Diabetes care for emerging adults: Recommendations for transition from pediatric to adult diabetes care systems: A position statement of the ADA, with representation by the ACOFP, the AAP, the AACE, the AOA the CDCP, Children with Diabet., The ES, the ISPAD, JDRFI, the Natl. Diabet. Educ. Prog., and the Pediat. Endocr. Soc. (formerly Lawson Wilkins Ped. Endocr. Soc.)

Diabetes Care

Volumn 34, Issue 11, 2011, Pages 2477-2485

  Peters, Anne ^a   Laffel, Lori ^b   Albright, Ann ^c   Anderson, Barbara ^d   Bloomgarden, Zachary T ^e   Childs, Belinda ^f   Ehlinger, Edward ^g   Hanna, Kathleen M ^h   Hirsch, Irl B ⁱ   Hitchcock, Marissa ^j   Lawrence, Jean M ^k   Lyles, Shannon P ^l   McLaughlin, Sue ^m   Prakasam, Gnanagurudasan ⁿ   Riddell, Michael ^o   Rodriguez, Henry ^j   Shubrook, Jay ^p   Silverstein, Janet ^l   Kirkman, Sue ^q   Puryear, Jennifer ^q  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^b HARVARD MEDICAL SCHOOL   (United States)

^c CENTERS FOR DISEASE CONTROL AND PREVENTION   (United States)

^d BAYLOR COLLEGE OF MEDICINE   (United States)

^e MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^f Mid America Diabetes Association   (United States)

^g UNIVERSITY OF MINNESOTA   (United States)

^h INDIANA UNIVERSITY   (United States)

ⁱ UNIVERSITY OF WASHINGTON   (United States)

^j UNIVERSITY OF SOUTH FLORIDA   (United States)

^k KAISER PERMANENTE   (United States)

^l UNIVERSITY OF FLORIDA   (United States)

^m NEBRASKA MEDICAL CENTER   (United States)

ⁿ Sutter Medical Center   (United States)

^o YORK UNIVERSITY   (Canada)

^p OHIO UNIVERSITY   (United States)

^q NONE

more..

Author keywords

[No Author keywords available]

Indexed keywords

GLUCOSE;

ADULT; ADULTHOOD; AGE DISTRIBUTION; ALCOHOL ABUSE; CHILD HEALTH CARE; DIABETES CONTROL; DIABETES EDUCATION; DIABETES MELLITUS; DRUG ABUSE; EVIDENCE BASED PRACTICE; FOLLOW UP; GLUCOSE BLOOD LEVEL; GLYCEMIC CONTROL; HEALTH CARE DELIVERY; HEALTH CARE ORGANIZATION; HEALTH CARE SYSTEM; HIGH RISK PATIENT; HUMAN; INCIDENCE; INSULIN DEPENDENT DIABETES MELLITUS; NON INSULIN DEPENDENT DIABETES MELLITUS; PATIENT CARE; PREVALENCE; PSYCHOSOCIAL DISORDER; REPRODUCTIVE HEALTH; REVIEW; RISK ASSESSMENT; RISK FACTOR; SEXUAL BEHAVIOR; SMOKING; ADOLESCENT; CHILD; CONFERENCE PAPER; CONSENSUS DEVELOPMENT; MEDICAL SOCIETY; PEDIATRICS; PHYSICIAN; PRACTICE GUIDELINE; SELF CARE; STANDARD;

ADOLESCENT; ADULT; CHILD; DIABETES MELLITUS, TYPE 1; DIABETES MELLITUS, TYPE 2; HUMANS; PEDIATRICS; PHYSICIANS; SELF CARE; SOCIETIES, MEDICAL; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84857092398     PISSN: 01495992     EISSN: 19355548     Source Type: Journal    
DOI: 10.2337/dc11-1723     Document Type: Review

References (77)

