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Volumn 26, Issue 2, 2012, Pages 139-151

Unmet needs of severely affected multiple sclerosis patients: The health professionals' view

Author keywords

attitude of health personnel; multiple sclerosis patients; palliative care; severe multiple sclerosis; unmet needs

Indexed keywords

ADULT; ARTICLE; DAILY LIFE ACTIVITY; DISEASE SEVERITY; FEMALE; HEALTH CARE PERSONNEL; HEALTH SERVICE; HUMAN; HUMAN NEEDS; INTERVIEW; MALE; MEDICAL EXPERT; MULTIPLE SCLEROSIS; NURSE; PATIENT CARE; PERCEPTION; PHYSICIAN; QUALITATIVE ANALYSIS; SOCIAL SUPPORT; SOCIAL WORKER;

EID: 84857297907     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216311401465     Document Type: Article
Times cited : (58)

References (38)
  • 1
    • 33947707819 scopus 로고    scopus 로고
    • What people with multiple sclerosis perceive to be important to meeting their needs
    • Forbes A, While A, Taylor M. What people with multiple sclerosis perceive to be important to meeting their needs. J Adv Nurs. 2007 ; 58: 11-22
    • (2007) J Adv Nurs , vol.58 , pp. 11-22
    • Forbes, A.1    While, A.2    Taylor, M.3
  • 2
    • 33645285945 scopus 로고    scopus 로고
    • Supportive and palliative care needs identified by multiple sclerosis patients and their families
    • Wollin JA, Yates PM, Kristjanson LJ. Supportive and palliative care needs identified by multiple sclerosis patients and their families. Int J Palliat Nurs. 2006 ; 12: 20-26
    • (2006) Int J Palliat Nurs , vol.12 , pp. 20-26
    • Wollin, J.A.1    Yates, P.M.2    Kristjanson, L.J.3
  • 3
    • 33947383796 scopus 로고    scopus 로고
    • Los and change: Experiences of people severely affected by multiple sclerosis
    • DOI 10.1177/0269216307076333
    • Edmonds P, Vivat B, Burman R, Silber E, Higginson IJ. Loss and change: experiences of people severely affected by multiple sclerosis. Palliat Med. 2007 ; 21: 101-107 (Pubitemid 46455836)
    • (2007) Palliative Medicine , vol.21 , Issue.2 , pp. 101-107
    • Edmonds, P.1    Vivat, B.2    Burman, R.3    Silber, E.4    Higginson, I.J.5
  • 4
    • 34250637141 scopus 로고    scopus 로고
    • 'Fighting for everything': Service experience of people severely affected by multiple sclerosis
    • DOI 10.1177/1352458506071789
    • Edmonds P, Vivat B, Burman R, Silber E, Higginson IJ. 'Fighting for everything': service experiences of people severely affected by multiple sclerosis. Mult Scler. 2007 ; 13: 660-667 (Pubitemid 46939534)
    • (2007) Multiple Sclerosis , vol.13 , Issue.5 , pp. 660-667
    • Edmonds, P.1    Vivat, B.2    Burman, R.3    Silber, E.4    Higginson, I.J.5
  • 5
    • 33749529570 scopus 로고    scopus 로고
    • Symptom prevalence and severity in people severely affected by multiple sclerosis
    • Higginson IJ, Hart S, Silber E, Burman R, Edmonds P. Symptom prevalence and severity in people severely affected by multiple sclerosis. J Palliat Care. 2006 ; 22: 158-165 (Pubitemid 44526011)
    • (2006) Journal of Palliative Care , vol.22 , Issue.3 , pp. 158-165
    • Higginson, I.J.1    Hart, S.2    Silber, E.3    Burman, R.4    Edmonds, P.5
  • 7
    • 46449138701 scopus 로고    scopus 로고
    • Randomised controlled trial of a new palliative care service: Compliance, recruitment and completeness of follow-up
    • Higginson IJ, Hart S, Burman R, Silber E, Saleem T, Edmonds P. Randomised controlled trial of a new palliative care service: compliance, recruitment and completeness of follow-up. BMC Palliat Care. 2008 ; 7: 7
