Ethnicity and participation in cancer self-help groups

Psycho-Oncology

Volumn 17, Issue 9, 2008, Pages 940-947

  Avis, Mark ^a   Elkan, Ruth ^a   Patel, Seeta ^a   Walker, Barbara Anne ^b   Ankti, Neruma ^b   Bell, Caroline ^b  

^a UNIVERSITY OF NOTTINGHAM   (United Kingdom)

^b Self Help Nottingham   (United Kingdom)

Author keywords

Cancer; Ethnicity; Oncology; Qualitative method; Self help

Indexed keywords

ARTICLE; CONFIDENTIALITY; CONTROLLED STUDY; ETHNIC DIFFERENCE; ETHNIC GROUP; ETHNICITY; HUMAN; HUMAN RELATION; INTERVIEW; LEARNING; MAJOR CLINICAL STUDY; NEGRO; NEOPLASM; PATIENT PARTICIPATION; QUALITATIVE ANALYSIS; RACISM; RELIGION; SELF HELP; TRUST;

ADAPTATION, PSYCHOLOGICAL; AFRICAN CONTINENTAL ANCESTRY GROUP; CULTURE; EUROPEAN CONTINENTAL ANCESTRY GROUP; GREAT BRITAIN; HUMANS; ILLNESS BEHAVIOR; INTERVIEW, PSYCHOLOGICAL; NEOPLASMS; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT SATISFACTION; SELF-HELP GROUPS;

EID: 53349144454     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.1284     Document Type: Article

References (53)

