In-house information about and contact with self-help groups in breast cancer patients: Associated with patient and hospital characteristics?

European Journal of Cancer Care

Volumn 21, Issue 2, 2012, Pages 205-212

  Kowalski, C ^a   Weber, R ^b   Jung, J ^a   Ansmann, L ^a   Pfaff, H ^a  

^a UNIVERSITY OF COLOGNE   (Germany)

^b UNIVERSITY HOSPITAL OF COLOGNE   (Germany)

Author keywords

Breast cancer patients; Hospital characteristics; Multilevel analysis; Self help groups

Indexed keywords

ADOLESCENT; ADULT; AGE; AGED; ARTICLE; BREAST TUMOR; CONSUMER HEALTH INFORMATION; CROSS-SECTIONAL STUDY; EDUCATIONAL STATUS; FEMALE; HOSPITAL; HUMAN; METHODOLOGY; MIDDLE AGED; PATIENT EDUCATION; REGRESSION ANALYSIS; RISK; SELF HELP; STANDARD; STATISTICS; TEACHING HOSPITAL;

ADOLESCENT; ADULT; AGE FACTORS; AGED; AGED, 80 AND OVER; BREAST NEOPLASMS; CONSUMER HEALTH INFORMATION; CROSS-SECTIONAL STUDIES; EDUCATIONAL STATUS; FEMALE; HOSPITALS; HOSPITALS, TEACHING; HUMANS; MIDDLE AGED; ODDS RATIO; PATIENT EDUCATION AS TOPIC; REGRESSION ANALYSIS; SELF-HELP GROUPS; YOUNG ADULT;

EID: 84857039592     PISSN: 09615423     EISSN: 13652354     Source Type: Journal    
DOI: 10.1111/j.1365-2354.2011.01309.x     Document Type: Article

References (44)