    • (2008) BMC Palliat Care , vol.7 , pp. 7
    • Higginson, I.J.1    Hart, S.2    Burman, R.3    Silber, E.4    Saleem, T.5    Edmonds, P.6
  • 8
    • 77952805605 scopus 로고    scopus 로고
    • Palliative care for people severely affected by multiple sclerosis: Evaluation of a novel palliative care service
    • Edmonds P, Hart S, Wei G, et al. Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service. Mult Scler. 2010 ; 16: 627-636
    • (2010) Mult Scler , vol.16 , pp. 627-636
    • Edmonds, P.1    Hart, S.2    Wei, G.3
  • 9
    • 77952797655 scopus 로고    scopus 로고
    • Palliative care for multiple sclerosis: A counter-intuitive approach?
    • Voltz R. Palliative care for multiple sclerosis: a counter-intuitive approach?. Mult Scler. 2010 ; 16: 515-517
    • (2010) Mult Scler , vol.16 , pp. 515-517
    • Voltz, R.1
  • 11
    • 84857249801 scopus 로고    scopus 로고
    • Unmet needs of patients severely affected by Multiple Sclerosis in Germany: A qualitative study
    • submitted in
    • GalushkoMGollaHKarbachUPfaffHOstgatheCVoltzR. Unmet needs of patients severely affected by Multiple Sclerosis in Germany: a qualitative study. 2010, submitted in Health Serv Res.
    • (2010) Health Serv Res
    • Galushko, M.1    Golla, H.2    Karbach, U.3    Pfaff, H.4    Ostgathe, C.5    Voltz, R.6
  • 12
    • 0030967027 scopus 로고    scopus 로고
    • Doctors and patients don't agree: Cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis
    • Rothwell PM, McDowell Z, Wong CK, Dorman PJ. Doctors and patients don't agree: cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis. Br Med J. 1997 ; 315: 1580-1583 (Pubitemid 27229105)
    • (1997) British Medical Journal , vol.314 , Issue.7094 , pp. 1580-1583
    • Rothwell, P.M.1    McDowell, Z.2    Wong, C.K.3    Dorman, P.J.4
  • 14
    • 0021035886 scopus 로고
    • Rating neurologic impairment in multiple sclerosis: An expanded disability status scale (EDSS)
    • Kurtzke JF. Rating neurologic impairment in multiple sclerosis: an Expanded Disability Status Scale (EDSS). Neurology. 1983 ; 33: 1444-1452 (Pubitemid 14237132)
    • (1983) Neurology , vol.33 , Issue.11 , pp. 1444-1452
    • Kurtzke, J.F.1
  • 16
    • 0031255276 scopus 로고    scopus 로고
    • Focus groups: Issues of analysis and interpretation
    • Reed J, Payton VR. Focus groups: issues of analysis and interpretation. J Adv Nurs. 1997 ; 26: 765-771 (Pubitemid 127453298)
    • (1997) Journal of Advanced Nursing , vol.26 , Issue.4 , pp. 765-771
    • Reed, J.1    Payton, V.R.2
  • 17
    • 0034180550 scopus 로고    scopus 로고
    • Getting the focus and the group: Enhancing analytical rigor in focus group research
    • Kidd PS, Parshall MB. Getting the focus and the group: enhancing analytical rigor in focus group research. Qual Health Res. 2000 ; 10: 293-308
    • (2000) Qual Health Res , vol.10 , pp. 293-308
    • Kidd, P.S.1    Parshall, M.B.2
  • 21
    • 0033887504 scopus 로고    scopus 로고
    • Time, autonomy, and satisfaction
    • DOI 10.1046/j.1525-1497.2000.05014.x
    • Epstein RM. Time, autonomy, and satisfaction. J Gen Intern Med. 2000 ; 15: 517-518 (Pubitemid 30640266)
    • (2000) Journal of General Internal Medicine , vol.15 , Issue.7 , pp. 517-518
    • Epstein, R.M.1
  • 23
    • 52649095834 scopus 로고    scopus 로고
    • Job satisfaction of hospital doctors. Results of a study of a national sample of hospital doctors in Germany