1. Gill PS, Kai J, Bhopal RS, Wild S. Black and Minority Ethnic Groups, 2003. (Available from: http://hcna.radcliffe-oxford.com/ bemg.htm) (accessed 5 January 2007).
2. Harding S, Rosato M. Cancer incidence among first generation Scottish, Irish, West Indian and South Asian migrants living in England and Wales. Ethnicity Health 1999;4:83-92.
3. Smith LK, Peake MD, Botha JL. Recent changes in lung cancer incidence for South Asians: a population based register study. Br Med J 2003;326:81-82.
4. Smith LK, Botha JL, Benghiat A, Steward WP. Latest trends in cancer incidence among UK south Asians in Leicester. Br J Cancer 2003; 89:70-73.
5. Fobair P. Cancer support groups and group therapies: part I. Historical and theoretical background and research on effectiveness. J Psychosocial Oncol 1997; 15:43-81.
6. Fobair P. Cancer support groups and group therapies: part II. Process, organizational, leadership, and patient issues. J Psychosocial Oncol 1997;15:123-147.
7. Gray R, Fitch M, Davis C, Phillips C. A qualitative study of breast cancer self-help groups. Psycho-Oncology 1997;6:279-289.
8. Hitch PJ, Fielding RG, Llewelyn SP. Effectiveness of self-help and support groups for cancer patients: a review. Psychol and Health 1994;9(6):437-448.
9. Johnson J, Lane C. Role of support groups in cancer care. Support Care Cancer 1993;1:52-56.
10. Silverman-Dresner T. Self-help groups for women who have had breast cancer. Imagination Cognit Pers 1989-1990;9:237-243.
11. Spiegel D. A psychosocial intervention and survival time of patients with metastatic breast cancer. Advances 1991;7:10-19.
12. Urben L. Patient support. Self-help groups in palliative care. Eur J Palliative Care 1997;4:26-28.
13. Borkman T. Understanding Self-Help/Mutual Aid: Experiential Learning in the Commons. Rutgers University Press: New Brunswick, 1999.
14. Charlton G, Barrow C. Coping and self-help group membership in Parkinson's disease: a qualitative study. Health Social Care Community 2002;10:472-478.
15. Elsdon K, Reynolds J, Stewart S. Sharing Experience, Living and Learning: A Study of Self-Help Groups. Community Matters: London, 2000.
16. Katz A. Fellowship, helping, and healing: the re-emergence of self-help groups. Int J Self-help Self Care 2003-2004;2:21-33.
17. Munn-Giddings C, Borkman T. Self-help/mutual aid as a psychosocial phenomenon. In Mental Health at the Crossroads: The Promise of a Psychosocial Approach, Ramon S, Williams J (eds). Ashgate: London, 2005.
18. Barnett R, Barnett P, Pearce J, Howes P. Reconsidering the role of a local diabetes society: patterns of membership in Christchurch, New Zealand. Aust N Z J Public Health 2006;30:275-278.
19. Humphreys K, Woods M. Researching mutual help group participation in a segregated society. In Understanding the Self-help Organization, Powell T (ed.). Sage Publications: Thousand Oaks, CA, 1994.
20. Snowden LR, Lieberman MA. Problems in assessing prevalence and membership characteristics of self-help group participants. J Appl Behav Sci 1993;29:166-180.
21. Montazeri A. A descriptive study of a cancer support group. Eur J Cancer Care 1996;5:32-37.
22. Jones K, Baggott R, Allsop J. Under the influence. Health Serv J 2000;16:28-29.
23. Small N, Rhodes P. Too III to Talk: User Involvement in Palliative Care. Routledge: London, 2000.
24. Aspinall PJ, Jacobson B. Ethnic Disparities in Health and Health Care: A Focused Review of the Evidence and Selected Examples of Good Practice. London Health Observatory: London, 2004. (Available from the London Health Observatory (LHO) website at: http://www.lho.org.uk/ Download/Public/8832/1/Ethnic_Disparities_Exec_Summary_4.pdfho.org.uk) (accessed 4 June 2007).
25. Hernández-Plaza S, Alonso-Morillejo E, Pozo-Muñoz C. Social support interventions in migrant populations. Br J Soc Work 2006;36:1151-1169.
26. Pugliesi K, Shook SL. Gender, ethnicity, and network characteristics: variation in social support resources. Sex Roles 1998; 38:215-238.
27. Sin CH. Expectations of support among White British and Asian-Indian older people in Britain: the inter-dependence of formal and informal spheres. Health Social Care Community 2006;14:215-224.
28. Snowden LR. Racial differences in informal help seeking for mental health problems. J Community Psychol 1998; 26:29-438.
29. Blakemore K. Health and social care needs in minority communities: an over-problematized issue? Health Social Care Community 2000; 8:22-30.
30. Deepak N. Beyond the Barriers. CancerBACUP: London, 2004.
31. Jewson N, Jeffers S, Virinder K. 'In our Blood': respite services, family care and Asian communities in Leicester. Unpublished Report, Department of Sociology, University of Leicester, 2003.
32. Kam YW. Chinese Older People: A Need for Social Inclusion in Two Communities. Joseph Rowntree Foundation and Policy Press: Bristol, 2000.
33. Katbamna S, Ahmad W, Bhakta P, Baker R, Parker G. Do they look after their own? Informal support for South Asian carers. Health Social Care Community 2004;12:398-406.
34. Department of Health. The NHS Improvement Plan: Putting People at the Heart of Public Service. HMSO: London, 2004.
35. Department of Health. National Standards, Local Action: Health and Social Care Standards and Planning Framework 2005/06-2007/08. HMSO: London, 2004.
36. Department of Health. Research Evidence on the Usefulness of Self Care Support Networks for Care of People with Minor Ailments, Acute Illness and Long- Term Conditions and Those Taking Initiatives to Stay Healthy. HMSO: London, 2004.
37. Department of Health. Self Care - A Real Choice. HMSO: London, 2005.
38. Guidry J, Aday LA, Zhang D, Winn RJ. The role of informal and formal sodial support networks for patients with cancer. Cancer Pract 1997;5:241-246.
39. Moody GA, Bhakta P, Mayberry JF. Disinterest in local self-help groups amongst patients with inflammatory bowel disease in Leicester. Int J Colorectal Dis 1993;8:181-183.
40. Chesler M. Participatory action research with self-help groups: an alternative paradigm for inquiry and action. Am J Community Psychol 1991;19:757-768.
41. Washington W. Collaborative/participatory research. J Health Care Poor Underserved 2004;15:18-29.
42. Wilson J. How to Work with Self-help Groups: Guidelines for Professionals. Arena: Aldershot, 1995.
43. Mason J. Qualitative Researching. Sage Publications: London, 1996.
44. Self Help Nottingham. Self Help and Black and Ethnic Communities: Good Practice Guidelines. Self Help Nottingham, Nottingham, 2005.
45. Frank AW. The Wounded Storyteller: Body, illness, and Ethics. University of Chicago Press: Chicago, 1995.
46. Mattingly C. Healing Dramas and Clinical Plots: The Narrative Structure of Experience. Cambridge University Press: Cambridge, 1998.
47. Akutsu PD, Snowden LR, Organista KC. Referral patterns in ethnic-specific and mainstream programs for ethnic minorities and whites. J Counseling Psychol 1996;43:56-64.
48. Ashing-Giwa KT, Padilla G, Tejero J et al. Understanding the breast cancer experience of women: a qualitative study of African American, Asian American, Latina and Caucasian cancer survivors. Psycho-Oncology 2004;13:408-428.
49. Barg FK, Gullatte MM. Cancer support groups: meeting the needs of African Americans with cancer. Semin Oncol Nurs 2001; 17:171-178.
50. Ben-Ari AT. Alternative modalities of help within socio-political and ethnic minorities: self-help among Arabs living in Israel. Community Ment Health J 2001;7: 3245-3259.
51. Sue S, Fujino D, Hu L, Takeuchi DT, Zane NW. Community based mental health services for ethnic minority groups: a test of the cultural responsiveness hypothesis. J Consult Clin Psychol 1991; 58:533-540.
52. Hamilton A. Self-help and mutual aid in ethnic minority communities. In Self-help Groups in a Changing World, Katz A, Bender EI (eds). Third Party Publishing: Oakland, 1990.
53. Mok E, Martinson I. Empowerment of Chinese patients with cancer through self-help groups in Hong Kong. Cancer Nurs 2000;23:206-213.