1. Weissberg-Benchell J, Wolpert H, Anderson BJ. Transitioning from pediatric to adult care: a newapproach to the post-adolescent young person with type 1 diabetes. Diabetes Care 2007;30:2441-2446 (Pubitemid 47547769)
2. American Diabetes Association. Type 2 diabetes in children and adolescents. Diabetes Care 2000;23:381-389
3. Dabelea D, Bell RA, D'Agostino RB Jr, et al.; Writing Group for the SEARCH for Diabetes in Youth Study Group. Incidence of diabetes in youth in the United States. JAMA 2007;297:2716-2724
4. Liese AD, D'Agostino RB Jr, Hamman RF, et al.; SEARCH for Diabetes in Youth Study Group. The burden of diabetes mellitus among US youth: prevalence estimates from the SEARCH for Diabetes in Youth Study. Pediatrics 2006;118:1510-1518 (Pubitemid 46393797)
5. Centers for Disease Control and Prevention. National Diabetes Fact Sheet: National Estimates and General Information on Diabetes and Prediabetes in the United States, 2011. Atlanta, GA, U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, 2011
6. Harjutsalo V, Sjöberg L, Tuomilehto J. Time trends in the incidence of type 1 diabetes in Finnish children: a cohort study. Lancet 2008;371:1777-1782
7. Patterson CC, Dahlquist GG, Gyürüs E, Green A, Soltész G; EURODIAB Study Group. Incidence trends for childhood type 1 diabetes in Europe during 1989- 2003 and predicted new cases 2005-20: a multicentre prospective registration study. Lancet 2009;373:2027-2033
8. Pinhas-Hamiel O, Zeitler P.The global spread of type 2 diabetes mellitus in children and adolescents. J Pediatr 2005;146:693-700 (Pubitemid 40616257)
9. Lawrence JM, Mayer-Davis EJ, Reynolds K, et al.; SEARCH for Diabetes in Youth Study Group. Diabetes in Hispanic American youth: prevalence, incidence, demographics, and clinical characteristics: the SEARCH for Diabetes in Youth Study. Diabetes Care 2009;32(Suppl. 2):S123-S132
10. Dabelea D, DeGroat J, Sorrelman C, et al.; SEARCH for Diabetes in Youth Study Group. Diabetes in Navajo youth: prevalence, incidence, and clinical characteristics: the SEARCH for Diabetes in Youth Study. Diabetes Care 2009;32(Suppl. 2):S141-S147
11. Mayer-Davis EJ, Beyer J, Bell RA, et al.; SEARCH for Diabetes in Youth Study Group. Diabetes in African American youth: prevalence, incidence, and clinical characteristics: the SEARCH for Diabetes in Youth Study. Diabetes Care 2009;32(Suppl. 2):S112-S122
12. Liu LL, Yi JP, Beyer J, et al.; SEARCH for Diabetes in Youth Study Group. Type 1 and Type 2 diabetes in Asian and Pacific Islander U.S. youth: the SEARCH for Diabetes in Youth Study. Diabetes Care 2009;32(Suppl. 2):S133-S140
13. Bell RA, Mayer-Davis EJ, Beyer JW, et al.; SEARCH for Diabetes in Youth Study Group. Diabetes in non-Hispanic white youth: prevalence, incidence, and clinical characteristics: the SEARCH for Diabetes in Youth Study. Diabetes Care 2009;32(Suppl. 2):S102-S111
14. American Diabetes Association. Economic costs of diabetes in the U.S. In 2007. Diabetes Care 2008;31:596-615
15. Laffel LM, Vangsness L, Connell A, Goebel-Fabbri A, Butler D, Anderson BJ. Impact of ambulatory, family-focused team-work intervention on glycemic control in youth with type 1 diabetes. J Pediatr 2003;142:409-416 (Pubitemid 36521228)
16. Arnett JJ. Emerging adulthood. A theory of development from the late teens through the twenties. Am Psychol 2000;55:469-480
17. Petitti DB, Klingensmith GJ, Bell RA, et al.; SEARCH for Diabetes in Youth Study Group. Glycemic control in youth with diabetes: the SEARCH for diabetes in Youth Study. J Pediatr 2009;155:668-672, e1-e3
18. Hoerger TJ, Segel JE, Gregg EW, Saaddine JB. Is glycemic control improving in U.S. adults? Diabetes Care 2008;31:81-86
19. Bryden KS, Dunger DB, Mayou RA, Peveler RC, Neil HA. Poor prognosis of young adults with type 1 diabetes: a longitudinal study. Diabetes Care 2003;26:1052-1057 (Pubitemid 36929247)