    • Rosta J, Gerber A. Job satisfaction of hospital doctors. Results of a study of a national sample of hospital doctors in Germany. Gesundheitswesen. 2008 ; 70: 519-524
    • (2008) Gesundheitswesen , vol.70 , pp. 519-524
    • Rosta, J.1    Gerber, A.2
  • 24
    • 0347985354 scopus 로고    scopus 로고
    • Predictors of work satisfaction among physicians
    • DOI 10.1093/eurpub/13.4.299
    • Bovier PA, Perneger TV. Predictors of work satisfaction among physicians. Eur J Public Health. 2003 ; 13: 299-305 (Pubitemid 38063579)
    • (2003) European Journal of Public Health , vol.13 , Issue.4 , pp. 299-305
    • Bovier, P.A.1    Perneger, T.V.2
  • 25
    • 79953859672 scopus 로고    scopus 로고
    • Non-cancer patients in specialized palliative care in Germany: What are the problems?
    • OstgatheCAlt-EppingBGollaH. Non-cancer patients in specialized palliative care in Germany: what are the problems?Palliat Med2011; 25(2): 148-152.
    • (2011) Palliat Med , vol.25 , Issue.2 , pp. 148-152
    • Ostgathe, C.1    Alt-Epping, B.2    Golla, H.3
  • 26
    • 34248346415 scopus 로고    scopus 로고
    • Palliative care and support for people with neurodegenerative conditions and their carers
    • Kristjanson LJ, Aoun SM, Oldham L. Palliative care and support for people with neurodegenerative conditions and their carers. Int J Palliat Nurs. 2006 ; 12: 368-377
    • (2006) Int J Palliat Nurs , vol.12 , pp. 368-377
    • Kristjanson, L.J.1    Aoun, S.M.2    Oldham, L.3
  • 27
    • 14544281026 scopus 로고    scopus 로고
    • The relationship between available support, unmet needs and caregiver burden in patients with advanced cancer and their carers
    • DOI 10.1002/pon.825
    • Sharpe L, Butow P, Smith C, McConnell D, Clarke S. The relationship between available support, unmet needs and caregiver burden in patients with advanced cancer and their carers. Psychooncology. 2005 ; 14: 102-114 (Pubitemid 40298142)
    • (2005) Psycho-Oncology , vol.14 , Issue.2 , pp. 102-114
    • Sharpe, L.1    Butow, P.2    Smith, C.3    McConnell, D.4    Clarke, S.5
  • 28
    • 4644363144 scopus 로고    scopus 로고
    • Reducing discrepancies between MS patients' needs and use of healthcare services by applying a transmural care model
    • Oeseburg B, Jansen D, De Keyser J. Reducing discrepancies between MS patients' needs and use of healthcare services by applying a transmural care model. J Neurosci Nurs. 2004 ; 36: 214-219
    • (2004) J Neurosci Nurs , vol.36 , pp. 214-219
    • Oeseburg, B.1    Jansen, D.2    De Keyser, J.3
  • 29
    • 39049180729 scopus 로고    scopus 로고
    • Evaluation of a transmural care model for multiple sclerosis patients
    • Jansen DE, Krol B, Groothoff JW, Post D. Evaluation of a transmural care model for multiple sclerosis patients. J Neurosci Nurs. 2006 ; 38: 384-389
    • (2006) J Neurosci Nurs , vol.38 , pp. 384-389
    • Jansen, D.E.1    Krol, B.2    Groothoff, J.W.3    Post, D.4
  • 30
    • 34249698956 scopus 로고    scopus 로고
    • Multiple sclerosis patients talking with healthcare providers about emotions
    • White CP, White M, Russell CS. Multiple sclerosis patients talking with healthcare providers about emotions. J Neurosci Nurs. 2007 ; 39: 89-101
    • (2007) J Neurosci Nurs , vol.39 , pp. 89-101
    • White, C.P.1    White, M.2    Russell, C.S.3
  • 31
    • 0031714320 scopus 로고    scopus 로고
    • Health professionals' responses to multiple sclerosis and motor neurone disease
    • DOI 10.1191/026921698668830097
