Multiple sclerosis: Disability profile and quality of life in an Australian community cohort

International Journal of Rehabilitation Research

Volumn 29, Issue 2, 2006, Pages 87-96

  Khan, Fary ^a,c   McPhail, Tracey ^b   Brand, Caroline ^c   Turner Stokes, Lynne ^d   Kilpatrick, Trevor ^a  

^a UNIVERSITY OF MELBOURNE   (Australia)

^b PETER MACCALLUM CANCER CENTRE   (Australia)

^c ROYAL MELBOURNE HOSPITAL   (Australia)

^d KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

Carer burden; Disability; Expanded Disability Status Scale; Health service utilization; Multiple sclerosis; Quality of life; Rehabilitation

Indexed keywords

DIAGNOSIS; HANDICAPPED PERSONS; MEDICAL PROBLEMS; NEUROLOGY; PATIENT TREATMENT;

CARER BURDEN; DISABILITY; EXPANDED DISABILITY STATUS SCALES; HEALTH SERVICE UTILIZATION; MULTIPLE SCLEROSIS; QUALITY OF LIFE;

PATIENT REHABILITATION;

ADULT; ARTICLE; AUSTRALIA; CAREGIVER; COGNITIVE DEFECT; COHORT ANALYSIS; DAILY LIFE ACTIVITY; DATA BASE; DEPRESSION; DISABILITY; FEMALE; HEALTH CARE ACCESS; HUMAN; JOB PERFORMANCE; MAJOR CLINICAL STUDY; MALE; MULTIPLE SCLEROSIS; NEUROLOGIC DISEASE; OPEN ENDED QUESTIONNAIRE; PATIENT MOBILITY; PERCEPTION; PHYSICIAN; PRIORITY JOURNAL; QUALITY OF LIFE; STRESS; TERTIARY HEALTH CARE; VOCATIONAL REHABILITATION;

ADULT; AUSTRALIA; CAREGIVERS; CROSS-SECTIONAL STUDIES; DISABILITY EVALUATION; FEMALE; HEALTH SERVICES; HUMANS; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; QUALITY OF LIFE; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX; STRESS, PSYCHOLOGICAL;

EID: 33748141960     PISSN: 03425282     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.mrr.0000194393.56772.62     Document Type: Article

References (38)