20. Nathan DM, Zinman B, Cleary PA, et al.; Diabetes Control and Complications Trial/Epidemiology of Diabetes Interventions and Complications (DCCT/EDIC) Research Group. Modern-day clinical course of type 1 diabetes mellitus after 30 years'duration: the diabetes control and complications trial/epidemiology of diabetes interventions and complications and Pittsburgh epidemiology of diabetes complications experience (1983-2005). Arch Intern Med 2009;169:1307-1316
21. Rewers A, Chase HP, Mackenzie T, et al. Predictors of acute complications in children with type 1 diabetes. JAMA 2002;287:2511-2518 (Pubitemid 34517196)
22. Rodriguez BL, Fujimoto WY, Mayer-Davis EJ, et al. Prevalence of cardiovascular disease risk factors in U.S. children and adolescents with diabetes: the SEARCH for diabetes in youth study. Diabetes Care 2006;29:1891-1896 (Pubitemid 44156648)
23. Mayer-Davis EJ, Nichols M, Liese AD, et al. SEARCH for Diabetes in Youth Study Group. Dietary intake among youth with diabetes: the SEARCH for Diabetes in Youth Study. J Am Diet Assoc 2006;106:689-697
24. Kershnar AK, Daniels SR, Imperatore G, et al. Lipid abnormalities are prevalent in youth with type 1 and type 2 diabetes: the SEARCH for Diabetes in Youth Study. J Pediatr 2006;149:314-319 (Pubitemid 44308425)
25. Liu LL, Lawrence JM, Davis C, et al.; SEARCH for Diabetes in Youth Study Group. Prevalence of overweight and obesity in youth with diabetes in USA: the SEARCH for Diabetes in Youth study. Pediatr Diabetes 2010;11:4-11
26. Guy J, Ogden L, Wadwa RP, et al. Lipid and lipoprotein profiles in youth with and without type 1 diabetes: the SEARCH for Diabetes in Youth case-control study. Diabetes Care 2009;32:416-420
27. Copeland KC, Zeitler P, Geffner M, et al.; TODAY Study Group. Characteristics of adolescents and youth with recent-onset type 2 diabetes: the TODAY cohort at baseline. J Clin Endocrinol Metab 2011;96:159-167
28. Krolewski AS, Warram JH, Christlieb AR, Busick EJ, Kahn CR. The changing natural history of nephropathy in type I diabetes. Am J Med 1985;78:785-794 (Pubitemid 15008233)
29. Jacobson AM, Hauser ST, Willett J, Wolfsdorf JI, Herman L. Consequences of irregular versus continuous medical follow-up in children and adolescents with insulin-dependent diabetes mellitus. J Pediatr 1997;131:727-733 (Pubitemid 27524853)
30. Laing SP, Swerdlow AJ, Slater SD, et al. The British Diabetic Association Cohort Study, I: all-cause mortality in patients with insulin-treated diabetes mellitus. Diabet Med 1999;16:459-465
31. Pacaud D, Yale JF, Stephure D, Dele-Davies H. Problems in transition from pediatric care to adult care for individuals with diabetes. Can J Diabetes 2005;40:29-35
32. Busse FP, Hiermann P, Galler A, et al. Evaluation of patients' opinion and metabolic control after transfer of young adults with type 1 diabetes from a pediatric diabetes clinic to adult care. Horm Res 2007;67:132-138 (Pubitemid 46355586)
33. Sparud-Lundin C, Ohrn I, Danielson E, Forsander G. Glycaemic control and diabetes care utilization in young adults with Type 1 diabetes. Diabet Med 2008;25:968-973
34. Diabetes Control and Complications Trial Research Group. Effect of intensive diabetes treatment on the development and progression of long-term complications in adolescents with insulin-dependent diabetes mellitus: Diabetes Control and Complications Trial. J Pediatr 1994;125:177-188
35. Morris AD, Boyle DI, McMahon AD, Greene SA, MacDonald TM, Newton RW. Adherence to insulin treatment, glycaemic control, and ketoacidosis in insulin-dependent diabetes mellitus. The DARTS/MEMO Collaboration. Diabetes Audit and Research in Tayside Scotland. Medicines Monitoring Unit. Lancet 1997;350:1505-1510 (Pubitemid 28036554)
36. Juvenile Diabetes Research Foundation Continuous Glucose Monitoring Study Group. Prolonged nocturnal hypoglycemia is common during 12 months of continuous glucose monitoring in children and adults with type 1 diabetes. Diabetes Care 2010;33:1004-1008
37. Tamborlane WV, Beck RW, Bode BW, et al.; Juvenile Diabetes Research Foundation Continuous Glucose Monitoring Study Group. Continuous glucose monitoring and intensive treatment of type 1 diabetes. N Engl J Med 2008;359:1464-1476