    • Carter H, McKenna C, MacLeod R, Green R. Health professionals' responses to multiple sclerosis and motor neurone disease. Palliat Med. 1998 ; 12: 383-394 (Pubitemid 28454406)
    • (1998) Palliative Medicine , vol.12 , Issue.5 , pp. 383-394
    • Carter, H.1    McKenna, C.2    MacLeod, R.3    Green, R.4
  • 32
    • 0011816661 scopus 로고    scopus 로고
    • Improving chronic illness care: Translating evidence into action
    • DOI 10.1377/hlthaff.20.6.64
    • Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A. Improving chronic illness care: translating evidence into action. Health Aff (Millwood). 2001 ; 20: 64-78 (Pubitemid 33707442)
    • (2001) Health Affairs , vol.20 , Issue.6 , pp. 64-78
    • Wagner, E.H.1    Austin, B.T.2    Davis, C.3    Hindmarsh, M.4    Schaefer, J.5    Bonomi, A.6
  • 33
    • 0035342115 scopus 로고    scopus 로고
    • The need for palliative care for patients with non-cancer diseases: A review of the evidence
    • Luddington L, Cox S, Higginson I, Livesley B. The need for palliative care for patients with non-cancer diseases: a review of the evidence. Int J Palliat Nurs. 2001 ; 7: 221-226
    • (2001) Int J Palliat Nurs , vol.7 , pp. 221-226
    • Luddington, L.1    Cox, S.2    Higginson, I.3    Livesley, B.4
  • 34
    • 19044396260 scopus 로고    scopus 로고
    • Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: A systematic review
    • DOI 10.1093/ageing/afi054
    • Coventry PA, Grande GE, Richards DA, Todd CJ. Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: a systematic review. Age Ageing. 2005 ; 34: 218-227 (Pubitemid 40711733)
    • (2005) Age and Ageing , vol.34 , Issue.3 , pp. 218-227
    • Coventry, P.A.1    Grande, G.E.2    Richards, D.A.3    Todd, C.J.4
  • 35
    • 0035172473 scopus 로고    scopus 로고
    • Palliative care in patients with multiple sclerosis
    • DOI 10.1016/S0733-8619(05)70048-7
    • Ben-Zacharia AB, Lublin FD. Palliative care in patients with multiple sclerosis. Neurol Clin. 2001 ; 19: 801-827 (Pubitemid 33051853)
    • (2001) Neurologic Clinics , vol.19 , Issue.4 , pp. 801-827
    • Ben-Zacharia, A.B.1    Lublin, F.D.2
  • 36
    • 34447629736 scopus 로고    scopus 로고
    • Palliative care in stroke: A critical review of the literature
    • DOI 10.1177/0269216307079160
    • Stevens T, Payne SA, Burton C, Addington-Hall J, Jones A. Palliative care in stroke: a critical review of the literature. Palliat Med. 2007 ; 21: 323-331 (Pubitemid 47091093)
    • (2007) Palliative Medicine , vol.21 , Issue.4 , pp. 323-331
    • Stevens, T.1    Payne, S.A.2    Burton, C.3    Addington-Hall, J.4    Jones, A.5
  • 37
    • 0029867567 scopus 로고    scopus 로고
    • Mental health of hospital consultants: The effects of stress and satisfaction at work
    • DOI 10.1016/S0140-6736(96)90077-X
    • Ramirez AJ, Graham J, Richards MA, Cull A, Gregory WM. Mental health of hospital consultants: the effects of stress and satisfaction at work. Lancet. 1996 ; 347: 724-728 (Pubitemid 26085647)
    • (1996) Lancet , vol.347 , Issue.9003 , pp. 724-728
    • Ramirez, A.J.1    Graham, J.2    Richards, M.A.3    Cull, A.4    Gregory, W.M.5
  • 38
    • 0347512088 scopus 로고    scopus 로고
    • Managing the difficult consultation
    • Maguire P, Pitceathly C. Managing the difficult consultation. Clin Med. 2003 ; 3: 532-537 (Pubitemid 38017560)
    • (2003) Clinical Medicine , vol.3 , Issue.6 , pp. 532-537
    • Maguire, P.1    Pitceathly, C.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.