1. Aronson KJ, Goldenberg E, Cleghorn G (1996). Sociodemographics characteristics and health status of persons with multiple sclerosis and their care givers. MS Management 3:5-15.
2. Cockerill R, Warren S (1990). Care for caregivers: the needs of family members of MS patients. J Rehabil 56:41-44.
3. Compston DAS, Evans CD, Fenely RCL, McLellan DL, Pentland B, Roberts MHW, et al. (1993). Working party report of the British Society of Rehabilitation Medicine. London: The Stationery Office.
4. Dombovy ML (1998). Multiple sclerosis and Parkinson's Disease rehabilitation. In: Lazar R (editor): Principles of neurological rehabilitation. New York: McGraw-Hill. pp. 173-197.
5. Donohoe KM, Wineman NM, O'Brian RA (1996). Are alternate long-term care programs needed for adults with chronic disability? J Neurosci Nurs 28:373-380.
6. Frankel D (2001). Multiple sclerosis. In: Umphred DA, (editor): Neurological rehabilitation. 4th ed. St Louis: Mosby. pp. 595-615.
7. Freeman JA, Thompson AJ (2000). Community services in MS: still a matter of chance. J Neurol Neurosurg Psychiatry 69:728-732.
8. Freeman JA, Langdon DW, Hobart JC, Thompson AJ (1999). Inpatient rehabilitation in multiple sclerosis. Do the benefits carry over into the community? Neurology 52:50-56.
9. Given CW, Given B, Stommel M, Collins C, King S, Franklin S (1992). The caregivers reaction assessment (CRA) for caregivers to persons with physical and mental impairments. Res Nurs Health 15:271-283.
10. Gottberg K, Einarsson U, Fredrikson S, von Koch L, Holmqvist LW (2002). Multiple sclerosis in Stockholm county. A pilot study of utilization of health care resources, patient satisfaction with care and impact on family caregivers. Acta Neurol Scand 106:241-247.
11. Gronning M, Hannisdal E, Mellgren SI (1990). Multivariate analysis of factors associated with unemployment in people with multiple sclerosis. J Neurol Neurosurg Psychiatry 53:388-390.
12. Hammond SR, McLeod JG, Millingen KS, Stewart-Wynne EG, English D, Holland JT, et al. (1988). The epidemiology of multiple sclerosis in three Australian cities: Perth, Newcastle and Hobart. Brain 111:1-25.
13. Hawthorne G, Osborne R (2005). Population norms and meaningful differences for the Assessment of Quality of Life (AqoL) measure. Aust NZ J Public Health 29:136-142.
14. Janssens ACJW, van Doorn PA, van der Meche FGA, Passchier J, Hintzen RQ (2003). Impact of recently diagnosed multiple sclerosis on quality of life, anxiety, depression and distress of patients and partners. Acta Neurol Scand 108:389-395.
15. Kappos L (1998). Placebo controlled multicentre randomized trial of Interferon Beta-1b in the treatment of secondary progressive multiple sclerosis. Lancet 352:1491-1497.
16. Kesselring J (2004). Neurorehabilitation in MS - What is the evidence base? J Neurol 251:25-29.
17. Knight RG, Devereux RC, Godfrey HPD (1997). Psychosocial consequences of caring for a spouse with multiple sclerosis. J Clin Exp Neuropsychol 19:7-19.
18. Kraft GH, Cui JY (2005). In: Delisa JA (editor): Multiple sclerosis in physical medicine and rehabilitation: principles and practice. 4th ed. Philadelphia: Lippincott. pp. 1753-1769.
19. Kraft GH, Freal JE, Coryell JK (1986). Disability, disease duration and rehabilitation service needs in multiple sclerosis: patient perspectives. Arch Phys Med Rehabil 67:164-168.
20. Kurtzke JF (1983). Rating neurological impairment in multiple sclerosis: an expanded disability status scale (EDSS). Neurology 33:1444-1452.
21. Mathews WB, Acheson ED, Batchelor JR, Wellor RO (1985). McAlpine's multiple sclerosis. London: Churchill Livingstone.
22. McLellan DL, Martin JR, Roberts MHW, Spackman A, McIntosh-Michaelis S, Nichols S (1989). Multiple Sclerosis in the Southampton District. Southampton: University of Southampton Research Unit and Department of Sociology.
23. Monks J, Robinson I (1989). The characteristics of a national register of people with multiple sclerosis: a comparison between the ARMS (Action for research into multiple sclerosis) register and 10 British MS populations. J Epidemiol Community Health 43:179-186.
24. MS Society Australia [online]. http://www.msaustralia.org.au. [Accessed 29 July 2005]
25. O'Brien MT (1993). Multiple sclerosis: stressors and coping strategies in spousal caregivers. J Community Health Nurs 10:123-135.
26. Paty DW, Oger JJ, Kastrukoff LF, Hashimoto SA, Hooge JP, Eisen AA, et al. (1988). MRI in the diagnosis of MS: a prospective study with comparison of clinical evaluation, evoked potentials, oligoclonal banding and CT neurology. Neurology 38:180-185.
27. PBS (2005). Schedule of Pharmaceutical Benefit Scheme. Canberra: Australian Government Department of Health and Aging [online]. http://www1.health.gov.au/pbs/scripts/search.cfm. [Accessed 30 July 2005].
28. Poser CM, Paty DW, Scheinberg L, McDonald WI, Davis FA, Ebers GC, et al. (1983). New diagnostic criteria for Multiple Sclerosis: guidelines for research protocols. Ann Neurol 13:227-231.
29. Robinson BC (1983). Validation of a Caregiver Strain Index. J Gerontology 38:344-348.
30. Robinson I, Hunter M, Neilson S (1996). A dispatch from the front line: the views of people with multiple sclerosis about their needs. A qualitative approach. London: Brunnel Research Unit.
31. Rothwell PM, McDowell Z, Wong CK, Dorman PJ (1997). Doctors and patients don't agree: cross sectional study of patients and doctors perceptions and assessments of disability in multiple sclerosis. BMJ 314:1580.
32. Sadovnik AD, Ebers GC (1993). Epidemiology of multiple sclerosis: a critical review. Can J Neurol Sci 20:17-29.
33. Slevin ML, Plant H, Lynch D, Drinkwater J, Gregory WM (1988). Who should measure the quality of life, the doctor or the patient? Br J Cancer 57:109-112.
34. Stenager E, Knudson L, Jensen K (1991). Multiple sclerosis: the impact of physical impairment and cognitive dysfunction on social and spare time activities. Psychother Psychosom 56:123-128.
35. Stolp-Smith KA, Atkinson EJ, Campion ME, O'Brien PC, Rodriguez M (1998). Health care utilization in multiple sclerosis: a population based study in Olmsted County, MN. Neurology 50:1594-1600.
36. Taylor I, Macdonell R, Coleman J (2002). Treatment of multiple sclerosis with newer immune-modulating drugs. Australian Prescriber 25:32-35.
37. Warren S, Cockerill R, Paterson M, Patterson I (1986). Planning support services for chronically sick in rural areas. Can J Public Health 77:19-23.
38. Weinshenker BG, Bass B, Rice GP, Noseworthy J, Carriere W, Baskerville J, et al. (1989). The natural history of multiple sclerosis: a geographically based study. 2. Predictive value of early clinical course. Brain 112:1419-1428.