38. Polonsky WH, Anderson BJ, Lohrer PA, et al. Assessment of diabetes-related distress. Diabetes Care 1995;18:754-760
39. Lustman PJ, Anderson RJ, Freedland KE, de Groot M, Carney RM, Clouse RE. Depression and poor glycemic control: a meta-analytic review of the literature. Diabetes Care 2000;23:934-942 (Pubitemid 30480020)
40. de Groot M, Anderson R, Freedland KE, Clouse RE, Lustman PJ. Association of depression and diabetes complications: a meta-analysis. Psychosom Med 2001;63:619-630 (Pubitemid 32695143)
41. Lawrence JM, Standiford DA, Loots B, et al.; SEARCH for Diabetes in Youth Study. Prevalence and correlates of depressed mood among youth with diabetes: the SEARCH for Diabetes in Youth study. Pediatrics 2006;117:1348-1358 (Pubitemid 46071530)
42. Hood KK, Huestis S, Maher A, Butler D, Volkening L, Laffel LM. Depressive symptoms in children and adolescentswith type 1 diabetes: association with diabetes-specific characteristics.Diabetes Care 2006;29:1389-1391 (Pubitemid 44125942)
43. Hislop AL, Fegan PG, Schlaeppi MJ, Duck M, Yeap BB. Prevalence and associations of psychological distress in young adults with Type 1 diabetes. Diabet Med 2008;25:91-96
44. Anderson BJ, Edelstein S, Abramson NW, et al. Depressive symptoms and quality of life in adolescents with type 2 diabetes: baseline data from the TODAY study. Diabetes Care 2011;34:2205-2207
45. Jones JM, Lawson ML, Daneman D, Olmsted MP, Rodin G. Eating disorders in adolescent females with and without type 1 diabetes: cross sectional study. BMJ 2000;320:1563-1566 (Pubitemid 30336087)
46. Polonsky WH, Anderson BJ, Lohrer PA, Aponte JE, Jacobson AM, Cole CF. Insulin omission in women with IDDM. Diabetes Care 1994;17:1178-1185 (Pubitemid 24307454)
47. Neumark-Sztainer D, Patterson J, Mellin A, et al. Weight control practices and disordered eating behaviors among adolescent females and males with type 1 diabetes: associations with sociodemo-graphics, weight concerns, familial factors, and metabolic outcomes. Diabetes Care 2002;25:1289-1296 (Pubitemid 41071134)
48. Rydall AC, Rodin GM, Olmsted MP, Devenyi RG, Daneman D. Disordered eating behavior and microvascular complications in young women with insulindependent diabetes mellitus. N Engl J Med 1997;336:1849-1854 (Pubitemid 27263971)
49. Bryden KS, Neil A, Mayou RA, Peveler RC, Fairburn CG, Dunger DB. Eating habits, body weight, and insulin misuse. A longitudinal study of teenagers and young adults with type 1 diabetes. Diabetes Care 1999;22:1956-1960 (Pubitemid 30433971)
50. Peveler RC, Bryden KS, Neil HA, et al. The relationship of disordered eating habits and attitudes to clinical outcomes in young adult females with type 1 diabetes. Diabetes Care 2005;28:84-88 (Pubitemid 40095787)
51. Wilfley D, Berkowitz R, Goebel-Fabbri A, et al.; TODAY Study Group. Binge eating, mood, and quality of life in youth with type 2 diabetes: baseline data from the today study. Diabetes Care 2011;34:858-860
52. Vahratian A, Barber JS, Lawrence JM, Kim C. Family-planning practices among women with diabetes and overweight and obese women in the 2002 National Survey For Family Growth. Diabetes Care 2009;32:1026-1031
53. Schwarz EB, Sobota M, Charron-Prochownik D. Perceived access to contraception among adolescents with diabetes: barriers to preventing pregnancy complications. Diabetes Educ 2010;36:489-494
54. Lawrence JM, Contreras R, Chen W, Sacks DA. Trends in the prevalence of preexisting diabetes and gestational diabetes mellitus among a racially/ethnically diverse population of pregnant women, 1999-2005. Diabetes Care 2008;31:899-904
55. Charron-Prochownik D, Sereika SM, Wang SL, et al. Reproductive health and preconception counseling awareness in adolescents with diabetes:what they don't know can hurt them. Diabetes Educ 2006;32:235-242 (Pubitemid 43472153)
56. Glasgow AM, Tynan D, Schwartz R, et al. Alcohol and drug use in teenagerswith diabetes mellitus. J Adolesc Health 1991;12:11-14
