotiating risks. Qualitative Health Research 2004, 14:478-495.
56. Perkins M.M., Sweatman W.M., Hollingsworth C. Co-worker relationships in assisted living: The influence of social network ties. Frontline workers in assisted living 2010, 124-146. Johns Hopkins University Press, Baltimore. M.M. Ball, M.M. Perkins, C. Hollingsworth, C.L. Kemp (Eds.).
57. Redfoot D., Houser A. We shall travel on: Quality of care, economic development, and the international migration of long-term care workers 2005, AARP Public Policy Report, Washington, DC.
58. Rosenberg M. The self-concept: Social product and social force. Social psychology: Sociological perspectives 1981, 593-624. Basic Books, New York. M. Rosenberg, R.H. Turner (Eds.).
59. Roth E.G., Eckert J.K. The vernacular landscape of assisted living. Journal of Aging Studies 2011, doi:10.1016/j.jaging.2011.03.005.
60. Rowles G.D., Ravdal H. Aging, place, and meaning in the face of changing circumstances. Challenges of the third age: Meaning and purpose in later life 2002, 81-114. Oxford University Press, New York. R. Weiss, S. Bass (Eds.).
61. Rubenstein R.L. The significance of personal objects to older people. Journal of Aging Studies 1987, 1:225-238.
62. Rubenstein R.L. The home environments of older people: A description of the psychosocial processes linking person to place. Journal of Gerontology: Social Sciences 1989, 14:S45-S53.
63. Rubenstein R.L., Kilbride J.C., Nagy S. Elders living alone: Frailty and the perceptions of choice 1992, Aldine De Gruyter, Hawthorne, NY.
64. Rubenstein R.L., de Medeiros K. Home, self, and identity. Home and identity in late life 2005, 47-62. Springer Publishing Company, Inc, New York. G.D. Rowles, H. Chaudhury (Eds.).
65. Sandelowski M., Barroso J. Handbook for synthesizing qualitative research 2007, Springer Publishing Company, Inc., New York.
66. Schnittker J., McLeod J.D. The social psychology of health disparities. Annual Review of Sociology 2005, 31:75-103.
67. Small N., Froggatt K., Downs M. Living and dying with dementia: Dialogues about palliative care 2007, Oxford University Press, New York.
68. Snow D.A., Anderson L. Identity work among the homeless: The verbal construction and avowal of personal identities. The American Journal of Sociology 1987, 92:1336-1371.
69. Stevenson D.G., Grabowski D.C. Sizing up the market for assisted living. Health Affairs 2010, 29:35-43.
70. Thomas W., Thomas S. The child in America: Behavior problems and programs 1928, Knopf, New York.
71. Wuest J. Negotiating with helping systems: An example of grounded theory evolving through emergent fit. Qualitative Health Research 2000, 10:51-70.
72. Wuest A. Precarious ordering: Toward a formal theory of women's caring. Health Care for Women International 2001, 22:167-193.
73. Yosso T. "Whose culture has capital? A critical race theory discussion of community cultural wealth. Race, Ethnicity, and Education 2005, 8:69-91.