1. Adamsen L. (2002) 'From victim to agent': the clinical and social significance of self-help group participation for people with life-threatening diseases. Scandinavian Journal of Caring Sciences 16, 224-231.
2. Allison J.J., Kiefe C.I., Weissmann N.W., Person S.D., Rouse A., Canton J., Baecker D., Williams O.D., Farmer R. and Centor R.M. (2000) Relationship of hospital teaching status with quality of care and mortality for Medicare patients with acute MI. The Journal of the American Medical Association 284, 1256-1262.
3. Avis M., Elkan R., Patel S., Walker B.A., Ankti N. and Bell C. (2008) Ethnicity and participation in cancer self-help groups. Psycho-Oncology 17, 940-947.
4. Ayanian J.Z. and Weissman J.S. (2002) Teaching hospitals and quality of care: a review of the literature. The Milbank Quarterly 80, 569-593.
5. Barnett R., Barnett P., Pearce J. and Howes P. (2006) Reconsidering the role of a local diabetes society: patterns of membership in Christchurch, New Zealand. Australian and New Zealand Journal of Public Health 30, 275-278.
6. Bauman L.J., Gervey R. and Siegel K. (1992) Factors associated with cancer patients' participation in support groups. Journal of Psychosocial Oncology 10, 1-20.
7. Borgetto B. and von dem Knesebeck O. (2009) Patientenselbsthilfe, Nutzerperspektive und Versorgungsforschung. Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz 52, 21-29.
8. Bottomley A. (1997) Cancer support groups - are they effective? European Journal of Cancer Care 6, 11-17.
9. Braun J. and Opielka M. (1992) Selbsthilfeförderung durch Selbsthilfekontaktstellen. Schriftenreihe des BMFuS. Kohlhammer, Stuttgart, Germany.
10. Campbell H.S., Phaneuf M.R. and Deane K. (2004) Cancer peer support programs-do they work? Patient Education and Counseling 55, 3-15.
11. Dillman D.A. (1978) Mail and Telephone Survey. The Total Design Method. Wiley and Sons, New York, NY, USA.
12. Fobair P. (1997a) Cancer support groups and group therapies - Part I. Historical and theoretical background and research on effectiveness. Journal of Psychosocial Oncology 15, 63-81.
13. Fobair P. (1997b) Cancer support groups and group therapies - Part II. Process, organizational, leadership, and patient issues. Journal of Psychosocial Oncology 15, 123-147.
14. Gaber E. and Hundertmark-Mayser J. (2005) Gesundheitsbezogene Selbsthilfegruppen - Beteiligung und Informiertheit in Deutschland. Ergebnisse des Telefonischen Gesundheitssurveys 2003. Das Gesundheitswesen 67, 620-629.
15. Geene R., Huber E., Hundertmark-Mayser J., Moller-Bock B. and Thiel W. (2009) Entwicklung, Situation und Perspektiven der Selbsthilfeunterstützung in Deutschland. Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz 52, 11-20.
16. Grande G.E., Myers L.B. and Sutton S.R. (2006) How do patients who participate in cancer support groups differ from those who do not? Psycho-Oncology 15, 321-334.
17. Gray R., Fitch M., Davis C. and Phillips C. (1997) A qualitative study of breast cancer self-help groups. Psycho-Oncology 6, 279-289.
18. Grilli R., Minozzi S., Tinazzi A., Labianca R., Sheldon T.A. and Liberati A. (1998) Do specialists do it better? The impact of specialization on the processes and outcomes of care for cancer patients. Annals of Oncology 9, 365-374.
19. Hitch P.J., Fielding R.G. and Llewelyn S.P. (1994) Effectiveness of self-help and support groups for cancer patients: a review. Psychology and Health 9, 437-448.
20. Hoey L.M., Ieropoli S.C., White V.M. and Jefford M. (2008) Systematic review of peer-support programs for people with cancer. Patient Education and Counseling 70, 315-337.
21. Hox J.J. (1995) Applied Multilevel Analysis. TT-Publikaties, Amsterdam, the Netherlands.
22. Hox J.J. (2002) Multilevel Analysis: Techniques and Applications. Lawrence Erlbaum Associates, Mahwah, NJ, USA.
23. Hundertmark-Mayser J. and Möller B. (2004) Gesundheitsberichterstattung des Bundes (Federal Health Reporting), Vol. 23. Robert-Koch-Institut, Berlin, Germany.
24. Kofahl C., Hollmann J. and Moller-Bock B. (2009) Gesundheitsbezogene Selbsthilfe bei Menschen mit Migrationshintergrund. Chancen, Barrieren, Potenziale. Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz 52, 55-63.
25. Kofahl C., Mnich E., Staszczukova P., Hollmann J., Trojan A. and Kohler S. (2010) Mitgliedergewinnung und -aktivierung in Selbsthilfeorganisationen. Ergebnisse einer Befragung von Selbsthilfeorganisationen auf Bundesebene. Das Gesundheitswesen 72, 729-738.
26. Kowalski C., Nitzsche A., Scheibler F., Steffen P., Albert U.S. and Pfaff H. (2009) Breast cancer patients' trust in physicians: the impact of patients' perception of physicians' communication behaviors and hospital organizational climate. Patient Education and Counseling 77, 344-348.
27. Kühner S., Fietkau R., Bruns S., Gonzalez D.V. and Geyer S. (2006) Wissen Mitglieder von Selbsthilfegruppen mehr über Brustkrebs? Wissen zur Erkrankung, Behandlung und Prävention bei Patienten im Vergleich. Psychotherapie, Psychosomatik, Medizinische Psychologie 56, 1-7.
28. Kupersmith J. (2005) Quality of care in teaching hospitals: a literature review. Academic Medicine 80, 458-466.
29. Kyrouz E.M., Humphreys K. and Loomis C. (2002) A review of research on the effectiveness of self-help mutual aid groups. In: American Self-Help Clearinghouse Self-Help Group Sourcebook, 7th edn (eds White B.J. and Madara E.J.), pp. 1-16. Saint Clare's Health Services, Denville, NJ, USA.
30. Landon B.E., Normand S.L., Lessler A., O'Malley A.J., Schmaltz S., Loeb J.M. and McNeil B.J. (2006) Quality of care for the treatment of acute medical conditions in US hospitals. Archives of Internal Medicine 166, 2511-2517.
31. Lieberman M.A. and Snowden L.R. (1993) Problems in assessing prevalence and membership characteristics of self-help group participants. The Journal of Applied Behavioral Science 29, 166-180.
32. Munn-Giddings C. and Borkman T. (2005) Self-help/mutual aid as a psychosocial phenomenon. In: Mental Health at the Crossroads: The Promise of the Psychosocial Approach (eds Ramon S. and Williams J.E.), pp. 137-154. Ashgate, Aldershot, UK.
33. NAKOS (2008) NAKOS-Studien: Selbsthilfe im Überblick 1; Zahlen und Fakten 2007. NAKOS, Berlin, Germany.
34. Pfaff H., Freise D., Mager G. and Schrappe M. (2003) Der Kölner Patientenfragebogen (KPF): Entwicklung und Validierung eines Fragebogens zur Erfassung der Einbindung des Patienten als Kotherapeuten. Asgard-Verlag, Sankt Augustin, Germany.
35. Plass A. and Koch U. (2001) Participation of oncological outpatients in psychosocial support. Psycho-Oncology 10, 511-520.
36. Silverman-Dresner T. (1989) Self-help groups for women who have had breast cancer. Imagination, Cognition and Personality 9, 237-243.
37. Snijders T.A.B. and Bosker R.J. (2003) Multilevel Analysis. An Introduction to Basic and Advanced Multilevel Modeling. Sage, London, UK.
38. Sobin L.H. and Wittekind C. (2002) UICC TNM Classification of Malignant Tumors, 6th edn. John Wiley and Sons, New York, NY, USA.
39. Steffen P., Kowalski C., Scheibler F., Würstlein R. and Pfaff H. (2009) Informationsvermittlung und shared decision-making bei Patientinnnen mit primären Mammakarzinom. Ergebnisse der Patientinnenbefragung in den NRW-Brustzentren. Geburtshilfe und Frauenheilkunde 69, 1005-1011.
40. Stevinson C., Lydon A. and Amir Z. (2011) Cancer support group participation in the United Kingdom: a national survey. Supportive Care in Cancer 19, 675-683.
41. Trojan A. (1989) Benefits of self-help groups: a survey of 232 members from 65 disease-related groups. Social Science and Medicine 29, 225-232.
42. Trojan A., Nickel S., Amhof R. and Böcken J. (2006) Soziale Einflussfaktoren der Teilnahme an Selbsthilfezusammenschlüssen. Ergebnisse ausgewählter Fragen des Gesundheitsmonitors. Das Gesundheitswesen 68, 364-375.
43. Ussher J., Kirsten L., Butow P. and Sandoval M. (2006) What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer. Social Science and Medicine 62, 2565-2576.
44. Wohlfahrt N. and Breitkopf H. (1995) Selbsthilfegruppen und Soziale Arbeit. Lambertus, Freiburg, Germany.