57. Reynolds K, Liese AD, Anderson AM, et al. Prevalence of tobacco use and association between cardiometabolic risk factors and cigarette smoking in youth with type 1 or type 2 diabetes mellitus. J Pediatr 2011;158:594-601, e1
58. Scott LJ, Warram JH, Hanna LS, Laffel LM, Ryan L, Krolewski AS. A nonlinear effect of hyperglycemia and current cigarette smoking are major determinants of the onset of microalbuminuria in type 1 diabetes. Diabetes 2001;50:2842-2849 (Pubitemid 33733137)
59. Alleyn CR, Volkening LK, Wolfson J, Rodriguez-Ventura A, Wood JR, Laffel LM. Occurrence of microalbuminuria in young people with Type 1 diabetes: importance of age and diabetes duration. Diabet Med 2010;27:532-537
60. Maahs DM, Snively BM, Bell RA, et al. Higher prevalence of elevated albumin excretion in youth with type 2 than type 1 diabetes: the SEARCHfor Diabetes in Youth study. Diabetes Care 2007;30:2593-2598 (Pubitemid 47547802)
61. Eppens MC, Craig ME, Cusumano J, et al. Prevalence of diabetes complications in adolescents with type 2 compared with type 1 diabetes. Diabetes Care 2006;29:1300-1306 (Pubitemid 44125926)
62. McGill HC Jr, McMahan CA, Zieske AW, et al.; The Pathobiological Determinants of Atherosclerosis in Youth (PDAY) Research Group. Associations of coronary heart disease risk factorswith the intermediate lesion of atherosclerosis in youth. Arterioscler Thromb Vasc Biol 2000;20:1998-2004 (Pubitemid 30644650)
63. Li S, Chen W, Srinivasan SR, et al. Childhood cardiovascular risk factors and carotid vascular changes in adulthood: the Bogalusa Heart Study. JAMA 2003;290:2271-2276 (Pubitemid 37430559)
64. Järvisalo MJ, Putto-Laurila A, Jartti L, et al. Carotid artery intima-media thickness in children with type 1 diabetes. Diabetes 2002;51:493-498 (Pubitemid 34764808)
65. Haller MJ, Samyn M, Nichols WW, et al. Radial artery tonometry demonstrates arterial stiffness in children with type 1 diabetes. Diabetes Care 2004;27:2911-2917 (Pubitemid 39565058)
66. Pacaud D, Yale JF. Exploring a black hole: Transition from paediatric to adult care services for youth with diabetes. Paediatr Child Health (Oxford) 2005;10:31-34 (Pubitemid 40362905)
67. Nakhla M, Daneman D, To T, Paradis G, Guttmann A. Transition to adult care for youths with diabetes mellitus: findings from a Universal Health Care System. Pediatrics 2009;124:e1134-e1141
68. Insabella G, Grey M, Knafl G, Tamborlane W. The transition to young adulthood in youth with type 1 diabetes on intensive treatment. Pediatr Diabetes 2007;8:228-234 (Pubitemid 47103763)
69. Van Walleghem N, Macdonald CA, Dean HJ. Evaluation of a systems navigator model for transition from pediatric to adult care for young adults with type 1 diabetes. Diabetes Care 2008;31:1529-1530
70. Crowley R, Wolfe I, Lock K, McKee M. Improving the transition between paediatric and adult healthcare: a systematic review. Arch Dis Child 2011;96:548-553
71. Tuchman LK, Schwartz LA, Sawicki GS, Britto MT. Cystic fibrosis and transition to adult medical care. Pediatrics 2010;125:566-573
72. Nakhla M, Daneman D, Frank M, Guttmann A. Translating transition: a critical reviewof the diabetes literature. J Pediatr Endocrinol Metab 2008;21:507-516
73. Holmes-Walker DJ, Llewellyn AC, Farrell K. A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with Type 1 diabetes aged 15-25 years. Diabet Med 2007;24:764-769 (Pubitemid 47012129)
74. Court JM, Cameron FJ, Berg-Kelly K, Swift PG. Diabetes in adolescence. Pediatr Diabetes 2009;10(Suppl. 12):185-194
75. American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 2002;110:1304-1306
76. Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM; Society for Adolescent Medicine. Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine. J Adolesc Health 2003;33:309-311
77. Cooley WC, Sagerman PJ; American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians; Transitions Clinical Report Authoring Group. Supporting the health care transition from adolescence to adulthood in themedical home. Pediatrics 2011;128:182-200